Adjusting to Summer

Been staying near the complex and avoiding the early summer heat the last few days.  Bought groceries early this week so, in theory, I don’t have to leave the house for the next several days.  I’ll probably have to stay at home tomorrow as I’ll be getting a new air conditioner and thermostat.  My old air conditioner was almost forty years old and it broke down two weeks ago.  So I’ve been using lots of fans and a portable air conditioner since.  I’m glad that this problem will be solved soon.

I’ve been having a lot of issues hanging over my head for weeks that just seem to take longer then they should to get resolved.  My sink was fixed a couple weeks ago.  I started a new medication a week ago.  I’ve been sleeping in a recliner for a week now as my lower back has been giving me pain.  But I’ve been feeling quite stable mentally for the last several days.  I don’t want to sleep all the time anymore.  I’m usually awake quite early instead of sleeping until noon.  I’m taking better care of myself.  And I’m making a point to get out of my apartment to socialize with my neighbors for at least a few minutes every day.  The socializing is going kind of rough as there aren’t any people in my apartment complex who share my interests or likes.  Looking back on it, having three friends in here die within six months a couple years ago really effected me.  I lost a lot of good conversations after that.  So it’s tough finding things to talk about with people anymore.

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My Journey To Being An Advocate For The Mentally Ill

My birthday is coming up in a few days.  I’ll be 37 years old this year.  That would have made me a senior citizen in the Stone Age.  Of course if I would have developed schizophrenia at most points in human history, it probably would have been a death sentence.  As it is I have found what works and what doesn’t in my life with mental illness.

I was first diagnosed with schizophrenia and major depression in the autumn of 2000.  I was in the second year of my pre med studies in college.  Even though I had been having problems with depression and anxiety for a few years before, I was still able to do well in school and keep up a strong front.  I still don’t know how I did it.  But in my second year of college, it all collapsed.  I couldn’t handle stress anymore.  I was having constant panic attacks.  I would have breakdowns where I called home and yelled at my parents at least once a week.  Looking back on it, I should have gone to the mental hospital right then and there and not tried to gut out college at the same time.  As it was I withdrew from college at midterm of the spring semester and took a few months to adjust the treatments and pull myself together.  After the disaster that my second year of college was, I knew I’d never get into any med school with my grades.  So I switched over to business because, let’s face it, everything involves money and commerce.  I still thought I could be employable in the right situation after college.

During the last few years of college I became interested in economics and finance.  I applied for several jobs like financial planner, insurance sales, insurance underwriter, loan officer at a few banks, etc.  I took the obsession I previously had with science and was able to transfer it to business and economics.  It paid off to be curious for me.  I graduated in spring 2004 but, like many college seniors, I had several job interviews but no offers when I left school.  I didn’t realize just how common that was until I started talking to people over the internet a few years later.

After a few failed attempts at careers in various fields, (retail sales, academia, manufacturing), I applied for disability insurance.  This was in 2006.  I had just lost my job at the university and been forced to leave the masters’ program.  Here I was on a waiting list for disability, on a waiting list for low income housing, with no job, no confidence, and no money.  If it wasn’t for my parents help for the first half of 2006, I would have never made rent on my apartment.  But that wasn’t all for 2006.  My longtime college girlfriend and I broke up and I failed at a couple minimum wage jobs, one of which was at Goodwill.  If you can’t succeed at Goodwill, then you are really screwed up (or so I thought).  In the late summer I checked myself into the mental health hospital.  Stayed there for a week.  By this time I was at my lowest ebb.  I had no job.  My illness wasn’t allowing me to hold a job.  I had no real income.  I was living off food stamps though no mess ups of my own.  I had no idea when social security was coming through. I was on high risk insurance that was costing my parents a lot of money so I could stay on my meds.  I never could have afforded them on my own.  I came to the conclusion I would never hold a career because of my mental illness.  I came to the second conclusion that I would never marry and have a family because of my mental illness.  I was really sad and depressed during this entire time.  I really thought I’d never be happy or amount to anything ever again.  I’m glad I didn’t cross the line into becoming suicidal at this time.

Those rough years of my mid to late twenties when I came to the conclusions I would never hold meaningful employment or have a family really sucked.  But they were also when I was writing a lot, granted not as focused as I am now.  Before I got serious about my blog I wrote hundreds of poems, largely in the style of Robert Frost, Walt Whitman, and Emily Dickinson, and I also did complete rough drafts for two novels.  The novels were nothing really special, just kind of like Jack Kerouac for Millennials.  I was working on notes for a science fiction novel at this time too.  I also read every day to try to help me find a literary voice.  I read dozens of authors, ranging from Kurt Vonnegut to Ayn Rand, Chuck Philhanuak to John Grisham, Alexandre Dumas to Mark Twain, Adam Smith to Nietcheze, etc.  I tried to teach myself Spanish at the time as well, but the only Spanish I know is how to ask for directions and order simple meals.  But as my ‘traditional’ side was falling apart, I was finding other ways to find meaning in my life besides work and dating.

I started writing down my thoughts and experiences with mental illness in my late twenties.  I was submitting some of my poems to be published in literary magazines.  I got a few of them published but never made any money.  I eventually wrote a few dozen short essays about life with a mental illness.  I was reading The Federalist Papers at the time and kind of modeled the book of mental health essays on that.  I put the files on a print on demand service.  I sold a few dozen of those books, mostly to friends, family, and interested mental health facilities.  After tasting a little success with those essays, I thought they might make good blog entries.  And my first few blog entries were from that original book.  Since it’s been several years since I updated that book, I probably ought to rewrite it and repost it.  And since I now have a dozens of blog entries on the subject of living with mental illness, I definitely have new material for another edition.

I started blogging through wordpress in 2012 shortly after I left my last ‘traditional’ job.  I didn’t get much for visitors early on because I had no focus for the blog and I wasn’t posting regularly.  In early 2013 I decided to focus the blog specifically on mental illness.  My audiences have grown slowly but steadily over the last few years.  I started a Facebook page to promote the blog.  I also have a patreon account a few months ago and I already have a sponsor through there.  And I’ve also made a little money since I monetized this blog.  I’m not breaking even yet with what I spent on advertising this blog, but it’s getting closer all the time.  I recently broke 14,000 all time visitors from 100 different countries.  And this is with only four years of work, a microscopic advertising budget, a niche topic, and 50 percent of the world’s population still not online.

I’ll be 37 in a few days.  And I already had a larger reach with my writing works than I ever thought possible when I first seriously started writing in 2004.  That’s been only thirteen years.  I think I’m going to keep at this and see what I can develop with this blog and my writings over the next thirteen years.  I say all of this to point out that young people in their late teens and early twenties shouldn’t sell themselves short at all.  At age 23 I would have been content to be a loan officer at a bank or an insurance salesman.  But I know I wouldn’t have been content doing such work.  I wouldn’t be doing what I’m really good at.  And let’s face it, in this day and age a person can make money doing almost anything thanks to the exposure of the internet if they put in the time and lots of effort to get noticed.  I’ve already accomplished more than I thought I could as a writer thanks to the internet, especially when I started out I was just writing poetry out in notebooks.  And now after running this blog for four years and getting some audience and dozens of positive emails, I know I’m only scratching the surface of what can be done.  I never would have thought this possible when I first applied for disability insurance.  Mental illness is one of the few things that is still discriminated against with little to no protest.  I intend to be part of changing that.  I’m not going away.  The mentally ill bloggers and you tubers aren’t going away either.  We will not be silent and suffer needlessly anymore.  Consider this a declaration of war against mental illness stigma.

 

Aches and Pains and Mental Illness

Been having knee pains again for the last several days.  It’s the same knee I hurt near Christmas.  About the only thing I can do for it is soak in a warm bath every morning and take a couple pain pills every few hours.  This has definitely slowed me down for the last week.  I can’t even run errands because I can’t stand for more than a few minutes at a time.  So I pretty much just stay home even though the weather has gotten good.

As bad as the knee pain is, it really hasn’t effected my mental health.  Mentally I have quite stable for months.  Hopefully I can keep claiming this.  Late July to early September have always been the roughest times of year for me.  It’s a pity that my body starts falling apart right about the time I’m beginning to figure things out mentally.  Maybe some elderly people are grumpy mainly because of the constant aches and pains.  I’m seeing what I get to look forward to in old age.

I Enjoy Adulthood Even With Mental Illness

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I must admit, I love being an adult.  I love the freedom involved.  I love having my own money and getting to decide how I get to spend it.  I love that I don’t have to answer to authority figures I didn’t choose.  If a boss was giving me static at a job, I could always look for a different job.  If a landlord was giving me a hard time, I always had the option of moving to a different place.  I love that I can do things like vote and go to casinos.  I enjoy that I don’t have to feel guilty for expressing my opinions and having my likes and dislikes.  I like that I can read whatever I want.  I love having privacy.  I enjoy not getting yelled at for trivial things like when I was in school or living with my parents.  I like the fact that I can avoid people who give me too much static.  When you are in school, you just can’t avoid bullies or sadistic teachers.  Sure I’ve had bosses and coworkers who were jerks and whiners, but at least I had the option of finding another job if I didn’t connect with said bosses or coworkers.  Changing schools is a lot tougher.

Even though I have been living with schizophrenia since at least age seventeen, I have found that it is getting easier to work around it the older I get.  The bad periods don’t last nearly as long nor are as intense as they were in my early twenties.  In my late 30s, I have come to the realization that I don’t have to be defined by what job I have or if I have a wife and kids or not.  I am not my job.  I am not less of a human being because I am not married.  Sure I still deal with people that tell me “mental illness is fake” or that “you’re not a real man.”  But as an adult it is much easier to blow those jerks and losers off and ignore them.  You think I’m faking mental illness, then screw you.  It’s not my job to meet your standards.  It is so much easier to not be bothered by criticism as a 36 year old than when I was 21.  I just hope that the older I get, the symptoms will become even less severe and I will care even less about naysayers and idiots.

I still isolate a lot and avoid socializing with my complex mates.  But I think I’m more mentally stable because of said lack of socializing.  When I was a kid people used to tell me I was being “anti-social” and had “attitude problems” because I didn’t like going to high school sporting events and county fairs.  There really wasn’t much to do in my farming village besides school events, church activities, and county fairs.  There was only one movie theatre in a fifty mile radius from my hometown. I didn’t enjoy watching people throw balls around much as a kid.  As an adult I really don’t have to feel guilty for not watching such things.  I do watch some college football and basketball tournaments just to give myself something to talk about with other people.  Most people still don’t like discussing science and technology in casual conversations.  But I haven’t been to any sporting events in person besides minor league baseball games in almost five years.  And I don’t feel the least bit guilty or anti-social because of it.  And as an adult I have these options.  That’s more than I had as a kid.

I don’t really understand people who are nostalgic about their youths or the past.  I might be a little nostalgic about growing up if I had more friends, was bullied less, and wasn’t so much of a social misfit in my school.  I am kind of nostalgic about my college years because I knew lots of smart people, had lots of interesting conversations, could do things at the spur of the moment with no planning, could study what I felt like studying, and had the legal rights and responsibilities of adulthood.  College was much more stimulating and enjoyable than grade school or high school.  Sure I never got to use my degree in a job, but I blame the schizophrenia for that completely.  And I am grateful everyday I can keep in contact with old friends through Facebook.

I love living in the here and now of May 2017.  Sure getting to this point was rough dealing with schizophrenia for almost twenty years.  Sure my physical health took a beating because my mental illness and the side effects of the psych medications.  But after twenty years of schizophrenia I have figured out how to deal with bad days and psychotic breaks.  I have also learned how to enjoy the small things of life more than many of my mentally stable friends and family.  Happiness for me is watching a sunset, or eating chicken wings at a sports bar with college friends, or seeing my niece and nephews for a few hours, or talking with my parents about history or technology, or reading internet sites like futurism.com or bloomberg.com about trends in science and current events.  I had my ups and downs with schizophrenia.  I had many breakdowns when I took a lot of grief out on my parents and friends.  Fortunately those breakdowns are getting less severe and shorter as I age.  I have had to go to the mental hospital twice. But both times I was self committed and my longest stay was one week.  I may not be able to hold a forty hour a week job, but at least I tried several different lines of work before I came to the conclusion that traditional employment wasn’t in my future.  And it’s not shameful to not hold a full time job, especially if you have a disability or find other outlets to give back to people.  I can still drive a car, I can still buy my own groceries, pick up my medications, keep appointments, and more or less live on my own even with mental illness.  Some people can’t claim that.  In short I love being an adult.  And I wouldn’t want to go back to my youth, even though I had more friends and better health in college.  Being an adult rocks.  It really does.

Making and Losing Friends and Mental Illness

Keeping friends over the years while having schizophrenia has always been tough.  Even before I became mentally ill I had a hard time making friends.  But I am convinced that much of this was probably due to the environment I grew up in.  Most people in my hometown were farmers or cowboys.  I never did want to farm and the cowboy life never appealed to me.  So I guess by the time I went to college I was already behind my peers in terms of social skills.  Having schizophrenia hurt my social skills in that the illness could make me standoffish and not understanding normal people humor and activities.  I have always preferred reading and science pursuits over talking about sports, campus gossip, or whatever tv shows were trendy that season.  I am still this way.

As a result of my mental illness and the environment I grew up in, I never really did learn how to make friends easily.  I never did have normal interests so most of the friends I did make wouldn’t be considered normal either.  My best friend from college is a high school history teacher who is an avid sports fan.  He is also an avid reader of history, philosophy, economics, and classic literature.  Even though we haven’t been in college for over a dozen years, I still talk to him about once a week.  It’s not uncommon for our conversations to involve talking about baseball statistics, Austrian economics, medieval battle tactics, and the philosophy of Nietchze all in the same phone call.  He has never made an issue of me having a mental illness or not having traditional employment.  I don’t know if he regularly reads my blogs but he does think I’m doing a good thing with these writings.  He’s even suggested that it’s possible that if I keep writing, some big online blog service like Huffington Post or Breitbart might hire me.  A man can dream, right?  In short, friends like this don’t come along everyday and are worth holding onto.  My best friend from high school, she’s pretty much the same way.  Both of these people I may not get to see very often but I do keep in contact with.

Other people who I have friended over the years haven’t turned out so well.  I had one friend that I’ve been having a falling out with for months over aspects of my mental illness.  This former friend doesn’t seem to respect the fact that I don’t want to date.  I’ve dated before while working through a mental illness.  It sucks.  Dating is supposed to be enjoyable.  What I went through wasn’t.  As far as love goes, that’s what family is for.  As far as sex goes, well I’m not a dog in that I can’t live without sex.  Surprise, surprise; there are men who aren’t interested in having sex all the time.  And the older I get the less interest I have in sex.

This person also doesn’t respect the fact that I don’t hold a regular job.  First of all, when I did work a regular job, there were days I would have panic attacks while on the job and even before I went to work.  Many days these panic attacks were so bad I would vomit from the anxiety.  I would also get physically ill from the stress and anxiety I would feel at work with schizophrenia.  And dealing with office politics, well that was super stressful in itself.  In short, I never want to hold a regular job again considering all the problems it caused me.  I’ll go to prison before I go back to work.

So for any person to even infer that I’m wasting my life not being at some minimum wage drudgery that’s going to get automated in a few years anyway, well that’s not the kind of respect friends show for each other.  I can’t be friends with anyone who doesn’t respect me or my decisions.  And I especially can’t respect anyone who thinks I’m not “doing my part” or not “being a productive member of society” just because I don’t hold some nonsense job that a machine can do hundreds of times better.  Let the machines have all the damned jobs as far as I’m concerned.  I spent most of my life listening to people gripe and moan about how much they hated their jobs, as if it was an honor to hate your job, hate your boss, hate your coworkers, and hate your customers.  Any wonder why millions of American jobs got outsourced overseas?  After spending years fighting a mental illness and years trying to work in spite a mental illness, I don’t want to go back into the toxic work environment.  It wrecks havoc on my mental stability.  And if anyone can’t respect my decision, then screw them.  I don’t want people like that in my life.

 

Spring Routines

I’m glad that spring is finally back.  I’ve been getting outside a little more often, I’m keeping my place a little cleaner, I’m watching baseball most nights, and I’m even eating less too.  I’m still not as physically active as I would like but I think it’s starting to come back.  After my car accident in October 2015 I gained back most of the weight I had lost in the previous two years.  I think I’m finally back on the right track.  Since I still don’t have a great deal of stamina yet, I’m cutting back on calories as much as I can.  This means I’m giving up most sugar and eating meat only once a day.  I am also doing my best to avoid fried foods.  After several weeks of eating less than usual, I think I’m in a new routine.  I can’t even eat as much as I could last summer.  One of my problems was, after my accident, I got depressed and lost much of my confidence.  From there I just got lazy and ate a lot.  I have made efforts over the last several weeks to break out of this vicious cycle.  And I think I’m starting to see results.

I’ve also noticed my habits are getting better too.  During the winter I had gotten kind of lazy about shaving and cleaning up as there were entire days I didn’t leave my apartment complex.  I’m back into good habits like these again.  I would hate to think I let my personal appearance slide just because I was depressed by lousy weather.  But mental illness can do odd things to a person.

I’m starting to socialize some again.  Not so much with my neighbors as I am family and old friends.  I still don’t enjoy the fact that many of my neighbors are grumpy and irritable most of the time.  I have been around that kind of negativity for years and I don’t want it dragging me down.  I spent enough of my life being depressed, irritable, and a pessimist.  I just don’t want that anymore.

Change in Seasons and Change in Routines

Spring started a few days ago.  We’re starting to get more rain and the weather is warming up.  Saw my first lightning of the season yesterday.  My fantasy baseball league had it’s draft last night.  Since we’re spread out all over the country now we have to have our league hosted by yahoo.  It’s been an annual tradition for me for the last ten years.  I’ve never won my league as I’m pretty average compared to the eleven other guys in our league.  It’s a diversion for me and an excuse to pay attention to games I wouldn’t normally watch.  The first baseball games start the first Monday in April.  Winter is over.

I saw my psych doctor earlier this week.  According to his scale I gained a pound since my last appointment six weeks earlier.  Hopefully I have stopped the losing streak in terms of gaining weight.  Unfortunately I have gained a lot of weight since my car accident a year and a half ago.  For a long time I was afraid to drive and didn’t go anywhere except to buy groceries and run errands.  I can tell the lack of socializing has hurt me.  I know I’m less patient with people then I used to be.  I am not as spontaneous as I used to be either.

I complained to my psych doctor about my lethargy and lack of motivation.  We increased the doses of some of my medications.  He also suggested I buy some probiotic pills.  He had read a lot of literature stating that people with mental illness problems often have gut health issues too.  He said that gut health and mental health can affect each other.  After a few days on the probiotic pills, I’m noticing I am having some more energy.  I am also not sleeping as much even after only a few days.  I am also having fewer unexplained aches and pains.  I hope this only continues to improve.  My only true complaint about the probiotic pills is they are pricey.  But I am starting to feel better and more energetic overall.

As stable as I usually am during the winter, I am glad that winter is over.  The weather is starting to warm up and I’m not just wanting to stay home and hide out all the time.  I am feeling a sense of hopefulness for the first time in months.  I really think things are starting to settle down.  I haven’t had much settled for me for a long time.  This sense of normalcy is a welcome relief.