Starting New Routines

A few days ago my family came to visit me.  We spent the day cleaning my apartment.  Once that was done I went to see my psych doctor.  We decided to add a third medication and I’m supposed to see him again in two weeks.

Other routines that have changed is I’m waking up earlier and not staying awake all night like I used to.  Since I’ve been having pains in my lower back again I’ve been sleeping in my recliner more.  I still spend the bulk of my days in my apartment and alone.  I still don’t want to leave my place very often.  Even though I’m sleeping less I find myself wanting to sleep at the oddest times.  I want to sleep but fortunately I can’t fall asleep whenever I want.

I’m still keeping in contact with old friends and family.  At least that hasn’t fallen apart.  But other than that I still don’t socialize much.  I guess I’m only now starting to realize how far I have declined in the last year and a half.

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Being Delusional About Not Being Delusional

I am now throughly convinced I have been delusional about how not delusional I have been for the last several months.  I admit to isolating most of the time and rarely leaving my apartment.  I admit to rarely socializing with other people and tenants in my complex.  I admit to occasionally going days without showering.  But I don’t think I realized how delusional I was being about my problems.

I talked to my landlord this afternoon.  She told me that there were several tenants worried about little I was socializing and how unkempt I have been for a long time.  I have pretty much isolated and kept to myself since last summer.  I just got to where I saw no point in socializing.  In my delusion diseased mind, I was thinking most people are violent idiots who would rather curse you out and physically harm you than say hello to you.  Fortunately most of these thoughts are symptoms of my mental illness flaring up and not being treated effectively.  My fellow tenants and landlord aren’t angry at me nor do they want to see me thrown out on the street.  They are actually very worried about me.  I just didn’t realize how far I had fallen in the last year because of the delusion blinders I had due to my illness.

I have gotten to where I was scared to leave my apartment.  I have gotten to where I was scared to go to the laundry room and wash clothes.  So I have been doing most of my laundry in my bathtub for the last few months.  Let’s face it, it just doesn’t do the job like a regular wash machine.  I have gotten to where I am scared to socialize in person with anyone.  I don’t go outside to talk with  people because in my delusion wracked mind, most people were just bitter and angry all the time.  I have gotten to where I’m just scared and depressed all the time.  And I hate it.  I see my psych doctor tomorrow afternoon and I am demanding he put me on something else.  My current routine isn’t working at all.

My Journey To Being An Advocate For The Mentally Ill

My birthday is coming up in a few days.  I’ll be 37 years old this year.  That would have made me a senior citizen in the Stone Age.  Of course if I would have developed schizophrenia at most points in human history, it probably would have been a death sentence.  As it is I have found what works and what doesn’t in my life with mental illness.

I was first diagnosed with schizophrenia and major depression in the autumn of 2000.  I was in the second year of my pre med studies in college.  Even though I had been having problems with depression and anxiety for a few years before, I was still able to do well in school and keep up a strong front.  I still don’t know how I did it.  But in my second year of college, it all collapsed.  I couldn’t handle stress anymore.  I was having constant panic attacks.  I would have breakdowns where I called home and yelled at my parents at least once a week.  Looking back on it, I should have gone to the mental hospital right then and there and not tried to gut out college at the same time.  As it was I withdrew from college at midterm of the spring semester and took a few months to adjust the treatments and pull myself together.  After the disaster that my second year of college was, I knew I’d never get into any med school with my grades.  So I switched over to business because, let’s face it, everything involves money and commerce.  I still thought I could be employable in the right situation after college.

During the last few years of college I became interested in economics and finance.  I applied for several jobs like financial planner, insurance sales, insurance underwriter, loan officer at a few banks, etc.  I took the obsession I previously had with science and was able to transfer it to business and economics.  It paid off to be curious for me.  I graduated in spring 2004 but, like many college seniors, I had several job interviews but no offers when I left school.  I didn’t realize just how common that was until I started talking to people over the internet a few years later.

After a few failed attempts at careers in various fields, (retail sales, academia, manufacturing), I applied for disability insurance.  This was in 2006.  I had just lost my job at the university and been forced to leave the masters’ program.  Here I was on a waiting list for disability, on a waiting list for low income housing, with no job, no confidence, and no money.  If it wasn’t for my parents help for the first half of 2006, I would have never made rent on my apartment.  But that wasn’t all for 2006.  My longtime college girlfriend and I broke up and I failed at a couple minimum wage jobs, one of which was at Goodwill.  If you can’t succeed at Goodwill, then you are really screwed up (or so I thought).  In the late summer I checked myself into the mental health hospital.  Stayed there for a week.  By this time I was at my lowest ebb.  I had no job.  My illness wasn’t allowing me to hold a job.  I had no real income.  I was living off food stamps though no mess ups of my own.  I had no idea when social security was coming through. I was on high risk insurance that was costing my parents a lot of money so I could stay on my meds.  I never could have afforded them on my own.  I came to the conclusion I would never hold a career because of my mental illness.  I came to the second conclusion that I would never marry and have a family because of my mental illness.  I was really sad and depressed during this entire time.  I really thought I’d never be happy or amount to anything ever again.  I’m glad I didn’t cross the line into becoming suicidal at this time.

Those rough years of my mid to late twenties when I came to the conclusions I would never hold meaningful employment or have a family really sucked.  But they were also when I was writing a lot, granted not as focused as I am now.  Before I got serious about my blog I wrote hundreds of poems, largely in the style of Robert Frost, Walt Whitman, and Emily Dickinson, and I also did complete rough drafts for two novels.  The novels were nothing really special, just kind of like Jack Kerouac for Millennials.  I was working on notes for a science fiction novel at this time too.  I also read every day to try to help me find a literary voice.  I read dozens of authors, ranging from Kurt Vonnegut to Ayn Rand, Chuck Philhanuak to John Grisham, Alexandre Dumas to Mark Twain, Adam Smith to Nietcheze, etc.  I tried to teach myself Spanish at the time as well, but the only Spanish I know is how to ask for directions and order simple meals.  But as my ‘traditional’ side was falling apart, I was finding other ways to find meaning in my life besides work and dating.

I started writing down my thoughts and experiences with mental illness in my late twenties.  I was submitting some of my poems to be published in literary magazines.  I got a few of them published but never made any money.  I eventually wrote a few dozen short essays about life with a mental illness.  I was reading The Federalist Papers at the time and kind of modeled the book of mental health essays on that.  I put the files on a print on demand service.  I sold a few dozen of those books, mostly to friends, family, and interested mental health facilities.  After tasting a little success with those essays, I thought they might make good blog entries.  And my first few blog entries were from that original book.  Since it’s been several years since I updated that book, I probably ought to rewrite it and repost it.  And since I now have a dozens of blog entries on the subject of living with mental illness, I definitely have new material for another edition.

I started blogging through wordpress in 2012 shortly after I left my last ‘traditional’ job.  I didn’t get much for visitors early on because I had no focus for the blog and I wasn’t posting regularly.  In early 2013 I decided to focus the blog specifically on mental illness.  My audiences have grown slowly but steadily over the last few years.  I started a Facebook page to promote the blog.  I also have a patreon account a few months ago and I already have a sponsor through there.  And I’ve also made a little money since I monetized this blog.  I’m not breaking even yet with what I spent on advertising this blog, but it’s getting closer all the time.  I recently broke 14,000 all time visitors from 100 different countries.  And this is with only four years of work, a microscopic advertising budget, a niche topic, and 50 percent of the world’s population still not online.

I’ll be 37 in a few days.  And I already had a larger reach with my writing works than I ever thought possible when I first seriously started writing in 2004.  That’s been only thirteen years.  I think I’m going to keep at this and see what I can develop with this blog and my writings over the next thirteen years.  I say all of this to point out that young people in their late teens and early twenties shouldn’t sell themselves short at all.  At age 23 I would have been content to be a loan officer at a bank or an insurance salesman.  But I know I wouldn’t have been content doing such work.  I wouldn’t be doing what I’m really good at.  And let’s face it, in this day and age a person can make money doing almost anything thanks to the exposure of the internet if they put in the time and lots of effort to get noticed.  I’ve already accomplished more than I thought I could as a writer thanks to the internet, especially when I started out I was just writing poetry out in notebooks.  And now after running this blog for four years and getting some audience and dozens of positive emails, I know I’m only scratching the surface of what can be done.  I never would have thought this possible when I first applied for disability insurance.  Mental illness is one of the few things that is still discriminated against with little to no protest.  I intend to be part of changing that.  I’m not going away.  The mentally ill bloggers and you tubers aren’t going away either.  We will not be silent and suffer needlessly anymore.  Consider this a declaration of war against mental illness stigma.

 

Physical Pain and Aging with Mental Illness

Knee pains have finally passed.  Felt good enough to go out and buy groceries this morning.  So I’m set for another couple weeks.  I was getting tired of having to eat out and do drive thru because of my bad knee.  I can tell that when I eat fast food regularly my physical and mental health suffer some.  Also started taking some multi vitamin pills a few days ago.  That seems to help with some lingering pain.  Makes me feel a little more energetic.

I’m back to where I’m not sleeping as much as I did over the winter and spring.  Maybe it’s the longer daylight hours.  Maybe losing a few pounds has helped with my sleep patterns.  I still can’t walk as far as I could even two years ago.  But I think if I keep doing the two high protein meals a day, avoid sugar as much as possible, and keep drinking lots of water I can get back into better health.

Since I’m not experiencing knee pains anymore, my mood has improved.  I’m not as depressed as I once was.  I’m getting out of my apartment more.  I’m breaking up some of my in home routines.  I’m trying out some new computer games I bought a few months ago I only dabbled in.  I guess I finally got burned out on Civilization, Sim City, and Skyrim.  I still read a lot, granted mostly online articles, blogs, and science journals.  I trying to get back into more contact with old friends.  And I want to bring some old friends back into the fold I lost contact with over the last few years.

Next week is my birthday.  I’ll be 37 years old.  Mentally I’m more sharp than ever and the mental illness doesn’t have the ups and downs it used to.  Physically I don’t have the endurance I did even a few years ago.  I get unexplainable aches and pains more often.  I wake up more in the middle of the night.  I’m even more cold sensitive then I used to be.  Being a fat man, I could easily go through much of a fall or even winter with just a light jacket unless it was blizzard conditions.  Finding that I can’t do that as well anymore.  I have found that I am sometimes more set in my ways than I would like.  I tend to shop in the same stores, eat in the same four or five restaurants, eat the same things all the time, watch similar types of shows on youtube and netflix, etc.  At least I haven’t yet gotten to where I’m complaining about the kids all the time.  I remember what it was like being ragged on by my elders all the time when I was growing up.  I hated it then and I still hate it when people in my age bracket rag on their kids.  I just hope that as I age and my physical health starts to decline even more that I don’t become one of these bitter and angry old men I see too much of.  I hope I can be an encouragement to people to all ages. I just want my little corner of the world to be a better place because I was alive.

Socializing, Family, and Facebook

The Memorial Day weekend has come and gone and now the weather will definitely start getting hot soon.  I’ve been feeling stable but on and off depressed for months, especially since the middle of winter.  I think some of this depression comes from just being so lonely all the time.  There are only so many books I can read before I’m burned out.  Fortunately I was able to see a couple cousins and their families for the afternoon over the long weekend.  I hadn’t seen either cousin in a long time.  It was fun catching up with them.  First prolonged intelligent conversations I had in months.

I gets bouts and depression and loneliness more frequently than I used to.  It doesn’t help that I don’t really have any friends in my apartment complex anymore.  It also hurts that I had major falling outs with a few old friends that I had known for several years.  One of these friend couldn’t respect the fact that I’m not working a regular job and spending most of my time alone.  This person also thought I’m wasting my time with this blog.  Well, I sent that friend packing.  If a person can’t respect my decisions about work and how I spend my time, then we can’t be friends.

Another friend and I had a falling out over politics.  I’m sure I’m not the only person who can claim that these days.  But I just can’t stand how divisive and hateful modern politics has become.  It didn’t used to be this way.  Besides, political fan boys on all sides seem to be too blind to realize that modern politicians don’t care about the voters unless said voters are lobbyists or big money donors.  The way some of my friends and family post on Facebook, you’d think they were getting paid for every post about politics they put on their sites.  Besides, does anyone change their thinking because of these posts.  It’s like watching monkeys at the zoo fling manure at each other but not nearly as entertaining and far less civilized.  I’d quit Facebook and twitter if they weren’t the only means I had to keep in contact with most of my friends and my key promotional materials for this blog.  Mark Zuckerberg really has a business monopoly that would do any 19th century robber baron proud.

The biggest reason I don’t post about my particular beliefs is that, well, no one group reflects what I value.  When it comes to social issues, it depends on the issue.  When it comes to having a good military, I’m in line with some Reagan era Republicans even if I’m not as interventionist.  When it comes to curbing the abuses and excesses of Wall Street and big business, I’m almost as militant as any Occupy Wall Street guy.  And I definitely won’t support any politician of any stripe that wants to cut science funding.  Science funding is quite small compared to military or social programs.  I don’t have a political home because there isn’t any party that reflects what I value.  And I think many people in the under 40 crowd feel the same way.  And I know it may irritate some of my elders to write this, but I think the last thing our world needs is a senior citizen politician who isn’t familiar with science and modern technology.  My parents generation has been in charge for almost thirty years.  Retire and play with your grandkids already, you earned it 🙂

I guess the biggest reason I have been fighting depression for awhile is that my primary means of socializing and communicating, social media sites, have become so toxic and nasty even among friends and family.  And I think it sucks.  Some days I doubt I really am making any positive difference.  Heck, some days I wonder if people even want positivity and happiness in their lives.

Loneliness and Depression

Haven’t been out that much the last few days besides getting a little sunshine everyday, at least on days the sun is shining.  We’ve been getting rain everyday it seems for almost two weeks.  So I’ve been living off my food reserves and rarely leaving the apartment the last few days.

Not that I really mind.  Sometimes it’s therapeutic just being alone with my thoughts for hours on end.  It takes me a long time to fall asleep anymore, but I spend most of the time trying to fall asleep allowing my mind to wander.  I am sometimes my own best company.

In the past I’ve tried day programs designed for mentally ill people.  But much of what went on seemed quite remedial to me, almost like a rehash of grade school.  I found such programs quite boring and didn’t make any friends there.

I’m finding it harder to make friends the older I get.  Most people my age have careers and families.  I really can’t relate to either one.  And some people don’t want to friend me because I don’t have a family or a career.  And it’s really tough making friends in my apartment complex anymore.  Half of the people in my complex are senior citizens, and some of them seem resentful that I live in low income housing with them.  The other half are people with chronic illnesses and developmental disabilities.  It can get lonely in here at times.  I know that spending most of my life alone isn’t healthy.  But many people I just can’t relate to because I’m terrible at small talk.  Too bad there aren’t communes for eccentric people like me with a variety of interests.  Kind of like dormitory living for adults.  I know, not going to happen.

The depression occasionally crops up.  Fortunately the delusions and paranoia hasn’t followed.  I have lost interest in many things I once found enjoyable.  I no longer like travel.  I no longer like fishing.  I don’t even read as much as I used to.  Maybe I’m entering a new phase of my illness.  In a lot of ways, the illness itself is much easier to cope with than ten to fifteen years ago.  But I still do get kind of sad when I look at my friends and people I went to school with and I get to see what they’ve accomplished and their families.  I definitely feel like I’m missing out.  At least I can still write about these issues.  It’s the closest thing to a career I’ll ever have.

Needing To Vent

Been raining for almost a week straight in my town.  Not that I mind because it gives me an excuse to sleep in and stay home.  I’ve always been a natural night person and I don’t see that changing soon.  Unfortunately my landlord’s office hours are always in the morning so I never get to see her.  I’ve given up on ever getting my walls painted and carpet replaced.  I’ve been hearing that it was coming for over a year.  They can build skyscrapers in less than a year in China it seems.  Yet I can’t get approval for my walls to be painted and carpet replaced.  Go figure.  And people wonder why I don’t trust authority figures.

Somedays I really wonder if I am making any difference with being mentally ill or even making progress with this illness.  I’ve pretty much come to the conclusion that I’ll never get cured of schizophrenia, which would be a dream come true for me.  I’ve fought this illness for over twenty years and I’m tired of it.  I’m tired of always feeling paranoid.  I’m tired of being depressed all the time.  I’m tired of not being able to work.  I’m tired of people thinking I’m just making my problems up.  I’m angry that I’m never going to live up to my potential through no fault of my own.  It would be one thing if I fried my brains through drug abuse.  I would probably get more empathy if this illness was self inflicted. The public’s lack of understanding about mental illness and anything having to do with science is sickening.  I mean this is 2017 people, we’re supposed to be an advanced civilization.  Not advanced enough for me that’s for sure.

I can’t even really socialize anymore.  Most people seem to be in foul moods all the time or just want to talk about stupid things that have been rehashed a thousand times before.  Do people really get dumber the older they get?  I was always under the impression that older people were supposed to be wise and full of good advice.  Not so from what I’ve seen.  Most days I just don’t want to leave my apartment anymore.  I’m just tired of dealing with stupid and rude people all day.  I’m so glad I no longer work in retail customer service.  Those people take an incredible amount of abuse for no more then they are paid.

I don’t know if there is a point to this post.  I’m sure some are thinking I should “man up” and “quit whining.”  But, even I have moments of weakness at times.  I can’t be everyone’s Mr. Sunshine all the time.  And I shouldn’t have to be.  Years ago, someone with my diagnosis would be long term hospitalized and never heard from again.  Out of sight out of mind.  One of the reasons we’re seeing more and more mentally ill people in public is because of deinstitutionalization.  It’s not that the younger generations are weaker and morally inferior to previous generations.  It’s not that at all.  Modern times are not crazier than the past, they are just better documented.  I’m just tired that’s all.  I just need to vent.  And if a mentally ill person isn’t allowed to vent, then no one should.