Updates August 3 2022

I’ve now lived in my current place for two months. Updates are in order. My blood pressure is now normal and stabilized. I’m doing physical therapy twice a week trying to get some mobility back. I’m continuing to lose weight, usually a couple pounds per week. I’m eating smaller, but better balanced meals. The nursing and help staff are amazing here. My mobility is still limited to wheel chairs and walkers. I occasionally still get pains in my feet and knees. Usually some tylenol will clear those pains.

The variety of meals here is good. Seems that everything is home made quality. I think we have about 40 residents in my complex, most are senior citizens. I’m still adjusting to having a roommate for the first time in eighteen years. I had just got so used to living alone that having a roommate is probably the biggest adjustment I had to make. I sleep in an adjustable hospital bed. It’s so much easier on my knees and back than traditional beds. I’ve lost enough weight that I can sleep on my sides for part of the night. I’m currently at my lowest weight since late 2017.

Even though I’m at my lowest weight in almost five years, my mobility hasn’t come back as much as I hoped. I can still get around really well with a wheel chair. But I don’t own my own personal wheel chair as I borrow one from the complex. I met with a wheel chair salesman last week and talked to him for a good forty five minutes trying to get me outfitted with a custom made chair. Right now I’m waiting on social security to approve the purchase. I imagine supply chain problems are still an issue on some things.

Had a couple amazon deliveries to my new residence. Had to buy some new shorts as I was running out of pants that properly fit. It’s nice living where I don’t have to worry about doing laundry or cooking my meals anymore. I also enjoy having 24 hour access to health care and not having to worry about filling my prescriptions anymore.

July 24 2022

My blood pressure has returned to normal. My feet no longer hurt. My knees are getting better with each passing day. I got a new adjustable bed. I think that has helped my knees as much as anything. I had a Zoom appointment with my psych doctor. I’m continuing to lose weight at a fast pace. I’m now at my lowest weight in five years. I’m still mostly wheel chair bound. I’m starting to walk short distances with a walker.

My mental health has improved too. I was in a dark spot for quite a while earlier this summer. I’m still sad about having to give up my apartment and my independence. But it was for the best. I know have around the clock access to medical treatment. I don’t have to cook for myself anymore. I think the smaller, and more balanced, meals are helping me lose weight. I’ve lost enough weight I was taken off two blood pressure medications. I’m still afraid to walk without a cane or walker. I’m still a fall risk.

I still play lots of computer games. My roommate and I usually leave each other alone as we have different interests. I’m still getting used to having a roommate after living alone for almost eighteen years. While I mourn the loss of my freedom, independence, and privacy, I know I made the right decision to give up my apartment and move to long term care.

Making My Peace With My Decline

I’ve been living in long term care for over a month now. Updates are in order. My feet no longer hurt. Now it’s both of my knees. I can barely stand up because of the pain, let alone walk. My knees hurt so bad I can’t even lay on my back in bed because of the pain. I’m back to sleeping in my recliner most of the time.

My high blood pressure issues have been solved. Now low blood pressure is a problem. I can barely stand up or go to the bathroom without feeling like I’m going to pass out. I also have the problem that I’m forced to do physical therapy even though I can barely stand up without passing out. I try to explain my problems to the nurses. No one is listening. I can’t get anyone to listen to my problems. Supposedly a doctor ordered me to do physical therapy even though that was NEVER brought up the only time I’ve met with a doctor since I’ve moved to long term care.

I couldn’t manage my blood pressure issues and mental health at the same time anymore. Home health coming to check in on me a couple times a week was only temporary. I live alone and I can no longer drive. So I couldn’t get to any of my doctors’ appointments. My blood pressure meds couldn’t be renewed via Zoom calls. That’s why I opted for long term care. I can’t drive so I can’t get to my medical appointments. My mobility is severely limited to where I’m wheel chair bound now. Even though I’m in long term care, my problems are still not being listened to. I am by far the youngest person in my facility.

After years of loss, fighting mental illness, no one taking my complaints serious, decline of physical health, loss of friends, loss of career, and the general overall decline of the state of the world, I have made my peace with my mental and physical decline. I’ve even made my peace with death. I’m tired of fighting losing battles. I’m tired of trying to put a positive spin on everything. No, my mental health will never get better. No, I can’t fight mental illness and physical decline at the same time anymore. I am tired of being ignored. I’m tired of being blown off. I am tired of being told I’m lucky. I am tired of being told to man up and stop complaining all the damn time. I’ve made my peace with death. I’ve made my peace that most of my dreams will never be fulfilled. I’ve made my peace with declining health. I’ve made my peace with the world never being a good place. I don’t know why no one else can.

June 22 2022

Been in my current place for two weeks now. Had a roommate move in after a few days. We now have our own wheel chairs, so I’m getting out more often. Spent some time outside today in the flower garden at the entrance. I still can’t walk very well. I can do well enough to get into the wheel chair and get to the bathroom. My food intake is a lot less than it was previously. That alone means I’m probably losing weight. I think covid is making a bit of a comeback as I’ve been tested twice just in the last week.

The food is alright. Most of it seems homemade and we have quite a variety. I’m not doing physical therapy. With as shot as my legs are, I probably won’t make much progress in terms of walking until and unless I lose a lot more weight.

Most nights I sleep alright. Didn’t sleep well last night. My roommate accidently left his tv on overnight. Listened to more infomercials than I cared to.

Currently in my wheel chair. I’m going to try to stay in my wheel chair until bed time. Most nights I’m asleep by 10pm and up for good around 6am. I have meds twice a day, usually with breakfast and supper.

I played some cards earlier in my stay here. I shower twice a week and shave twice a week too. I think my beard days are behind me. Mentally have been pretty stable, more so than when I was living alone. I play lots of computer games and listen to lots of audio books in my free time. Since I don’t have to go to physical therapy, I have more free time than I’m used to. I haven’t eaten restaurant food or had soda pop in over a month. I certainly could go for a double cheeseburger and a Coke sometime soon.

I won’t be having visitors until around the Fourth of July holiday. I hope they bring some treats. Since I moved into long term care, I’ve been eating more balanced meals, more vegetables, and some more sweets. My roommate’s wife brings him candy bars and diet soda occasionally. I don’t have anyone within an hour’s drive to come visit me. I think the nearest Pizza Hut to my facility is a twenty minute drive. I definately live in a small town again. So small it’s eerie quiet and dark at night.

June 16 2022

I think I’m getting adjusted to the new place and routines. Had my best sleep last night. Had to wake up only once in the night to use the bathroom. Breakfast was good and filling with pancakes and sausage. I still spend much of the day in my recliner and wrapped in blankets in spite of the heat of summer. I’ve become real sensitive to cold ever since my blood pressure has come under control. My feet still hurt. I play lots of computer games to pass the time. My roommate has a good sense of humor. Used to be an auto mechanic and is probably in his 60s.

June 15 2022

Been in my new place for a week now. It is nice that I no longer have to cook my own meals or do my own laundry. My feet are still killing me to where I can’t even walk. This has been going on for weeks. I don’t usually sleep deep. I just keep on just one day at a time.

Going To Long Term Care and Reflections on Life Since 2006

Tonight is my last night in swing bed. I move to my permanent place in long term care tomorrow. My parents and my cleaning lady are emptying out my apartment today. It is a bittersweet end of one chapter in my life and the start of another. At this point in my life, I can no longer manage both my physical and mental health problems all alone anymore. I gave it an honest shot for over eighteen years. I had lived in my previous apartment for sixteen years. Worked a variety of jobs, started my blog, made lots of new friends, had three grandparents, three uncles, and a favorite cousin die, had several really good friends die, lost most of my mobility, survived a car crash, went through two years of the covid pandemic without getting sick, saw my best friend from college get married and become a dad, and saw my three nephews and niece grow up. While I am sad that my physical health has fallen apart so fast, I am confident I am now where I need to be.

In my sixteen years in my previous apartment, I went to the mental health hospital twice. I applied for and got on social security disability insurance. I worked for four years as a janitor at the county courthouse. I started this blog and have continued it on a regular basis for nine years. I became a published writer by having several poems published in a couple literary magazines. I learned about the joys of home grocery delivery. I found out that youtube is a wealth of knowledge if one knows how to properly look. I learned more history, philosophy, economics, science, etc. in several years of binge watching youtube than I did in my formal education. I saw several cousins get married and become parents. I had DNA tests to determine what psych meds would be best for me with great success. I saw the rise of the smart phone. I saw the world completely transform during a pandemic. I went from a young to a middle aged man. I saw three college classmates die young. I saw my parents retire and move out of their house of over thirty five years to be closer to their grandkids. I saw private space flight become a normal thing. I saw the first Black man become president of the United States. I saw the first woman become vice president. I saw a new pope elected. I saw same sex marriages legalized. I saw the beginnings of legalized marijuana. I saw the Arab Spring. I saw Brexit. I saw the beginnings of driverless cars. I saw electric cars become mainstream. I saw people my age and younger become leaders in politics, science, and industry. I saw some people my age become grandparents. I saw the internet go from a luxury to a necessity. I saw China become a world power again. I saw a renewed appreciation for democracy, especially after the war in Ukraine started and several years of choaotic politics in USA and Europe. I’ve seen a lot of changes in the sixteen years I lived in my last apartment. Heck, I don’t even recognize the world of 2006 anymore. Hope I can get to live another sixteen years to see what changes happen then. Now that I’m in long term care and have around the clock medical care, my chances of seeing the next sixteen years are improving.

Moving to Long Term Care. Changes in A Life Of Mental Illness

It’s been a long while since I last wrote. Updates are in order. Two weeks ago I called the ambulance as I was having issues with foot pain and blood pressure. In those two weeks, I got my blood pressure back under control, had over 20 pounds of excess fluids pulled out, and decided to move to a Long Term Care facility in my home state of Nebraska. After almost 18 years of living on my own, I can no longer manage my mental illness issues and physical health problems at the same time.

I am currently in swing bed in a hospital in a small town in Nebraska. I should be able to move to my permanent long term care unit (in the same town) by Wednesday June 8th. My foot pain has mostly cleared up. My blood pressure is back to normal. I am not diabetic. All my blood numbers are in safe ranges. But I can no longer manage physical health and mental health at the same time. I can no longer live on my own. I came to the conclusion I need more help than I was getting at my previous home.

My parents and my cleaning lady will start clearing out my old apartment probably on Tuesday. I decided I’m donating most of my books to the complex library. Give them more variety than romance, western, and crime dramas. I lived there almost exactly sixteen years. It feels surreal to be moving. But it needs to be done. I just can’t take care of all my issues on my own anymore.

I will be living on a ground floor, have access to a wheel chair, and the staff will cook my meals, handle my medications, and do my laundry and cleaning. It’s been a crazy last two weeks, that’s for sure. But these changes were needed. I should have moved into long term care last fall when I had my blood pressure issues. But, with covid still raging hard, I guess all of that got lost in the shuffle.

May 16 2022

Haven’t written lately. But, then I’ve been too discouraged to write. My diet has changed significantly due to price increases. I stay home all the time. Breaks my heart to see how insane most people have become these days. I believe mass psychosis is real. I see it every day. While I know things will never go back to the way they were pre covid, I can’t even relate to most people anymore. I swear the older I get, the less sense people make. Makes me glad to be an introvert. At this point I’m just surviving. Forget about thriving and self actualization.

My friends are also stressed. A friend of mine had much of their personal info and emails hacked into. Another friend and her husband are both working full time yet rely on food pantries. My dad might have to have stints put in by the end of summer. Another friend of mine found out his house has almost doubled in value since he and his wife bought it five years ago. Nothing makes sense anymore. I can handle life being unfair. Hell, I’ve heard that from my elders all the time since I was four years old. It’s a lot tougher when things no longer make sense. I’m now surprised when things work the way they are supposed to.

At least in my part of the world, we aren’t having problems with covid and lockdowns anymore. I feel for the people in China who have indefinate lockdowns and food shortages. Lockdowns of entire cities don’t make sense. We have vaccines that work. Survivors develop a sort of immuntity. My brother has had covid twice. He said the second time was alot easier than the first. And don’t even get me started on the war in Ukraine. We all have to suffer because of our leaders’ pride and ego it seems like.

Why I Love Being An Adult

Talked to my landlady this morning. Got my paperwork signed that will allow me to stay for at least another year. And she was actually apologetic about the wait on the paper work. First time in my entire life someone in a place of power actually apologized to me. When I was in my twenties and thirties, most bosses and landlords acted like they were doing me a favor by letting me work a job and not be homeless. It’s amazing how much things change once you have a little money and some gray in your beard. Things like this make me glad I’m no longer young. I’m starting to understand why some people say life beings at 40.

I admit I don’t miss my twenties and thirties. Sure I miss the physical health and ability to just do things with friends at the drop of a hat. But I certainly don’t miss the disrespect, slights, and elders complaining about me being one of those “damn kids.” Breaks my heart that I see people my age complaining about the young now. It’s like, they were complaining about us the same way back in the 1990s. We weren’t the “triggered snowflakes”, but we were “slackers.” Hell, kids today binge drink less, have less sex, and do fewer drugs than the kids back in the 90s did (at least according to statistics). Rates of violent crime were going down for decades, at least until covid hit. Makes me wonder what Gen Y and Gen Z will say about their kids twenty years from now. Maybe cyborgs and full immersion virtual reality will be the social media of the 2040s.

I do enjoy being middle age. Sure I miss the mobility, but I also enjoy the new found respect. I’m still not used to people in places of power taking me serious though. Most of the time I went to doctors in my twenties and thirties, most of my problems were blamed on my weight. One doctor blamed even my schizophrenia on my weight. I’m glad I fired him.

That’s another thing I glad I’m getting to finally experience in middle age. People like landlords, doctors, nurses, maintenance men, service workers, delivery guys, now act like their relationship with me is a two way street. When I was in my twenties, I was regarded as a nuissance at best by all of these. I still remember walking into stores in the mall as a teen and twenty something and getting followed around by the manager thinking I was going to steal something. Happened quite often. I still remember doctors and landlords treating me like I was an idiot and they were doing me a favor just by letting me into their offices. Now that I’m in my forties, it’s like we now have the two way relationship. I’m almost never regarded as an inconvinence or stupid. I never want to be young again. Screw that.

I also love how I can now say things that I know to be true and be considered wise and smart. When I was in my teens and twenties, I was just regarded as having an attitude problem especially when I was right. I was saying the same things at age 13 that I am at age 41. Yet now I am considered wise. I guess gray hair, chronic knee pain, and a little extra money make all the difference in the world. I just hope I never forget the struggles it took to get here. I hope I never pull the same crap on kids that was pulled on me.