Tag Archives: mental health

March 9, 2026

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First Monday after time change. It’s feeling more like late spring here in Oklahoma than late winter. Already had several thunderstorms and some tornadoes in this state.

I now transferred my permanent mailing address to my facility. I can get amazon delivery to the facility, at least as long as the front desk person signing for my packages actually does their job and brings it to me. I had a package delivered today that was supposedly signed for by a sectary early today. It still hasn’t made it to my room. All of the staff is acting clueless even though amazon clearly stated who signed for my delivery. I do hate it when people treat me like I’m stupid.

Haven’t been sleeping well at nights the last week or so. We have a dementia patient on our wing who screams all night, every night. Management has been made aware of the situation but still refuses to do anything about it. This is the second time I had to deal with a screaming dementia patient since early February.

I don’t have much planned for St. Patrick’s Day. I will wear green and I do have some alcohol free Guiness coming. I guess that’s about as crazy as I’m going to get this year.

Thanksgiving 2025

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Been in my new home for almost three months now. Updates are in order. For starters, I have lost over 50 pounds since Labor Day. My blood pressure is stable enough that I need pills only once a day. I sleep mostly in the afternoons as it’s quieter in the overnight. I’m on good terms with most of the staff.

I’m probably going to start physical therapy to get to walking again in December. I’m kind of upset that they haven’t started me sooner. My pain is manageable with one dose of Tylenol per day. Most of my swelling is gone. The pain in my ankles and feet is gone.

Tomorrow is Thanksgiving. I’m guessing the home will serve traditional Thanksgiving dinner. My brother is hosting Thanksgiving at his house this year. My mobility is still limited enough that I won’t be attending. I plan on being there next year.

I’m proud of the fact that I lost over 50 pounds in less than three months. At the rate I am going I probably will be able to walk again and even get in a car this time next year. Now that I know what I am capable of, my long-term goals are to get back to my old college weight. It will take a couple more years. It can be done.

I do miss home cooking like bratwursts and cheese soup. I miss Pizza Hut pizza too. I don’t miss being stuck in my own filth. For about a year between October 2024 and August 2025 I couldn’t walk well enough to get to the bathroom in my mom’s house. I’m going to be upset if all I had to do to regain my mobility was manage the swelling, manage the blood pressure, and lose a bunch of weight. All three I have done in the last three months.

And I have pretty much done it all on my own. My home wouldn’t even use the lift to get me out of the hospital bed the first six weeks I was here. My nurses never listened when I complained about pain. No one would let me do therapy. Of course, can’t do therapy if you are in pain all the time and the nurses won’t give me anything for pain no matter what. The call button is on a cord that is too short for me to reach from bed on my own, at least until I lost enough weight to get flexible again. About the only dam thing this new home has done for me is allowed me to have controlled portions and help me clean bowel movements. I got none of that at home. Mom and Dad are too sick and elderly to help me in that regard.

In short, it looks like all I had to do was get my swelling down, manage my pain, and lose a bunch of weight. I’m now kicking myself thinking I could have done all of this back home had the house been even a small bit handicap accessible.

The home didn’t believe I could recover. Neither did my parents. For a short while I had my own doubts. But I can accomplish almost anything if I have the right tools and enough time. I didn’t have the right tools at my parents’ house. Now I do.

Summer 2025 and Mental Illness

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I’ve been spending more time alone than usual this summer. My mom is done with physical therapy on her knee surgery. She’s getting around as good as ever after a couple months of regular therapy. I’m happy my mom is more mobile. But I am concerned about my desire to be more isolated than usual.

Summers are usually a tough time for me, tougher than normal. Haven’t had any major meltdowns this summer, but have had a couple sessions where I was alright after several minutes of ranting and raving. I see my psychiatrist this week. I plan on telling her I isolate more than normal and it concerns me. While I have never been Mr. Social Hour, it is concerning when I had days I flat out said I don’t care if I ever make any new friends or acquaintances. 45 years old is too young to give up on new people, schizophrenia or not.

Even though I make less than 1000 dollars a month, I still manage to have a decent time on such low wages. I pay rent every month, buy some groceries (I usually buy the non perishable food while mom and dad by vegetables, fresh meat, etc.), and manage to put a little into savings every month.

Splurging for me involves zero alcohol beer, chicken wings (I’m a sucker for garlic parmesan and medium hot wings from Pizza Hut), and Husker football games. The new season starts in a few weeks. Nebraska is expected to have a pretty decent team as most of our starters from last year’s team are coming back. I hope they are right.

I’ve also been losing fat all summer. My arms no longer jiggle, most of the fat around my lower stomach is gone. I’ve lost all the fat around my thighs. My calf muscles are huge even though I don’t walk much. I am able to walk from my recliner to my bed or my wheelchair. But I really don’t have much of a desire to leave my room.

I still socialize even though I don’t have much desire to leave my room. I have college friends I talk to a couple times a month. I talk to my brother usually once a week. I see my parents a few times a day.

I still get most of my sleep during the day. It’s been really hot here in Oklahoma lately. Typical August. Should start cooling off in a month or so. First football game is last weekend in August. First games are notorious for high temperatures.

I dream more these days. And I remember them better too. Most dreams involve me being back in childhood home town or in college. I sometimes dream about being back in Kearney and unable to find my apartment. I sometimes dream about floods and even modern ice ages. When I fall asleep during podcasts, which I do a couple times per week, I can hear the dialog in my dreams. I sometimes dream about being able to walk long distances again and even navigate stairs.

My pains have also changed. Some days I have no pain in my knees at all. Other days I hurt enough to know getting up would not be a good idea. I have more good days than I did even six months ago.

I think one of the reasons I spend so much time alone is because I want to be alone most of the time. Living in the suburbs, there are always people nearby. But in the small towns I used to live in, I couldn’t go anywhere without my neighbors knowing or commenting. It got real annoying. One thing I love about suburban living is the opportunity to be unseen and unnoticed when I want to be alone. I love the variety in restaurants too. I’m thankful my parents like trying new restaurants and bringing me some food when they get home.

I spend so much time alone because I can get most of my socializing done online or on the phone. Most of my groceries can be delivered via Kroger, Wal Mart, or even Door Dash. I can get almost everything from Amazon within two days as Oklahoma City has at least one huge Amazon facility.

Now that I have a home health care nurse who sees me once a week and a doctor come in every four to six weeks, I don’t even have to leave home for health care really. Haven’t been to a hospital in almost a year. I actually prefer doctors and nurses who make house calls. House calls were normal for generations. I’m glad they are an option again.

I haven’t driven a car in six years. I don’t miss it. I can get everything delivered. If I need a ride, I can hire an Uber or Lyft. My parents still have a car. My brother has a Tesla with self driving capabilities. I don’t need a car anymore, not even in the suburbs. I always thought the idea that everyone needed a car was ridiculous. I’m glad I now live in a time and place where I don’t need a car. Heck, the only time I really need to leave home is for medical emergency. I guess if I have to be chronic mentally ill and have bad mobility, most times and places are worse than 2025 Oklahoma City.

One of the things I am saving up for is a home humanoid robot. Sure it is several years off, but I am saving up for home humanoid help robot to help around the house, especially if my mobility never comes back. I don’t think most people realize how big robotics are going to be. Wouldn’t surprise me if robotics are bigger than even automotive in 10 years. I’m still amazed at how fast people adopted smart phones and Chatbots.

Updates: June 19, 2025

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Updates are in order as I haven’t about my personal life in a couple of months. I’m still wheelchair bound. I almost fell getting from my recliner to the wheelchair five days ago. My knees started hurting really bad and my legs just locked up. It was a scary morning. It took a lot of effort to get back into my recliner in my bedroom. Been there ever since.

Saw a case worker this afternoon. They offered to get me more services. I’m not getting much of anything right now other than a home health nurse coming in once a week, a psych doctor doing telemedicine every three months, and a home health doctor coming in every six weeks. I can’t even get help with moping the floor or taking out the trash. Mom and Dad still do that, but both are disabled themselves and in their late seventies.

My mom had knee surgery last month. Her mobility is still limited. She has to do physical therapy twice a week until the end of summer.

I used to be in physical therapy. Three times actually since I moved to Oklahoma in February 2023. All three times they gave up on me. I was even in a therapy hospital last September. My knee pain is bad enough I need Tylenol and iboprophen three times a day. In the hospital, they stopped giving it to me even though it was in my notes that I took Tylenol and iboprophen at home. The pain, without the meds, was bad enough I couldn’t even stand up without help. Two other times I tried therapy at home only for the company to give up on me when I wasn’t making fast enough progress. Hell, one ghosted me after only one session. Haven’t heard from him in over two months.

Needless to say, I’m not high on therapy at all. I don’t mind doing the work. I do mind people giving up on me without notice. It’s like they quit on me because I don’t fit into a nice, neat box.

The thing I really need help with is cleaning. Since I can’t get to the bathroom on my own (no handicap access in my house), I have to go into the bathroom in a bucket and have my parents dump it. Beyond disgusting. I can’t even get help with moping the stains off the floor in my bedroom. Needless to say, my room smells like a barnyard, and no one wants to help clean it. Both of my parents are elderly and disabled. They can only do so much. But, damn, I am tired of living around my own pee and poop. People in prison get better services than I do. In short, my life isn’t much better than being in prison.

Book Review: Surviving Schizophrenia: A Family Manual by Dr. E. Fuller Torrey

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Dr. E. Fuller Torrey’s Surviving Schizophrenia is widely regarded as a foundational text for families, caregivers, and professionals navigating the complexities of schizophrenia. Now in its seventh edition, this book has stood the test of time as one of the most accessible and comprehensive guides on the subject.

A Compassionate and Practical Resource
Torrey, a psychiatrist with decades of experience in both research and clinical practice, approaches schizophrenia with deep empathy and clarity. He recognizes the confusion, fear, and emotional toll the illness can take on patients and families alike. His tone is reassuring yet candid, never sugarcoating the severity of the disorder, but always grounding his insights in hope and realism.

Structure and Content
The book is well-organized, covering a wide range of topics: definitions and diagnosis, symptoms, causes, treatments, navigating the mental health system, and tips for coping day-to-day. Torrey writes in plain language, making complex psychiatric concepts accessible without being simplistic. He intersperses scientific explanation with anecdotes and case studies, which humanize the condition and illuminate the real-life challenges of those affected.

Strengths

  • Comprehensive Scope: Whether you are just starting to learn about schizophrenia or are dealing with it firsthand, the book provides an in-depth overview of everything from medications and side effects to hospitalization and legal rights.
  • Family-Focused: As the subtitle suggests, it’s a manual for families. Torrey consistently centers the experiences of loved ones, validating their concerns while empowering them with tools and knowledge.
  • Historical and Political Context: Torrey doesn’t shy away from discussing the failures of the mental health care system, particularly in the U.S. He offers critical insights into deinstitutionalization, housing, and the legal system that add valuable context.

Criticisms and Limitations
Some critics have found Torrey’s views on involuntary treatment and the use of medication to be somewhat rigid or overly reliant on traditional psychiatric models. While he supports the use of antipsychotic medications as essential, alternative viewpoints (such as more psychosocial or recovery-oriented models) receive less attention. Additionally, the book’s medical tone and length may be overwhelming for readers in the midst of a crisis.

Conclusion
Surviving Schizophrenia remains one of the most important and enduring resources on this difficult and often misunderstood condition. Dr. Torrey’s combination of clinical rigor and personal compassion makes the book not only informative but deeply humane. While it may not fully reflect newer perspectives in psychiatric care, it is nonetheless indispensable for families seeking to understand and support a loved one with schizophrenia.

Recommended for: Family members, caregivers, social workers, students of psychology/psychiatry, and anyone seeking a comprehensive introduction to schizophrenia.

How Someone with Schizophrenia and No Job Can Prepare for the AI Revolution

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The rapid rise of artificial intelligence (AI) is transforming every aspect of life—from how we work and learn to how we communicate and get healthcare. For someone living with schizophrenia and currently unemployed, the idea of keeping up with these changes might feel overwhelming. But the truth is, there are small, realistic steps anyone can take to prepare for the AI revolution—and they don’t require perfect mental health, a job, or a tech degree.

Here’s a five-minute guide to help you start preparing in a way that respects your pace and your well-being.

1. Understand That You’re Not Alone

First, know this: many people—whether or not they have mental health challenges—feel uncertain about the future of AI. You are not behind. You are not excluded. The AI revolution isn’t just for tech experts or people with jobs. In fact, AI could improve access to mental health care, education, and even new kinds of flexible, remote work that are better suited for people dealing with conditions like schizophrenia.

2. Start Learning, One Step at a Time

You don’t need to understand how AI works to benefit from it. But learning the basics can help reduce fear and build confidence. Consider watching short YouTube videos or listening to podcasts that explain AI in simple terms. Focus on questions like:

  • What is AI?
  • How is it used in everyday life?
  • How could it change the job market?

Some platforms, like Khan Academy or Coursera, offer free courses you can take at your own pace—even if it’s just 10 minutes a day.

3. Focus on Skills That AI Can’t Replace

While AI can do many things, it struggles with emotional intelligence, empathy, and human connection. These are areas where you can shine. If you’re able, consider building soft skills such as communication, problem-solving, or even peer support for others with mental illness.

Many communities have support groups that offer basic job-readiness training or volunteer opportunities. These experiences can help you build structure and confidence without the pressure of a traditional job.

4. Use AI to Help You, Not Replace You

AI tools like ChatGPT can help with job preparation, scheduling, writing, and even emotional support. For example:

  • Need help writing a resume? AI can draft it.
  • Want to practice job interviews? AI can simulate them.
  • Struggling to organize your day? AI can suggest a routine.

Using AI as an assistant—rather than seeing it as competition—can empower you to take small steps toward employment, education, or creative projects.

5. Protect Your Mental Health First

Schizophrenia is a serious condition that often requires consistent care. Preparing for the AI revolution doesn’t mean pushing yourself beyond your limits. Prioritize stability and wellness. Make sure you’re keeping up with your treatment plan and staying connected to your care team.

If you ever feel overwhelmed, pause. AI will still be here tomorrow. Progress can be slow and nonlinear. That’s okay.

Final Thoughts

You don’t need to become an expert in AI. You just need to be open to learning, a little at a time. With the right tools, mindset, and support, even someone facing the challenges of schizophrenia and unemployment can find their place in a changing world.

The future isn’t about competing with machines—it’s about being more human than ever. And that’s something you’re already doing.

Finding Strength: Managing Health and Family Doubts

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Took a couple of days off this weekend. Back to the grind. The last several days I have been up most of the night and gotten my best sleep in the afternoons. I still sleep like ten hours a day, but most of it is during daylight hours.

I’m back on the Turmeric. I think it’s helping with the bad knees and ankles. I started taking Vitamin B and Vitamin D supplements a couple of weeks ago. I think I have more energy and optimism overall now.

I think I am losing weight. If the way my clothes fit is any indication I really am. Most of my shirts are quite baggy now. Might have to drop down a shirt size. It also looks like I’m carrying less fat on my abdomen. My calves are less swollen than six months ago as are my thighs. I don’t eat much anymore besides protein and vegetables. I try to avoid sugar and carbs.

Got turned down for a long term care facility. I’m not shedding any tears over it. In reality I don’t want to go to long term care. Ideally I would just stay in my current house and just widen all the doors to be wheelchair accessible. My parents aren’t on the same page as I am. They aren’t enthusiastic about making such modifications to the house.

I have come to the conclusion that I don’t want things to be easy. I want to struggle to get my walking ability back. I want people to doubt me. I want to be fought every inch of the way. I want even my own family to actively work against me. They originally doubted I could graduate college with schizophrenia. Proved them wrong. They originally thought I couldn’t live alone with schizophrenia and on disability pension. Proved them wrong for over seventeen years.

Most people thought I made a mistake when I went to long term care to get better. I was flat out told I would die in that facility. Well, eight months later I walked out the front door on my own two feet. I went in that facility on a hospital stretcher. I walked out on my own two feet after only eight months.

I’m facing doubts again. After this third stay in the hospital, I lost all of my mobility. Physical therapy hospital didn’t help at all. Neither did the home therapist. They all gave up on me too soon. Sure, it took a few months. But I am back to walking short distances within the same room. I can transfer into the wheelchair. It is a foldable wheelchair so I can get it through doors. I could already get everywhere in the house if the family would just break down and pay for the modifications.

As far as modifications go, all they would need is to widen all the doors, put a railing in the bathroom, and get some of the clutter out of the house. My parents have a hard time throwing anything away. I swear if I outlive them, I’m going to rent a dumpster and throw tons of Knick knacks and crap in. I refuse to deal with it after they are gone. I won’t live the life of a hoarder. Was forced to do it as a kid. Forced to do it again after being on my own for seventeen years. After my parents are gone or moved to a nursing home, never again.

Oddly I’m not feeling hurt or betrayed by my family not believing in me. In some ways they have never believed in me. I’m going to get mobile again, at least for short distances. I am going to keep losing weight. My goal is to eventually get back to the same weight I was as a freshman in college. I could easily walk three to five miles a day back then.

I might never be able to walk that far again. But, dammit, I refuse to give up. Between being severely bullied by my school mates as a kid, twenty five years of schizophrenia, three years of congestive heart failure, surviving eight months in a long term care facility, moving two states away to be closer to my brother (at least he believes in me), and seeing crazy ass tech advances in terms of AI, automation, biotech, fintech, etc.; I’ve come too far to cash out now. Give up? Not happening as long as I got breath in my lungs.

I don’t know why my parents refuse to make the modifications to the house to make it handicap accessible. Honestly, I don’t care. I’m going to get better and mobile in spite all the road blocks people keep throwing at me. I want to be doubted. I want to be told I am a liar and full of shit. It just makes me more determined to keep beating the odds. Beating the smart money has been the mode of operation for my entire life. Personally, I think the “smart money” ain’t as smart as it’s cracked up to be. I just keep proving them wrong because that’s what I’ve done my entire life.

Overcoming Mobility Challenges: My Journey to Independence

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STILL haven’t heard anything from my possible new place. I’m giving up on that. I’ve pretty much come to the conclusion that I’m going to be living with my parents for the rest of my life. I’m tired of pretending that things are going to change in that regards.

There are worse things than living in the suburbs. It’s a safe neighborhood. I can get any restaurant within reason Door Dashed to my house. I get two day delivery on almost anything on Amazon. There isn’t much for homelessness near my house. And I live only a fifteen minute drive from my brother and his wife.

As I’m getting used to the fact that there won’t be a place coming open for me, I have decided to make the best of it. Mobility is slowly coming back. I can easily transfer from recliner to bed to wheelchair with only a little pain in my ankles. My knee pain has been completely solved. They don’t even pop and crack anymore. I’m so thankful for Turmeric.

Now that I can freely get back into a wheel chair, I’m on to my next project. That is moving about the house. The only real hang up in this house is the narrow doors. The hallways are wide enough for wheelchairs but not the doors. If anything happens to my parents where they have to move to a home and I get left behind, I’m so going to have to move my hospital bed and recliner into the living room. That’s been my plan all along. I just didn’t think that I would have to utilize it.

Finally got out under the overpayments I was paying back to social security. Looks like the timing was good. Sounds like the whole system has become a dumpster fire. While I’m all in favor of cutting government waste, I totally accept that the transition to a more efficient system is going to be tough and take years perhaps. I do have some money out of the system just in case of things like this. In social security’s case, it sounds like a modern day run on the bank.

My next goal as for my mobility is to stand up long enough to fold up my wheelchair and get it through a door. That will open up the entire house and the back yard to me. If I keep getting the run around from social services, I’m going to need to make myself as mobile as I can.

The only reason I was needing a place was because of the wheelchair, not because I am senile. I remember to take my pills daily. I can clean myself, at least with sponge baths and dry shampoo. Maybe that is why I can’t get a place. Because I’m still quite mentally sharp I’m not a high priority.

In some ways I’m glad I keep getting rejected for these places. Five months ago my ankles and knees were so bad I couldn’t even stand up on my own. I needed an ambulance crew to set me up in my own house. Spent from early October to early January learning to stand up again.

I can stand up again. Now I can walk real short distances. I’m working on cutting down the pain in my ankles. In the five plus months I have spent teaching myself how to stand and walk again, I haven’t fallen even once. And I have done it all without any help from anyone.

I had physical therapy come in back in October. But they gave up on me after 30 days because I wasn’t making “adequate progress.” As it is now, I don’t think I really need physical therapy. What I do need is wheelchair accessible doors and bathrooms. Not sure I can get that done in this house. I’m pretty sure my family could afford it if I really put the screws to my parents. Sometimes playing hardball and being a hard ass has to be done to get a point across. I swear some people are so oblivious.

In spite of my hurdles and set backs, I’m making decent progress in learning how to walk again. And I am doing it in spite of the roadblocks and hijinks and run around of social services. If anything, I enjoy the hardships.

I enjoy being told what I can and cannot do. That way I can rub it in people’s arrogant faces when I end up proving them wrong. People didn’t think I could graduate college with schizophrenia. I proved them wrong. People didn’t think I could hold a job with mental illness. I held a janitorial job for over four years. People didn’t think I could live on my own with schizophrenia. Proved them wrong for seventeen years without being even late on a rent payment. People didn’t think I could survive and recover from congestive heart failure. Definitely proved them wrong on that. People now think I’ll never walk again. That’s my next mission to prove people wrong.

Challenges in Securing Long-Term Care in Oklahoma

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Rumor had it that a long term care facility an hour from the metroplex was already to accept me with open arms. That was over a week ago. Haven’t heard anything since. Getting into a care facility is proving to be impossible here in Oklahoma.

A few weeks ago Adult Protective Services were called on my behalf. My house isn’t handicap accessible and I need wheelchair accessible housing. I can transfer from a recliner or wheelchair to a hospital bed, but I still have pain in my ankles every time I walk. I can transfer but it is painful.

After APS was called on my behalf, I was sure I would get a placement within a couple of weeks. Normally they don’t get involved unless a situation is dire and beyond redemption. Well, both are the case in my situation.

I doubt my house can be made wheelchair accessible. Even if it could, I couldn’t afford even property taxes on this place after my parents are gone.

I’m just tired of the run around. I’ve had more problems with social security, Medicaid, healthcare, social services, hospitals, case workers, etc. in the two years I’ve lived in Oklahoma than my last seventeen years in Nebraska. Apparently, service quality varies greatly from state to state.

I’m to where I’m at my wit’s end. I’m tired of fighting and getting zero for results. I’ve grown hopeless and despondent. I sleep twelve hours a day to numb the pain. I’ve told off my parents a few times in the last several weeks because of frustration. I’m becoming something I don’t like. In short, I’m becoming the whining and bitter old man I promised myself I would never become.

I just want a permanent placing in a nursing home to where I can have wheelchair access and my day-to-day medical care provided. Apparently in the richest country in the history of the world that isn’t an option.

Finding Wheelchair Accessible Housing: My Journey

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I might be moving within the next few weeks or so. It’s tough to tell. My doctors and caseworkers agree with me that I need to be in a place that’s wheelchair accessible. My parents house sadly isn’t friendly to wheelchairs. The doors are too narrow, no sidewalk, and the driveway is too steep.

My doctors and caseworkers have already recommended me to a place about an hour drive from my parents’ house. I would still be in Oklahoma, but no longer in the Oklahoma City metro area. Right now, the only thing that hasn’t gone through is corporate approval at the facility.

Been fighting to get into a wheelchair accessible facility for months. It’s pretty obvious I can’t live on my own. My parents are elderly, slowing down a lot, and sometimes forgetful. It would be a burden off them if I did get into this new place.

Corporate is still the hangup. Previous places have denied me because of my age, my weight, my mental illness, etc. Even though I know I need to be in a care facility, if for no other reason than my lack of mobility, I dread losing my financial freedom.

Long term care facilities are expensive. They have already said they would take over 90 percent of my disability pension to cover expenses. That’s the way it was when I lived in a long term care back in Nebraska a few years ago.

My parents supposedly can’t afford a handicap acessible house. Even if they could, I couldn’t afford even the property taxes and ultilities on such a house. I make slightly less than 1000 a month from disability pension. Really pisses me off that so little help is available.

I’m not senile. I’m not forgetful. I take my meds on my own every day. I don’t need a nursing home because I am senile. I need it because I have no mobility. I can transfer from a wheelchair to a recliner and to a bed. But my current living arrangement isn’t set up for wheelchairs. And my parents supposedly can’t afford to widen all the doors in the house for me to do much of anything in my house. Hell, I haven’t even been outdoors in five months.

I’m frustrated by the lack of help and communication. I’m not damn senile. I’m wheelchair bound. Most places are not conducive to wheelchairs, certainly not wide ones like mine. And yet I will probably end up going to a long term care facility and treated like I’m brain dead because I am wheelchair bound. Burns my ass.