Tag Archives: mental illness

Book Review: Surviving Schizophrenia: A Family Manual by Dr. E. Fuller Torrey

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Dr. E. Fuller Torrey’s Surviving Schizophrenia is widely regarded as a foundational text for families, caregivers, and professionals navigating the complexities of schizophrenia. Now in its seventh edition, this book has stood the test of time as one of the most accessible and comprehensive guides on the subject.

A Compassionate and Practical Resource
Torrey, a psychiatrist with decades of experience in both research and clinical practice, approaches schizophrenia with deep empathy and clarity. He recognizes the confusion, fear, and emotional toll the illness can take on patients and families alike. His tone is reassuring yet candid, never sugarcoating the severity of the disorder, but always grounding his insights in hope and realism.

Structure and Content
The book is well-organized, covering a wide range of topics: definitions and diagnosis, symptoms, causes, treatments, navigating the mental health system, and tips for coping day-to-day. Torrey writes in plain language, making complex psychiatric concepts accessible without being simplistic. He intersperses scientific explanation with anecdotes and case studies, which humanize the condition and illuminate the real-life challenges of those affected.

Strengths

  • Comprehensive Scope: Whether you are just starting to learn about schizophrenia or are dealing with it firsthand, the book provides an in-depth overview of everything from medications and side effects to hospitalization and legal rights.
  • Family-Focused: As the subtitle suggests, it’s a manual for families. Torrey consistently centers the experiences of loved ones, validating their concerns while empowering them with tools and knowledge.
  • Historical and Political Context: Torrey doesn’t shy away from discussing the failures of the mental health care system, particularly in the U.S. He offers critical insights into deinstitutionalization, housing, and the legal system that add valuable context.

Criticisms and Limitations
Some critics have found Torrey’s views on involuntary treatment and the use of medication to be somewhat rigid or overly reliant on traditional psychiatric models. While he supports the use of antipsychotic medications as essential, alternative viewpoints (such as more psychosocial or recovery-oriented models) receive less attention. Additionally, the book’s medical tone and length may be overwhelming for readers in the midst of a crisis.

Conclusion
Surviving Schizophrenia remains one of the most important and enduring resources on this difficult and often misunderstood condition. Dr. Torrey’s combination of clinical rigor and personal compassion makes the book not only informative but deeply humane. While it may not fully reflect newer perspectives in psychiatric care, it is nonetheless indispensable for families seeking to understand and support a loved one with schizophrenia.

Recommended for: Family members, caregivers, social workers, students of psychology/psychiatry, and anyone seeking a comprehensive introduction to schizophrenia.

How Someone with Schizophrenia and No Job Can Prepare for the AI Revolution

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The rapid rise of artificial intelligence (AI) is transforming every aspect of life—from how we work and learn to how we communicate and get healthcare. For someone living with schizophrenia and currently unemployed, the idea of keeping up with these changes might feel overwhelming. But the truth is, there are small, realistic steps anyone can take to prepare for the AI revolution—and they don’t require perfect mental health, a job, or a tech degree.

Here’s a five-minute guide to help you start preparing in a way that respects your pace and your well-being.

1. Understand That You’re Not Alone

First, know this: many people—whether or not they have mental health challenges—feel uncertain about the future of AI. You are not behind. You are not excluded. The AI revolution isn’t just for tech experts or people with jobs. In fact, AI could improve access to mental health care, education, and even new kinds of flexible, remote work that are better suited for people dealing with conditions like schizophrenia.

2. Start Learning, One Step at a Time

You don’t need to understand how AI works to benefit from it. But learning the basics can help reduce fear and build confidence. Consider watching short YouTube videos or listening to podcasts that explain AI in simple terms. Focus on questions like:

  • What is AI?
  • How is it used in everyday life?
  • How could it change the job market?

Some platforms, like Khan Academy or Coursera, offer free courses you can take at your own pace—even if it’s just 10 minutes a day.

3. Focus on Skills That AI Can’t Replace

While AI can do many things, it struggles with emotional intelligence, empathy, and human connection. These are areas where you can shine. If you’re able, consider building soft skills such as communication, problem-solving, or even peer support for others with mental illness.

Many communities have support groups that offer basic job-readiness training or volunteer opportunities. These experiences can help you build structure and confidence without the pressure of a traditional job.

4. Use AI to Help You, Not Replace You

AI tools like ChatGPT can help with job preparation, scheduling, writing, and even emotional support. For example:

  • Need help writing a resume? AI can draft it.
  • Want to practice job interviews? AI can simulate them.
  • Struggling to organize your day? AI can suggest a routine.

Using AI as an assistant—rather than seeing it as competition—can empower you to take small steps toward employment, education, or creative projects.

5. Protect Your Mental Health First

Schizophrenia is a serious condition that often requires consistent care. Preparing for the AI revolution doesn’t mean pushing yourself beyond your limits. Prioritize stability and wellness. Make sure you’re keeping up with your treatment plan and staying connected to your care team.

If you ever feel overwhelmed, pause. AI will still be here tomorrow. Progress can be slow and nonlinear. That’s okay.

Final Thoughts

You don’t need to become an expert in AI. You just need to be open to learning, a little at a time. With the right tools, mindset, and support, even someone facing the challenges of schizophrenia and unemployment can find their place in a changing world.

The future isn’t about competing with machines—it’s about being more human than ever. And that’s something you’re already doing.

Adapting to Change: Mental Health and the Future of Work

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Even though I don’t go out or socialize in person much anymore, I still keep busy. I was recently demonetized on Medium. No explanation and no way to appeal. Really irritated me as I was making some decent money.

In some ways, they did me a favor forcing me back into Word Press on a regular basis. Even though I haven’t been posting much over the past year or so, I was still getting a decent amount of audience. Some days I would check, and I would have 40 or so views on a single day even though I hadn’t posted in weeks. Maybe the word is getting out there.

Sure, I made more money on Medium. But I got better audiences on Word Press. But I guess nothing lasts forever. There were also a lot of complainers and whiners on Medium. I don’t miss them. First World problems in most cases. I swear people like that never had to deal with bullies and setbacks as kids.

I was bullied a lot as a kid. Ended up in several fights, most of which I lost. But I’m glad I went through it. Made me confident in my ability to survive and adapt, especially as I got older. No I didn’t enjoy it at the time. But I thank God every day I dealt with some hardship as a kid during prosperous times.

I was born in 1980 and spent most of my formative years in the 1990s. We still had the latch key kind of things. I had my freedom, like most small-town kids. And the grownups usually let the kids solve their own problems unless we got too destructive or violent. Much of that behavior would be considered child abuse these days.

Personally, I think real abuse is sheltering kids from the consequences of their actions, not teaching them how to cook or do basic repairs to household items or never letting them solve their own problems. Hitting your kids isn’t the only form of child abuse out there. I think not preparing them for adulthood and its ups and downs is every bit as abusive as punching them in the face.

In some ways I’m glad I didn’t have kids or get married. But that is mostly because of the schizophrenia. While I don’t particularly enjoy living with my elderly parents, I know I would enjoy living in a nursing home (been there, done that) or being homeless would be even worse. It’s a blow to my pride that I live with my parents after being on my own for seventeen years. But I try not to complain, at least publicly, because I know it could a lot worse.

I’ve always taken mental health seriously. Even more so now with everything changing so rapidly. I’m under no delusion that I’ll ever make enough money to support myself off writing. Vast majority of even paid writers don’t make above poverty level wages off writing alone.

I’m kind of burned out on computer games. And almost every time I try to socialize with anyone outside of immediate family, these people are in awful moods all the time. Nothing can make most people happy.

These people are going to be really unhappy in a few years when AI and automation take more and more jobs, especially since we have almost nothing for social safety nets. Rest assured; it will happen. A lot of people will eventually lose their jobs to AI and automation. I’ve been trying to tell people this for over a dozen years. About the only people who listened are my retired elderly parents and my best friend. She’s always grumpy and grouchy now, it’ll only get worse when she loses her good paying job she’s complains about almost daily.

I know it sounds like I don’t sympathize with these people whose jobs are on the robot chopping block. But you would be wrong. I lost my career and everything I worked for many years ago due to my mental illness. I did everything right; worked hard in school, stayed away from drugs, stayed away from credit cards, stayed out of trouble, etc. And I still lost everything.

Millions of people will find themselves in the same boat within several years. Not their fault a machine can probably do their jobs better than they ever could. Soon they will be cheaper too. In my case I lost my career in my twenties rather than my forties when I would have had a mortgage, a couple kids to send to college, and a retirement to save for.

In spite being surrounded by grouches, I’m looking forward to Christmas. I didn’t ask for any special gifts. I think a large dinner of spiral ham, stuffing, green bean casserole, etc. is enough of a gift. Don’t know how many Christmases I have left, but I intend to really enjoy this one. It’s just too bad that it doesn’t snow much down here in Oklahoma City.

Mental Stability and Power Dynamics

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Another day of being mentally stable. Haven’t had any kind of breakdown in over three months. It helps that I avoid stressful people and conflict as much as possible. Do most of my socializing online these days. It’s just easier to type what I’m thinking than just verbalize it. My illness makes me pick up on subtle cues very easily. I often pick up conflicting cues. Makes it really tough to read people, especially in person. 

Since many of my in-person experiences have been quite negative over the years, the default is that when someone goes out of their way to see me, I assume I’m in trouble. My family thinks it’s tragic that I always assume the worst when people come to see me in person. It’s even worse when I am summoned into an authority figure’s office on their terms. I’m keenly aware of power dynamics to the point it’s crippling.

August 15 2023

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I have an appointment with my new psych doctor this morning. Means I have to venture into the downtown area. Pretty much just a get to know each other kind of deal. My mental health has been pretty stable. I’m actually excited about going into the city at large today. I normally keep to my suburb as my town is big enough it has everything I need within a few minutes of my house. First time I’ll be in the city in a few months.

The summer has been real hot for the most part. One the days it’s cooler than normal, it rains. We haven’t had the problems with fires this summer like we did this spring. I’m looking forward to autumn.

Was turned down for an apartment complex I applied for. Turns out the place is for mostly senior citizens age 62 and up. Since I’m only 43 I don’t qualify. It seems like most places that are easily handicap accessible are mainly for elderly. Looks like the wait is going to continue for the foreseeable future. I just don’t understand why, in a nation that have obvious affordable housing shortages, we don’t just build more places. Sounds almost like a lack of a supply to meet the increased demand. But, it’s not like young people don’t want to have their own houses and apartments. It’s that we can’t afford most of what is available.

Making most of my own meals now. I can now navigate my wheelchair through everywhere in the house. The doors are too narrow for a wheelchair to get through. But I can hobble thru until I can find a place to sit. I’m up quite late most nights. But I usually get more done at nights than during the day.

August 2 2023

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Updates are in order. I’m still on the waiting list for low-income housing in Oklahoma City. The housing authority is actively seeking a place that is wheelchair accessible. I should be moving up the list as the waiting lists were updated and many people who are no longer looking for places are being removed from the list. I have no idea how long this wait will be. My friend in Denver who works for a large landlord said that out there, she’s heard of horror stories about low income people waiting over five years to get into a place. In my case I am doing alright here in the suburbs. I can run a wheelchair well enough now that I can navigate my parents’ entire house except for doorways. I have to fold up the wheelchair and walk though for the doors. Haven’t been outside since the current heat wave started. We’ve had many days of 100-degree Fahrenheit heat since mid-July. Not exactly sure what that translates to in Celsius, I’m thinking 40 something degree Celsius.

Made some new friends since I moved to Oklahoma. Staying in contact with old friends from back in Nebraska. One friend was someone who lived in the same complex I did. We are both homebodies but share several similar interests. I regret not visiting her in person more when I still lived there. But the last two years I lived in Kearney were during the height of the pandemic. I didn’t visit many people in person those two years. Did a lot of reading and writing though. Moved out of Kearney in June 2022 and went to physical rehab for eight months. Moved in with my parent in February 2023. Lost over 180 pounds between February 2020 and February 2023. Sadly, gained about 20 pounds back in the last six months. Too much sugar and carbs. I was easily losing weight when I was eating mostly grilled, roasted, and baked meats (mostly chicken, turkey, and pork) and vegetables. I gave up most carbs, most sugars, most fast food, etc.

Saw my physicians’ assistant yesterday via teleconference. It was for my sleep apnea. I needed to renew my prescription so I can get replacement parts for my CPAP machine. As my machine is only three years old, it should last at least another three to four years. But it works so much better when I replace worn out parts regularly. Since I don’t use distilled water or oxygen, it’s easier to keep clean. And I just use the nasal units rather than the full-face mask. My doctor thinks if I get back to losing weight again, I could possibly be off the CPAP entirely. I think I should be able to get back to losing weight now that I’ve adopted my pandemic diet again.

My blood pressure is stable. Has been for weeks. I have to see my general practice doctor again by the end of August for general checkup. He wants to see his heart patients every three months. I see my new psych doctor this month too. Since my psychiatric health has been stable for the last few years, I should be doing just routine maintenance. I do have occasional psych flare ups, but they usually don’t last long. I have found if I limit stress the flare ups are fewer and further between.

Making most of my own meals now. While my parents are thrilled with my ever-increasing independence, I think my mom is kind of sad that she doesn’t cook for me very often anymore. I think my dad is kind of sad that I don’t watch Westerns with him much, certainly not like what I did in the first few weeks I moved here. I buy most of my own groceries, pay some in utilities, and order my own home supplies via Amazon. As there is a huge Amazon facility in our metroplex, almost everything is next day delivery. I’m still not washing my own laundry just yet. Our washing machine is in a tight closet that is impossible to navigate with a wheelchair. My knees are chronically hurting due to bad arthritis. If I take Tylenol every day, it seems to negate it some but not enough to restore my ability to walk without serious knee pain.

Even though I don’t eat most of my meals with my parents anymore, I still talk to them in person some every day. During the pandemic I made a point to call them at least once a day. In some ways I am not in a real rush to get my own place. The big reason I need my own place it that I can’t afford their house on my social security disability pension. Sure, the house is paid off entirely, but I still couldn’t afford property taxes and maintenance.

Shortly after I moved to Oklahoma, my new social security case worker told me that since I was diagnosed with schizophrenia at age 20, I should have been able to qualify for social security payouts based on my parents’ income and not mine. Since both of my parents were medical professionals, that alone would significantly increase my benefits. So we applied for benefits increases. Naturally we were denied. But denials are standard in disability cases, at least here in the USA. I plan on hiring a lawyer to appeal this case. I had to lawyer up when I first applied for social security in the mid 2000s. Even with a lawyer my case took over two years to resolve. Since I no longer was covered by my parents’ insurance, I needed a high-risk emergency health insurance. It was a rugged two years waiting for that verdict.

I’m hanging in there overall. I’m just ready for some fall again.

June 26 2023

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Been talking to social security and social services a lot the last few weeks. Found out that I am getting a decent amount of my social security pension reinstated, my Medicaid is going to cover more than normal, and I have been approved for someone, once I get my own place, to come in and help me with laundry and cleaning once a week. Feels like I got quite a bit done over the last couple of weeks.

My knees have been acting up again. I found my knees get real aching in hot and humid weather. We are now in early summer here in Oklahoma. But Tylenol and forcing myself to move around seems to be the best treatment for the knees.

Supposed to get real hot this week. I mean like over 100 Fahrenheit, which I’m guessing is quite a bit over 40 Celsius. Sounds like typical Oklahoma summer. I think we are near the end of bad storm season down here. We’ve had lots of good rain lately. One thing I like about living in my parents house in the suburbs is all the birds and plants in the backyard. Since my parents don’t usually spray for bugs or weeds, we draw a lot of birds, butterflies, and bees. We even have a couple geckos. Since my parents are elderly, a couple guys come take care of the yard usually a few times a month.

I have been approved for low income housing. I am still waiting on a place that has easy wheelchair access. Since grocery delivery is now bigger than even 5 years ago, most places have some kind of delivery service. Now that I live in a suburb of a large city, I see Amazon trucks almost every day. Also see electric cars every time I travel around the city. Kind of feels like I officially joined the 2020s once I move to Oklahoma.

August 27 2022 Updates

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My knee pain is starting to clear up. I’m on a couple medications for it. Seems like it’s taking effect. I get out of my apartment at least a couple times a day anymore. It was just getting too discouraging to spend all my time at home.

My blood pressure has been stable for weeks now. I think I’m still losing weight. Some of my smaller clothes are starting to fit again. Tried on a couple of my hoodies a few days ago and they fit perfect now. Weather will start cooling off in a couple weeks so I have those ready.

Haven’t heard much from friends lately. Everyone is busy with work, family, chores, etc. Found out my friend in Denver is promoting her arts and crafts again. Won’t be too long before Christmas. I’ve bought a couple of her knitted hats in the past.

I just feel chilly most of the time lately. I imagine the blood pressure medications have changed my circulation. Rarely do I ever sit down without a blanket over my legs and feet. My joints feel worse when they are cold. My knees also ache whenever the weather changes drastically. We had a hail storm a week and a half ago. My knees were really acting up that day.

Still listening to audiobooks. Decided I’m going through Asimov’s Foundation series. I’m halfway through the first book so far. I like to listen to it while I play Civilization: Beyond Earth. That game is about setting up colonies on another planet. It’s certainly a science fiction game.

I’m thinking about hooking up my Play Station soon. I imagine as the days are getting shorter and start getting cooler, I’ll want to spend more time at home and less socializing. I still get around really well in a wheel chair. I usually make a few laps in the hallways every morning just to keep my arm strength up. Just because my knees went bad doesn’t mean my arms have to.

Haven’t seen my family since early July. I did get a good visit from an old college friend about a month ago. He bought me some updates to my Civilization game. Been playing that a great deal since. Having activities, even if it’s computer games, help the time pass on long days.

I’m looking forward to the fall. Fall is my second favorite season behind spring. I love the longer nights, the cooler nights, the changing leaves, the harvest, and the variety of sports during the fall.

Moving to Long Term Care. Changes in A Life Of Mental Illness

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It’s been a long while since I last wrote. Updates are in order. Two weeks ago I called the ambulance as I was having issues with foot pain and blood pressure. In those two weeks, I got my blood pressure back under control, had over 20 pounds of excess fluids pulled out, and decided to move to a Long Term Care facility in my home state of Nebraska. After almost 18 years of living on my own, I can no longer manage my mental illness issues and physical health problems at the same time.

I am currently in swing bed in a hospital in a small town in Nebraska. I should be able to move to my permanent long term care unit (in the same town) by Wednesday June 8th. My foot pain has mostly cleared up. My blood pressure is back to normal. I am not diabetic. All my blood numbers are in safe ranges. But I can no longer manage physical health and mental health at the same time. I can no longer live on my own. I came to the conclusion I need more help than I was getting at my previous home.

My parents and my cleaning lady will start clearing out my old apartment probably on Tuesday. I decided I’m donating most of my books to the complex library. Give them more variety than romance, western, and crime dramas. I lived there almost exactly sixteen years. It feels surreal to be moving. But it needs to be done. I just can’t take care of all my issues on my own anymore.

I will be living on a ground floor, have access to a wheel chair, and the staff will cook my meals, handle my medications, and do my laundry and cleaning. It’s been a crazy last two weeks, that’s for sure. But these changes were needed. I should have moved into long term care last fall when I had my blood pressure issues. But, with covid still raging hard, I guess all of that got lost in the shuffle.

April 12 2022

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It’s been quite awhile since I wrote. Updates are in order. Spring is here but we haven’t gotten much rain. With as windy as it’s been, we’ve had lots of wildfires in my state this spring. The weather is slowly warming up, but it’s still chilly at night.

Baseball season started last week. I have a fantasy league team again. I’m in a league with a couple college friends and some of their former coworkers. Been in this league for 15 years now. So I usually watch a ballgame or two during the evenings.

Been staying up later and waking up later. Most nights I don’t fall asleep until midnight. Wake up for good around 9am. I sleep in my recliner only half of the night anymore. I’m having fewer aches and pains again. They were pretty bad a couple weeks ago.

Mentally I am still stable. I don’t leave my apartment very often. I do visit my neighbors a few times a week. My cleaning lady arrives every Thursday. She helps me with laundry now too.