Making My Peace With My Decline

I’ve been living in long term care for over a month now. Updates are in order. My feet no longer hurt. Now it’s both of my knees. I can barely stand up because of the pain, let alone walk. My knees hurt so bad I can’t even lay on my back in bed because of the pain. I’m back to sleeping in my recliner most of the time.

My high blood pressure issues have been solved. Now low blood pressure is a problem. I can barely stand up or go to the bathroom without feeling like I’m going to pass out. I also have the problem that I’m forced to do physical therapy even though I can barely stand up without passing out. I try to explain my problems to the nurses. No one is listening. I can’t get anyone to listen to my problems. Supposedly a doctor ordered me to do physical therapy even though that was NEVER brought up the only time I’ve met with a doctor since I’ve moved to long term care.

I couldn’t manage my blood pressure issues and mental health at the same time anymore. Home health coming to check in on me a couple times a week was only temporary. I live alone and I can no longer drive. So I couldn’t get to any of my doctors’ appointments. My blood pressure meds couldn’t be renewed via Zoom calls. That’s why I opted for long term care. I can’t drive so I can’t get to my medical appointments. My mobility is severely limited to where I’m wheel chair bound now. Even though I’m in long term care, my problems are still not being listened to. I am by far the youngest person in my facility.

After years of loss, fighting mental illness, no one taking my complaints serious, decline of physical health, loss of friends, loss of career, and the general overall decline of the state of the world, I have made my peace with my mental and physical decline. I’ve even made my peace with death. I’m tired of fighting losing battles. I’m tired of trying to put a positive spin on everything. No, my mental health will never get better. No, I can’t fight mental illness and physical decline at the same time anymore. I am tired of being ignored. I’m tired of being blown off. I am tired of being told I’m lucky. I am tired of being told to man up and stop complaining all the damn time. I’ve made my peace with death. I’ve made my peace that most of my dreams will never be fulfilled. I’ve made my peace with declining health. I’ve made my peace with the world never being a good place. I don’t know why no one else can.

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October 15 2021

Today might be just another Friday to most people. For me, today is the day I get to return to my apartment. I’m anxiously looking forward to eating my own cooking and sleeping in my own bed once more. I’ve been sleeping a lot these last three weeks. Of course I haven’t had much for caffeine since I went to the hospital. As it is, I’m on a few blood pressure meds and will be for life. But blood pressure issues run in my family.

I’m looking forward to getting back to my old routine. I’m currently at a small facility for physical rehab a couple hours drive from my hometown. Right now I’m just waiting on my ride to arrive. My parents are coming from out of state to help me get back home and get reestablished. They probably won’t be here until early afternoon. But, it’s good to be back. Three weeks ago I wasn’t sure I could even live on my own again. After three weeks of intense treatments and rehab, I’m ready to live alone again. I’ll still have my cleaning lady arrive every week. My neighbors will still help with laundry. And I still have at least a few places in my town that will do same day grocery delivery. It’s going alright.

Update On My Serious Health Scare

It is Sunday October 10 2021 as I write this. My blood pressure is back under control thanks to a few blood pressure medications. I’ve been doing physical rehab for over a week. It’s looking like I will be able to go back home within a few days. I can get around in my hospital room without a walker. As part of my physical rehab, I’ve been outside several times in the last week. The weather is turning cooler the deeper into fall we go. Looks like my town might get it’s first frost by the end of this week.

I was retaining a lot of fluid. In the almost three weeks I’ve been in the hospital, I’ve lost 40 pounds in fluids. That was in addition to the 40 pounds I had already lost during the pandemic. Overall, I’m down over 80 pounds in less than two years. I still have a long way to go, but I’m off to a good start. I eventually want to be at my old college weight. It’ll take at least another three years.

The biggest thing I missed over the last three weeks was my own cooking. I’m probably going to cook some grilled pork and cheese soup for my first meal out in the world again. I’ll be ready for this ordeal to end. Haven’t slept in my own bed in almost three weeks.

Maintaining Mental and Physical Well Being During A Pandemic

It’s the middle of August.  The weather is still quite hot, so I spend most of my time indoors with a fan running.  Overall I’m feeling stable and content.  I think it helps that I avoid irritable and rude people as much as possible.  I’m now at least a week into giving up coffee.  I’ve replaced it with black tea.  I feel less irritable and paranoid.  I think the caffeine effects me more negatively now than it did even a couple years ago.  I used to drink over six cups of coffee a day with no problems.  Those days aren’t coming back.

I am staying up later and waking up later now.  I usually go to bed at midnight and wake for good at 9am now.  I usually eat only twice a day, with my biggest meal usually being lunch.  I think I’ve lost weight during this pandemic.  I know my clothes fit better and I recover from aches and pains faster.  And I usually make a point to leave my apartment several days a week, even if it’s something as simple as going to the library on my floor or picking up my mail.

As far as my diet goes, I have given up most sugar and carbs.  I eat mostly meat, canned vegetables, soups, etc.  I seem to be less lethargic and irritable with this diet.  I almost never eat bread or pasta anymore.

Had my prescription medications renewed at my last psych doctor’s appointment a couple weeks ago.  We did a teleconference.  So my meds are taken care of for another few months.  Since I get them mailed to my home, I don’t even need to go to the pharmacy anymore.  I do most of my shopping online these days.  If I need anything from a store that doesn’t deliver, I can usually sweet talk one of my neighbors or my cleaning lady to pick it up.

My cleaning lady is back to work.  She had to had surgery two months ago.  Yesterday was her first day back.  I’m glad to see her again.  I get a cleaned home and some conversation while she’s here.  She’s real chatty so she actually likes chatting when she works.  I usually just sit in my recliner and stay out her way when she works.

Overall I’m doing alright in spite the pandemic and economic woes, at least for now.  I’m hopeful as there are several possibilities for vaccines in trials right now.  And we didn’t even know what covid 19 was one year ago.  It’s quite amazing how fast researchers were able to get that work done.  I know some of my friends don’t take covid 19 as seriously as they should, saying things like “it’s not the Black Death.”  Thank God it isn’t.

Caring For Physical Health During Quarantine and Hope For The Future

Had a short lived breakdown a few days ago.  I think weeks of isolation finally got to me.  It was intense, but short lived.  In this case, I was able to vent over the phone to my family.  After I had vented for a half hour, I took a long nap.  I was grateful to have not had this breakdown in public.  I fear if I have a breakdown in public I’ll end up in jail.  It seems that in too many cases, people don’t understand mental illness.  I am convinced most people, even with the internet, may not realize just how prevalent mental illnesses really are.

I have some cool neighbors that, while they may not share many of my interests in science and literature, are excellent and understanding people.  They may not share my interests, but at least they don’t condemn me for having different interests.  I sometimes buy them groceries and keep them company while they help with my laundry and cook for me at least a couple times a week.  Even during a pandemic and bad recession, I still have cool neighbors and we help each other out.  It’s helped my physical health to have more home cooked meals and more variety then I normally get.

It’s been several weeks of self quarantine during this outbreak so far. It’s more manageable than it would be otherwise because I stay in contact with my neighbors, friends, and family.  I try to call my parents a few times a week.  I have a friend and some cousins I keep in contact with via Facebook.  I have cool neighbors who have helped me immensely over the last several months.  I just hope I can pay it back and/or forward someday.

Because of my bad back and knee, my mobility is not what it was even a few years ago.  Most jobs I ever had, like factory worker or janitor, I was on my feet for several hours at a time.  If there is anything from my twenties and early thirties I dearly miss, it’s how easy mobility was in those days.  There were many days in those years I would walk all over the neighborhood, the old downtown, and the parks in my town just to break up my days.  While I am happy with the experiences I’ve had in the past and the wisdom I now have as I’m only a few weeks away from my 40th birthday, I do miss my mobility.  I hurt my back in a car accident a few years ago and it was never the same even after rehab.  Granted, being overweight only made my problems worse.  At least I haven’t gained weight for over a year and a half.

While I don’t think I’ve lost weight lately, I don’t think I’ve gained either.  My clothes still fit the same as they did eighteen months ago even with less walking and standing.  I have made changes to my diet and routine that my be keeping me from really tacking on the weight.  I rarely eat carbs or sugars.  I lift weights most days.  I sleep probably nine to ten hours a night most days.  I avoid stressful situations and people as much as possible.  I meditate usually an hour a day.  For this I usually just lie in bed and do breathing exercises.  I turn on my CPAP machine and just do the rhythmic breathing.  I imagine people can get the same benefits through just focusing on their breathing with their eyes closed or through prayer.  It also helps that I eat more vegetables.  Even though most my vegetables are canned or in soups, it’s better than nothing.  I take a multivitamin every morning.  I take a vitamin C pill too.  I’ve heard it can help boost immune system.  While I still get colds, they are usually mild and last only a day or two at most.  Sometimes I will wake up with a bad running nose and sneezing.  After a vitamin C pill and extra fluids with breakfast, I’ll be fine within a few hours.  And my fluids are usually nothing more than just tap water or cold tea.

I still have aches and pains, usually in the mornings.  Sometimes actions as simple as getting up and moving around for a couple minutes can be enough to clear this up.  It can be cleared up with something as simple as getting out of bed, using the bathroom, and doing my morning wash up routines.  Warm baths can help with sore joints too.  My dad always said soaking his hands in warm water every morning helps with the pain in his fingers and thumbs.  Now that I’m starting to have sore knees, I understand why he does this every morning.  Many times the best thing I can do for sore joints is to force myself to move around.  Even when I’m working on a blog or watching a movie, I force myself to stand up usually once every hour no matter how busy I am.  I do the same thing when I’m reading a book in bed.  My joints thank me when I move around more regularly.  Maybe it was a good thing that I rarely had desk jobs in my younger years.

Even during a quarantine and major recession I try to stay optimistic and positive.  I usually make myself watch at least one encouraging video per day on Youtube.  I have been watching videos on positives that are coming due to the pandemic.  One positive for me is that I am forced to watch my physical well being more closely and I have more of a sense of urgency to stay in contact with family and friends.  In the past, I was sometimes guilty of being annoyed if a friend or family member called my phone when I was preoccupied.  I’m not nearly this bad anymore.  I don’t even really get that annoyed when someone calls and I’m in the bathroom or sleeping.  I’ve even found myself telling my friends when they found out I was asleep, “I needed to be woke up anyway.  Don’t feel bad.”

We are now several weeks into this crisis.  While I’m not naïve enough to believe we will have major sporting events even this fall, I am hopeful that we can weather this crisis.  To quote Matt Damon from ‘The Martian’, we will “have to science the **** out of this” but we are already doing this.  I am hopeful we can have a vaccine and or effective treatments for this corona virus by this time next year.  My mother remembers the polio crisis in the 1950s and getting vaccinated when she was a child. I imagine the generation that are children right now will be talking about the corona quarantines of 2020 even when they are old men and women.  Hopefully, a few of them can be talking about while living in colonies on the moon and Mars.  As bad as the job losses and conflicting information has been in 2020, I can’t imagine how tough this pandemic would have been had it happened back even in the 1980s before easy access to internet and the medical testing we have now.

Adapting to Changes of Middle Age

Been sleeping more the last few days.  I think I’m trying to fight off a cold, again.  Been hitting the fluids and vitamin C.  Hopefully this passes quickly.  I haven’t been socializing as much the last few days either.  I have been to tired to be much for decent conversation.  I have gone easier on reading the last few days too.  I essentially want to sleep as often as possible.

I getting to where I’m ready for spring.  Spring is usually my happiest time of year, especially in May and June.  For some reason I just don’t well in the heat of late summer.  August is traditionally a tough time for me.  I think I’ve gotten my fill of winter.  Fortunately it hasn’t been as tough of a winter this year as last.  We haven’t had much snow in my town since the first of the year.  The air hasn’t felt dry, it just hasn’t snowed or rained much in my town the last several weeks.

A lot of sickness has been going around my complex and my town this winter.  Other than a bad cold around the first of the year, I have avoided it.  Even though I still don’t socialize much in person, I’ve been making a point of leaving my apartment at least once a day the last few days.  I think I’m just wanting to be out and about more.  Even when I have deliveries to my place, I now meet them in the lobby rather than wait for them at home.  I usually have a decent idea of what time my delivery guys will arrive, so I usually go to the lobby a few minutes before they arrive.  It gives me an extra reason to move around more and gets me out of the apartment, at least for several minutes.

My mother’s birthday was yesterday.  She’s now in her seventies.  I was talking to her yesterday and she said her age doesn’t get her as much as having her youngest son (me) going to be forty this summer.  I guess being forty doesn’t traumatize me as much as I thought it would.  I do regularly shave now as I was noticing a few gray hairs in my beard.  That I spent much of my thirties with a beard.  I haven’t been losing hair but I’ve noticed my hair doesn’t grow as fast as it once did.  The only real part of being middle aged that bothers me is that I just don’t have the endurance I did even a few years ago.  I used to walk 3 miles a day all the way until my mid 30s with no problems.  Most of the jobs I ever had required me to be on my feet most of the time.  I now understand why people look for desk jobs once they hit their late 30s.  My mind is as strong as ever, but the body just isn’t keeping up anymore.  I’m still adapting to this.

I have now accepted that there isn’t any embarrassment in asking for help, especially with physical tasks.  It took me awhile to adapt to this.  For as long as I can remember until a couple years ago, I was the one who was doing physical tasks for others on a daily basis.  When I worked retail, I didn’t mind lifting heavy items or stocking shelves.  I didn’t mind the lifting and walking involved in factory work.  I enjoyed being on my feet when I worked as a janitor for a few years.  But that kind of endurance has faded over the last few years.  I was so used to helping others I didn’t bother to keep track of what I did to help others.  I didn’t mind living on the top floor of an apartment complex and parking as far away as possible from the front door just because I was quite mobile.  Not anymore, at least the mobility part.  I still try to help people, even if it’s as simple as keeping clutter off the floor so my cleaning lady can get her work done quicker.  For years I helped others and didn’t think of doing otherwise.  But I guess now I can ask for help as needed.  See, it does pay to help others.

Dealing With Loss, Isolation, and Declining Health

Haven’t written for a few days.  I’m only now recovered from the holidays.  I still have a hard time wrapping my mind around the fact that it’s 2020.  I am understanding why my grandmother said that time only goes faster the older you get.  I’m going to be 40 this summer.  Mentally I don’t feel any decline.  If anything, I feel mentally sharper and stronger than ever.  Physically, my body can no longer keep up with my mind.  It’s been this way for a couple years now.  I would love to be able to road trip and visit friends in person and go to concerts and ballgames at a moment’s notice like I did in my late 20s and early 30s.  But the body can no longer keep up.  I don’t know how much of it is aging, how much of it is the toll of two decades fighting a severe mental illness, how much of it is being overweight, etc.  At this point I guess it doesn’t matter either way.  I am pretty much content to stay home, chat with my old friends online, read my books, mess with my computers, and watch the events of our time and place unfold from my apartment.

Found out right before Christmas one of my college classmates died.  He was only 40.  He worked at a mental health hospital and was a compassionate man.  I hadn’t talked to him much since graduation.  I’m glad we found each other on facebook and were able to reestablish contact shortly before he died.  And then just yesterday I found out another college friend’s cancer has come back.  This time it’s terminal.  The doctors told her she has two to five years at most.  Starting to lose my own friends now.

Seeing most of my friends struggle financially has taken a toll on me.  And now that most of them are in declining physical and mental health and even starting to die is making this only worse.  It has gotten me to think about my own mortality far more than ever.  At my last doctor’s appointment, I was relieved to find I was not diabetic.  The only real problem they found was high blood pressure.  I no longer have much for stamina.  That’s one of the reasons I stay home so much.  Going out in public is now enough of an ordeal that I no longer enjoy it.  Add to this that most people I know are more stressed and short tempered than ever, I have no want to leave my apartment.  I have enough problems of my own to catch an ear full from my neighbors and landlord.  Sometimes I get in trouble even just staying at home.  Most people in my complex think I’m moving out or getting evicted because I never go out in public anymore.  Naturally, lots of rumors are going around.  No I’m not moving.  As far as I know, I’m not in danger of being evicted.  Though for the last few years I’ve lived in near constant paranoia that I was.  It’s mainly because most people are just so angry and short tempered constantly.  It didn’t used to be this way.  I actually used to enjoy socializing.  Then three of my best friends in my apartment complex died within six months of each other in 2014 and 2015.  From there my social life fell apart.  Other than a few neighbors, I literally have no friends within a fifty mile radius.  I don’t think most people know or care how tough socializing is for a middle aged man with a disability and no immediate family nearby.  I just keep to myself anymore.  I would rather be alone than have to fight with neighbors, coworkers, and complete strangers all the time.

Day After Christmas 2019

It is December 26, 2019 as I write this posting.  I had a rough go a few days right before Christmas.  I had to postpone my holiday plans as I was having some flare ups with the illness.  Even though I spent Christmas Day at home by myself, I made a point of calling my family and getting in touch with friends via phone and social media.  Got to chat with my brother and his kids and find out what they got for Christmas.  I rescheduled my family Christmas for this weekend.  But we’re supposed to have winter storms this weekend, so it may be getting postponed a second time, perhaps until New Year’s Day.  Fortunately there are lots of college football games this weekend.  So even if we do get the several inches of snow and ice and bad winds, I can stay home and watch football.  I just hope the power doesn’t go out.

I don’t have much planned for the next few days other than get ready for the storm and watch some ball games.  In addition to watching a few games already, I have been thinking over the last twelve months.  2019 hasn’t been as eventful as some years, at least not for me.  I did sell my car, I have employed a cleaning lady who has dropped in once a week, and now one of my neighbors is helping with my laundry.  My neighbors drop in a couple times per week and we just check in on each other.  I had my annual physical checkup in early December.  I didn’t lose weight (like I had hoped), yet I didn’t gain weight either.  I don’t know if I stayed steady because of the change of diet and regular weight lifting or what.  I did start on a blood pressure medication.  After a few weeks on it, I notice I feel less tense and am starting to become more active again.

Mentally I kept largely to myself even though I have felt less paranoid and anxious than previous years.  I have had a few flare ups over the last twelve months, but they seem less intense than in previous years.  I still sometimes call my parents and just blow off steam.  I feel guilty for it even though my parents seem to be understanding.  I admit, I have an amazing family for support.  Even the extended family of cousins and aunts are very understanding.  I’ve been doing this blog on a regular basis for six years now.  I’m more comfortable talking about my issues now than I was even when I started this blog.  I certainly didn’t feel comfortable about talking about my problems twenty years ago, not even really to family.  I started having problems when I was seventeen and a junior in high school.  At first I was hoping it was merely teenage angst and anxiety.  Turns out I was wrong.  After using regular medical treatment and therapy for almost twenty years, it is easier to talk about my problems.  I have moved past the acceptance part and now advocating for others besides myself.  I don’t know how long I will get to live, but I plan on talking about these issues for a long as I can.  For awhile I was thinking about starting a youtube channel where I do voice overs just talking about mental illness.  I am still a little leery about broadcasting myself, but not so much my voice.  I hope that mostly paranoia talking.  A friend of mine has a youtube channel featuring her art work and she’s tried to convince me to put some of my thoughts to video instead of just print.  I didn’t get around to it in the 2010s, but who knows what opportunities the 2020s will present.

December 5 2019

Been on my blood pressure meds for a few days now.  I notice that, oddly, I don’t need as much sleep the last few days as previous weeks.  Instead of sleeping for five to six hours at a time, I usually sleep only three to four.  Yet I feel just as rested.  I’m also awake longer in the overnight hours.  Woke at 1am last night and stayed awake until sunrise.  Then went back to sleep for about three hours.  Felt fine afterward.

I’ve noticed I can concentrate on projects longer now than previously.  I wake up with fewer aches and pains.  This evening was the first time in three days I took anything for aches.

Had some laundry done on Wednesday.  My cleaning lady arrived this afternoon.  I might be hosting my neighbors as guests sometime this weekend.  My place is cleaned.  My rent is payed for the month.  My groceries are restocked.  And I’m ready to face the weekend.

Weather has been good for the last few days.  It’s been sunny during the days and cold at night.  Most of the snow from last week is melted.  I heard horror stories from my friends about road conditions over Thanksgiving.  A friend of mine in Denver said they had two feet of snow there.  A friend in South Dakota said they had a blizzard on Thanksgiving weekend.  Kind of glad I didn’t travel for Thanksgiving this year.

Saw my parents early this week.  They dropped off some things and helped me get things rolling on my annual physical and seeing if I can get maybe a home health aide to drop in on me every few days.  As far as the physical goes, my blood pressure is high.  I’m not surprised as it runs in the family.  I’m now on a blood pressure med.  I’ll have a follow up in probably six weeks.

 

December 3 2019

Had my annual physical checkup this morning.  Sadly I haven’t lost any weight since last year, yet I didn’t gain any either.  The really strange thing is my clothing fits better than even last year.  I don’t know if it’s because I gained muscle or if I’m just delusional again.  I started on a blood pressure medication.  Not surprised as my dad has been taking blood pressure medications for over thirty years.  My lab results will be coming back in a day or two.  The big things I got taken care of was the new blood pressure medication, new prescription for a cpap machine, got the paperwork going to try to get some home health aide programs, and just getting everything up to speed again.

I had a physical back in summer 2018.  Shortly after I developed serious agrophobia.  I got to where I was fearful of driving.  I finally sold my car several weeks ago.  I heard it went to a good home.  I got to where I wouldn’t even leave my home most days.  I was just that fearful of being out in public.  And just spending time at home no doubt made my physical health worse and led to the paranoia and phobias just building on themselves.  When I was out in the parking lot waiting for my ride to the doctor’s office, I had two residents who thought I had moved out.  No I haven’t moved out.  I am just home bound most days.

Things have been going down hill for me for right on five years now.  I had three good friends die within six months of each other.  They all lived in my complex.  Then I had another friend die in 2016, also in my complex.  I had my car accident in 2015.  That was the beginning of the end of my road trips.  After that car accident, I went into a deep depression and gained well over 100 pounds in three years.  I had a few rounds of physical therapy.  But that car accident really took most of my confidence.  2016 and 2017 were even more depressing as I had falling outs with most of my family and friends, mostly over politics and religion.  I am still not on speaking terms with much of my family or some of my old college friends.  The whole thing has become a mess I am too overwhelmed to deal with.

I tried to talk to an old friend about toning it down some, but he wouldn’t have anything to do with it.  Told me it was my fault for being so sensitive and triggered.  Well, screw you!  If we as a civilization have gotten to where we no longer care about friends’ emotional health and generally don’t care about empathy, then I want no part of it.  I don’t understand people who care more about politics and religion than their oldest friends.  I never will.  Hell, I don’t want to understand people like that.  The only real positive that has come out of everything falling apart for me is that I got to find out what friends and family were genuine and which ones were frauds.  Sadly I lost most of my friends and don’t talk to most of my family besides my parents and a couple cousins.  Yes I said frauds.  If you care more about your precious damn politics than you do friends and family, you are a fraud.  End of discussion.  This is not open to debate.  You will not be responded to.  You were never a good person.  I’m glad you are out of my life.  Don’t ever come back.