Author Archives: alifeofmentalillness

Loneliness

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I visited with my nephews and niece a few days ago.  I got to see my parents too for the first time since Christmas.  I had a good time with the kids.  They are ages 12, 10, 8, and 5.  They are old enough they don’t get into a lot of trouble and can be quite entertaining.  Seeing those kids grow up and develop interests and personalities of their own is bittersweet.  I am happy that my brother and his wife were able to have several kids, are able to take care of them, and raise them to be respectable and well behaved kids.  But it does make me realize some of what I have lost and will never be able to experience on my own because of my schizophrenia.

I have written a lot in the past about alternating between being sad, angry, and depressed about the career and life opportunities I lost in the name of mental illness.  I have written much less about being sad and depressed about never being able to marry or have kids.  Outside of my best female friend, I really have little experience with dating.  I was turned down every time I ever asked a girl out on a date in high school and most of the time when I was in college.  By the time I was halfway through college I gave up on the idea of ever marrying because it just seemed like a lost cause and wasted effort.  I never could figure out why I did so poorly with women.  But I haven’t really cared for years as I know that ship set sail a real long time ago and that I just as well make the best of being single and lonely for life.

For many years I was making the best of it.  After seeing some of my classmates go through rough divorces or slog through unhappy marriages, I was grateful I never did marry.  But after seeing my brother’s kids mature through the years and come into their own, I am beginning to realize that if children are raised well, they can be the greatest things that ever happened to you.

It wasn’t until a few days ago that I realized just how lonely I am most of the time.  I really don’t talk to that many people in person any more.  I almost never socialize outside of close family and friends.  I still sleep ten to twelve hours a day.  I think that is a subconscious way of dealing with the loneliness.  I really am lonely most of the time.  Have been for the last couple years since three of my older friends in my apartment complex died within six months of each other.

As much as I hated the office politics of a job, at least I was able to find a few moments of joyful interactions everyday with other people.  As much as I didn’t like the social aspects of high school, I still had my friends and some friendly acquaintances.  I don’t have any of that anymore.  I can understand how some people, men especially, lose a lot of joy in their lives and much of their identity when they retire or get laid off from a job.  I would consider going back to work except that mentally I’m too unstable and too discouraged to work a traditional job.  Besides much of what I could do in a traditional job will probably get automated within the next several years anyway.  Perhaps that is why I devote so much time to this blog.  It gives me identity and it could be my legacy since I’ll never be able to get married or have kids.  Things have often been lonely and discouraging the last couple years.  Being mentally ill is a death sentence to anyone’s social life.

 

Spring Cleaning and Changes

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Spent the last couple days cleaning my apartment and car.  I didn’t drive much this winter except to buy groceries and pick up fast food, so it was just a matter of throwing out some trash in my car.  I’ve gotten rid of a lot of clutter in my apartment.  I still have a couple more days of decluttering.  But since the weather is supposed to warm up by the end of the week, I think I can get a great deal done.

My nephews and niece are visiting my parents for a few days over spring break.  I saw them yesterday and took them to a Mexican restaurant.  Had a good chat with the kids and my parents.  I hadn’t seen any family in person since Christmas.  It was a good change to my routine.

While I still sleep kind of late most mornings, I have found myself sleeping less the last several days.  Now that spring is on the way and the weather is starting to warm, I am getting more sunlight.  I feel better because of the better weather.  I definitely no longer feel the need to just stay inside for entire days.

Mentally I have been quite stable for weeks.  I think it helps that I am getting plenty of sleep, eating more healthy, and avoiding stressful people and situations.  I hope I can keep this kind of stability up.

Been experimenting with my diet for the last few days.  I haven’t eaten meat for several days and I’m also avoiding wheat and gluten.  My stomach is more settled and I feel like I have a little more energy than a week ago.  I have fewer aches and pains too.

I still have some cleaning to do in my apartment.  I had gotten a little lazy about keeping the place up over the winter.  Even though I usually feel mentally stable in the winter, I am also quite a bit lazier too.

I have an appointment with my psych doctor next week.  The medications I have been on for the last year seem to be working well.  I don’t see any changes in those coming.  I guess that I have weathered another winter and will be looking forward to warmer weather within the next couple weeks.

Beginnings of Spring and New Routines

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Even though it’s been a little more winter like the last few days, I can tell that spring is on the way.  I’m starting to sleep less and even wake up earlier.  I haven’t pulled an all nighter in over a week.  I’m starting to do grocery shopping at night like I did in the past instead of at like 3 am.  I’m chatting with friends more and starting to sort out my apartment.  I had gotten lazy about cleaning since Christmas, so that was needing to change.

Mentally I’m as stable as I have been in a long time.  I still don’t socialize much in person even if I make it a point to leave my apartment several times a day.  Sometimes I leave for something as simple as getting soda pop at the convenience store just to get out of my apartment.  I haven’t had any real bad flare ups for weeks.  I don’t know if it’s because I don’t socialize that much or if I’m settling into a calm period.  Late winters and springs are usually the most stable times of year for me.  Late summers and early falls are always tough.

In other news, my niece and three nephews are coming to Nebraska for a few days over spring break.  I haven’t seen those kids since last summer.  It’ll be fun to touch base with them.  I don’t get to see them very often.  I do wish I lived closer to my brother and his family.  Even though my brother and I weren’t close when we were growing up, I still think it’s important to keep touch with family members.  Besides my parents are in their late 60s and they aren’t getting any younger.  After a friend of mine told me her mom had cancer, it made me realize that easily could be my parents struggling with their health.  And it got me thinking about my own health.  Working against a chronic mental illness for twenty years has taken a toll on my physical health.  I don’t get sick with viruses or infections very often, but I can tell I don’t have the physical strength I had even ten years ago.  And people with schizophrenia tend to have shorter life spans to begin with.  I can tell the stress of the mental illness is starting to wear me down.  There is a connection between mental health and physical health I am convinced.

The winter is essentially over.  We will probably have a couple more snows but they won’t be the type that stay around for weeks.  I’m already starting to make plans for spring.  And I’ll probably start spring cleaning and maintenance next week.  I have a couple projects I need to get done that I’ve been putting off for weeks.  It’s time to come out of my hibernation and winter exile.

End of Winter

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The weather is starting to warm up and the days are getting longer.  Spring will be in full effect within a few weeks.  I am enjoying the warmer weather.  I’m getting out of my apartment a few times a day to enjoy the warmer weather.  During the course of the winter I have gotten lazy about cleaning my apartment.  So a few days worth of spring cleaning is in order.  Unfortunately I let my house kind of slide for the colder winter months.

Baseball will also be starting in a few weeks.  I still have several days to do some research before I have to pick my fantasy league baseball team.  Been watching a few pre season games the last few days.  First time I really watched regular tv since the Super Bowl.  February has always been a slow time of year for me.

Been feeling pretty stable mentally overall.  I have started to wake up earlier as I no longer sleep until noon every day.  I don’t sleep as much and I think my body and mind are starting to reenter spring mode again.  I’m not staying up as late either.  Seems to me that my overnight mentality is strongest in the darker days of winter.

I can tell that spring is almost here and winter is all but done.  The weather is warming up, the nights aren’t as long, daylight saving time will begin next weekend in my country, the trees are starting to bud, the grass is a little greener, and it seems that the people around me are getting in better moods as the weather warms and the days get longer.  I had dealt with so many foul moods over the last few months I pretty much isolated for most of the winter.  I just didn’t want to deal with angry people anymore.  But even the people in my life are starting to act more cheerful and optimistic.

Even though I have been making a point to leave my apartment several times every day I still haven’t worked up to taking an extended road trip.  I haven’t been outside of my town since last fall.  I actually made it through the winter with having to fill my gas tank only once I drove so little this winter.  But I think since the weather is starting to warm I may have to make a few trips.  It has gotten old spending most of my time at home and having the bulk of my social interactions taking place over phone and internet.

I am looking forward to spring.  I am glad that winter is all but over.  Won’t be long now.

Incentives and Rewards

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I haven’t been paying any attention to the news for months now.  At least I haven’t payed attention to anything outside of science and tech lately.  It’s too bad that there aren’t any news channels that really devout any of their schedule to talking about science news.  As popular as Anthony Bourdain’s international travel and food shows are on CNN, I really think there would be an audience for these such shows.  As it is I get most of my news online anymore.  I even get my local news online now.  If I can keep the internet going and my computers don’t crash, I can stay well connected and I don’t even have to leave my living room.  I’m doing a job (or at least a public service) and I’m wearing gym shorts and no shoes right now.  Good luck trying to do volunteer service around your community without putting on pants or shoes 🙂

I enjoy tech and science.  I always have.  My brother and I used to take apart some of my dad’s old electronics equipment just to see how they were put together.  Since my dad has been a ham radio operator for years (my brother and I have our ham radio licenses too), he always had some pieces of equipment with circuit boards and wires we could take apart and see if we could put them back together again.  My parents gave us lots of building toys and brain builders every Christmas.  Seems like we could always count on getting Lego sets or brain games or books for Christmas and birthdays.  I suppose I just took having medical professionals for parents that really made learning fun and stressed the importance of doing well in school for granted.  It wasn’t until I was in college did I realize just how rare having books and enrichment games at home really was.

If there is any point to my previous two paragraphs, it is that we get what we reward.  My parents and my friends’ parents rewarded creativity and intelligence.  It really helped me in college when I had an academic scholarship that paid for half of my college expenses.  I don’t think there were any people in my high school class that got any athletic scholarships to college.  Unfortunately too many people, at least in my country, think that their tickets out of the slums or dying rural towns are through athletics or being entertainers.  Sure mediums like youtube have made it possible for people to make middle class wages with a decent following.  But even the ones making middle class income are few and far between out of the millions of producers on youtube.  In short, we don’t need armies of youtube comedians or singers, but we can definitely use more scientists and engineers.

 

Odd Sleep Patterns With Mental Illness

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I have been experiencing changes in my sleep patterns the last several weeks.  I now usually stay up quite late and sleep in the mornings until usually noon.  But I still get my sleep and am still able to do this blog two to three times per week.  I am still able to socialize with friends and family in spite of my mornings being when I now sleep.  I have adjusted to this new routine by doing my shopping and errands at night and scheduling my medical appointments for late afternoons.  I look at it as no different than working a nigh shift job.  My mother worked night shifts for years so I think it runs in the family.

Oddly I actually have felt more stable and calm during the last few weeks.  Because of my overnight schedules I have been able to avoid problem neighbors whom have been causing me grief and irritation.  The fact that I rarely hear from irritable and angry neighbors has made my stress levels go way down.  I haven’t felt this calm and relaxed in a real long time.

Even though I’m not getting a great deal of physical activity as it’s still winter, I have found myself eating less.  Most days I eat only two meals, drink a lot of water, and have a couple cups of coffee.  I have found that caffeine can be an appetite suppressant for me.  But if I have more than two cups of coffee at a time it can make me jittery and irritable.  And I think I’ve even started to lose weight again because I’m eating much less.

I haven’t had problems with hallucinations and delusional thoughts lately.  I think it helps that I still get good sleep, avoid stressful people and situations, and just pretty much have settled into a routine that has been helpful for the course of the winter.

My sleep patterns do vary throughout the year.  During the summers I am often awake shortly after dawn and usually don’t sleep as much as the winters.  I sleep the most and stay up the latest in the winters.  But it evens out as winters are usually slow and uneventful times for me.  I usually have my worst problems with schizophrenia in late summers and early autumns.  I don’t know if it’s common for someone with my diagnosis to have seasonal aspects to the illness.

As of right now I am happy with my patterns and routines.  I can still get things done and I don’t get bothered by irritable people as much as I normally do.  I imagine as the days get warmer and longer I probably will start waking up earlier and hibernate less.

Winter Routines and Loneliness

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Haven’t written in awhile.  But I guess I haven’t had much to report.  Been quite stable for a few weeks now.  I still sleep a great deal, mainly after I stay awake quite late.  I haven’t really gone anywhere for most of the winter.  We haven’t had as much snow as previous years and we have probably seen the worst winter is going to offer.  It did help that our traditional mid winter thaw was longer than usual, lasting almost two weeks.  I was able to spend more time outside and been out of my apartment more the last two weeks.  We have probably only a month of cold and icy weather left before spring comes into full effect.

It’s been a quiet and lonely winter for me.  I haven’t had house guests since Christmas and I haven’t had much for conversation with my neighbors this winter.  I think my social skills are deteriorating as a result.  But I have gotten to where I actually prefer to be alone with my thoughts, my writings, my computers, and my reading and research.  And I have gotten to where I really don’t mind sleeping ten hours a day.  I imagine as the days continue to get longer I’ll start sleeping less.  I usually sleep a lot in winter.

I haven’t really been depressed or irritable for weeks now.  I don’t know if this is because I avoid socializing or just avoid confrontations overall.  I still don’t watch any traditional tv and haven’t for weeks.  If it wasn’t for my video games I wouldn’t even own a tv.  Overall I’m getting by on little in terms of material possessions and trying to enjoy everyday as much as possible.

 

Winter Routines and Down Time

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Aurora lights up sky over log cabin

My life has been essentially quiet and uneventful since Christmas.  We had a pretty cold January and early February so I didn’t really go anywhere except to pick up groceries and house supplies for the last two months.  We had our traditional mid winter thaw the last week or so.  So I’ve been spending some time outside watching the squirrels and birds.  I see the cranes and Canadian geese are starting to migrate back.  They are usually quite thick near my town from the last week in February until middle March.  I’m going to take a few hours sometime next week and just watch the birds along the Platte River just outside my town like I do every March.

I traditionally love to travel and see new places.  But I haven’t been outside of Nebraska since my friend Matt’s wedding almost two years ago.  And I can tell that the lack of travel and new experiences are making me stale and itchy.  Believe it or not, I really don’t like the sedentary lifestyle.  When I still held traditional jobs, I usually did my best at jobs where I was moving a lot and it didn’t matter if I got sweaty or dirty.  I admit that since I had the sedentary lifestyle forced on me, first by my car accident and then spending a summer with a messed up back, I have gotten lazy.  And by getting lazy I can tell I have lost much of my stamina and enjoyment of just doing simple things like walking around the park or going to the all night deli to pick up some Chinese food.  I have recently started going back to the all night deli more often, especially if I’m going to be up late.

I am still not as active as I would like to be, but I can tell that it is beginning to come back.  I am traditionally not very active during winters, at least not physically.  I usually read a lot and have traditionally done some of my best writing work during the winter.  Most of the books I read this winter were about future technology trends and popular science.  I also listen to a lot of audiobooks and current events type lectures on youtube.  I tend to utilize youtube and my books more in winter than the spring or fall.  Traditionally during the summers I do most of my errands in the morning than spend the hottest parts of the afternoon reading and writing.  But I still do the bulk of my brain work during the winter.

I can tell that the lack of physical activity and travel is making me easily bored.  It is also tough in that I haven’t seen my close friends or family at all since Christmas.  I fear that I’m losing my social skills.  I don’t socialize much with my neighbors in my complex as I have little in common with them.  Most of my neighbors are senior citizens or people with physical disabilities that can’t do much of anything.  I don’t know many people in here with mental health issues who are still in reasonably good physical health.  It is kind of lonely in here as far as socializing goes.  I can also tell that the lack of socializing and physical activity has taken a toll on my physical health.  I just hope that once spring sets in a few weeks from now, I’ll be able to get more active again.

Just Because It’s Not Paid Work Doesn’t Mean It’s Not Valuable Work

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Some of my critics will love to point out that I don’t have a “real job” and that I’m only able to stay alive because I am “leeching” off the taxpayers of my country.  To which I respond, “Let’s see you fight through a mental illness for twenty years that no one can understand and some even deny exists and then you tell me how much of a leech and a cancer on society I am.”  I have had people who I previously thought were my friends tell me I’m “wasting my life” not working some minimum wage drudgery because it’s the “useful”, “honorable”, and “manly” thing to do.  I have had former friends tell me my blogging about mental illness is “a waste of time.”  Needless to say such short sighted jerks I no longer keep in contact with.

Who gets to define what is honorable and useful to begin with?  I don’t remember getting to vote on such ideas.  By what right do now former friends get to tell me I am wasting my life and time blogging about living with a mental illness?  I can illustrate what living with a mental illness is like.  Many who are mentally ill are unable to articulate what living with it is like.  It’s a lonely existence.  It’s a turbulent existence.  It is a horrible feeling knowing I will never be able to attempt to achieve my dreams.  It is terrible knowing I will never have a family.  It sucks knowing that through no fault of my own I’m always going to be on the fringes of society.  And it scares me that I’m always going to be in poor health and probably die at a younger age than most people.  The public at large needs to know what life is like for the forgotten mentally ill people.  Many mentally ill people rotate in and out of jail because they aren’t getting the kind of treatment they need.  Many mentally ill people are homeless and not by choice.  Some, like myself, have to live on the outside of society looking in because we are not accepted by society as a whole.  It can be a very dreary and dark existence.  I don’t wish the ups and downs of mental illness on anyone, not even my worst enemies.

Why is paid drudge work considered honorable yet unpaid volunteer work, such as what I do with this blog, isn’t?  Why do I have to work as a janitor or a convenience store clerk to “earn my keep?”  As easily as we can grow food, build shelters, and harvest energy anymore, we don’t necessarily need what economists call ‘full employment.’  We don’t need several layers of bureaucracy or managers of managers or ‘inspectors of inspectors’ as Buckminister Fuller put it many years ago.

We don’t have 90 percent of our workforce on farms or factories like we did during the Industrial Revolution because we have machines and scientific processes that can grow crops and make goods far better than we could in bygone years.  I am convinced that holding on the antiquated and obsolete idea that everyone has to have a job is actually hurting us as a society and holding us back as a species.  Besides, when I was working I heard my coworkers and bosses complain and whine about how much they hated their jobs.  It seems to me that everyone enjoys complaining about how much they hate their jobs.  Hating your job, it seems to me, is more American than apple pie, the Stars and Stripes, or baseball. I never understood why normal people took pride in their misery and anger.  That doesn’t seem mentally balanced at all to me.

If there is a point to this post, it’s that maybe we as developed nations should seriously consider letting machines and automation take over as much drudgery work as possible, tax the workings of said machines and automations, and just give people a regular stipend just for being citizens of a post industrial nation.  Pretty much just free people up from the idea of having to have a repetitive and boring job just to eat and pay rent.  These boring and repetitive jobs should have been outsourced to machines and automations a long time ago.  And they will be assigned to the machines eventually.  No politician can prevent the automation revolution that is already underway.

How many kids grow up dreaming of being convenience store clerks, working at Wal Mart, or working on an assembly line?  No, kids grow up dreaming of being things like astronauts, artists, scientists, explorers, performers, etc.  It’s when we start telling these kids they need to ‘quit dreaming’ or ‘get a real job’ that they stop striving for the stars and quit fulfilling their potential. And I think that telling these kids to kill their dreams to do something just for the money is immoral and monstrous.

In closing, the next time you hear some supposedly wise grown up tell a kid or young adult that they need to get a real job or work for money, just remember that the most important job in the world doesn’t pay a dime of money to any of it’s workers.  That job is, of course, parenthood.

 

How The Internet Made My Mental Illness More Manageable

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Even though I haven’t gotten out of my hometown all winter I have still managed to keep in contact with friends and family.  Thanks to the internet I keep in contact with my old friends via Facebook.  And I’ve made several new acquaintances that would be friends if only we lived in the same town through the forums and groups I participate in.  I’m involved in a few futurists’ pages as well as some science pages.  I guess I really don’t interact much with other writers or bloggers, not as much as I should.  I used to belong to the Nebraska Writers’ Guild but I let that membership lapse as there weren’t many guild members living near me and few of the guild members were my age or younger.  I guess even mentally ill people like to spend time with people similar to them.

With my Wal Mart special smart phone I keep in contact with family members a couple times a week.  If my dad happens to be in town, he will send me a text message asking if I want to have lunch with him or mom will ask me if I want her to pick up something from Wal Mart.

Speaking of shopping, I don’t really buy that much in traditional stores.  I still go to the all night supermarket to get groceries every couple weeks.  But even there I find out about their sales and specials through the store’s web page.  I still get my psychiatric meds through a traditional pharmacy.  But even there I get automated reminders that tell me when I’m due for refills.  The only time I actually deal with another person is when I go to the pharmacy to physically retrieve my refills.  Even that may become a thing of the past in a few years if automated pharmacies and delivery drones pick up traction.

Most of what I buy anymore outside of groceries, fuel for my car, and basic home items, I now buy online.  When I buy books, it’s online.  When I buy computer games, it’s online.  When I buy movies or tv shows, it’s through amazon’s digital service.  I get all my music online through spotify.  Most of my tv watching is done via youtube or netflix.  Many of my computer games now have online support and updates.  I now buy most of my clothes online as I do have rare sizes.  Sure it is a little more expensive, but I can find exactly what I want as long as I’m willing to look.  As much as I appreciate second hand stores like Goodwill and Salvation Army, even they can be a roll of the dice in terms of finding what I need.

Comparing what I spend now to what I spent several years ago on my living expenses, I’m now actually spending less than I was ten years ago.  With my social security disability pension being what it is, I make less than fifteen thousand dollars per year.  Even though that puts me below the poverty line, at least by American standards, I don’t feel poor.  I have access to treasure troves of music that would put any music collection of twenty years ago to shame.  Thanks to wikipedia I’ll never have to buy an encyclopedia set.  Thanks to online clothing stores, I don’t need to settle for clothing that doesn’t really fit or doesn’t look good on me as long as I keep my measurements up to date.  Thanks to online news and entertainment, I really don’t need cable tv.  The only thing I use cable tv for anymore is live sporting events.  Even at that I watched some college football games online last year.  So I really don’t need to buy a ticket, navigate a crowded stadium, and sit in the freezing cold to watch Nebraska Huskers football anymore.  I can sit on my own couch, grill my own meats, and not worry about anyone blocking my view or having to go down several flights of stairs to get to the restroom.  I’ll keep watching sporting events online even if I really have little interest of seeing them in person.  Unless, of course, the Colorado Rockies ever got back to the World Series or if the U.S. ever hosted the World Cup soccer tournament again.

I can get even medical advice online anymore, thanks to services like WebMD.  I can type in my symptoms and see if what ails me is serious enough to go to the doctor or not.  So I don’t usually have to go to the doctor unless I’m really sick or my mental illness problems are really out of line.  I haven’t had to go to the psych hospital in over three years but it is good that the option is still there.  Since I spend so much time online, I have developed some friendships with people I’ll no doubt never meet.  And I get to post about mental illness and it’s ups and downs in a forum that didn’t exist even twenty years ago.  Twenty years ago I would have had the same thoughts, but no means of recording them for a public audience.  I would have had to suffer in silence if I had these problems as recently as the 1980s instead of the 2000s and 2010s.  We are living in a totally different world than the one I grew up in during the 1980s and early 1990s.  And I’m completely glad for it.  I can hardly wait to see what other cool stuff and finding come out in the next twenty five years.  Thanks to the internet, I can watch this new world unfold and take root from the comfort of my own living room and not even leave my small home town.