Monthly Archives: August 2023

Late August and Transitioning into Early Fall

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Been staying up late most nights lately and usually sleeping until late morning. It seems to help with my depression and anxiety. I generally do better research and writing in the overnight hours when the house and neighborhood are quiet. Of course my mom worries about me keeping such odd hours and sleeping so much during the day. As of right now it’s not effecting my anxiety or even blood pressure. It seems to work for me right now.

I think I’m losing weight again after gaining 20 pounds in the first three months I moved to Oklahoma. I try not to focus on numbers so much as I do how my clothing fits, how many aches and pains I have, and how much I actually eat. Since switching to mostly meats and vegetables, I have found that I eat less often and my hunger is more manageable. I usually eat once if I’m up in the middle of the night.

I’ve been quite stable this August. Normally, August is the toughest time of year for me. Last August when I was in physical rehab was quite tough. I had issues with my roommate and my aches and pains in my feet and knees still hadn’t completely cleared. Summer 2022 was tough. I actually made my peace with the fact that I might not live long enough to move to Oklahoma. Thankfully, that never came to pass.

Mentally I have been, for the most part, more stable since I moved to Oklahoma City than when I lived-in small-town Nebraska. I always felt like an outsider in such small areas. I didn’t make many friends as I have such odd interests. Most of my friends no longer live in Nebraska. It took me 42 years to move to an urban area, but I’m glad I finally did. I would have come here several years sooner if not for the pandemic and unresolved health issues. But eight months in physical rehab seems to be exactly what I needed. I certainly wasn’t going to get the immediate and intense help I needed living in low-income housing in Kearney.

I really don’t like socializing in person as most people don’t share my interests and I don’t share the interests of most people. I haven’t sat down and watched a sports event from start to finish since 2015. And that was an in person minor league baseball game. Those are fun. And often cheap. Last time I went to a minor league game in Omaha, I was able to get a seat within reaching distance of one of the dugouts, buy two hot dogs, and a soda pop for less than 25 dollars. I’d rather go see a minor league baseball game in person than go to the movies. At least with baseball I can sit outdoors for three hours, socialize with my neighbors between innings, and crowd watch. Oklahoma City has a minor league team too. If I ever regain my mobility, I’m going to make a point of going to at least one game every summer. I like watching baseball in person more than watching it on tv. And most football games have too large of crowds for my liking.

It is obvious that summer is coming to an end. We are in the last days of August. Schools are back in session. Baseball playoffs will be starting in a few weeks. The leaves will be changing soon. I will be interested in seeing how autumn here in Oklahoma differs from back in Nebraska. Leaves in Nebraska usually start turning in mid to late September, corn harvest is in full swing by early October, and the first frost is usually by mid-October. We’ve just had a week of 100-degree Fahrenheit. Hopefully, it’s the last real heat wave for the summer. The nights are getting noticeably longer.

Been going through some of my old posts from previous years. I’m thinking about sharing some time appropriate posts from the past. With September being only a few days away, I might repost some of the blogs I wrote five years ago, two years ago, last year, etc. I started doing that some with the facebook page for this blog. And my traffic is starting to increase again. My traffic had been low during the pandemic and when I wasn’t posting regularly during physical rehab. It’s now starting to pick up again. Eventually I’m probably going to monetize the blog and see if I can make a little money on the side. I’m definitely planning on promoting more and posting more. I think I have enough materials now I should be able to do something like a Throwback Thursday every week.

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Good Times and Bad Times With Schizophrenia

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College Years and How I Became a Blogger

Hobbies and Mental Illness

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I’ve had lots of hobbies over the years. I liked fishing when I was in high school and college. I did intramural softball when I was in college. Did speech and school plays when I was a teenager. Did football and track in high school. Started writing in college. Wrote poetry for several years. I started this blog after a series of essays I wrote about living with mental illness. Wrote rough drafts for two novels when I was in my twenties. I found a love for computer games in my thirties. The Civilization series, Railroad Tycoon series, Total War series, Stellaris, and Sim City are probably my favorite PC games. My favorite games on PlayStation 5 are Skyrim, Cyberpunk 2077, God of War, FIFA Soccer, Madden NFL, and Call of Duty. I also collect books. I love to read, mostly nonfiction. My favorite genres are nonfiction science, biographies, philosophy, economics, personal finance, and history.

Hobbies helped me find new meaning in my life once it became painfully obvious, I couldn’t hold a regular job anymore. I haven’t worked a regular job since 2012. Yet, that’s when I got serious about writing. Over the years I’ve written in this blog regularly. It’s part memoir and part journal. I’ve gotten readers from most countries all over the world. Haven’t made much money off my writings.

For the first few years of my writing journey, I self-published several books. There was the forementioned mental illness essays book, several poetry books, an advice book, and a novel. I went through the print on demand route. Ended up selling several dozen copies. I’m kicking myself for not saving some of those Word files. I’m thinking eventually of putting some of my blog entries into book form. Just a matter of copying and editing. I have hundreds of entries on this blog. There certainly has to be at least one book in there.

In short, writing is one of those hobbies that has taken on a life of its own. I’m thinking of eventually taking the next logical step and trying to get some of these writings publicized. I’m probably going to monetize my blog too once I get the funding. I almost have enough to make this a professional blog. I have found more meaning in writing than I ever found in any job. It’s the best job, but worst paying, I ever had. I hope to change that starting real soon.

Looking Forward to Autumn, Friends and their Mid Life Crises, Dealing with Extreme Weather, and Refusing To Tolerate Stupid and Rude People Anymore

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Saw my general practitioner a few days ago. My blood pressure is stable and good. Everything else seems to be going alright. School started here in Oklahoma City last week. My parents will probably be going to school activities again once the weather cools down. With as hot as it’s been the last several days, it’s hard to believe that autumn is only a few weeks away. First college football games start next week. I guess I’ve lost interest in most sports besides the Olympics and World Cup. My interests have changed as I aged.

Haven’t had much contact with most of my friends all summer. Seems like most of them are going through midlife crises and are very angry and upset all the time. I’m grateful I went through my worst trials in my twenties. I don’t think I could start over at this point in my life, certainly not while fighting schizophrenia and heart failure. I still get depressed and despondent a few times per week. I definitely don’t like socializing in person. Most people are too obnoxious, rude, and angry anymore. My parents went to visit my brother and his family a few days ago. I made the point of not going to see them. I just hate socializing with people who refuse to back down and try to make everything a battle. I have enough inner battles of my own.

My best friend is suffering really bad right now. She’s always depressed and irritated. Has been for a couple of years. But this is worse than normal. I reach out to her when she goes on about no one reaching out, but she goes almost silent when I do try to get her to open up. It’s depressing to watch my friend of 30 years on the downward spiral. I try to tell her family that this isn’t normal. Naturally, no one is listening. It has always angered me when people ignore obvious facts. I never understood the line of thinking that a problem will go away if it’s ignored long enough. I swear, no one learns from the mistakes of the past or even their own. It’s really aggravating. It’s like some people want to self-destruct.

I sleep a lot in the afternoons lately. Helps me to avoid the worst of this summer heat wave. We knew climate change was coming for decades. We didn’t do enough to prevent it, let alone adapt to it. I am encouraged that renewables and next generation nuclear is being rapidly adopted. It still angers me that my nation pulled out of the Paris Climate Accord.

It also angers me that many of my countrymen (including most of my family) actively fight against the rebuilding and reinforcing of our nation’s infrastructure. I get that maintaining water systems, power plants, and highways aren’t as sexy as spending taxpayer money on defense and advanced research, but seriously, who doesn’t need clean running water or highway bridges that won’t collapse. We in the US have known our roads, railways, power grids, etc. weren’t keeping up with demand for many years. Only now are we truly addressing it. We’re also starting to bring back much of our manufacturing (granted it’s primarily done by machines). Interest rates are finally going back up, which they were artificially low for at least 20 years. I heard people complain about low interest rates. And now those same people are complaining about rates going up. Make up your minds already.

This level of insanity and cognitive dissonance are two big reasons I refuse to attend social functions anymore. It’s absolutely painful to listen to people howl on about things they know nothing about. I know nothing about quantum physics or marathon running, but I won’t comment on either one. Neurotypical people are absolutely frustrating. They aren’t even worth the trouble anymore, at least not as far as I can tell.

It’s one of the reasons I’m actually kind of glad a new place hasn’t opened up for me. At least here in the suburbs I don’t have to socialize if I don’t want to. At least I have some privacy, even if I do live in my mom’s guest room. Yes, I am a 43-year-old schizophrenic man living with his mom and dad. Never mind that I lived on my own with this diagnosis for over 18 years. I should be ashamed to live with my parents because so many people tell me I should be. But I’m not. Most people have zero clue with mental illness means. It’s one of those things no one will understand until it affects them personally or someone they care about. But cases of mental health problems are increasing. And they will continue to increase until we stop shaming people for the so-called weakness. I am glad that mental illness is easier to talk about publicly now than 20 years ago. I just hope the younger people struggling with mental health problems don’t have to suffer alone like I did in my teens and twenties. It is not weak to talk about problems. Never has been.

In some ways I’m not really looking forward to moving out on my own again. It’s actually nice to have some help around the house now that my mobility is gone. Not having easy access to interpersonal assistance is the biggest regret I have about not getting married. Yet, the mental illness would probably have made me impossible to live with. That, and I think people give up on marriages, friendships, employees, jobs, etc. too easily anymore. I just didn’t trust anyone enough to believe they wouldn’t abandon me when things got bad. I never will trust anyone enough to believe they won’t abandon me when things get tough. Everything is conditional and negotiable as far as I’ve seen. That’s pretty much the story of civilization. Nothing lasts forever. Sadly, neither do friendships and marriages. And I certainly don’t trust my neighbors anymore. I’m really not looking forward to returning to public life.

If I had my way, I’d just stay in my parents’ house and take over after they die. I know social security disability will allow disabled people to own their own house. But I’m not sure I could afford the property taxes in the suburbs. There are lots of Uber drivers and public transit available even in the suburbs. My brother and his family probably aren’t moving, barring anything major. Electricity is quite cheap down here, probably be even more so if we got solar panels and backup batteries installed on the house. Some of my neighbors have those. Every time I go out on the town, I see at least one Tesla. It feels good to finally live somewhere that seems to actually want to be part of the 21st century. I’m loving it. Wished I would have moved here years ago.

August 15 2023

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I have an appointment with my new psych doctor this morning. Means I have to venture into the downtown area. Pretty much just a get to know each other kind of deal. My mental health has been pretty stable. I’m actually excited about going into the city at large today. I normally keep to my suburb as my town is big enough it has everything I need within a few minutes of my house. First time I’ll be in the city in a few months.

The summer has been real hot for the most part. One the days it’s cooler than normal, it rains. We haven’t had the problems with fires this summer like we did this spring. I’m looking forward to autumn.

Was turned down for an apartment complex I applied for. Turns out the place is for mostly senior citizens age 62 and up. Since I’m only 43 I don’t qualify. It seems like most places that are easily handicap accessible are mainly for elderly. Looks like the wait is going to continue for the foreseeable future. I just don’t understand why, in a nation that have obvious affordable housing shortages, we don’t just build more places. Sounds almost like a lack of a supply to meet the increased demand. But, it’s not like young people don’t want to have their own houses and apartments. It’s that we can’t afford most of what is available.

Making most of my own meals now. I can now navigate my wheelchair through everywhere in the house. The doors are too narrow for a wheelchair to get through. But I can hobble thru until I can find a place to sit. I’m up quite late most nights. But I usually get more done at nights than during the day.

August 9 2023

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Yesterday I got a notification from the city housing authority. They had me fill out an intake certification with a specific apartment complex. Looks like I’m one step closer to having my own place again. I received that notice yesterday morning and had it filled out shortly after. I feel like I’m getting my life back. If this pan out, it will be the first time in my life I will live in an urban area. Hopefully I can get involved in some interesting social activities. I’ve always enjoyed culture, art, literature, music, and history. Been a really long time since I got to socialize with people whom have similar interests, at least in person.

August 2 2023

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Updates are in order. I’m still on the waiting list for low-income housing in Oklahoma City. The housing authority is actively seeking a place that is wheelchair accessible. I should be moving up the list as the waiting lists were updated and many people who are no longer looking for places are being removed from the list. I have no idea how long this wait will be. My friend in Denver who works for a large landlord said that out there, she’s heard of horror stories about low income people waiting over five years to get into a place. In my case I am doing alright here in the suburbs. I can run a wheelchair well enough now that I can navigate my parents’ entire house except for doorways. I have to fold up the wheelchair and walk though for the doors. Haven’t been outside since the current heat wave started. We’ve had many days of 100-degree Fahrenheit heat since mid-July. Not exactly sure what that translates to in Celsius, I’m thinking 40 something degree Celsius.

Made some new friends since I moved to Oklahoma. Staying in contact with old friends from back in Nebraska. One friend was someone who lived in the same complex I did. We are both homebodies but share several similar interests. I regret not visiting her in person more when I still lived there. But the last two years I lived in Kearney were during the height of the pandemic. I didn’t visit many people in person those two years. Did a lot of reading and writing though. Moved out of Kearney in June 2022 and went to physical rehab for eight months. Moved in with my parent in February 2023. Lost over 180 pounds between February 2020 and February 2023. Sadly, gained about 20 pounds back in the last six months. Too much sugar and carbs. I was easily losing weight when I was eating mostly grilled, roasted, and baked meats (mostly chicken, turkey, and pork) and vegetables. I gave up most carbs, most sugars, most fast food, etc.

Saw my physicians’ assistant yesterday via teleconference. It was for my sleep apnea. I needed to renew my prescription so I can get replacement parts for my CPAP machine. As my machine is only three years old, it should last at least another three to four years. But it works so much better when I replace worn out parts regularly. Since I don’t use distilled water or oxygen, it’s easier to keep clean. And I just use the nasal units rather than the full-face mask. My doctor thinks if I get back to losing weight again, I could possibly be off the CPAP entirely. I think I should be able to get back to losing weight now that I’ve adopted my pandemic diet again.

My blood pressure is stable. Has been for weeks. I have to see my general practice doctor again by the end of August for general checkup. He wants to see his heart patients every three months. I see my new psych doctor this month too. Since my psychiatric health has been stable for the last few years, I should be doing just routine maintenance. I do have occasional psych flare ups, but they usually don’t last long. I have found if I limit stress the flare ups are fewer and further between.

Making most of my own meals now. While my parents are thrilled with my ever-increasing independence, I think my mom is kind of sad that she doesn’t cook for me very often anymore. I think my dad is kind of sad that I don’t watch Westerns with him much, certainly not like what I did in the first few weeks I moved here. I buy most of my own groceries, pay some in utilities, and order my own home supplies via Amazon. As there is a huge Amazon facility in our metroplex, almost everything is next day delivery. I’m still not washing my own laundry just yet. Our washing machine is in a tight closet that is impossible to navigate with a wheelchair. My knees are chronically hurting due to bad arthritis. If I take Tylenol every day, it seems to negate it some but not enough to restore my ability to walk without serious knee pain.

Even though I don’t eat most of my meals with my parents anymore, I still talk to them in person some every day. During the pandemic I made a point to call them at least once a day. In some ways I am not in a real rush to get my own place. The big reason I need my own place it that I can’t afford their house on my social security disability pension. Sure, the house is paid off entirely, but I still couldn’t afford property taxes and maintenance.

Shortly after I moved to Oklahoma, my new social security case worker told me that since I was diagnosed with schizophrenia at age 20, I should have been able to qualify for social security payouts based on my parents’ income and not mine. Since both of my parents were medical professionals, that alone would significantly increase my benefits. So we applied for benefits increases. Naturally we were denied. But denials are standard in disability cases, at least here in the USA. I plan on hiring a lawyer to appeal this case. I had to lawyer up when I first applied for social security in the mid 2000s. Even with a lawyer my case took over two years to resolve. Since I no longer was covered by my parents’ insurance, I needed a high-risk emergency health insurance. It was a rugged two years waiting for that verdict.

I’m hanging in there overall. I’m just ready for some fall again.