The Future of Home Care: Robots and Independence

My caseworker and my parents are trying to get me into a long-term care facility. I really don’t want to go back to one of those. I despise the idea of losing my freedom and finances. I just as well be sent to prison as far as I’m concerned.

I live in a house with no stairs. But the doors aren’t wide enough for a wheelchair. Any suggestions I make to widen the doors fall on deaf ears. It burns me that I still have all of my intelligence but might still have to go to a long-term care facility because of lack of handicap access.

I would like to get a home health aide that comes in once a day to help with things. I had to fire my cleaning lady a few months because she wanted me to sign off on her billing her company for time she didn’t work. Can you say disability fraud? Glad I got rid of her.

I watch a lot of videos and news programs talking about the possibility of humanoid robot assistants becoming available to the public within a few years. Yet about the only people who don’t think I’m totally full of crap when I talk about this are some friends online and my older brother.

My thinking is that I hold on for a few more years and get a home health robot to help around the house since none seem to be available for me. Hell, it took a miracle for me to get onto a service where a doctor comes to see me in my house every six weeks. We found out about this, not through my case workers, but from a friend in my mom’s church.

I’m afraid that I will get sent off to a nursing home due to lack of mobility, lose my freedom, lose my money, and lose the family house just right before EVERYTHING changes with home robots, automation, AI, improved personalized healthcare, and possibly even Medicare for All.

One thing I despise about being on disability is that my earnings are limited before I’m totally thrown out of the system. And since the USA refuses to act like a civilized nation and institute Universal Healthcare, I’m stuck in poverty just so I can get my treatments. And I’m damn sick of it.

I lived in a long-term care facility once for eight months. Hated damn near every second of it. Had no freedom. Had no privacy. I was chastised for not socializing with the other residents even though most were senile and or nearly deaf. The only thing worse would have being in prison.

I don’t really tell my parents how much I despise the idea of going to a home. In the first damn place, I don’t think I would need one if the house was more wheelchair accessible. But they won’t entertain the thoughts of making the house more wheelchair accessible. All they would have to do is widen the doors to my bedroom, the bathroom, the front door, and the back door.

As far as transportation goes, that is being solved already in spite of the run around I get from social services. My brother bought a Tesla with self-driving capabilities back in the spring. Just the other day he and my niece had to go to Kansas City (which is about six hours from our town). During the trip up and trip back, the car did over 98 percent of the driving on autopilot. I was calling this almost ten years ago. Now it’s pretty well mainstream.

I had a car accident in late 2015 that really screwed up my back and knees. I was talking about how nice self-driving cars would be when they become available. I remember one of my Facebook “friends” said, and I quote, “It will be a cold day in Hell before self-driving becomes a thing.” That was less than 10 years ago. Bust out the parka and long johns, because it’s getting awful damn chilly these days.

I’m seeing the same attitude towards robotics that I saw against driverless cars about 7 to 9 years ago. I have given up on trying to convince people that humanoid robot assistants will be a bigger game changer than even smart phones, military drones, or even the internet itself. Most people don’t want to listen, let alone people of my parents’ generation.

Once during the pandemic, I joked in one of my futurists’ groups on Facebook about having a goal of riding in a self-driving electric car with a robot friend, smoking a marijuana cigar, while driving past a police station before June 14, 2030 (my 50th birthday). If I can hold out for long enough to get a home help robot and I don’t get sent to a home before then, I’m going to make that dream come true, so help me God.

Even if my parents go get too impatient and send me to a nursing home before I can make my dream of robot assisted independence come true, I’m going to do everything within my power to get well enough that I can leave. If my parents don’t want to make our house wheelchair accessible, well that’s their hangups. Sucks to be elderly and not see the possibilities that probably will come by the end of the decade.

Hell, I want them to fight me on this. I want people to tell me what can and can’t be done/ I want people to throw up roadblocks. I want to be told I’m a liar and I’m full of shit. I have made an entire life of coming back from setbacks and proving people wrong. Their hatred and nay saying will just make my story telling even more interesting than it already is.

After surviving 25 years of schizophrenia, 16 years of Section 8 Housing, 3 years of congestive heart failure and being wheelchair bound, I’ve lost most of my fears. I don’t want things to be fair or easy for me. Life isn’t fair. I figured that out when that I was six years old. I figured out that life isn’t fair before I figured out Santa Claus was fake. I’ve been fighting my entire life. Why should the next few years before some major breakthroughs be any different? I have nowhere to go but up. And I’ll be damned to let even family stand in the way of my freedom and independence.

Mental Stability and Power Dynamics

Another day of being mentally stable. Haven’t had any kind of breakdown in over three months. It helps that I avoid stressful people and conflict as much as possible. Do most of my socializing online these days. It’s just easier to type what I’m thinking than just verbalize it. My illness makes me pick up on subtle cues very easily. I often pick up conflicting cues. Makes it really tough to read people, especially in person. 

Since many of my in-person experiences have been quite negative over the years, the default is that when someone goes out of their way to see me, I assume I’m in trouble. My family thinks it’s tragic that I always assume the worst when people come to see me in person. It’s even worse when I am summoned into an authority figure’s office on their terms. I’m keenly aware of power dynamics to the point it’s crippling.

August 15 2023

I have an appointment with my new psych doctor this morning. Means I have to venture into the downtown area. Pretty much just a get to know each other kind of deal. My mental health has been pretty stable. I’m actually excited about going into the city at large today. I normally keep to my suburb as my town is big enough it has everything I need within a few minutes of my house. First time I’ll be in the city in a few months.

The summer has been real hot for the most part. One the days it’s cooler than normal, it rains. We haven’t had the problems with fires this summer like we did this spring. I’m looking forward to autumn.

Was turned down for an apartment complex I applied for. Turns out the place is for mostly senior citizens age 62 and up. Since I’m only 43 I don’t qualify. It seems like most places that are easily handicap accessible are mainly for elderly. Looks like the wait is going to continue for the foreseeable future. I just don’t understand why, in a nation that have obvious affordable housing shortages, we don’t just build more places. Sounds almost like a lack of a supply to meet the increased demand. But, it’s not like young people don’t want to have their own houses and apartments. It’s that we can’t afford most of what is available.

Making most of my own meals now. I can now navigate my wheelchair through everywhere in the house. The doors are too narrow for a wheelchair to get through. But I can hobble thru until I can find a place to sit. I’m up quite late most nights. But I usually get more done at nights than during the day.

Thoughts On Anger, Greed, and Living Below Human Potential

We just had another mass shooting in my country this weekend, this time it was a mall in a suburb of Dallas. Now some politicians are starting to blame our daily mass shootings on untreated mental health problems. As if we mentally ill aren’t already demonized. Statistically, a very small percentage of violent crimes are committed by mentally ill people. Mentally ill people are far more likely to be victims of violent crimes than neurotypicals actually. I’m convinced it’s because many mentally ill live in poverty. Granted, some people I know claim that no one who has electricity and indoor plumbing is truly poor. Maybe in the 1920s. Today, over 80 percent of the world now has electricity. Of the eight billion people in the world, over five billion now have regular access to internet. I heard one of my elders saying “internet is a luxury” as recently as 2019. In 1999, that was true. A lot has changed since then. When over half of the world’s population has access to free education and news, a large percentage of whom make less than 5 dollars a day, it’s no longer a luxury. People used to think indoor plumbing and even being able to read and write were frivolous luxuries. Elders in ancient Greece used to complain that reading and writing were killing mental power and making people stupid. Things change and stay the same.

I am convinced that people are, by and large, more angry and stressed than we’ve been in living memory. Sure we have a world where 90 percent of the population isn’t starving. But the anger is still there because most people have only recently become aware of what is truly possible. Even an illiterate ten year old working in a cobalt mine in central Africa for only two dollars a day probably has heard of the Kardashians, Nicola Tesla, and Elon Mask if he has access to a smartphone or tv. Indigenous tribes in New Guinea knew who Neal Armstrong was back in the late 1970s and were asking visitors who was going to the moon next. People are very angry. Not because they are ungrateful, lazy, or not wanting to work. People are realizing how far below our potential we as a species are living. We no longer need wars. Even young men in Russia with their levels of internet and media censorship, realize that fighting a war in Ukraine is pointless and are voting with their feet. Young people in China are “Lying Falt” and “Letting It Rot” because they are realizing there is more to life than working and buying stuff you don’t need to impress people you don’t respect. Brad Pitt was talking this in the 1999 movie “Fight Club.”

I don’t like using the term waking up as the word “woke” has so much baggage in my country. But people, thanks for free information via the internet and universal literacy being a thing in even the poorest countries, are starting to figure out we can do better than we are. It doesn’t matter your race, creed, sexual orientation, age, political beliefs, or even economic ideals, the vast majority of humanity is not benefiting nearly as much from our science, technology, and education as is possible even now. I’m convinced it’s unrestrained greed that is the root of many of our problems today. I think unrestrained greed has always been at the root of most problems. Greed has been universally condemned by every major religion and legal code since the start of civilization. Greed’s even more dangerous now.

Banning books in libraries and book stores is becoming more common in my country than I can ever remember in my life. Sure, a lot of literature isn’t age appropriate for grade school children. Then again, neither are most parts of the Bible. Neither are some tv shows. My parents had no issues with me watching war movies like Rambo, War Games, and Red Dawn back in the 1980s. But The Simpsons and Al Bundy were completely off limits. Some states are starting to revoke tenure for college professors and scholars. Others are repealing some of their child labor laws. Some states are banning foreign social media like TikTok. Who benefits from these changes? As far as censorship goes, Martin Luther was excommunicated by the Catholic Church (meaning he was damned to burn in Hell forever) partially because he thought Christians should be able to read the Bible for themselves. Since the printing press had recently been popularized, it was only a matter of time before the Church of that era to lose their monopoly on literacy and information.

What is the internet other than the 21st century’s printing press? The most popular book to be printed on the 15th century printing press was the Bible. The second most popular were manuals about how to spot and persecute those who practice witchcraft and heresy. Some of the early explorers, like Christopher Columbus, were inspired by reading about the travels of Marco Polo. The printing press did lead to mass literacy, mass education, etc. But, problems came too. Some of the bloodiest holy wars, like the Thirty Years Wars (1618-1648) between Catholic and Protestant kingdoms of Europe and the English Civil War probably would have never happened without the printing press. Then again, neither would the scientific revolution, the industrial revolution, rediscovery of mass democracy, rights for women and minorities, end of slavery, etc. Same can be said for the internet. I’m old enough I didn’t get an email account until I was 18. Personally, I love that children can do real time Google and Wikipedia searches if they think an authority figure is talking nonsense. Google and Wikipedia are what old codgers like me use. For all I know, some of these children are using even better sources of information that I am not aware of. Censorship ultimately failed after the invention of the printing press. Censorship will fail even worse now with easy access to information.

As much as I love the internet, it’s only the first of several breakthroughs that will define the 21st century to future historians. Advances that are only in recent years becoming commonplace include artificial intelligence, robotics, 3D printing, regenerative medicine, renewable energy, etc. are already impacting the world. Just a few days ago, IBM announced they were laying off almost 8,000 employees and replacing them with the AI tech we already have. I’ve been saying this was going to happen since 2013. I am surprised it’s happening sooner than I thought. Naturally, there is no talk about retraining the displaced workers or even providing some kind of safety net while these displaced workers look for other sources of income. IBM laying off a significant chunk of their workforce is only the beginning. I expect headlines like these to become common faster than most people think.

I’m all in favor of allowing machines to take over some work duties as long as the proceeds get passed on to the public at large, whether it’s though reduced prices on robot produced goods and services, taxes on robot labor (which is favored by some tech gurus like Bill Gates), etc. But that’s probably not what’s s currently happening. And it won’t happen in the near term, at least not without serious social unrest. I’m not sure most people realize the parallels between our current Information Revolution and the Industrial Revolution of the 19th century. I think we are still in the phase of unregulated greed and ambition. If we as citizens were smart, we would be electing senators and presidents in the mold of Theodore Rosevelt. I’m convinced he did as much to make industrialization beneficial to everyone as any politician of his times. I’m convinced he even saved capitalism from its own excesses. In our current world, we have hit the point where most of the world’s people see the possibilities of better standards of living for everyone regardless of what country they live in.

What’s truly holding us back is plain old fashioned greed. There is a fine line between self interest and greed. Unfettered and unregulated greed will do more to kill capitalism and democracy than kids reading Karl Marx or Mao Zedong. It will also kill life on this planet just as dead as any nuclear war if we don’t reign it in. And we are all guilty of this, not just the wealthy and powerful. Manufacturing wouldn’t have been outsourced or done with slave labor ever if people weren’t addicted to cheap goods. We could make all of our electronics and household items in our own nations if people were willing to pay higher prices and employers more willing to raise wages. Just today I saw an episode of Shark Tank and a young married couple were pitching a product that cost $15 to make with American labor and selling for $24. And it was making decent sales. But the “sharks” were saying they wouldn’t fund this couple because the profit margins were “too low” and they “should move their manufacturing to China.” This young couple was already profitable. It’s not like they were losing money. It just wasn’t enough for the sharks to provide any seed money. Greed caused this project to be held back.

Recently saw lots of articles that a majority of people under the age of thirty have an unfavorable view of capitalism. Naturally, some pundits blamed the education system being communist. But, the only capitalism these kids experienced is seeing their parents lose their jobs and houses in the 2008 crisis while Wall Street got bailed out. They saw a lot of businesses go under during covid. They saw the shortages in grocery stores and retailers with their own eyes. They see the homeless camps every day. They undergo live shooter drills in their schools. They see people carrying firearms in malls and churches. They see people have to file for bankruptcy for having to go to the hospital. They themselves are working more than one job just to afford food and an apartment. They have never seen a world where a father could own a house, two cars, and support six children on only one income from the factory or the mine. They have never seen a world where 80 percent of the population were either farmers or factory workers. They’ve seen their parents factory and office jobs get sent to China because of lower wages, no benefits, and fewer environmental protections. Now it’s automation that’s coming for their jobs. Jobs that employ millions of people like drivers, warehouse workers, accountants, much of legal, etc. are no longer safe from automation. The only reason those aren’t automated yet is because it isn’t cheap enough. Give it a few years. Even cheap labor countries like China are going heavy into automation. Too Big To Fail, profitable companies not paying taxes, state sponsored capitalism (in China), mass layoffs, etc. are these kids experiences with capitalism. They have never seen a world where most businesses were local and large corportate jobs payed livable wages and provided pensions. The Founding Fathers, Adam Smith, F.A. Hayek, and Ludwig von Mises would have argued against this style of capitalism. Even Adam Smith talked about “enlightened self interest” back in the 1770s. I take enlightened self interest to mean don’t be a greedy jerk.

Human nature may not be completely changeable, but it can be regulated and restricted. The most free people in human history were Stone Age hunters. But even they had over half of their children die before they hit puberty. Giving up part of our freedom for the prosperity and stability that comes with civilizing ourselves is part of the deal. People today are angry because they know greed is slowing down our progress as a civilization and as a species. The old appeals of nationalism, racial bigotry, ideology, sexism, etc. were losing their appeals even when Carl Sagan talked about them in his Cosmos series in 1980, the year I was born. These are even less appealing to the mass of humanity now in 2023. Things like Occupy Wall Street and The Tea Party protests of a dozen years ago were only the start.

Advice To My 18 Year Old Nephew

My oldest nephew is going to graduate high school in a few weeks. He’s going to the same college his parents did to study electrical engineering. Since he was in an advanced study program all the way through high school, he already has most (if not all) of his general education requirements out of the way. This post is my advice to him (and other 18 year olds) about life after high school. I’m doing it as a list of things I’m glad I was told at 18 and things I wished I knew in high school. Here goes.

Things I Knew At Age 18 That Most People Didn’t

Don’t feel guilty if you don’t want to get married or have kids. Marriage and kids aren’t for everyone. Focus on your self development and early career first.

Dating is more dangerous and difficult now than it was in previous generations. It only takes one out of wedlock pregnancy or one accusation (even if it’s false) of misconduct to ruin your entire life. Don’t feel guilty if you struggle with dating. Sometimes it’s not worth the trouble.

Never stop learning. Especially now.

You’re probably going to change careers and even industries several times in your working life. Forget about retiring at age 62 like your grandfather. Social security alone won’t be able to support you in old age. Life expectancy could be crazy long 40 years from now.

If you truly want to get rich, your best chances are with starting your own business. Even then, the odds are against you. Some of the best business leaders would make terrible employees.

The industry you will be working in at age 40 might not even exist yet.

Be flexible when it comes to working. This is even more important now than twenty years ago. Entire industries can rise and go obsolete within ten years.

Don’t expect loyalty out of your employer, employees, government, etc. The world is changing real fast. It’s going to be even more insane twenty years from now.

Don’t participate in any conversations you wouldn’t want going viral on TikTok

There are no secrets anymore. It no longer pays to be a jerk in business. If you are unethical, you will get found out by the entire world. The internet never forgets.

Things I Wish I Knew At Age 18

You can do everything right and still fail. Chance and luck play more into life than anyone wants to admit. No such thing as a truly self made man.

Divorce isn’t necessarily a failure or the end of everything. But, it’s the kids who get hurt the most.

Getting laid off from a job isn’t a failure on your part. Getting laid off is normal now. We’re all independent contractors and hired guns now.

Coworkers are not your friends. Office politics are real and exist everywhere.

Don’t feel guilty if you don’t own a house by your 30th birthday. As much as the job market changes, it might be best to be a renter and able to move to another city or even nation for job opportunities.

Don’t dismiss working overseas. Cost of living is lower in many nations, most developed nations have universal health care, and many countries have better attitudes towards work life balance.

You are competing against the entire world now. If your job can be done cheaper overseas and or by a machine, it will be eventually.

You will probably be worse off financially and standard of living wise than your parents and grandparents. It’s no reflection on you. It’s just a sad fact of living in a declining culture. Hence, don’t rule out moving overseas for your career.

Land is a good investment if you can afford it. But even the Chinese are making man made islands anymore.

Investing in the stock market isn’t necessarily risky. Being short sighted and trying to time everything makes it risky. Don’t panic when the press tells you to panic. Screw the press. You want to be buying when everyone is selling and selling when everyone else is buying. Bulls make money. Bears make money. Sheep and Hogs get slaughtered.

Don’t watch 24 hour news channels. They will only make you bitter, hopeless, angry, and fearful. In fact, don’t even own a TV unless you own a gaming console.

Don’t major in something that can be learned in a few years of binge watching youtube or Khan Academy. In fact, don’t even go to college if you aren’t studying something for a specific career or industry. Many employers are dropping their college degree requirements.

Don’t major in something that can easily be automated or outsourced.

Sometimes the best education is free. Even more so now than ever with internet.

Don’t feel guilty about drinking Starbucks instead of putting the 5 bucks a day in a 401(k). You’re probably not going to retire at 65 anyway. In fact, you could probably easily live to 100 with as fast as medicine is advancing. Expect the social security age to be much higher than 65 before long. Sticking 5 bucks a day in a retirement account probably won’t make you rich. You’re better off trying your chances with starting your own business.

Keep up on science and technology advancements. They can provide good ideas for undervalued investments. They can also make you tougher to replace with robots become our overlords.

Don’t be nostalgic for the past. Your elders are full of crap when they talk about the ‘good ol’ days.’ The world wasn’t better in the past. Those elders were just in better health and less cynical and bitter. Actively fight against being a grumpy old man who complains about everything.

Surviving The Covid Pandemic With Schizophrenia and Congestive Heart Failure

Still doing physical therapy three times a week. Been doing this for over six weeks now. My speed is improving. So is my leg and arm strength. Overall I am down 65 pounds since I moved here around Memorial Day. Since the meals are well balanced and home made, I don’t feel deprived. I get three hot meals every day. I am on calorie restrictions, so I can’t go back for seconds. The meals are good enough that the smaller portions don’t bother me. I’m still on fluid restrictions. I usually drink less than 2 liters of fluids per day.

Got on the scale today. If I lose another 10 pounds, I will be at my lightest since my car accident in October 2015. One of the reasons I gave up my car was that it was really tough to get in and out of my car with my bad knees and back. I haven’t ridden in an automobile since late May, but I am quite confident I can get in and out of most cars easily. It seems like I’ve been losing 5 pounds per week since the therapy restarted in late September.

I can walk with a walker easily now. Distance is still a problem as I still get winded after a few minutes of walking. But even that is slowly coming back. I can stand in place for several minutes at a time even without a walker. I started experimenting with a cane too.

I go outside more often, at least when the weather is nice. Haven’t been outside for a few days as the weather has been chilly and rainy. We’ve been having terrible dry spells for many months now. Any rain is welcomed. Some parts of my state got their first snow of the season. Most of Nebraska usually gets it’s first snow before Thanksgiving.

The corn harvest is mostly done. Most of the leaves are gone from the trees. The grass is turning yellow. While we haven’t had our first snow yet, it does feel like winter isn’t far away. Most nights I sleep under a fleece quilt. It is purple and made for a king size bed even though I have only a queen size bed. I bought an extra large blanket so I could wrap up whether in bed or in my recliner.

I am now in a single room. It feels good to not have a roommate again. I had a roommate for a few months. First time since May 2004 I had not lived alone. Having a roommate was the largest adjustment to long term care. I’m also getting used to having communal meals. For years I made my own meals and ate alone most of the time.

My blood pressure was kind of low a few days ago. I don’t feel dizzy or weak. But I had problems with low blood pressure during the summer. Spent three days in the hospital in July because of those problems. I guess as I am losing weight fast, I’ll have to readjust the doses on my blood pressure meds every few months. I have lost 65 pounds since late May and have lost 145 pounds overall since the pandemic started. I’ve lost most of the weight I gained after my car accident. For a few years, I was really depressed, ate a lot, and was lazy about exercising besides weight lifting. If I lose another 45 pounds, I will be the lightest I’ve been since 2012. I eventually want to get back to my old college weight, but that’s at least a couple years in the future.

I still don’t have my own wheelchair. I’ve been borrowing one from the hospital for the last five months. First, Medicaid denied to pay for my wheelchair. Then we decided to order one through the hospital with my family paying for it. Well, the chair has been on back order for over three months. I can get along just fine with the wheelchair I borrow from the hospital. There is still no timeline on when the backlog will clear up. Could be another several months. I imagine by then I will have lost enough weight that I have to get remeasured to see how big of a chair I need. My current chair is already kind of big for me. I can get around just fine as long as the doors aren’t too narrow. For the doors that are narrow, I just fold up the chair and walk through.

I can already walk anywhere in my room without a walker most of the time. Sometimes my knees hurt enough that I use the walker. I can use a cane now too.

I had a bad cold for a couple days. I isolated from the other residents a couple days ago so I wouldn’t get others sick. I tested negative for covid. In almost three years of covid I still haven’t caught it.

Decided to get real serious about weight loss right before covid hit the US. I was afraid if I caught it, it would be real bad with me being overweight and having sleep apnea. I’ve lost 145 pounds since early 2020. Currently the lightest I’ve been since mid 2016. I avoided doctors and hospitals during covid for fear I’d catch it. I more or less stayed near my complex for 2 years. I rarely left the apartment without a mask. I wore masks when I met the delivery guys for my groceries and Amazon. Grocery delivery and Amazon kept me from getting sick for over two years. Most people I know have had covid multiple times. My brother has had it at least twice.

Maybe I went overboard treating covid like a war time crisis, but it kept me safe and well. I’ve also lost an incredible amount of weight in that time. It was kind of lonely, but I had my smart phone and called friends and family every day. I dropped in on neighbors a few times per week. My cleaning lady came every Thursday and did my laundry. Even though I was home bound because of my knee and foot pain, I still managed to survive the covid pandemic.

Even though I wound up in the hospital because of my blood pressure problems (which manifest in the knee and foot pain) in May 2022, I think I made the right decision to avoid most people and hospitals during the pandemic. It was lonely and it felt like I was hiding out in a bomb shelter. But it very well may have kept me from getting sick and thus kept me alive. With as overweight as I was in February 2020, my mental health problems, and my sleep apnea, covid could have been a death sentence back then. The vaccines didn’t become available in large scales until late spring 2021. I got vaccinated as soon as I could. Only then did I relax on some of the self imposed restrictions. Once the threat of covid faded, I started concentrating on the blood pressure issues.

Now that I am doing physical therapy three times a week, my weight loss has really gone fast. I am now convinced it is not a matter of if I get to go back out on my own, it’s a matter of when now. Everyone I know is amazed by the amount of progress I’ve made in less than six months. Hopefully I can make even more progress in the coming six months. Once my knee and foot pain cleared up, everything changed for the better.

The grocery delivery service, meds by mail, and Amazon service were all godsends for me. They very well may have kept me alive during the covid pandemic. I’m thankful I was able to have regular psych doctor appointments via Zoom calls for the duration of the pandemic. It was a difficult couple of years I will never forget. I think the covid pandemic changed me for the better.

Last Days of Summer 2022

Summer will be coming to an end in a few days. The leaves are starting to turn yellow. The days are still hot but cooler weather is supposed to hit by the middle of next week. I’m glad that summer is almost over. It’s always been a rough time for my mental health problems. I’m looking forward to Okotberfest, Halloween, Thanksgiving, chilly nights, pumpkin spice in dang near everything, and the whole bit. Fall is one of my favorite times of year. Fall is living proof that change can be beautiful and good.

I’m still losing weight. A wheel chair has been ordered for me. Should be here any day now. Now that I am regaining my mobility and am losing weight, I’m starting to formulate a strategy on how I can get into position to where I can have my own apartment once more. I have made a lot of progress over the summer. I’ve lost over 30 pounds since Memorial Day. My blood pressure has stabilized. I lost enough weight that the doctor had to take me off a couple of my meds because my blood pressure was getting too low. Once I get my own wheelchair, I’ll be a lot more mobile than I am now. I am currently using a wheel chair I’m borrowing from the nursing home. The public transit buses in Kearney are wheel chair accessible, so maybe I could go back to Kearney once I’ve lost some more weight.

One of the reasons I opted to go to a nursing home was I couldn’t get to my doctors’ appointments anymore. I couldn’t walk long distances and I get sensory overload so much I can’t drive safely anymore. But, since some public buses are wheelchair accessible, I might be able to live on my own again and just take the bus everywhere. Hell, I might even be well enough to move out on my own within several months.

Maybe I should have bought my own wheelchair rather than give up my apartment in the first place. But hindsight is always perfect. I really didn’t think I was ever going to get better. It’s amazing how losing weight, regular doctors’ appointments, and getting my blood pressure under control changed everything.

Nearing The End of Summer

Summer is almost over and I’m glad for it. This has always been the roughest time of year for me. I’m looking forward to chilly nights, changing leaves, pumpkin spice in everything, and fall sports. School started a couple weeks ago so it’s feeling more like fall.

My Saturday plans during the fall usually involved staying home and watching football. Today will be no exception. I might even go down to the community tv room and watch the games. I feel like things are starting to come back to life with the change of seasons.

For most of my adult life, I lived in college towns. Those towns were really quiet during the summer, but really came back to life once students returned for fall semester. This is the first time in eighteen years I won’t be in a college town for the fall. It’s bittersweet. I’m where I know I need to be to get healthier. But I do miss the activities of college towns, whether it’s concerts at the local dive bars, ball games on the weekends, cultural events on campus, or just running into college students during my overnight trips to Wal Mart or the 24 hour grocery store in town. I miss those activities already.

My blood pressure is back to normal and I’m losing an average of 8 to 10 pounds per month since I moved here. I’ve lost over 100 pounds in the last 2 and a half years. Eventually I would love to get back to my old college weight. I can walk short distances again, even if it is slow. Most of the pain in my knees is gone. I haven’t had pain in my feet in weeks. I’m starting to need less sleep. Last night slept from 11pm to 6:30 am. My sleep patterns are starting to improve. I used to need 10 to 12 hours of sleep per night.

Overall I’m feeling much better than I felt this spring. I’m glad to be back on the right track.

August 27 2022 Updates

My knee pain is starting to clear up. I’m on a couple medications for it. Seems like it’s taking effect. I get out of my apartment at least a couple times a day anymore. It was just getting too discouraging to spend all my time at home.

My blood pressure has been stable for weeks now. I think I’m still losing weight. Some of my smaller clothes are starting to fit again. Tried on a couple of my hoodies a few days ago and they fit perfect now. Weather will start cooling off in a couple weeks so I have those ready.

Haven’t heard much from friends lately. Everyone is busy with work, family, chores, etc. Found out my friend in Denver is promoting her arts and crafts again. Won’t be too long before Christmas. I’ve bought a couple of her knitted hats in the past.

I just feel chilly most of the time lately. I imagine the blood pressure medications have changed my circulation. Rarely do I ever sit down without a blanket over my legs and feet. My joints feel worse when they are cold. My knees also ache whenever the weather changes drastically. We had a hail storm a week and a half ago. My knees were really acting up that day.

Still listening to audiobooks. Decided I’m going through Asimov’s Foundation series. I’m halfway through the first book so far. I like to listen to it while I play Civilization: Beyond Earth. That game is about setting up colonies on another planet. It’s certainly a science fiction game.

I’m thinking about hooking up my Play Station soon. I imagine as the days are getting shorter and start getting cooler, I’ll want to spend more time at home and less socializing. I still get around really well in a wheel chair. I usually make a few laps in the hallways every morning just to keep my arm strength up. Just because my knees went bad doesn’t mean my arms have to.

Haven’t seen my family since early July. I did get a good visit from an old college friend about a month ago. He bought me some updates to my Civilization game. Been playing that a great deal since. Having activities, even if it’s computer games, help the time pass on long days.

I’m looking forward to the fall. Fall is my second favorite season behind spring. I love the longer nights, the cooler nights, the changing leaves, the harvest, and the variety of sports during the fall.

Updates August 3 2022

I’ve now lived in my current place for two months. Updates are in order. My blood pressure is now normal and stabilized. I’m doing physical therapy twice a week trying to get some mobility back. I’m continuing to lose weight, usually a couple pounds per week. I’m eating smaller, but better balanced meals. The nursing and help staff are amazing here. My mobility is still limited to wheel chairs and walkers. I occasionally still get pains in my feet and knees. Usually some tylenol will clear those pains.

The variety of meals here is good. Seems that everything is home made quality. I think we have about 40 residents in my complex, most are senior citizens. I’m still adjusting to having a roommate for the first time in eighteen years. I had just got so used to living alone that having a roommate is probably the biggest adjustment I had to make. I sleep in an adjustable hospital bed. It’s so much easier on my knees and back than traditional beds. I’ve lost enough weight that I can sleep on my sides for part of the night. I’m currently at my lowest weight since late 2017.

Even though I’m at my lowest weight in almost five years, my mobility hasn’t come back as much as I hoped. I can still get around really well with a wheel chair. But I don’t own my own personal wheel chair as I borrow one from the complex. I met with a wheel chair salesman last week and talked to him for a good forty five minutes trying to get me outfitted with a custom made chair. Right now I’m waiting on social security to approve the purchase. I imagine supply chain problems are still an issue on some things.

Had a couple amazon deliveries to my new residence. Had to buy some new shorts as I was running out of pants that properly fit. It’s nice living where I don’t have to worry about doing laundry or cooking my meals anymore. I also enjoy having 24 hour access to health care and not having to worry about filling my prescriptions anymore.