August 27 2022 Updates

My knee pain is starting to clear up. I’m on a couple medications for it. Seems like it’s taking effect. I get out of my apartment at least a couple times a day anymore. It was just getting too discouraging to spend all my time at home.

My blood pressure has been stable for weeks now. I think I’m still losing weight. Some of my smaller clothes are starting to fit again. Tried on a couple of my hoodies a few days ago and they fit perfect now. Weather will start cooling off in a couple weeks so I have those ready.

Haven’t heard much from friends lately. Everyone is busy with work, family, chores, etc. Found out my friend in Denver is promoting her arts and crafts again. Won’t be too long before Christmas. I’ve bought a couple of her knitted hats in the past.

I just feel chilly most of the time lately. I imagine the blood pressure medications have changed my circulation. Rarely do I ever sit down without a blanket over my legs and feet. My joints feel worse when they are cold. My knees also ache whenever the weather changes drastically. We had a hail storm a week and a half ago. My knees were really acting up that day.

Still listening to audiobooks. Decided I’m going through Asimov’s Foundation series. I’m halfway through the first book so far. I like to listen to it while I play Civilization: Beyond Earth. That game is about setting up colonies on another planet. It’s certainly a science fiction game.

I’m thinking about hooking up my Play Station soon. I imagine as the days are getting shorter and start getting cooler, I’ll want to spend more time at home and less socializing. I still get around really well in a wheel chair. I usually make a few laps in the hallways every morning just to keep my arm strength up. Just because my knees went bad doesn’t mean my arms have to.

Haven’t seen my family since early July. I did get a good visit from an old college friend about a month ago. He bought me some updates to my Civilization game. Been playing that a great deal since. Having activities, even if it’s computer games, help the time pass on long days.

I’m looking forward to the fall. Fall is my second favorite season behind spring. I love the longer nights, the cooler nights, the changing leaves, the harvest, and the variety of sports during the fall.

Moving to Long Term Care. Changes in A Life Of Mental Illness

It’s been a long while since I last wrote. Updates are in order. Two weeks ago I called the ambulance as I was having issues with foot pain and blood pressure. In those two weeks, I got my blood pressure back under control, had over 20 pounds of excess fluids pulled out, and decided to move to a Long Term Care facility in my home state of Nebraska. After almost 18 years of living on my own, I can no longer manage my mental illness issues and physical health problems at the same time.

I am currently in swing bed in a hospital in a small town in Nebraska. I should be able to move to my permanent long term care unit (in the same town) by Wednesday June 8th. My foot pain has mostly cleared up. My blood pressure is back to normal. I am not diabetic. All my blood numbers are in safe ranges. But I can no longer manage physical health and mental health at the same time. I can no longer live on my own. I came to the conclusion I need more help than I was getting at my previous home.

My parents and my cleaning lady will start clearing out my old apartment probably on Tuesday. I decided I’m donating most of my books to the complex library. Give them more variety than romance, western, and crime dramas. I lived there almost exactly sixteen years. It feels surreal to be moving. But it needs to be done. I just can’t take care of all my issues on my own anymore.

I will be living on a ground floor, have access to a wheel chair, and the staff will cook my meals, handle my medications, and do my laundry and cleaning. It’s been a crazy last two weeks, that’s for sure. But these changes were needed. I should have moved into long term care last fall when I had my blood pressure issues. But, with covid still raging hard, I guess all of that got lost in the shuffle.

April 12 2022

It’s been quite awhile since I wrote. Updates are in order. Spring is here but we haven’t gotten much rain. With as windy as it’s been, we’ve had lots of wildfires in my state this spring. The weather is slowly warming up, but it’s still chilly at night.

Baseball season started last week. I have a fantasy league team again. I’m in a league with a couple college friends and some of their former coworkers. Been in this league for 15 years now. So I usually watch a ballgame or two during the evenings.

Been staying up later and waking up later. Most nights I don’t fall asleep until midnight. Wake up for good around 9am. I sleep in my recliner only half of the night anymore. I’m having fewer aches and pains again. They were pretty bad a couple weeks ago.

Mentally I am still stable. I don’t leave my apartment very often. I do visit my neighbors a few times a week. My cleaning lady arrives every Thursday. She helps me with laundry now too.

I Don’t Socialize Much In Person, But I Don’t Feel Lonely Or Isolated

Spring has finally sprung. I’m glad to see the end of winter. My aches and pains have been essentially non existent the last several days. Most days I’m asleep by 10pm and up for good by 5am. I’m back to listening to audiobooks again after a few weeks of vacation I still have no desire to socialize in person. I do talk to friends and family a few times a day. But I spend most of my time alone.

I’m still losing weight, at least as far as I can tell. I can stand for longer periods of time now. I have fewer aches and pains. Things are going alright on that end.

I’m still afraid to socialize in person. I’m also scared to leave my apartment. My paranoia keeps me at home most of the time. I’m just scared of people anymore. I just don’t know how to read them anymore. It’s far easier for me to socialize over the phone and online than it is to socialize in person. The pandemic hasn’t been as tough on me as most people. I love that I can socialize online and on the phone. I love that I can get my groceries and medications delivered to my home. I love that I have a cleaning lady comes to my place once a week. I love being able to make payments online. I enjoy streaming services like Netflix and Amazon Prime. Absolutely love my Audible audiobooks. Sometimes I can spend hours at a time listening to audiobooks while playing computer games. I even love doing my doctors’ appointments via Zoom calls. I have too much sensory overload to be a safe driver anymore. Haven’t driven a car in almost three years. Saved me lots of money and headaches. I now know that my car accident several years ago spooked me real bad. It killed my love for driving.

Even though I’m afraid to socialize in person anymore, I really don’t feel like I’m missing out on much. It’s always been really tough for me to find people with similar interests. It’s gotten tougher the older I got. Most of my old friends have families and careers, so their ability to socialize with me is at a minimum. I haven’t seen my friend Matt since 2015. I haven’t been to a family reunion in probably ten years. I’ve been outside of my town only once since the start of the pandemic. While my physical world has gotten much smaller the last few years, my mental world has gotten much bigger. I probably spend six to eight hours per day reading, watching documentaries, and just learning new things. I’ve learned more history, economics, philosophy, science, etc. since 2015 than all the years before that.

One of the things I enjoy about being in my forties is that I no longer feel pressured to conform to others’ expectations. If I don’t want to leave my apartment for days at a time, I don’t leave my apartment. And I no longer feel any shame for wanting to stay home. I didn’t use to be a homebody. When I was in my teens and twenties, I preferred to spend time at my friends’ houses. I went roadtripping with my college friends every summer in my twenties and early thrities. I started becoming a homebody about five years ago. And the pandemic has accelerated this trend. I no longer feel like eating in restaurants or going out in public. I know many people feel like I’m missing out on life by not going to movies or sporting events or restaurants. But I don’t feel that way. I just hate being forced out of my home.

Even though I don’t have a paying job or a family, I don’t feel incomplete or a failure. I have, on average, written one blog entry per week over the last nine years. While it doesn’t have much of an audience, I still love doing it. I see no reason to quit doing this. It has given me more meaning in my life than any job or dating relationship ever did.

March 10 2022

Got several inches of snow over the last couple days. Been really cold too. Haven’t left my apartment in over a week except to accept grocery deliveries. I still talk to friends and family on a daily basis. I still sleep a lot but I usually sleep only a couple hours at a time. Been feeling more aches and pains again. I just want to stay home all the time anymore. Sometimes I don’t even want to eat. I try to avoid the news anymore, even online materials. Bought some extra groceries. Who knows how high prices are going to get. Gas is close to $4 a gallon in my hometown and we are below national average. I guess it’s a good time to be a hermit and away from most people.

Feb 20 2022

Been warmer than usual for the last several days. Supposed to get real cold starting tomorrow morning. I’m actually looking forward to it. Gives me an excuse for not feeling guilty about not wanting to leave my home. Probably just stay home, make cheese soup, and read for the next several days.

I’m feeling less aches and pains all the time. The only real bad time is in the mornings. My knee pains are all but gone but I still get lower back pain after sleeping for several hours. I got a new mattress a week ago. It’s firmer than my old one and a lot easier to get out of. I usually stay up late now and sleep until 9am.

My best friend found a new job. She has to have security clearance and can’t take her phone into her office. So I haven’t gotten to talk to her much in the last couple weeks. I miss our chats but I know this job is better for her than most of the jobs she’s previously held. She too has problems with anxiety and depression.

I think I’m continuing to lose weight. I don’t have the same appetite I had even six months ago. I’m able to make my groceries go farther. I still get winded if I have to stand for several minutes at a time. I’m also not as heat sensitive as I used to be.

Mentally I’m stable. I’m not having flare ups as often. I still do better taking people one at a time and in short time periods. I hear from my neighbors at least once a day. I still call my parents several times a week.

Been kind of lazy about reading the last several days. I always seem to read more in cold weather. Been watching lots of documentaries about America before the arrival of Europeans lately. Same with the old Silk Road.

Recovering After A Rough Spell

I’m starting to recover after a couple rough weeks. Been feeling more paranoid and irritable than usual. Things started getting better a few days ago. I’m back to more regular sleep even if I am staying up a couple hours later than usual. I still sleep half of the night in my recliner. It seems to be easier on my back and knees.

So far has been a milder and dryer winter than usual. We haven’t had anywhere near normal snow. It actually feels more like prolonged autumn than winter some days. Still gets real cold at nights.

I really haven’t changed my routine much. I drop in on my neighbors once a day. I go to the complex library at least once a week. I contact my family usually once a day. Still listen to lots of audiobooks. I usually kept to myself most of the time for fear of having a breakdown in public. Finally had a minor one a few days ago. Didn’t last long but it was healing like having a good cry or any other emotional release.

Broke down and bought some smaller shirts several days ago. I’m down a full shirt size in the last two years. My aches and pains aren’t nearly as bad. I still get winded occasionally but I can recover from those faster than even a few months ago. I do have problems falling asleep but I get quality sleep once I do sleep. 4am to 9am seems to be my best sleep time. I still take my meds every night. They sometimes make me sleepy.

Flare Ups

Been having flare ups of the mental illness several times a day for the last couple weeks. I’ve been more on edge than usual. I never leave my apartment except to meet the delivery man. Having lots more irritability and paranoia lately. Been having problems with sleep too.

I really want to talk to my friends and family about the problems I’ve been having the last couple weeks. But, everyone’s too busy with their own hang ups and problems. I’m wound up tighter than normal. I don’t even enjoy eating anymore. Some days I’ll eat only once a day.

November 3 2021

We are well into fall right now. My town had it first’s snow of the season two days ago. I’ve adjusted to my new medication routine. I still occasionally get spikes in blood pressure. I still occasionally have moments of depression and anxiety. Been able to avoid paranoia since I got out of the hospital.

My best friend had covid in October. Had to miss some time from work. She’s recovered now. She said it was one of the worst sicknesses she ever had. I’m due for a booster shot sometime around Christmas.

Had an appointment with my general practice doctor via Zoom last week. The public transit in my town isn’t very easily accessible. So Zoom appointments, grocery delivery, and Amazon Prime are godsends for people like me.

I no longer sleep twelve hours a day. I’m now around 8 hours or so. Most nights I’m up in the middle of the night for a couple hours. I still get stiff and sore, especially in the mornings. That first get out bed and walk to the bathroom is always the worst. After I stood up a couple times, I’m usually pretty good to go. The stiffness comes back if I sit for more than a couple hours at a time.

October 22 2021

I’ve been back at home for a week. In that time, I signed up for home health services. I have physical therapy at least two days per week and a home health nurse come in and check in on me a couple times a week too. I sleep a lot. Most nights I’m in bed shortly after sunset. I sleep most of the night except to go to the bathroom a couple times a night. I usually awake for good shortly before sunrise.

I have to take blood pressure meds three times a day. I still take my psych meds every night before bed. Sometimes the coming and going of nurses and therapists can be close to overwhelming. But it hasn’t gotten the best of me, at least not yet. I haven’t had any real serious bouts of depression, anxiety, or irritability since I came back home.

The weather is getting colder. Most nights it gets around freezing point. The leaves have turned and the harvest is going full effect. It is defineately autumn.

To keep myself occupied, I listen to audiobooks while I play computer games. I do exercises every day in accordance with my rehab. My strength and balance are good but I need to rebuild my endurance. I do use a walker when I am outside of my apartment. Part of my rehab is doing walking in the hallway. I also do a lot of standing leg exercises to increase endurance and balance. I still have to hold onto a walker when I stand on only one leg.

Continued to lose weight when I was in the hospital. Overall I am down over 80 pounds in the last two years. I hope that now I am more mobile I can continue the weight loss.