Tag Archives: schizophrenia

Recovering From Several Rough Days With Mental Illness

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Had several rougher days than normal lately.  One of those days involved a bad episode where I was close to checking myself into the local psych hospital.  Fortunately one way for me to break out of bad episodes is to just talk my way out of them with friends and family, literally allowing myself to speak out of my distress.  It is a tough process for all involved but it does work, at least in my case.  I do not recommend this for most people because there can be many hurt feelings on the part of support people, friends and family.  I think the reason it works for my case is that I grew up in a stable family who would drop everything for one of their own at a moment’s notice.  My family handles these problems like champions and saints.  I don’t know how they do it without taking these episodes personal.  After I’ve burned myself out I make it a point to tell them that it’s nothing personal and I’m sorry for what happened.

Saw my psych doctor on Monday afternoon.  We added a new psych medication and a temporary medication to aid in sleeping.  Haven’t been sleeping terribly well lately either.  The psych issues and the sleep problems just feed on each other no doubt.  But I’m a couple days into a recovery.  Things look promising again.  I hope things keep going better.  I’ll keep you posted as I document these last rough several days and my attempts at recovery.

Return to Normal With Mental Illness, Part 2

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Fall is just a few days away after a long and eventful summer.  I saw my best friend get married and we buried the last of my grandparents.  Partly because of these developments I became lackadaisical about my exercise routine.  I was taking so much time dealing with externals that I neglected to take care of myself and gained some weight.  Fortunately I made it through the summer with only one relapse into schizophrenia and even that lasted only an afternoon.  This time two years ago I had just gotten out of a mental health hospital after a voluntary commitment.  Two years in a row now I’ve made it through the roughest parts of the year without a major problem.  I’m feeling pretty good about that.

The leaves are starting to turn, the weather isn’t as hot now, and the corn harvest will be going really hard and fast within a few weeks.  I have always enjoyed this time of year, almost as much as spring.  My mental health always improves in the fall and I seem to get a lot done in these times.  Recently I sign up for khanacademy.org and am working though a few of their free online courses, namely chemistry and world history.  This will be one of my fall projects.  My winter project will be to get an General License in ham radio.  I already have a Technician License that I studied for last winter.  With the increased exercise I have my projects for fall and winter already lined up.

Happiness, Love, and Mental Illness

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Happiness, Love, and Mental Illness.

Mental Illness and Friendships

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Earlier this week I had one of my best friends from college spend a few days at my apartment.  We went out to eat at a couple of places I had been meaning to try.  We went to Omaha to catch a minor league baseball game, which is a fun way to spend an evening and can be done for less than $25 a person pretty easily.  We had front row seats on the first base line and the seats cost only $13.  I took him to one of the parks I go for walks in and crowd watch.  We also chatted extensively about topics near and dear to us, topics like economics, future tech possibilities, history, our fantasy league baseball teams, dating experiences, etc.  I’m going to see him again in July when I go to the Black Hills of South Dakota as I’m one of the groomsmen in his wedding.  I got remeasured for a suit and, even though the weight loss has slowed for the last couple months, I am actually down a few inches in most of my measurements.  Go figure.

For the few days he was here, I had no problems with the mental illness flaring up.  While I am quite steady most of the time anymore, I still have moments of weakness when the problems come creeping back.  I haven’t completely mastered warding off these flare ups, but have learned not to act on these negative emotions and thoughts.  Even when I have the flare ups, I’ll usually just rant and rave but not actually act out physically.  And my family, to their credit, put up with it and don’t try to argue with me when this occurs.  By now we’ve figured out the best way to get out of a down ward spiral is to often allow me to just burn myself out by ranting for awhile as long as I don’t physically threaten anyone or myself.  The odd thing about having schizophrenia is when I am having these psychotic breakdowns is I am completely aware of what is going on and what I am saying but the impulse controls are not working nearly as well.  Fortunately for all of us involved my bark is far worse than my bite.  And to their credit, my family and friends endure my problems and quirks like champs.  That is why it is important to keep in contact with friends and at least attempt to keep things civil with family members.  They can help smooth things out when things go bad.  They also make living far more interesting.  The most important thing in life is our friendships and relationships with other humans.

Reflecting on the Past before My Birthday

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On June 14th, I’ll be celebrating another birthday.  I’m getting to the point where I’m almost halfway done with my life, considering normal lifetime expectancy.  I’ve also lived over half of my life with schizophrenia at this point.  The biggest thing I have figured out over these 35 years of living as a human is that the only true certainties in life are change and unfairness.  We can make all the plans we want for our lives, but nothing goes exactly to plan. There will always be snags, problems, opportunities missed (and taken), and changes in direction.

When I was 16, I had the next 30 to 40 years of my life planned already.  I was going to graduate from high school, then college, then medical school, then go on into medical research, get married, have a couple kids, own a house in the suburbs of a large city outside of Nebraska, make well over six figures, and help develop something that would benefit humanity through my research.  Besides graduating from high school and college, none of that happened.  For years I was brutal on myself thinking “It’ll all fall into place when you get your big break” or “People less intelligent and less ethical than you are having good careers, why can’t you get things together”.  I spent my twenties after college going from one remedial job after another, finding out the hard way that my ability to handle stress and interpret social cues and understand social norms were all severely damaged by schizophrenia.

For those years of struggle, I thought I was a failure and not trying hard enough.  I would get panic attacks and bouts of nausea before I had to go to work every morning.  It got so bad I had my stomach scoped to see if I didn’t have some underlying gastro intestinal problems.  I didn’t.  I also had to spend years listening to the whole “all your problems are in your head” nonsense.  Everything we experience is merely electrical signals interpreted by our brains, so no kidding it’s in my head.  It’s in all of our heads.  Telling someone with a mental illness it’s in their heads is cruel and does nothing for them.

I was also told the whole “have faith and it’ll help you” nonsense.  I won’t even address that subject except to state I had more faith than everyone I knew until my early twenties and I still developed a mental illness that destroyed my productive ability.  I still get these feel good memes that oversimplify while not addressing root issues.  I even had someone I thought was a friend tell me, to the effect, I wasn’t a real man because I didn’t have a job or a family.  I still deal with ignorance and cruelty after eighteen years of mental health problems.  Granted it doesn’t ware on me or anger me as much as it did ten years ago, but it still hurts.

Seen and experienced lousy things, horrible hallucinations, and harbored horribly violent thoughts in eighteen years with schizophrenia.  But I did learn to not discount kindness and empathy when it does come.  I also learned the value of real, genuine friends, something that not many people have at all in their circles of friends.  Hopefully the struggles, disappointments, and good friends of the first 35 years will prepare me well for the next 35.

Writing a Book About My Experiences with Mental Illness

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I first wrote about my experiences with mental illness in late 2006 when I wrote a letter to the editor of my local newspaper about my experiences as a way to promote mental illness awareness when one of our local state legislators was putting on a forum about such topics.  To my pleasant surprise, the article/letter I wrote went over well.

From that experience I decided to write a series of short topical essays about what the aspects of living with mental illness were like.  I wrote about such topics as struggling through college, struggling in the workplace, filing for disability insurance, how to cope with loneliness, how to deal with losing friends, what to tell family members, employers, friends, and other topics.  Many good books have been written about mental illness by doctors, therapists, and psychiatrists, yet not many from the mentally ill person’s point of view.  That is where I came in.

A couple of years ago, I put all of these essays into book form in a book available through lulu.com titled The Mental Illness Essays.  The essays written in this book led me to write my blog.  I have put a link to the site where my book is available in this post.  You can also get there by clicking on the picture of the book at the top of this post.  Check it out and leave some feedback.

Weight Loss, Exercise, and Mental Health. Winter Edition

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It’s been awhile since I last reported on my ongoing project of losing weight, maintaining mental equilibrium, and working on improving myself overall.  For awhile, from late October through most of November, I wasn’t losing nor gaining weight.  In early December, I had a flare up of the symptoms of schizophrenia and I had a second day of flare ups in mid January.  I met with my psych nurse, readjusted some of my meds, and found out that I had lost 10 pounds since late November.  I’m now down 65 pounds overall.  We had a fairly cold, but dry, December and first half of January.  I wasn’t exercising outdoors much, having moved my routines indoors.  I added small arm weights to my routine an average of twice a week.  I have found if I stretch before and after lifting, I don’t really feel sore the morning after lifting.  I had heard that some football coaches were doing this stretching after practices and games and they were seeing less pulled muscle problems in their players.  I gave it a try and it seems to work.  I still won’t work the same muscles two days in a row no matter how good they feel.

Another indoor exercise I do is just putting on dance music on my iPod, throw on the headphones, and dance to the tunes for about thirty minutes at a time.  I do this usually three days a week on average.  Since I live in a top floor apartment with squeaky floors, I do have to be care where and when I do this.  If I do this at night, I usually have to dance in my living room or kitchen.  No reason to wake up my downstairs neighbors if I do this at 9pm or later.

Even when I walked outdoors during the summer and fall, I did usually thirty minutes per day probably four to five days per week.  I made it a point to have at least one day a week off from exercise entirely, just for recuperating and breaking up the routine mentally.  I didn’t start out walking thirty minutes per day.  When I started this ‘life style overhaul’ I could walk only 1/4 of a mile in one shot without sitting down.  Pretty sad I had let myself slide so bad.  And yes, it was my fault.  I used the idea that my psych meds were promoting my weight gain and I couldn’t do anything about it.  Yes I could do something about it.  I had to reexamine everything I was doing.  I needed to know exactly what I was eating, what I was doing for exercise, how much water I was drinking, and how much I was sleeping.  After looking everything over, I saw what I was doing poorly (almost everything), and had to adjust accordingly.

On March 17, 2014, I began my exercise routine and keeping my day to day health journal. When most people in my hometown were doing the St. Patrick’s Day pub crawl (I live in a college town after all), I was doing a different type of crawl because I was sore from my first day of exercise.  I had been sedentary all winter, slept probably 11 to 12 hours most days, so I was out of practice and I was feeling it.  But within a couple of weeks, I stretched that 1/4 mile to 1/3 of a mile.  Within six weeks of beginning, I was doing at least 2/3 of a mile.  By the middle of June I was easily doing one mile without stopping. When Labor Day rolled around I could walk for one hour at a time but I was slightly sore for the next day, but it wasn’t the kind of pain crawl I was doing in March.  By the first of October I found out I was down 50 pounds overall.  The day after Halloween, I was down 55 pounds overall and, unknown to me at the time, I came to my first ‘plateau’.  I went through at least a six week period when I didn’t lose or gain.  I had heard about the possibility of having one of these periods.  I wasn’t terribly surprised that after 55 pounds lost, my body would go through a while of resetting itself.

The human body is quite amazing in that it regulates itself and is very adaptable.  I imagine my body might have thought it was experiencing a period of calorie shortages and was hording as much energy as it could.  Remember, that for most of human history, a person didn’t always have a consistent food supply.  There were the proverbial times of feasts and famines.  So the body adapted to become stingy with it’s on hand calories and to crave sources of easy calories like carbs, sugars, and proteins.  It is only within the last few generations we’ve had such strong food security with so little effort.  And, in western countries like USA, we’re doing this with probably only one percent of the work force actually working in farming and food production.

I’m dead convinced that one of the reasons for such tragic rates of obesity (and I needed to and still need to listen to this as much as anyone) in western nations was that we kept the eating habits our great grandparents had but did only a fraction of the physical labor.  In my own family, as far as I can tell, our entire family worked in farming, sharecropping, etc. as far back as we can trace.  My parents were the first generation of their families to either not grow up on a farm or not work on one.  I tell this aside simply to state many people have lost contact with how much time and work it really takes to grow crops, raise farm animals, hunt, fish, and gather wild food.  So we often eat food, and waste it, with little appreciation of how much work it took to get it from farm to dining room table.  And, as we’ve gone from a farming and manufacturing based economy to a knowledge based and service economy, we are seeing the foolishness of keeping the same eating habits without the corresponding physical activity.  Either the physical activity has to increase, the food consumption has to decline, or ideally both happens.  We saw the bad effects of smoking and excessing alcohol consumption and adjusted accordingly, starting about forty years ago.  I believe we’re now starting to make adjustments as a society to the problems of obesity and associated sicknesses.  Had I not taken steps to address my problems with obesity and physical health problems, then no amount of mental health successes were going to matter.

Sure I still have flare ups of mental illness problems even with as much weight I’ve lost.  I’ll probably be fighting mental illness issues for a long time, barring some major medical breakthroughs in the treatment of brain issues.  I do have hope that major breakthroughs will be happening, especially when I think that there are teams of scientists, researchers, engineers, etc. all over the world just thinking about how to improve what we have and just dreaming up entirely new ways to do things.  Theses are quite exciting times we live in, especially for those of us who pay attention to technology breakthroughs.  A good site I stumbled on that details breakthroughs we as a species have done since 2000 and projected new breakthroughs for many decades to come is futuretimeline.net.  There have to be literally dozens of sites such as this detailing tech breakthroughs.  I often lose sight of the big picture during days of struggle.  We do live in exciting times though challenging times.  But with challenges come opportunities.  Who knows what advances in the treatment of all illness, let alone mental illness, the next few decades and years will bring?

Strong Emotions and Mental Illness

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I have always been one that’s had problems with hiding my emotions and feelings.  Even before I had mental illness problems I’ve always felt deeply, loved deeply, had strong opinions about things I cared about, etc.  This has often gotten me in trouble at school, in social situations, at jobs, and especially among family and friends.  I have no idea how many friends I have lost, how many jobs I’ve been fired from, how many teachers and potential allies I’ve alienated, and how many arguments I had with family members over the years.  This was all because I felt deeply, wasn’t afraid to go against popular opinions when I felt they made no sense, and was often too stubborn to back down from someone I felt was in the wrong.  Sadly, as a result of these strong feelings, I never really developed strong social skills, learned how the games of socializing and workplace politics were played, or learned until I was well into my early 30s that people would rather a person be polite and wrong than be less than tactful and in the right.  It wasn’t until I was in my early 30s that I learned that when dealing with groups of neurotypical individuals, it was better to have a good image and weak emotions than it was to have strong character, strong emotions, but a less than good image.  The smartest and most right man in the room is  ignored in favor of the one who acts and looks the best without upsetting people.  It is simply the way most humans are.

As a result of developing a mental illness, my emotions, feelings, and opinions are actually stronger than they were in my youth.  I have learned, despite these stronger emotions, to keep my mouth shut the vast majority of time when in groups larger than two or three people.  This is especially true when dealing with people I don’t know well.  I never could figure out why, but most neurotypical people greatly fear strong shows of emotions.  So I often find myself bottling up my emotions (whether its anger, anxiety, sadness, depression, or even happiness) for fear of upsetting others.  Some would argue that I am a stoic, unfeeling person just by watching my interactions with others.  This is far from the truth.  I feel very deeply, so deeply I try to not show emotion at all when around those I don’t know.  I imagine much of this comes from being raised in a family and rural farming community were strong displays of any emotions were strongly discouraged.

It is very tough for me to bottle up my emotions, especially with a mental illness.  It wasn’t until a few years ago I realized just how threatened and fearful of strong emotions most people (at least here in USA) really were.  I never considered myself a threat or intimidating to anyone.  I was actually a long running joke growing up because I couldn’t physically defend myself from bullies (I never won a fight in my life despite being the biggest kid in my school) or knew when to shut up on issues when I knew I was right and everyone else was wrong.  In my social interactions I am always picking my words and phrases very carefully so not to upset others.  This leads to even more social and work problems because most people assume I’m either not genuine or am a complete liar.  I’m not being a fraud, I’m just trying not to show emotion one way or another.  I often feel like it would be better to be an emotionless robot as opposed to having as strong of emotions I do.

I would love to hear from others who have problems with strong emotions, socializing, and mental illness.  Opinions and stories from readers are always welcomed.

Seasonal Aspects of Mental Illness

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It’s been awhile since I last posted anything of my own doing on this blog.  For that I apologize.  Sadly, it has been a rougher last few weeks than normal.  Yet this was expected as late summer, especially the month of August and early September, have traditionally been the toughest times of year for flare ups of my mental illness.  There is in my case seasonal aspects to my mental illness problems.  Both times I committed myself to a mental health facility have been early in September after weeks of buildups of problems that usually began about late July.  After having these mental illness problems and seasonal flareups for going on seventeen years now, I have come to see that there are times of the year when my illness is often far worse than normal.

Even though I know and acknowledge that there is a seasonal aspect of my mental illness, I still haven’t pinned down an exact why it is in late summer.  Often, people with seasonal aspects of mental health problems tend to have their problems in the winter or during times of the year when they experienced at least personal tragedy.  I doubt in my case that my seasonal aspects are due to personal tragedy as people who have died that were personally close to me have almost without exception died in the winter months.  It could be that my seasonal problems have to do with weather as late summers in my home state of Nebraska are typically very hot, occasionally humid, and often suddenly changing.  I personally always enjoyed cooler weather as my favorite times of year are autumn and spring.  I don’t really mind winters that much except that I personally don’t like driving on snow packed and ice covered roads that are the norm in my part of the USA.  Regardless of my appreciation for the change of seasons, don’t sign me up for summers in Texas or winters in Minnesota.  I have college friends from both places and I’ve heard their ‘horror’ stories about the weather.

I no doubt have times of the year when my mental illness is worse than others.  Unlike many people, my problems are often in the summers instead of the winters.  I still haven’t figured out the why as to this.  I simply know after having these problems for at least seventeen years that there are trouble times in the course of the year.  I’ve come to understand this and plan accordingly.

 

Loneliness and Delusions

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It’s been awhile since I last posted.  I’ve been going through some rough spots lately.  I’m only now pulling out of the spell of depression I’ve lately had.  When I have issues with being depressed, I often isolate myself a lot.  I won’t be very talkative to even my close friends and family.  I even somethings go for entire days without leaving my apartment.  I was doing this quite a bit this winter as I just didn’t want to deal with the depression and anxiety that often arrive with no rhyme or reason with schizophrenia.  I often would go entire days at a time where even going to the grocery store or pharmacy would seem like an ordeal.  Naturally this would lead to a lot of loneliness for me.  And I would get paranoid and begin wondering why no one would contact me or want to do anything with me.  I wasn’t contacting my friends, I wasn’t leaving my apartment, and my social activities were next to nonexistent.  This would generate depression because I was lonely.  The depression would lead to anxiety were I literally could not force myself to leave my apartment even when I wanted to.  From anxiety I would go into paranoid because my friends wouldn’t contact me because I wasn’t keeping up my end of the friendship and staying current with friends and family.  This cycle would perpetuate itself, sometimes for days or weeks on end.

One example of my anxiety was that I was getting paranoid that people (I couldn’t figure out who in my delusional state of mind) were going through my garbage.  So I would let it pile up in my apartment, sometimes for ten days to two weeks at a time before I’d finally work through my anxiety and force myself to throw it all out at once.  I was also afraid that I would receive a few odd looks from people seeing me taking three to four bags of trash out all at once, often late at night just so I could avoid contact with people.  Now that I’m passed that phase, I see how delusional that line of thinking was.  I mean, if someone is going to go through the dumpster at a large complex the night time would be perfect for someone dumpster diving.  At least it wasn’t as bad as when I was in college and taking my trash to the Wal-Mart half way across town because I thought that ‘people where going through my trash.’

The delusions that come along with schizophrenia no doubt seem very odd to the ‘chronically normal’ individuals that read this blog and/or have loved ones with schizophrenia.  But to those afflicted, it seems very real and very possible.  I sometimes even recently had delusional thoughts that I’m being watched and followed by people I don’t know (and don’t want to know).  It doesn’t make it any better when I’m driving my car and someone will be taking the same streets I do and are following real close.  This has been going on for as long as I’ve had problems with mental illness.  At least it’s not as bad as it once was because I’ve learned how to reason such things out most of the time.  It’s too bad I couldn’t reason out the stress and anxiety I have felt about working again.  I would love to return to work even at something as small as ten hours per week.  Anxiety and delusional thoughts playing over and over in my mind do make that prospect quite daunting.

Loneliness and delusions that go with mental illness are real serious problems for people with mental illness.  I can tell you for a fact I didn’t choose these delusions.  It would be great to be able to completely reason the delusions away.  But I’m still working on that.