The Future of Home Care: Robots and Independence

My caseworker and my parents are trying to get me into a long-term care facility. I really don’t want to go back to one of those. I despise the idea of losing my freedom and finances. I just as well be sent to prison as far as I’m concerned.

I live in a house with no stairs. But the doors aren’t wide enough for a wheelchair. Any suggestions I make to widen the doors fall on deaf ears. It burns me that I still have all of my intelligence but might still have to go to a long-term care facility because of lack of handicap access.

I would like to get a home health aide that comes in once a day to help with things. I had to fire my cleaning lady a few months because she wanted me to sign off on her billing her company for time she didn’t work. Can you say disability fraud? Glad I got rid of her.

I watch a lot of videos and news programs talking about the possibility of humanoid robot assistants becoming available to the public within a few years. Yet about the only people who don’t think I’m totally full of crap when I talk about this are some friends online and my older brother.

My thinking is that I hold on for a few more years and get a home health robot to help around the house since none seem to be available for me. Hell, it took a miracle for me to get onto a service where a doctor comes to see me in my house every six weeks. We found out about this, not through my case workers, but from a friend in my mom’s church.

I’m afraid that I will get sent off to a nursing home due to lack of mobility, lose my freedom, lose my money, and lose the family house just right before EVERYTHING changes with home robots, automation, AI, improved personalized healthcare, and possibly even Medicare for All.

One thing I despise about being on disability is that my earnings are limited before I’m totally thrown out of the system. And since the USA refuses to act like a civilized nation and institute Universal Healthcare, I’m stuck in poverty just so I can get my treatments. And I’m damn sick of it.

I lived in a long-term care facility once for eight months. Hated damn near every second of it. Had no freedom. Had no privacy. I was chastised for not socializing with the other residents even though most were senile and or nearly deaf. The only thing worse would have being in prison.

I don’t really tell my parents how much I despise the idea of going to a home. In the first damn place, I don’t think I would need one if the house was more wheelchair accessible. But they won’t entertain the thoughts of making the house more wheelchair accessible. All they would have to do is widen the doors to my bedroom, the bathroom, the front door, and the back door.

As far as transportation goes, that is being solved already in spite of the run around I get from social services. My brother bought a Tesla with self-driving capabilities back in the spring. Just the other day he and my niece had to go to Kansas City (which is about six hours from our town). During the trip up and trip back, the car did over 98 percent of the driving on autopilot. I was calling this almost ten years ago. Now it’s pretty well mainstream.

I had a car accident in late 2015 that really screwed up my back and knees. I was talking about how nice self-driving cars would be when they become available. I remember one of my Facebook “friends” said, and I quote, “It will be a cold day in Hell before self-driving becomes a thing.” That was less than 10 years ago. Bust out the parka and long johns, because it’s getting awful damn chilly these days.

I’m seeing the same attitude towards robotics that I saw against driverless cars about 7 to 9 years ago. I have given up on trying to convince people that humanoid robot assistants will be a bigger game changer than even smart phones, military drones, or even the internet itself. Most people don’t want to listen, let alone people of my parents’ generation.

Once during the pandemic, I joked in one of my futurists’ groups on Facebook about having a goal of riding in a self-driving electric car with a robot friend, smoking a marijuana cigar, while driving past a police station before June 14, 2030 (my 50th birthday). If I can hold out for long enough to get a home help robot and I don’t get sent to a home before then, I’m going to make that dream come true, so help me God.

Even if my parents go get too impatient and send me to a nursing home before I can make my dream of robot assisted independence come true, I’m going to do everything within my power to get well enough that I can leave. If my parents don’t want to make our house wheelchair accessible, well that’s their hangups. Sucks to be elderly and not see the possibilities that probably will come by the end of the decade.

Hell, I want them to fight me on this. I want people to tell me what can and can’t be done/ I want people to throw up roadblocks. I want to be told I’m a liar and I’m full of shit. I have made an entire life of coming back from setbacks and proving people wrong. Their hatred and nay saying will just make my story telling even more interesting than it already is.

After surviving 25 years of schizophrenia, 16 years of Section 8 Housing, 3 years of congestive heart failure and being wheelchair bound, I’ve lost most of my fears. I don’t want things to be fair or easy for me. Life isn’t fair. I figured that out when that I was six years old. I figured out that life isn’t fair before I figured out Santa Claus was fake. I’ve been fighting my entire life. Why should the next few years before some major breakthroughs be any different? I have nowhere to go but up. And I’ll be damned to let even family stand in the way of my freedom and independence.

The Impact of Change: Christmas Musings on Life and Health

I’m having a good Christmas season so far. Got to talk with some old friends over the phone for over an hour today. She found a new job a few weeks ago that pays more than any job she ever had. Her husband (also a friend of mine) is still working 60+ hours a week as a delivery driver. They think he will try to find something in academics soon now that they aren’t living paycheck to paycheck anymore.

Our conversation covered mostly history and geopolitics. I don’t have many friends I can talk about those things with anymore. Most of my friends are having tough times with mid life crisis kind of things. I miss those conversations about history and current events. It was like being back in college, if just for only one hour.

I sleep most of the daylight hours anymore. I think part of it is depression and part of it is anemia. I’m not looking forward to probably having to go back to a long term care facility. But my mobility isn’t coming back and my house isn’t handicap accessible. My parents aren’t in good health and probably have only a few years, at best, left. Part of me all three of us won’t make it to see 2030.

It really breaks my heart to be in decline just right as things are really changing science and tech wise. I am convinced that we as a society will make more scientific progress in the next 20 years than we made in the previous 300. That is, if the politicians and voters quit screwing up.

Dealing With My Physical Decline and My Friends Who Refuse to Acknowledge Decline

Saw my home health nurse today. My mobility isn’t coming back like I had hoped at all. I’m still angry about physical therapy giving up on me after only one month. I’m angry that no long term care facility had a place for me.

It’s pretty damn obvious at this point that I am wheelchair bound and need accommodations. My case worker sees it. My home health nurse sees it. My doctor sees it. My parents see it. Hell, I saw it long before anyone. About the only people who are still in denial are my friends about my age. People can be awful stupid about some things.

My friends are the type of people who believe anything is probable, not possible, through positive thought and hard work. Hell, the believe if I don’t achieve mobility and good health again, it’s all my doing. With friends like that, who needs enemies?

I think my friends are in denial because it would force them to reflect on their own mortality and that they aren’t young anymore. It would also force them to reflect on the fact that one can do everything right and still lose big. Sometimes things just happen for no reason. My life is a prime example of this.

Getting In Touch with My Best Friend from High School

Mentally I was feeling quite depressed and hopeless for the last several days. Finally, last night, I had a decent chat with my best friend. She and I have been best friends since high school. We went to prom together one year but were never romantically involved.

My friend, who lives in Denver, has come to the conclusion that her city is getting bad enough with the crime, homelessness, drug abuse, unemployment, etc. that she’s getting her conceal carry permit. She already owns a pistol and goes to a shooting range every so often.

She works for a landlord who owns several properties in Denver. My friend often has to deal with repair orders, deadbeats, and forced evictions. Says that drug abuse is not even hidden in most of those properties. Trash is all over the facilities as are broken appliances and rampant vandalism.

She’s always having arguments with tenants who can’t or won’t pay rent, can’t or won’t vacate properties when the lease is up, rampant sanitation problems, people always wanting to fight, etc. She always carries a bottle of bear spray on her person when she’s visiting her bosses’ properties in case the tenants get too unruly or violent. She’s received lots of death threats from tenants.

Things are getting really bad out there, I’m sure almost everyone knows this. The assassination attempt on Former President Trump and President Biden’s declining health are making things even worse.

I’m so not looking forward to the November election. I’m preparing to bunker down and stay off peoples’ radars for a real long time. I think things will far uglier in the coming months and years. I don’t see any way out except batten down the hatches and plow through it with pure grit and guts.

Since I don’t go out in public much anymore, I might be able to blend in and disappear easier than some. As much as I dread living in a suburb of a large city for when social chaos does happen, I just didn’t see any other option if I was to stay in touch with my immediate family.

I used to live in Nebraska. All of my friends left that state years ago. I didn’t have much for extended family except for a few elderly aunts and some cousins that I’m just not sure I can count on when shit gets really bad. But, I never had much of a support system in Nebraska my entire life even when things were good.

Strangely, I saw a lot of this starting to develop when I was still in high school. Since I grew up in a predominately right-wing community, I was taught that those on the left wing were evil, hated democracy, hated small business, hated agriculture, and generally were not friends to the working class.

Ironically, kids growing up in left wing communities were told the exact same shit about right wingers. It’s like we were predestined to turn on each other.

I’m glad I heard from my best friend. She has the exact same concerns I do. I just don’t know how many more opportunities I will have to communicate with her until things get ugly, I’m talking collapse of nations type ugly. Nations rise and nations fall. It’s pretty much the story of history summed up in one sentence.

Temporary Disruption to My Routines

We are currently in the process of getting new floors in my parents’ house. We’re taking out all of the carpet and replacing with laminate flooring. It will be easier to keep clean and trap less dirt than carpet. So, I’m dealing with the disruption to my day to day.

This is a welcomed change. I never did like carpet. It traps too much dirt and is a pain to keep clean. A few days’ worth of disruption to my routine for a problem that I won’t have to deal with again in my lifetime is worth it.

I do have allergies occasionally. Mostly due to dust. I had allergies really bad when I lived in rural areas due to all the corn dust and everything else living near farms and ranches entail. Not only are my sneezes loud, but they can also be painful. They also draw too much attention.

Removing the carpet in my house should take care of much of the dust problem. The process should be complete by December 18th. Just in time for Christmas.

Other than immediate family, I have no plans for Christmas. My brother and his family are hosting a huge four day get together. I probably won’t be going, at least not in person. I don’t do well in crowds. I’ve been doing so well for many weeks now. I don’t want to risk ending the winning streak.

August 2 2023

Updates are in order. I’m still on the waiting list for low-income housing in Oklahoma City. The housing authority is actively seeking a place that is wheelchair accessible. I should be moving up the list as the waiting lists were updated and many people who are no longer looking for places are being removed from the list. I have no idea how long this wait will be. My friend in Denver who works for a large landlord said that out there, she’s heard of horror stories about low income people waiting over five years to get into a place. In my case I am doing alright here in the suburbs. I can run a wheelchair well enough now that I can navigate my parents’ entire house except for doorways. I have to fold up the wheelchair and walk though for the doors. Haven’t been outside since the current heat wave started. We’ve had many days of 100-degree Fahrenheit heat since mid-July. Not exactly sure what that translates to in Celsius, I’m thinking 40 something degree Celsius.

Made some new friends since I moved to Oklahoma. Staying in contact with old friends from back in Nebraska. One friend was someone who lived in the same complex I did. We are both homebodies but share several similar interests. I regret not visiting her in person more when I still lived there. But the last two years I lived in Kearney were during the height of the pandemic. I didn’t visit many people in person those two years. Did a lot of reading and writing though. Moved out of Kearney in June 2022 and went to physical rehab for eight months. Moved in with my parent in February 2023. Lost over 180 pounds between February 2020 and February 2023. Sadly, gained about 20 pounds back in the last six months. Too much sugar and carbs. I was easily losing weight when I was eating mostly grilled, roasted, and baked meats (mostly chicken, turkey, and pork) and vegetables. I gave up most carbs, most sugars, most fast food, etc.

Saw my physicians’ assistant yesterday via teleconference. It was for my sleep apnea. I needed to renew my prescription so I can get replacement parts for my CPAP machine. As my machine is only three years old, it should last at least another three to four years. But it works so much better when I replace worn out parts regularly. Since I don’t use distilled water or oxygen, it’s easier to keep clean. And I just use the nasal units rather than the full-face mask. My doctor thinks if I get back to losing weight again, I could possibly be off the CPAP entirely. I think I should be able to get back to losing weight now that I’ve adopted my pandemic diet again.

My blood pressure is stable. Has been for weeks. I have to see my general practice doctor again by the end of August for general checkup. He wants to see his heart patients every three months. I see my new psych doctor this month too. Since my psychiatric health has been stable for the last few years, I should be doing just routine maintenance. I do have occasional psych flare ups, but they usually don’t last long. I have found if I limit stress the flare ups are fewer and further between.

Making most of my own meals now. While my parents are thrilled with my ever-increasing independence, I think my mom is kind of sad that she doesn’t cook for me very often anymore. I think my dad is kind of sad that I don’t watch Westerns with him much, certainly not like what I did in the first few weeks I moved here. I buy most of my own groceries, pay some in utilities, and order my own home supplies via Amazon. As there is a huge Amazon facility in our metroplex, almost everything is next day delivery. I’m still not washing my own laundry just yet. Our washing machine is in a tight closet that is impossible to navigate with a wheelchair. My knees are chronically hurting due to bad arthritis. If I take Tylenol every day, it seems to negate it some but not enough to restore my ability to walk without serious knee pain.

Even though I don’t eat most of my meals with my parents anymore, I still talk to them in person some every day. During the pandemic I made a point to call them at least once a day. In some ways I am not in a real rush to get my own place. The big reason I need my own place it that I can’t afford their house on my social security disability pension. Sure, the house is paid off entirely, but I still couldn’t afford property taxes and maintenance.

Shortly after I moved to Oklahoma, my new social security case worker told me that since I was diagnosed with schizophrenia at age 20, I should have been able to qualify for social security payouts based on my parents’ income and not mine. Since both of my parents were medical professionals, that alone would significantly increase my benefits. So we applied for benefits increases. Naturally we were denied. But denials are standard in disability cases, at least here in the USA. I plan on hiring a lawyer to appeal this case. I had to lawyer up when I first applied for social security in the mid 2000s. Even with a lawyer my case took over two years to resolve. Since I no longer was covered by my parents’ insurance, I needed a high-risk emergency health insurance. It was a rugged two years waiting for that verdict.

I’m hanging in there overall. I’m just ready for some fall again.

Thoughts On Friendships

Overall, I am happier and more free than I was in the long term care home. The biggest thing I miss about the long term care home is friends. I made several friends during the eight months I lived at that small town hospital. It was fun seeing people younger than me having successful marriages, careers, and families. I haven’t been around people younger than me much in my entire life. When I was in school, I spent most of my time with people my own age, like most students. In college, most of my friends were a couple years older than me. I didn’t like the socializing part of high school, at least not during school hours. I absolutely loved the socializing in college. My college had less than 600 students, but we had students from a majority of states and a few dozen countries on six continents. In my fraternity (I was in a frat the first two years of college), our president and vice president were foreign students. One was from Netherlands and the other from Japan. My longest dating relationship was with a woman from Iowa, and she was a couple years older than me.

When I applied for disability and moved to low income housing in 2006, I didn’t realize what a hit my social life was going to take. I was the youngest resident when I moved there. Some of the elders didn’t like that I was there. Some thought that I shouldn’t be on disability because of my intellectual pursuits and how well I was managing on my own. That’s the cruelty of invisible disabilities. I’ve been to church several times and out in public a few times since I moved to the suburbs of Oklahoma City three months ago. I’ve noticed that some people are actually more helpful and sympathetic now that I am in a wheelchair, at least when out in public. I no longer get questions about ‘what do you do.’ Even though my mobility is gone, it’s kind of a welcome relief to not have to lie to people about not having a career. Most people, I have found, don’t have the attention span for me to explain that I have a mental illness that prevents me from sustainable employment. Sure, people in general are more sympathetic now than twenty years ago. But I still fear most people don’t entirely get how real mental illness really is.

I still haven’t made any new friends since I moved here. I am starting to put faces to names my parents have been talking about for the last few years. Most adults my age and younger I have met here are married, have families, and careers. My oldest nephew is going to graduate from high school next week. Seeing my brother and his wife’s oldest son grow up is making me realize I missed out on a great deal because of my mental illness. I would have never acknowledged it in my twenties, but I am now convinced I would have made a good father and husband had I never developed mental illness. I think I would have had a pretty cool career too. My brother and his family made me realize just what I lost due to this illness. I imagine it will hurt even more if I live long enough to see my nephews and niece have children and careers of their own. It will hurt seeing my brother and his wife grow elderly together and have decades worth of memories, prestigious careers, their own home, and have lots of loved ones in their elderly years. The big reason I moved down here rather than stayed in Nebraska is that I fear that I will need my brother and his wife to help me out after our parents are dead. Seeing my elderly parents up close every day for the last three months made me realize that they are not the healthy and vibrant people of my teens. These last three months I’ve spent more time with my parents than probably the previous eighteen years combined since I graduated college. Even in college, I didn’t go home very often. I was just too busy enjoying having a decent social life for the first time in my life.

My five years in college was the only time in my entire life I didn’t feel like a complete outsider. I loved being around people who shared my interests and thirst for knowledge. I loved the class discussions. In college, I discovered my love for writing. I discovered my love for economics and investing. Learned some really cool stuff in my chemistry and biology classes. Read a lot of books, many of which are making their ways unto banned book lists (those are the exact kind of books teenagers and college kids should be reading). Read a lot of the classics of philosophy, literature, history, etc. Found out I have a natural talent in picking good stocks. Kind of a pity social security disability puts a cap on how much one can have in savings and remain in the program that’s so low.

In college, I met people who were nerdier than me. I mean, I met dudes who built computers, wrote computer programs, played in garage bands, played trivia games, collected comic books, played Dungeouns and Dragons, Magic the Gathering, etc. I even had friends who did Civil War reenactments and attended Renaissance Fairs during school breaks. I never knew anyone who did any of those things in high school. I would have loved all of that. But, I didn’t have many close friends before I went to college. Most of the guys at my rural high school liked to hunt, fish, drive ATVs, go to beer bashes in cow pastures twenty miles from the nearest cops, etc. The kind of stuff my parents wouldn’t allow me and my brother to do. Looking back on it decades later, I’m glad they never let us do that kind of thing. When I was thirteen, my dad told me that people should be kind to nerds and dorks because they would someday rule the world. Like most thirteen year olds, I thought he was full of it. Turns out he was right. Even as a first grader, I knew my mind was going to be my future. I enjoy being an adult far more than I ever did being a kid, even with heart failure and mental illness.

Even as much as I love about being a wise middle aged man with a few gray hairs and chronically bad knees, I do miss a few things about my youth. I miss my best friend. She and I are in our forties and have been besties since age fifteen. I miss my health. I’m starting to realize that it’s not the ‘good old days’ the elders miss nearly as much as it is the health and vitality. I miss my health and vitality, but I love the knowledge and wisdom I have acquired. I love that I am still in contact with the best friends I ever had. I love that I have adapted to my mental illness and am able to talk about it with a large audience. I hope this blog stays up in one form or another long after I’m dead. Makes me wonder if medical science will eventually find a cure for mental illness. I think eventually it will be cured, just not in my lifetime.

What’s Been On My Mind The Last Few Weeks

This is probably going to be my longest post in the ten years I’ve kept a regular blog. Don’t worry, most of this won’t be ranting or complaining. I’ve been more wanting to write and chat than usual lately. I think the warmer and more humid weather has me more chatty and hopeful. So much so I’m even experimenting with a personal AI chat bot the last several weeks. Sure, it’s kind of wonky sometimes and clearly an AI chatbot. But these things are alot better than they were even one year ago. I found it really knows it stuff when chatting about history, science and economics. Not so much when talking about feelings and depression. I’m dead convinced even the AI players on my computer games are better than they were a couple years ago. Even though I’ve played strategy games like Civilization, Railroad Tycoon, Total War, and Sim City for decades, I swear it’s getting tougher to compete against the computer now more than ever. I really think gaming AI is better now than ever.

My dad recently severely hurt his back and is very limited on what he can do. It’s also got him real depressed. My aches and pains are worse today than any time in weeks. And I don’t know what I did to make them worse. I also rarely hear from my friends anymore. Most are too busy with careers and family. I now understand why even the best friends lose contact with each other over the years. In my case, I have neither workplace friends, a wife, or kids to socialize with because of my mental illness taking both my career and family before I had either one. I feel like I missed out on a lot of what it means to be an adult because of my illness. I feel like I missed out on a lot of what it means to be human. I don’t even know what it’s like to feel love from others. I certainly don’t believe in unconditional love existing. Everything is conditional as far as I can tell. I don’t know what it’s supposed to feel like. And I get so irritated when people tell me ‘there’s someone for everyone’ or ‘you’re just overthinking it.’ No, some people are better off not marrying or having kids. We used to have monastic orders and academies for those people. Even though I never married, had kids, or any success in a career, I don’t feel like I’m less human or a failure. Heck, I’m actually quite content with my life as a digital monk. It helps that disability insurance pays for my food, shelter, medications, and basic needs. But some people I know would love to get rid of social security and disability because they feel people like me and the sick elderly are leeches and parasites. I’ve lost contact with most of my extended family because of attitudes like this. It’s why I won’t visit my childhood hometown or go to family reunions. I feel like a failure only when I’m around people like that and those who knew me as a high achiever in my youth.

Even though I was healthier and had easy access to friends in my teenage years, I’m rarely nostalgic for the past. I love the internet too much, especially the free education I got via years of binge watching youtube and Khan Academy. Getting my groceries delivered, getting my meds mailed to me, zoom calls with my psych doctor, and buying through Amazon may have kept me alive during the pandemic. We had none of that back in the 90s. If Covid had to happen (and pandemics are not uncommon throughout history), I’m convinced that things would have been MUCH worse had it happened in the 90s. We wouldn’t have had work from home being a thing, we wouldn’t have vaccines and effective treatments developed in only one year, and a lot more people would have died. I probably would have died had it not been for internet and grocery delivery. That’s why I get kind of irritated with people complaining about masks, vaccines, and delivery being infridgements on freedoms. Freedoms sometimes have to be restricted temporairly during crisis. We had a military draft in the world wars (which many people resisted and protested even in WW2). We had draft riots even during the Civil War. There were restrictions during Spanish Flu and even Bubonic Plague. I swear, too many people didn’t learn anything from high school history class. Covid restrictions are mostly lifted and people are still complaining. I don’t understand normal people. The older I get, the less y’all make any sense. In short, people complaining about restrictions during covid should be grateful it didn’t happen before the internet became a thing. It would have been much worse.

Another reason I’m not nostalgic for the world of my young years (even if I do miss my health and friends), is that now it’s a lot easier to talk about problems. For the first few years of my illness, I didn’t talk about it with my classmates or close friends. They knew I was odd, but didn’t realize just how serious mental illness was messing with my life. Twenty years ago, even I didn’t realize how much I was losing out on because of my illness. My psych doctor and therapist never once mentioned it could be a major disability that would affect everything. At first I thought if I just took the meds daily and went to the free therapist once a week, my life would return to normal once I graduated. Well, it didn’t work that way. I had panic attacks every day before I went to work in retail and fast food. It wasn’t so bad working in a factory as I didn’t have to be around an unpredictable and often spiteful public. I suffered at the factory because I couldn’t sleep in the day and still work the overnight shift five nights a week. After several weeks of sleep deprivation, my illness flared up and my work suffered. I requested a transfer to day shift, which was denied. So I end up quitting before my lack of sleep and mental illness caused an accident. I probably could have done that job for years had they approved my transfer request. Would have made good money and benefits too even if we weren’t unionized.

It’s easier to talk about problems now than even ten years ago. It’s probably why we hear so much about traditionally marginalized people like mentally ill, homeless, LGBT+ communities, religious minorities, struggles of the working poor, struggles of the elderly, struggles of women, struggles of young people just starting out, etc. The issues have always been there, granted more below the surface than now. It is not weak to talk about problems. It’s a needless tragedy for people to suffer in silence because of outdated social norms. It’s almost like some people actually want life to be tougher now than it was in the past. I hear people my parents age talk about how great the 1950s were, yet they ignore Jim Crow laws, the problems of the Cold War, the communist witch hunts, lack of work opportunities for women, and even the corporate tax laws of the 1950s. Taxes on big business were much higher in the 50s than now. I’d favor bringing those back except it would mean that EVERY corporate job in America would get outsourced to cheaper countries or outright automated faster than they already are. One thing I like about the 2020s is that it is easier to talk about things like poverty, job loss, loneliness, racial bigotry, sexism, discrimination, being bullied by classmates or coworkers, etc. The problems were always there. People are just refusing to suffer to silence anymore. And I’m glad for it. It’s a lot easier to empathize and act when I have a better understanding of others’ problems. My life would have been easier had I not been afraid to talk about my struggles with mental illness, bullying, and a lack of privacy while growing up in a rural farming village until I was well into my thirties. Some of that stuff I’m still scared to talk about for fear of alienating my friends and family. I just didn’t realize how unhealthy much of that was until I was well into my thirties. This blog is one of my outlets and it’s also cheap therapy.

Even though I’ve never made money off my blog or my scholarly projects, it’s the most fun at a job I ever had. I do consider it a job even though I don’t get paid. So much is changing and so fast, it’s almost a full time job now to research some of this stuff. Kind of a pity I don’t get paid for my searches and giving out my personal information. But, most people don’t realize what we as a society are already doing in terms of science, tech, medicine, and humanitarian work. Even I didn’t realize how good ChatGPT is until a few weeks ago. I certainly didn’t realize that some office workers were using it to aid their jobs or even work several jobs. Personally I have no issues with work from home people working more than one “full time” job for no other reason than it’s not illegal for people to own more than one business or piece of property. Maybe that’s how we fight inflation, just make more money from multiple jobs. I mean, elders like Dave Ramsey have for decades told people to take second jobs and side hustles to get out of financial problems. So what if the second job is an office job and not delivering pizzas or working at Home Depot? Quite honestly, the requirements to have a college degree for most jobs is down right insane and obsolete. Most jobs, especially today, can be learned with only a year or two of on the job training. If fewer employers required a college degree for even entry level work that could be done by ambitious teenagers still in high school, we’d see these insane costs of education drop pretty quick.

Speaking of college, there is the scholarly monk part of me who doesn’t like the idea of people condemning education and intelligence. I have always thought people, at least in my homeland, don’t take education serious enough. I think in some ways it’s worse now than even when I was in high school. Granted, thanks to online platforms, getting an education, especially getting self educated, is a lot easier now than it has ever been. Youtube and TikTok are a lot more than just cat videos and dance videos. The Chinese version of TikTok is mostly educational videos. And people in China and other authoriatian nations can get around government censorship of the internet with cheap VPNs like Nord. The only reason I’d consider getting a VPN for myself is if internet censorship in the USA got real bad and to watch foreign Netflix shows I can’t get in America. Censorship and book banning was stupid in the past and far more so now. In fact it’s futile and wishful thinking in the age of the internet. And the internet, when originally designed by DARPA back in the Cold War, was designed to be a communication system robust enough to survive even a nuclear war. Internet ain’t going away regardless of how much power hungry petty tyrants want to censor and screen information.

I think the best way to lower the cost of college education is to allow people without college degrees to get into good paying corporate jobs. Bill Gates, Steve Jobs, and Mark Zuckerberg were all college dropouts who started tech giants. Yet, had they not started their own companies, they wouldn’t have had the qualifications to work in the corporate world, let alone high tech. It doesn’t take a college degree to start a business. It does take vison, risk taking, and some funding from people willing to take a chance on unproven ideas. It’s why America is still a leader in tech, industry, and culture even though our students’ test scores are among the lowest of all developed nations. We still have the start your own business spirit that most countries never had. If we lose that start your own business spirit, we will collapse as a nation. Education, is vitally important. And, thanks to internet, it’s also a lot cheaper than the past. Traditionally college education was only for the wealthy and those wanting to go into academia or medicine. I believe self education is more important than traditional education. I also don’t understand why it’s against the law to discharge student loans via bankruptcy. I mean, small businesses, homeowners, credit card loans, medical bills can all be discharged or negotiated via bankrupty. Why is it such a sin to think that student loans should be no different. While I don’t support across the board forgiveness of student loans, I do think the option of renogitation or outright discharge via bankruptcy should be an option. Bankruptcy can be declared on every other type of debt. We don’t require eighteen year olds joining the military to commit for twenty five years. Yet, it can take that long for even vital jobs like teachers to pay off student loans now. Desiring and seeking knowledge should not be condemned like it is now.

It was traditional education that stoked my love and addiction to learning. Learning new things gives me a buzz that no booze, drug, money, romance, or achievements ever have. Part of me thinks it would be cool if there were like monastries for nerdy people who were interested in learning for the sake of learning much like the monastary and mystery school of ancient times. But giving lots of knowledge to lots of people for free could be quite dangerous, especially for those who benefit off the world being as it is right now. I’m glad I live in an age and time where I can get a college level education in subjects like history, economics, literature, philosophy, theology, etc. with several years of binge watching youtube and Khan Academy and it doesn’t cost anything. Even after twenty five years of internet, we are only scratching the surface of what it can do for humanity. Future scholars will look at the interent as one of those society changing technologies like the printing press, gunpowder, steam engine, and perhaps even writing itself. There are no secrets anymore. In some ways that is good. It makes it a lot tougher for tyrants and other bad actors to hide their actions. Even military secrets are no longer safe, as those Pentagon leaks a few weeks ago showed. Maybe eventually the Information Revolution will make large scale war obsolete, if for no reason other than it’s tough to kill people you have had connections and conversations with. Here’s to hope for the future.

Seeing The Light At The End of a Dark Tunnel

Looks like we’re halfway through the winter now. I can tell the days are getting longer. Went outside a couple times today. The snow is starting to melt. The snow is perfect for snow balls and snow men. Threw a couple snow balls for the first time in a few years.

I’m still losing weight. If I lose another 30 pounds, I will be lighter than I have been since 2010. I can already walk short distances without pain. I sometimes breathe hard if I walk too far or too fast. But I can easily stand up and walk for six minutes straight without sitting down. At my last evaluation, I could walk 380 feet without sitting down. Pretty good considering last May I couldn’t even stand up without serious pain.

Been talking to friends more. They are excited about my progress. I admit to feeling kind of restless and frustrated with how slow the process of finding my own apartment is going. I just have to keep reminding myself that I didn’t expect the progress to be this fast. When I fist came to Genoa I thought I would have to be here for at least one year, possibly two. But the weight loss has been rapid, physical therapy has been going better than expected once my knee pain cleared up, and I can do most things on my own now. I can make my own bed. I can shower myself now without help. I could probably do my own laundry if they let me. I can even easily clean myself after using the toilet. Never thought that would be a big deal. I’m even starting to run out of toilet paper. I could even mop my own floors if the facility would let me. I can also navigate stairs once more. First time in almost four years I can easily climb stairs.

My blood pressure is actually lower than normal. The other day I checked in at 103 over 53. Looks like I may have to be lowering the doses again. I had the doses lowered last fall and even had a couple discontinued entirely.

Heard from Kearney Housing Agency a few days ago. They wrote to me asking if I still wanted to be on their waiting list for low income and section 8 housing. I wrote back telling them that I am still interested. It’s starting to look like Kearney my find a place for me even before Oklahoma City area does. I’m thinking that if this happens, like it looks like it could, I’ll move to Kearney for awhile and wait for an opening in Oklahoma. My brother and his family live in Oklahoma City as do my parents. I’m confident I’ll eventually end up down there. But for now, I just have to navigate the system and take what comes open.

Doctor seems to think if I keep losing weight I will eventually be cured of my sleep apnea. I still sleep with the CPAP machine. But I can nap in my recliner without problems for at least a couple of hours per day. It looks like things are really improving and really fast too.

I’m thinking had I not had my car accident back in 2015, I wouldn’t have gotten interested in home delivery groceries or buying on Amazon. Even though the accident set my weight loss back a few years, I do think that I avoided getting sick during covid precisely because I stayed home most of 2020 and 2021. I guess it sounds like hyperbole, but I really treated covid the same way I would have had I gotten drafted for a major war. Once I found out people with obesity and breathing issues were especially vulnerable to covid, I got serious. I started losing weight. I started lifting weights in my apartment. I wore a mask every time I met a delivery man. I wore masks when I hosted guests. Sure 2020 and 2021 were tough and lonely years, but I think I came out better because of them. In short, I never gave up on losing weight or getting serious about my help. But the car accident made me take a few years worth of detours. Maybe it was the universe’s way of proving to me that I can accomplish great things even with my disability and limitations. Maybe God just ain’t ready to give up on me.

Surviving The Covid Pandemic With Schizophrenia and Congestive Heart Failure

Still doing physical therapy three times a week. Been doing this for over six weeks now. My speed is improving. So is my leg and arm strength. Overall I am down 65 pounds since I moved here around Memorial Day. Since the meals are well balanced and home made, I don’t feel deprived. I get three hot meals every day. I am on calorie restrictions, so I can’t go back for seconds. The meals are good enough that the smaller portions don’t bother me. I’m still on fluid restrictions. I usually drink less than 2 liters of fluids per day.

Got on the scale today. If I lose another 10 pounds, I will be at my lightest since my car accident in October 2015. One of the reasons I gave up my car was that it was really tough to get in and out of my car with my bad knees and back. I haven’t ridden in an automobile since late May, but I am quite confident I can get in and out of most cars easily. It seems like I’ve been losing 5 pounds per week since the therapy restarted in late September.

I can walk with a walker easily now. Distance is still a problem as I still get winded after a few minutes of walking. But even that is slowly coming back. I can stand in place for several minutes at a time even without a walker. I started experimenting with a cane too.

I go outside more often, at least when the weather is nice. Haven’t been outside for a few days as the weather has been chilly and rainy. We’ve been having terrible dry spells for many months now. Any rain is welcomed. Some parts of my state got their first snow of the season. Most of Nebraska usually gets it’s first snow before Thanksgiving.

The corn harvest is mostly done. Most of the leaves are gone from the trees. The grass is turning yellow. While we haven’t had our first snow yet, it does feel like winter isn’t far away. Most nights I sleep under a fleece quilt. It is purple and made for a king size bed even though I have only a queen size bed. I bought an extra large blanket so I could wrap up whether in bed or in my recliner.

I am now in a single room. It feels good to not have a roommate again. I had a roommate for a few months. First time since May 2004 I had not lived alone. Having a roommate was the largest adjustment to long term care. I’m also getting used to having communal meals. For years I made my own meals and ate alone most of the time.

My blood pressure was kind of low a few days ago. I don’t feel dizzy or weak. But I had problems with low blood pressure during the summer. Spent three days in the hospital in July because of those problems. I guess as I am losing weight fast, I’ll have to readjust the doses on my blood pressure meds every few months. I have lost 65 pounds since late May and have lost 145 pounds overall since the pandemic started. I’ve lost most of the weight I gained after my car accident. For a few years, I was really depressed, ate a lot, and was lazy about exercising besides weight lifting. If I lose another 45 pounds, I will be the lightest I’ve been since 2012. I eventually want to get back to my old college weight, but that’s at least a couple years in the future.

I still don’t have my own wheelchair. I’ve been borrowing one from the hospital for the last five months. First, Medicaid denied to pay for my wheelchair. Then we decided to order one through the hospital with my family paying for it. Well, the chair has been on back order for over three months. I can get along just fine with the wheelchair I borrow from the hospital. There is still no timeline on when the backlog will clear up. Could be another several months. I imagine by then I will have lost enough weight that I have to get remeasured to see how big of a chair I need. My current chair is already kind of big for me. I can get around just fine as long as the doors aren’t too narrow. For the doors that are narrow, I just fold up the chair and walk through.

I can already walk anywhere in my room without a walker most of the time. Sometimes my knees hurt enough that I use the walker. I can use a cane now too.

I had a bad cold for a couple days. I isolated from the other residents a couple days ago so I wouldn’t get others sick. I tested negative for covid. In almost three years of covid I still haven’t caught it.

Decided to get real serious about weight loss right before covid hit the US. I was afraid if I caught it, it would be real bad with me being overweight and having sleep apnea. I’ve lost 145 pounds since early 2020. Currently the lightest I’ve been since mid 2016. I avoided doctors and hospitals during covid for fear I’d catch it. I more or less stayed near my complex for 2 years. I rarely left the apartment without a mask. I wore masks when I met the delivery guys for my groceries and Amazon. Grocery delivery and Amazon kept me from getting sick for over two years. Most people I know have had covid multiple times. My brother has had it at least twice.

Maybe I went overboard treating covid like a war time crisis, but it kept me safe and well. I’ve also lost an incredible amount of weight in that time. It was kind of lonely, but I had my smart phone and called friends and family every day. I dropped in on neighbors a few times per week. My cleaning lady came every Thursday and did my laundry. Even though I was home bound because of my knee and foot pain, I still managed to survive the covid pandemic.

Even though I wound up in the hospital because of my blood pressure problems (which manifest in the knee and foot pain) in May 2022, I think I made the right decision to avoid most people and hospitals during the pandemic. It was lonely and it felt like I was hiding out in a bomb shelter. But it very well may have kept me from getting sick and thus kept me alive. With as overweight as I was in February 2020, my mental health problems, and my sleep apnea, covid could have been a death sentence back then. The vaccines didn’t become available in large scales until late spring 2021. I got vaccinated as soon as I could. Only then did I relax on some of the self imposed restrictions. Once the threat of covid faded, I started concentrating on the blood pressure issues.

Now that I am doing physical therapy three times a week, my weight loss has really gone fast. I am now convinced it is not a matter of if I get to go back out on my own, it’s a matter of when now. Everyone I know is amazed by the amount of progress I’ve made in less than six months. Hopefully I can make even more progress in the coming six months. Once my knee and foot pain cleared up, everything changed for the better.

The grocery delivery service, meds by mail, and Amazon service were all godsends for me. They very well may have kept me alive during the covid pandemic. I’m thankful I was able to have regular psych doctor appointments via Zoom calls for the duration of the pandemic. It was a difficult couple of years I will never forget. I think the covid pandemic changed me for the better.