Dealing With Loss, Isolation, and Declining Health

Haven’t written for a few days.  I’m only now recovered from the holidays.  I still have a hard time wrapping my mind around the fact that it’s 2020.  I am understanding why my grandmother said that time only goes faster the older you get.  I’m going to be 40 this summer.  Mentally I don’t feel any decline.  If anything, I feel mentally sharper and stronger than ever.  Physically, my body can no longer keep up with my mind.  It’s been this way for a couple years now.  I would love to be able to road trip and visit friends in person and go to concerts and ballgames at a moment’s notice like I did in my late 20s and early 30s.  But the body can no longer keep up.  I don’t know how much of it is aging, how much of it is the toll of two decades fighting a severe mental illness, how much of it is being overweight, etc.  At this point I guess it doesn’t matter either way.  I am pretty much content to stay home, chat with my old friends online, read my books, mess with my computers, and watch the events of our time and place unfold from my apartment.

Found out right before Christmas one of my college classmates died.  He was only 40.  He worked at a mental health hospital and was a compassionate man.  I hadn’t talked to him much since graduation.  I’m glad we found each other on facebook and were able to reestablish contact shortly before he died.  And then just yesterday I found out another college friend’s cancer has come back.  This time it’s terminal.  The doctors told her she has two to five years at most.  Starting to lose my own friends now.

Seeing most of my friends struggle financially has taken a toll on me.  And now that most of them are in declining physical and mental health and even starting to die is making this only worse.  It has gotten me to think about my own mortality far more than ever.  At my last doctor’s appointment, I was relieved to find I was not diabetic.  The only real problem they found was high blood pressure.  I no longer have much for stamina.  That’s one of the reasons I stay home so much.  Going out in public is now enough of an ordeal that I no longer enjoy it.  Add to this that most people I know are more stressed and short tempered than ever, I have no want to leave my apartment.  I have enough problems of my own to catch an ear full from my neighbors and landlord.  Sometimes I get in trouble even just staying at home.  Most people in my complex think I’m moving out or getting evicted because I never go out in public anymore.  Naturally, lots of rumors are going around.  No I’m not moving.  As far as I know, I’m not in danger of being evicted.  Though for the last few years I’ve lived in near constant paranoia that I was.  It’s mainly because most people are just so angry and short tempered constantly.  It didn’t used to be this way.  I actually used to enjoy socializing.  Then three of my best friends in my apartment complex died within six months of each other in 2014 and 2015.  From there my social life fell apart.  Other than a few neighbors, I literally have no friends within a fifty mile radius.  I don’t think most people know or care how tough socializing is for a middle aged man with a disability and no immediate family nearby.  I just keep to myself anymore.  I would rather be alone than have to fight with neighbors, coworkers, and complete strangers all the time.

Day After Christmas 2019

It is December 26, 2019 as I write this posting.  I had a rough go a few days right before Christmas.  I had to postpone my holiday plans as I was having some flare ups with the illness.  Even though I spent Christmas Day at home by myself, I made a point of calling my family and getting in touch with friends via phone and social media.  Got to chat with my brother and his kids and find out what they got for Christmas.  I rescheduled my family Christmas for this weekend.  But we’re supposed to have winter storms this weekend, so it may be getting postponed a second time, perhaps until New Year’s Day.  Fortunately there are lots of college football games this weekend.  So even if we do get the several inches of snow and ice and bad winds, I can stay home and watch football.  I just hope the power doesn’t go out.

I don’t have much planned for the next few days other than get ready for the storm and watch some ball games.  In addition to watching a few games already, I have been thinking over the last twelve months.  2019 hasn’t been as eventful as some years, at least not for me.  I did sell my car, I have employed a cleaning lady who has dropped in once a week, and now one of my neighbors is helping with my laundry.  My neighbors drop in a couple times per week and we just check in on each other.  I had my annual physical checkup in early December.  I didn’t lose weight (like I had hoped), yet I didn’t gain weight either.  I don’t know if I stayed steady because of the change of diet and regular weight lifting or what.  I did start on a blood pressure medication.  After a few weeks on it, I notice I feel less tense and am starting to become more active again.

Mentally I kept largely to myself even though I have felt less paranoid and anxious than previous years.  I have had a few flare ups over the last twelve months, but they seem less intense than in previous years.  I still sometimes call my parents and just blow off steam.  I feel guilty for it even though my parents seem to be understanding.  I admit, I have an amazing family for support.  Even the extended family of cousins and aunts are very understanding.  I’ve been doing this blog on a regular basis for six years now.  I’m more comfortable talking about my issues now than I was even when I started this blog.  I certainly didn’t feel comfortable about talking about my problems twenty years ago, not even really to family.  I started having problems when I was seventeen and a junior in high school.  At first I was hoping it was merely teenage angst and anxiety.  Turns out I was wrong.  After using regular medical treatment and therapy for almost twenty years, it is easier to talk about my problems.  I have moved past the acceptance part and now advocating for others besides myself.  I don’t know how long I will get to live, but I plan on talking about these issues for a long as I can.  For awhile I was thinking about starting a youtube channel where I do voice overs just talking about mental illness.  I am still a little leery about broadcasting myself, but not so much my voice.  I hope that mostly paranoia talking.  A friend of mine has a youtube channel featuring her art work and she’s tried to convince me to put some of my thoughts to video instead of just print.  I didn’t get around to it in the 2010s, but who knows what opportunities the 2020s will present.

Flare Ups During The Holidays

I’m not doing well today.  I just feel irritable, paranoid, and short tempered.  I cancelled all my plans for the rest of the week.  I am no longer doing well.  I think the stress of the holidays and my home health aide work has gotten to me.  My home health aide things didn’t go well.  I had people dropping in my apartment several times a day.  It got to be too much.  I have accepted that I’m not going to get better, physically or mentally.  I don’t know why no one else can accept this.  I don’t know how much longer I have in this life, I may die of a heart attack in my forties or I may just keep limping along until old age.  I don’t know.  I’m at the point I just want to enjoy whatever time I have left.  I don’t really enjoy the company of most people.  I never have and it has only gotten worse the older I get.  I know most people think I live a terrible life or “below my potential”, but I no longer care.  I have spent most of my life worrying about what other people think and their expectations.  I am sick of it.  I have come to the conclusion that nothing I do or say will ever be good enough for anyone.  It never seems to have been before.  Hell, I can’t remember anyone ever telling me they were proud of me.  I remember many of the compliments because, well, I rarely get them.  I am tired of having to plug away all the time, day after day, year after year, and not only not make progress but not even please anyone.  It burns me to no end.  If I don’t please you or anyone else, keep it to yourself.  I no longer care.  I’m tired of fighting a fight that, even if I win, the victory won’t be good enough for anyone.

Christmas 2019 and Mental Illness

It’s only a few days until Christmas.  My parents are coming up to Nebraska for a couple days, weather permitting.  Unfortunately, weather is always a factor in winter travel in my part of the country.  But I’m actually enjoying Christmas more this year than most other years.  I think many of my friends are the same way.  It helps me that I no longer have to fight the crowds whenever I need to buy something from a store.  I get most of my purchases delivered to my home anymore.  My grocery store has next day delivery and, even though I live in a remote small town, Amazon usually has two day delivery.  I have been playing Christmas music via YouTube and Spotify the last couple weeks.  I haven’t seen any real Christmas movies yet besides a documentary on the Christmas Truce of World War I between German and British soldiers in the trenches.

Overall I am doing okay.  I hired a couple home health aides after my doctor’s appointment.  I have a nurse who drops in every week and a physical rehab specialist who drops in twice weekly.  I don’t have much physical stamina anymore, but fortunately I retained most of my muscle strength.  Odd deal I suppose.  But I am slowly rebuilding my heart and lung strength.

My blood pressure is better regulated now.  And I feel less stressed and anxious overall too.  I leave my apartment to walk in the hallways with my physical therapist.  But I still stay home a lot.  I no longer stay home because of stress and anxiety.  I do it mainly because I am used to keeping myself occupied at home.  I can easily keep in contact with friends and relatives via facebook and phone.  I talk to my parents at least a couple times per week.  I have reestablished contact with my brother.  I wasn’t angry at him or anything, we just don’t have much in common.  He has a high end career, a wife, four kids, a house in the suburbs, etc.  I guess I don’t know how to relate to much of that.  I am grateful to be on good terms with his kids.  I’ll probably never have kids of my own, but I am happy with being Uncle Zach to those kids.

I’ll be watching football most days for the next two weeks with the college football bowl game season and the end of the pro season.  Unfortunately my Huskers didn’t make a bowl game this year.  But they are a young team that shows potential.  Winters are often a slow time for me.  But they are a time when I get a lot of writing and reading done.  Haven’t decided what my reading project will be for this winter.  I may do some philosophy works as it’s been a few years since I read good philosophy.  Since I no longer own a car, I won’t be going anywhere unless I can get a ride.  But it is easier to spend time at home than even five years ago.

 

Beginning of Recovery

Signed up for home health services the last time I was at the doctor’s office.  Yesterday, I saw the nurse who will be managing my case.  This morning I visited with my physical therapist.  She says my physical strength is good.  Unfortunately my endurance is not near what is once was.  As part of my baseline, I was able to walk only 3.5 minutes before I needed a break.  She says my walking pace is good but the endurance is in need of increasing.  I can stand up and sit down all right without aide as long as the chair is high enough off the ground.  I do need to use my hands when sitting in my recliner as it sits lower than my office chair and couch.  My rehab lady is a self described compassionate hard case, but that is the type I probably need.

After my car accident four years ago, I spent much time in depression and anxiety.  As a result I stayed home most of the time and got almost no physical activity.  So my endurance went down and I got more and more paranoid. The paranoia and bad health just fed on each other.  I am lacking endurance because of my paranoia and I am paranoid because of my lack of endurance.

My sleep pattern has returned to normal.  I usually go to bed around 9 or 10pm and wake up for good right at sunrise.  I guess I’ve become a morning person since the weather turned colder.  I don’t mind.  I can socialize with my parents in the afternoon or late mornings as they are retired and I can socialize with my friends in the evenings after their work days.

I think today went alright, at least as far as first day of rehab goes.  I have another aide coming in this afternoon.  I’ll see where we go from there.

December 9 2019

Been on my new meds routine for almost a week now.  I’m beginning to notice some positive differences.  I need less sleep, it takes more to become irritated, I move about more, and I even have better concentration.

My lab results came back too.  I am not diabetic (thank goodness), and all my other vitals checked out within normal ranges.  My cholesterol was in the 220s, so I will have to watch that closer.  I picked up replacement parts for my cpap machine.  I also started the paper work to try to get a home health aide to drop in on me every few days.  Overall, things are beginning to look brighter.

2019 has been both a good and a tough year for me.  I gave up most fast food and sugary foods.  I lift weights three times a week.  I’m less tolerant of people who try to mistreat me.  But I’ve also had some tough times too.  I isolate a lot more.  I no longer want to socialize with most people.  I go through bouts of hopelessness and depression more.  Somedays all I want to do is sleep.  I sold my car.  I gave up driving, just too much sensory overload and too stressful.  I guess I have gotten to a point in my life where I have almost zero tolerance for stupidity and rudeness.  And I have a lot of these the last few years, more so than usual.

2019 was a tough year in some respects.  I fear 2020 won’t be any better, at least not as far as socializing goes.

Pain and Depression

Haven’t been writing much the last few days.  Starting to sleep more again. Been fighting a cold for several days too.  Been waking up with unexplainable aches and pains the last several mornings.  This morning, my ankle hurt so much I could barely walk.  Pretty much spent the day sitting down or in bed just from the pain.  I couldn’t even answer the door or get to the phone because my ankle hurts so bad.  Oddly, pain pills and even ice don’t seem to do much for it.  It’s been a frustrating last few days.

Haven’t been having much anxiety lately.  But I have been having problems with depression and irritability.  I sometimes get irritated when I’m physically sick.  I’m not usually very good company when I’m sick or hurting.  I’m sorry for that.

Been discouraged and depressed more lately.  I make efforts to find what is going right out there.  Sometimes that can tough to find.  I haven’t had much for conversation the last few days.  Just haven’t been in the mood.  I feel lonely yet I don’t enjoy socializing, at least I haven’t lately.

Confessions of A Mentally Ill Blogger

Going off subject for this post.  I decided to bring more of my online confessions.  Yes, there is a real live middle age man behind the scribblings and musings of A Life of Mental Illness.  So here goes:

  1.  I’ve had the same best friend since high school.  And my best friend is a woman my age.  I didn’t understand the whole ‘males and females’ can’t be friends trope back then.  I still don’t.  Just because I am a man and she is a woman doesn’t mean we have been or ever will be romantically involved.
  2. I never understood why just because I am a man that I’m supposed to want sex all the time.  I never have, not even as a teenager.  And I used to get such a hard time from my school mates because of it.  I got it worse from my female classmates than I did even from my teammates on the football team.
  3. I never enjoyed dating.  And it wasn’t just because I was most of the time turned down even for something as simple as a cup of coffee at the college student center.  The few times I did date, I always felt like I was under investigation for the pettiest offenses and slip ups.  It was nerve wracking and not worth it.  Angered me that I couldn’t just be honest with women I found attractive.
  4. I don’t understand adults who forget what it was like being kids.  Even though I’m almost 40 years old and starting to get a few gray hairs in my beard, I still remember vividly what is was like growing up.  I don’t romanticize those days nor do I completely condemn them.  I had some good times and I went through some serious trials I never want to go through again.
  5. I don’t understand adults who hurt children.  I think it’s cowardly that some adult would do anything to a kid they wouldn’t dare dream of doing to an adult.  I have less respect for adults who abuse children than I do just about anything else.
  6. I don’t understand the mindset of bullies, especially adult bullies.  I can’t understand how messed up a person’s moral compass has to be in order to feel like they are powerful for messing with people who can’t fight back.  It doesn’t show power in my mind to yell at, berate, manipulate, and abuse people.  It shows a complete lack of character and courage as far as I’m concerned.
  7. I don’t understand people who think that yelling, insulting, threatening, and throwing temper tantrums are the signs of a good leader.  They aren’t.  The only reason people, myself included, put up with this kind of nonsense is that we have no choice.  At least not temporarily.  All the while I am agreeable to someone who is a verbally abusive boss or leader, I am silently bidding my time until I have an opportunity to where I no longer have to deal with them.  I have quit several jobs just because I got tired of dealing with abusive bosses.  And I refuse to go back to any job if I get the sense that a work place tolerates abusive bosses.  Thanks to my disability and my pension, I can say ‘screw you’ to bad bosses.  I am convinced if enough people could get several months worth of living expenses saved up and just start walking out on abusive and toxic workplaces in large numbers, we’d see these employers attitudes improve pretty fast.
  8. I never accepted why workplace politics are what they are.  Never have and I never will.
  9. Sometimes I am convinced that the adults act worse than the kids.  But it didn’t seem this way when I was growing up.  Maybe it’s something that goes in generational cycles.
  10. I don’t understand how weekly news and sports magazines are still a thing even after almost thirty years of the world wide web.
  11. I don’t understand why people still write checks.  I still have to write checks for my rent.  Irritates me to no end.  What century is this anyway?
  12. I don’t understand people who go on and on about the ‘good old days.’  When exactly were these good old days?  And if I make it to age seventy I’m sure I’ll hear some fools talking about the 2010s as ‘good old days.’  The good old days never existed.  They were just when you still had good health and weren’t held back by constant aches and pains.
  13. I’m glad I was never popular or cool.  I don’t want to be popular.  I just want to make people think.
  14. I don’t begrudge twenty somethings who still live with their parents.  Multi generational housing was more normal in previous eras than now.  Sometimes I would love to live with my elderly parents or my brother or my aunts.  At least we could look after each other easily.  And I wouldn’t have to deal with some of the screw balls and loose nuts who come with living in an apartment complex.
  15. At this point in my life, I’m tired of living in an apartment complex.  I would so buy my own house and not deal with land lords and close by neighbors if I could afford it.  I just want some privacy and not have people looking over my shoulders all the time anymore.  Dormitory living was more fun at age 19 than at age 39.
  16. I often fear that I don’t get through to people.
  17. I often fear my friends and family secretly don’t like me.  I hope it’s the illness talking.
  18. I sometimes go days at a time without leaving my apartment.  I’m just burned out on the stress of dealing with irritable, angry, and rude people all the time.  Socializing with most people is toxic for me anymore.  At this point I’d rather deal with a machine than most people.  At least machines won’t give me a hard time or tell me how bad of a person I am.  People sometimes suck.
  19. I love to sleep.  I’d sleep even more if I didn’t wake up with aches and pains every morning.

Worries About My Friends and Our Near Term Future

I worry sometimes.  Namely I worry about my friends and people younger than I am in general.  I worry about most of my friends struggling in life.  Most of my friends are buried in debts, mostly student loans, that they will be lucky if they ever pay off.  And most of my friends weren’t that dumb with their money or life decisions.  Most of my friends went to college because 1) we were told that was a path to a decent career and 2) we looked around and saw that there were no jobs that paid decently requiring only a high school degree.  Long gone are the days when someone could get a job as a factory hand or farm worker in their early twenties and hold onto that job for over forty years and retire with a paid off home, pension, and health insurance.

I’m seeing my friends struggle in their day to day lives.  Most are working a full time job and a part time job or a side gig.  Almost none of them own houses.  The only one of my close friends who owns a house is a high school teacher in a small town.  And he didn’t buy his house until he was in his late 30s.  They don’t own houses simply because they can’t afford a house and student debts.  I also have friends who have had medical emergencies.  One friend had to file for bankruptcy for medical bills.  One friend is fighting cancer, divorced, lost her children, and is still on the waiting list for disability.  Another friend of mine got a master’s degree only to find the best job she could get in a mid sized city doesn’t pay even 40 grand a year.  Her husband also works a low paying job and moonlights as an Uber driver.  He too has lots of student debt.

Now I know some unsympathetic people will be thinking, “well, that’s what they get for not majoring in STEM or going to the military.”  Well, one of my brother’s best friends pulled straight 4.0 all the way through high school and college and still got rejected for a state medical school at least three times before he was accepted.  As far as I know, he now has a decent career working in a medical lab.  Another of my brother’s friends didn’t finish medical school and residencies until he was in his thirties because of finances and run around from the schools.  Now he works as an emergency search and rescue doctor.  One of my cousins went to trade school for two years to become an electrician.  He worked for a couple railroads, got married, has four kids, and owns a small acreage in rural Nebraska.  But, he is now essentially self employed due to the inconsistent nature of railroad employment and his wife has had medical problems to where I think she had to give up her job as a nurse’s aide.  Another cousin works in web development.  Even though he has had to work for several different firms and sometimes take free lance work, he is doing alright because he has skills that are in demand.  At least for the time being.

Can we really expect most people to become doctors, nurses, webpage designers, computer coders, engineers, tradesmen, etc?  Yet that is all I hear out of “experts” and “business leaders.”  While I think it admirable that people like Mike Rowe want to encourage more people to consider the trades like plumbing, electrician, welding, carpentry, etc, I fear that too much emphasis on the trades will eventually lead the same problem that people who majored in business, law, humanities, liberal arts, etc. are facing now.  Twenty years ago, we were told to go to college and get a degree.  Many of us did only to find that every kid in the developed world was given that advice.  Now the degree doesn’t go nearly as far as it did even forty years ago, primarily because of so many people having degrees.  Then the kids were told “get a masters” or “do unpaid internships”.  Many did only to find that they had six figures in student loans to qualify for jobs that will never pay enough to pay off the loans, let alone pay off a house or even start a family in some cases.

Of course, it doesn’t matter if young people or my friends are angry about this setup.  Because while some jobs have been outsourced to cheaper places, many more were taken over by automation.  I have a friend who works in a call center for a bank.  I fear it’s only a matter of time before his job gets automated.  And, of course, no one in power cares about the twenty and thirty somethings struggling.  They didn’t even care about the  forty something auto or steel workers who lost their jobs to machines and outsourcing.

And it’s no longer just the US or Europe that is outsourcing and automating jobs.  Even China is automating and outsourcing.  Just a few weeks ago I bought some shirts online that were made in a small African country I had to look up on a map.  The US and Europe are just further along in this transition to a highly automated economy.

And of course, the US doesn’t have very good social safety nets or any empathy for those who lost their jobs or are struggling to make ends meet.  My elders like to brag about how well America is doing, how well we take care of our own, and how we are a great Christian nation.  If we cared about our own, than we wouldn’t be having an opioid crisis, mass shootings every day, increasing rates of mental illness, increased suicide rates (especially among middle aged men), and protests in every major city on a daily basis.  For our boasting about being such a Christian nation, we certainly don’t care about those who are misfortunate and had a rough go. Such hypocrisy.

I have no idea how many times I was told “get a job you bum”, “man up”, or “McDonalds and Wal Mart are hiring”.  I, and millions of people in my age bracket and lower did everything we were told.  We still struggle.  And we don’t have any empathy from anyone, not our rulers, not our businesses, not our parents, not our schools, not our churches, and not even from each other.

Unionizing is not an option like it was a hundred years ago because most jobs can or will be outsourced or taken over by machines.  Sure we are on the road to an automated economy where most of the grunt work is done by machines and computers.  But, what is the point if 1) we don’t ditch this idea that everyone has to be defined by what they do for money, 2) most people can’t afford anything beyond the basics because most jobs are done by machines, 3) we have few social safety nets to make up for the fact that most people aren’t able to work in fields that can’t be easily automated.

We may need some things like universal health care, universal basic income, free continuing education, complete overhauls of tax systems, and a general overall shift in public attitudes towards work and compassion for others.  But I don’t see this happening anytime soon, at least not in the US.  I don’t think it will happen in the US in my lifetime simply because most of my countrymen don’t have empathy. Our leaders certainly don’t.

I do believe if our species can survive this transition, which is probably the greatest transition since people settled down and started farming instead of hunting, fishing, and gathering thousands of years ago, our descendants can have a really cool future where creativity and science can bloom.  But, I fear the transition will be a lot tougher than it has to be simply because of many people’s attitudes towards work and their fellow man.  I fear we will lose a few generations and much of their gifts in this transition.  But I guess we as a species lost short term to ultimately be better off when the Industrial Revolution began back in the late 1700s.  I do have great hope for the long term outlook for civilization and our species, but I fear it will be brutal getting there.  And the fact that I won’t live long enough to see the fruits of the seeds being planted today fills me with great sadness.

Aches, Winter, Losing Friends, and Stress

Been having bad knee pains the last few days.  My mobility is more limited than usual.  So I’ve been putting ice on my knee and taking it easy since this weekend.  Sometimes I’m glad I don’t have to work a regular job and not just because of my mental illness.

Getting ready for winter, at least I was until my knee started acting up.  Stocking up on canned food and peanut butter.  So glad I don’t have food allergies as peanut butter is good and cheap emergency food that can keep for quite awhile.  Bought a fleece blanket in addition to the blankets I already have.  Been spending most of my evenings under a blanket and reading.  I’m still lifting weights three times a week.  Been doing this since the spring.  I’m pretty sure I’ve lost weight but I don’t know how much.  I know I’m down one size in clothing all around since the spring and I recover from aches and pains faster.  The worst time for aches is right after I wake up in the mornings.  Fortunately hot baths usually cure those.

My sleep patterns have changed, again.  I usually go to bed around 11pm, wake up at 3 am and rattle around for a couple hours.  Then I go back to sleep around 5 am and sleep until about 8 am.  I don’t nap as much in the afternoons, usually only a couple times a week.  My sleep patterns change with how my illness affects me.  I usually sleep more when I’m distressed and having more frequent flare ups.

Fortunately haven’t had much for serious long lasting flare ups since this summer.  I still get some a few times a week.  Lots of caffeine can make these worse.  So can socializing with rude and irritable people.  Been avoiding people in person as much as possible lately.  It just seems like people are more irritable and on edge than usual lately.  I even avoid talking with some friends because it seems like they just want to do nothing but complain anymore.  I’m sorry, but I have enough problems of my own and I’m not always stable.  I avoid friends sometimes because I’m fearful of having flare ups and melt downs on them.  I fear jeopardizing the friendship because I can’t process stress and negative vibes very well anymore.  I’ve already lost a few friendships over the last few years because I can’t process negativity well.  I don’t want to lose anymore.