Tag Archives: schizophrenia

Adjusting to New Medications

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It’s now been two weeks since I started the process of medication changes.  I will go off one med entirely starting tomorrow.  I’ve already noticed positive changes in my moods and mental states.  I don’t get as easily irritated and I seem to deal slightly better with stressors.  I have a stronger want to get out of my apartment and do things other than blog and mess with computers.  I even found myself looking through the job postings of my local newspaper just to see what was out there.  While I don’t believe I’m stable enough to hold employment, I have found myself kind of bored with the life I had carved out for myself over the last two to three years.

I find myself wanting to socialize now outside of close friends and family members now.  To this end I talk more to tenants in my complex and participate more in online discussion forms.  I didn’t realize until the last few days just how bad I had let my socializing fall apart over the last year or so.  I actually feel bad now that I haven’t been socializing.  Yes I have gone from being irritated and annoyed by most people to now actually wanting to be around people more often.  I doubt I’ll ever become Mr. Social Hour as I have been an introvert my entire life.  But I do enjoy people watching at the park and the mall.

I haven’t been as active as I would have liked.  But I hope that’s mainly because of chillier weather the last several days.  I don’t think I eat any more than I did previously with exception to the first few days of the change over.  I don’t crave sugar all the time now.  Hopefully that was a passing thing as I was adapting to different medications.  But I haven’t had much for auditory hallucinations nor have I had much for paranoia the last few days.  I’m not even that bothered by driving any more, at least not as much.  I don’t get overly irritated if someone is driving too slow or not following standard road etiquette.

And there are some things that haven’t changed that much.  I still don’t watch that much traditional tv, especially not the news.  The news I usually get from online sources.  In fact, most of my tv watching besides live sports is online.  I will watch some baseball most days or at least have it on in the background while I’m doing something else.  And I’m involved in the same fantasy baseball league I’ve been with for the last several years.  It’s a free online league of myself, a few college friends, and several friends of friends.  But just because it’s a free league doesn’t mean it’s not competitive.  It makes me watch games almost everyday and pay attention at least ten minutes a day to my team.

I see my psych doctor tomorrow to discuss the next phase of my treatments.  We could be going anywhere from here.  But I know we won’t keep doing what we have been for the last several months.  I can hardly wait to see where we go from here.

Changing Medications

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Saw my psych doctor a few days ago.  We agreed that a change in medications is in order.  Neither one of us think the meds I was on for the last two years are as effective as they once were.  He had me do a DNA cheek swab to be tested to see what medications would be effective given my DNA. The results will be in probably by the time I see him again in two weeks.  The tests may not be perfect but they should give us a better idea of what will and won’t work.  But these tests weren’t even around when I was diagnosed fifteen years ago.  For most of my illness we were merely throwing darts in the dark hoping to hit on something that would work.  We were just guessing, especially in the first year. For now I am starting the process of switching back to one of my previous medications.  I was on that med for several years but wanted to switch because it was known to promote weight gain.  But it sure was effective.  It’s too bad I let the side effects sabotage my previous attempts at weight loss.  Looking back, I think I used the side effect as an excuse not to be serious about my health.

In spite my recent mental health problems I managed to lose over twelve pounds in the first month of tracking my eating and exercising.  I’m seeing now that keeping track of what I eat is the difference between losing weight and gaining weight.  I was simply unaware of how much I really ate when I wasn’t tracking.  I am one of these people who would sometime eat just out of boredom.  But that has changed.  For my diet I cook almost all of my meals and I severely limit carbs.  I don’t even keep bread in the apartment anymore, haven’t for almost six months.  The weight loss has been the bright spot of this last month.  And I haven’t been crazy about my exercising.  I usually just walk twenty minutes a day probably five or six days a week.  I intend to keep this up even while changing medications.

New Normal verses Old Normal

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When I was growing up as a precocious child in the rural corn belt of Nebraska, I was frequently asked “Why can’t you be normal”.  My classmates, the adults in my life, and even my own family asked me this frequently. I didn’t have the foresight or the courage then to ask “What defines normal” or even “Who defines normal”.

Looking back on it years later I know I never would have gotten any kind of direct answer simply because what qualifies as normal keeps changing.  In 1750 it was normal for two out of three children born in London, England to die before their fifth birthday.  Now in the developed world (and increasingly so in the developing nations) infant mortality is rare.  It is so rare now that if most of us were to look back five or six generations in our family tree, we would find that our most of our ancestors had more dead children than most of us have children or siblings.  That’s what breakthroughs in medical science can do.  As recently as my parent’s generation, most people were married in their early to mid twenties and had children within a few years.  Now it is quite common for people of my generation to not marry until their thirties or even not marry at all.  Back when my parents were in their twenties, if you weren’t married before thirty you were thought insane or gay.  Now the stigmas on both homosexuality and lifelong bachelorhood are in retreat.  Instances like these create new normals out of old normals that no longer worked.

There are things that go on now most people take for granted that may be looked out in horror by future generations.  Even though wars haven’t really been fought between developed nations since World War II, I can imagine a future where people will look back at their ancestors and wonder how we justified ourselves in fighting wars and proxy wars that went on for years.  Perhaps committing any kind of violence against other people will someday be viewed with the same horror we in 2016 view slavery, inquisitions, and wars of territory expansion.  I can hope, can’t I?  Perhaps in future years it will seem absurd for people to hate others based on their political views.  I can only hope so, otherwise I am forever condemned having to listen to people bicker back on forth about political beliefs on Facebook and Youtube when all I really want to do is chat with a few friends and watch a few videos.  I hope our obsession and splitting hairs over political beliefs will someday seem as absurd as Catholics and Protestants fighting during the Renaissance is to our 21st century sensibilities.  Besides it’s not like politicians ever invented any labor saving devices, cured any deadly diseases, did any serious scientific research, or thought up better and less cruel ways of living.  At most, they provided some funding and got out of the scientists and engineers ways.  Many of the most influential and beneficial people who made a difference in history never held a public office, won a battle, or sat on a throne.  Remember that the next time you take your political beliefs seriously.

Less dogmatic and hateful attitudes about political beliefs would be nice.  What would be even nicer is less stigma and discrimination against those with mental health issues.  Seems to me that having mental illness is one of those few things many people don’t feel bad at all about stigmatizing.  It is essentially stigma’s final frontier.  Every week it seems there are crime drama shows where the accused perpetrator is mentally ill or an introverted loner who doesn’t fit in.  It also seems too common someone with a mental illness committing a violent crime gets far more attention than homeless mentally ill people being beaten by cops or gangs of ‘concerned citizens.’  Funding for mental hospitals has been dramatically cut over the years, often leaving the most afflicted to either the street, prison, or dead.  It seems that prisons have become de facto mental health hospitals for a sizable portion of the mentally ill population.  I know that the stats are a few years old in the link.  But I have little reason to believe that the situation for mentally ill individuals in prisons has gotten much better in recent years.  The treatment of seriously mentally ill individuals, at least in my country, is barbaric and insane.  What did you think was going to happen when funding for mental hospitals was cut?  Did you think the problems of the mentally ill would magically vanish once the hospitals were no longer well funded?  Or did you think mentally ill people like myself are making our illnesses up and don’t need help?  There should be no wonder why I was so quick to self commit myself on two separate occasions.  There should be no wonder why I want to change my medications even after a few mini breakdowns.  I don’t want to wind up in prison or dead for the crime of having a psychotic breakdown in front of the wrong person.  You won’t prosecute the handfuls of crooked bankers who triggered the Great Recession but you will throw thousands of mentally ill people in jail because you don’t know what else to do with them?  Way to stay classy. This is certainly one old normal that is in dire need of a quick death and being replaced by a new normal of more understanding, compassion, and better treatments.  And yes, we can find the funding to do this transition if we care enough to do so.

Speaking of practices some currently on the fringes of normal society abhor, maybe even the age old practice of killing animals for food will seem barbaric to future generations.  If lab grown meat gains traction in future years it could.  Don’t be so quick to scoff.  In 1900, who would have thought Henry Ford and his insane motorized carriage would put the draft horse out of business within several years?  Or who would have thought in 1850 that John Rockefeller would find great and numerous uses for a scummy and sludgy nuisance called petroleum?  These two by themselves got rid of old normals and created a new normal.  The internet is a key example of a new normal.  If I was born even fifteen years earlier I would have never been doing this blog.  Who knows what new normals are on their way?  Stay tuned my friends.  Things are going to be getting more interesting than they already are.

Relapses and Lonely Friday Nights

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The last several months haven’t been the most stable for my mental illness.  I had a “small” psychotic relapse yesterday afternoon.  Unfortunately this was at least my fifth breakdown since last summer and the second just in the last six weeks.  Things haven’t been stable and what I’m doing to minimize these relapses is no longer working.  I called my psych doctor and I’m now on the waiting list for an open appointment session.  I think I’m going to probably go back to my old medications.  They worked much better than what I’m on right now.  On the old medications I was on for at least six years I probably had only one or two relapses in an entire year, usually in late August or early September.  And even then the relapses weren’t as vicious as they are now.

I am afraid that changing medications could sink my attempts to lose weight.  I’ve lost over forty pounds in the last two years with these newer medications.  But these relapses are getting too frequent.  And even when I’m not relapsing I am more paranoid, more easily irritated, and more delusional than I have been in previous years.  One of my delusions now is that most people are stupid and malicious.  I’ve even gotten to where I don’t socialize in person unless it’s absolutely necessary.  But there’s only so much youtube, online articles, and computer games even a mentally ill man can do before such things become detrimental and unhealthy.

I can tell other aspects of my life are suffering.  I haven’t shaved in weeks and I don’t grow good beards.  I also haven’t showered every day like I normally do.  I haven’t been doing laundry as often as I should.  Things like my personal habits have been slowly deteriorating for the last few months.  I haven’t even gone to the park for over a week.  I normally go to the park three to four times per week.  Driving has become an irritable chore.  I drive so little now I usually go three weeks between refuels.  It’s been this way since mid October.  Besides a few snowstorms and one major blizzard, we didn’t have a bad winter.  Another delusion I have developed lately is an irrational fear that I’m going to get into another car wreck.  My social life and entertainment activities have been completely curtailed for months now because of the irrational fears that I’ll get into a wreck and that people are stupid and violent.  This is no way to live.  Changes are needed.

Medications and Mental Illness

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Saw my psych doctor last week.  We haven’t changed any medications or dosages this winter.  Winter has usually been a pretty stable time for me, at least after all the nonsense of Christmas blows over.  We added a third anti psych med in October after I have a vicious but short lived psychotic breakdown.  It seems to be doing alright.  It definitely makes me fall asleep and stay asleep.  I have to take it right before bed.  Any other time I will be asleep for at least five hours straight.  I take all my meds at once right before bed.  It’s easy to remember things that way.

With these current medications I’m taking, I have to real careful about not missing doses.  I have found I don’t sleep well and have vivid dreams when I accidentally skipped doses with these meds.  Some anti depressants I was on years ago, like Prozac, could be forgiving and not affect me too bad if I missed a dose.  I suppose Prozac is one of those drugs that can build up in your body over time.  When I decided I was going off my meds back in early 2007, I was on Prozac.  At first it felt good to be not taking medications every day.  Notice I said at first.  I was able to work 60 hours a week again and was getting interested in dating again.  But the good times didn’t last.  I was off the meds entirely for almost two months before reality came back to hit me.  I probably should have committed myself for that breakdown.  I went off the meds again in early 2013.  Felt alright for two months once more before the reality came back with a vengeance.  I was lucky and smart for realizing I needed to go back on the medications.  Both times I was on medications that probably stayed in the body longer than most.  That’s got to be the only reason I did alright for weeks before I had problems.

My current medications are not as forgiving if I miss a dose.  But they have fewer side effects.  When I was on most of my previous medications I did well mentally but not physically.  I gained weight on almost all my previous psychotic medications.  I gained a lot of weight.  I gained almost two hundred pounds from when I started on psychotic medications in late 2000 until I started my current medications in spring 2013.  I didn’t get it that I had to force myself to be active and that I was using the psych medication promoting weight gain as an excuse to overeat and not be active.  But since I got serious about exercise and eating healthy I have lost forty pounds in two years.  I still have a long way to go but I am on the right path.

If I had to give advice on whether one should go off medications because of fears of weight gain and resulting problems, talk with your psych doctor and general practice doctor both before you do anything.  Do not do anything like that on your own.  You will have a breakdown and probably have to be hospitalized.  I got off easy in that I didn’t have to go to the hospital because I recognized that my mental health was falling apart early on.  Also, it should be noted, that medical advances being what they are, newer treatments with fewer side effects are being developed regularly.  I didn’t think the genetic ‘black box’ for schizophrenia would be found as soon as it was.  It was found only twelve years after the Human Genome project was finished in 2003.  I don’t know if I’ll ever live to see an outright cure for mental illnesses, but I am remaining optimistic.  It is certainly exciting times we are living in.

Getting to Know My Neighbors

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We received over 15 inches of snow during this last snow storm.  It essentially shut down my hometown for a day and a half.  Fortunately we never lost power or water.  Since I was home bound for two days I had to make the best of that time.  Finished a book I was reading and almost finished a second one I have been working on for the last few weeks.  I also used the time to chat with one of my neighbors for a few hours.

This guy is roughly my age and lives on the same wing I do. We live in a low income apartment complex that is primarily senior citizens with disabilities.  Talking with him, I learned that he too has had problems in the past with older residents who don’t believe that younger people with disabilities should be allowed to live here.  He has also had problems with a few tenants who don’t believe in mental illness and think we’re just making this up because we’re ‘lazy and don’t want to work.’  He’s lived here for a few years and we have some similar interests.  He and I are both into computers and gaming.  He and I have similar backgrounds as we were both from small farming villages and we were heavily involved in school activities.  When I was visiting at his place yesterday after spending much of my day shoveling my car out of a snow drift, we got to chatting about our younger days, friends we had, and the stupid nonsense we got in as teenagers.  His path and mine didn’t cross very often as he has his group of friends and I have mine.  But we were friendly to each other and would hang out a few times a year.  But it never got to be anything regular.

I found out this guy also has schizophrenia.  In some ways he’s had it worse than I have.  He’s been hospitalized more times than I have and he wasn’t diagnosed as early as I.  Like me he started having problems in his late teens and early twenties.  Unlike me, his illness didn’t make him as socially reclusive as mine did.  I have always had a hard time socializing, especially with people I just met.  There are times I just don’t want to socialize outside of family and long term friends.  Hopefully this newfound friendship can open a few more doors for socializing.

Thoughts on Invisible Illnesses

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An old college friend of mine posted this on his Facebook page.  Wish I knew where he found it so I could give proper credit.  So true….

 

Ignorant (lacking in knowledge) people can be so cruel!! I’m posting this because recently I have been mocked and laughed at for things beyond my control… I have two of these illnesses as do some of my friends…. Not one of my Facebook friends will copy and paste (but I am counting on a true family member or friend to do it). If you would be there for me no matter what then copy and paste this. I’m doing this to prove a friend wrong that someone is always listening. I care. Hard to explain to someone who has no clue. It’s a daily struggle being in pain or feeling sick on the inside while you look fine on the outside. Please put this as your status for at least 1 hour if you or someone you know has an invisible illness (IBS, Crohn’s, Schizophrenia, PTSD, Anxiety, Arthritis, Cancer, Heart Disease, Bipolar, Depression, Diabetes, Lupus, Fibromyalgia, MS, AS, ME, , Epilepsy, hereditary angioedema , AUTISM, Borderline personality disorder, M.D.,D.D.D., CFS, Histiocytosis, O.D.D, A.D.H.D, RSD, PBC,RLS ,COPD etc.) Never judge. I care! And am praying for all those that are fighting these invisible illnesses. This is for a few friends of mine and all who suffer in silence!I

Confessions of a Schizophrenic and Christmas

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Merry Christmas, Happy Hanukkah, Happy Kwanza, and Happy Birthday Sir Isaac Newton!  In short, just have a good day overall regardless where you live or how you believe.  I spent a few days in my childhood home village in rural Nebraska.  Didn’t really go anywhere because there really isn’t that many places to go there.  My parents and I had our Christmas celebration this afternoon over ham and pumpkin pie.  I hadn’t been anywhere outside of my current hometown for any real length since my grandmother’s funeral.  I almost forgot how much I enjoy road trips and traveling.  This was the first Christmas I didn’t have any living grandparents.  But most people lose their grandparents long before they hit their thirties.

Overall, besides of a short lived but hard hitting psychotic break a few days ago, this year was a quiet and rather uneventful holiday season.  I was purposely avoiding shopping malls and box stores.  Things are beginning to get back to more normal with my life.  Had my first psychotic break of 2015 in early October that was rather nasty but thank God short lived. Unfortunately, my psychotic breaks involved a lot of anger and shouting.  I never developed the ability to just break down and sob for my break downs.  I think many men with mental illness take out their issues on others in scary and unsettling ways.  For me, it’s actually a cry for help and desire for releasing tensions instead of wanting to come across as threatening and dangerous.

I am afraid that after my family passes away I’ll lose a major source for releasing tension and anxiety.  They are also a source of interesting and intelligent conversation as they are quite intelligent too.  Tragically I don’t relate that well to most people because I am not interested in the mundane and the issues of daily living.  I just cannot stand to rehash current events for hours on end.  I see five minutes of a minor news story that gets replayed dozens of times over a few days of a news cycle and I no longer wish to discuss it.  I also have little desire to complain about anything I can’t do anything about.  That’s why I don’t vent about politics, current events, the failures of my favorite sports teams, etc.  And it’s almost painful for me to listen to conversations between average people.  Especially so when people bring up the same problems over and over they have no interest in making better.  I fear the death of my family members as much as I fear the death of my best friends.

I have never gotten violent during even the worst of my breakdowns, at least never to other people.  When I was in college I used to punch wood doors and shelves.  But I have never gotten violent towards anyone even after almost twenty years of mental health problems.  I haven’t been in a fight with anyone since I was thirteen years old, and most of those fights were with my older brother and cousins.  I am afraid of winding in prison or getting seriously hurt in the wrong circumstances during a future breakdown.  In my case while the fire burns hot and bright, it also goes out quite quickly.  I only hope symptoms and problems with schizophrenia get less severe with age, especially if an outright cure is never found. I know some people with mental health issues like autism spectrum and others don’t care to be cured.  For me I would give practically anything to be cured from schizophrenia.  I would even sign up for experimental treatments and procedures if they ever became available.

In other news, I have gotten more focused and serious about dieting and exercise.  I lost thirteen pounds in the last two and half months.  I am back into exercising almost every day as my back is no longer hurting from my car accident.  I got my car fixed as good as ever.  I’m also sitting down and planning out my goals for 2016 as the year 2015 is drawing to a close in a few days.  I accomplished several of my goals for this year, namely getting my amateur radio license back, having more blog posts and visitors this year than 2014, got to be in my best friend’s wedding party, read a few dozen books and audio books, completed a couple free courses on khan academy,  stayed out of debt, and built up my savings more.  The biggest goal I didn’t accomplish was my goal of losing sixty pounds.  I weigh the same now as I did at the end of 2014.  So while I didn’t accomplish my biggest goal, I didn’t completely give up the lifestyle change.  I just have to do better in 2016.

A Sense of Calm During the Holidays

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It’s been a long time since I’ve had a sense of calm and normal.  But things are finally starting to settle and slow down.  I’m progressing enough in my chiropractic therapy I go in only twice a week.  My EoE is being treated and I’ve altered my diet to account for many possible food allergies.  So my stomach feels better and I’m not as easily irritable as I was earlier this fall.

After a couple hectic and stressful days last week, things started calming down yesterday.  I made no attempt to fight the mobs on Black Friday.  Instead I stayed home, watched football, listened to audiobooks on youtube, and drank a few cups of black tea.  Found that black tea is easier on my stomach and gives me just enough caffeine to keep sharp for those late night research sessions.  I’ll probably switch over entirely this winter.

My back isn’t hurting anymore.  Even the tail bone injury I had years ago in high school has cleared up.  I always thought it was one of those things I was doomed to live with.  Too bad I didn’t get it worked on shortly after it happened.  But chiropractic treatments were even less mainstream then now.

Now I have my car back and it looks as if the accident never happened.  I have also more or less begun my winter routines.  We’ve already had a couple light snows.  Found my car handles well on ice.  That was one of my concerns going into the first winter with a different car.  But this car is low enough miles it should last me at least ten to twelve years.

I’ve now come to the acceptance part of my grandmother’s death.  I was more easily irritated and depressed for probably three months, which I think was part of my grieving process.  But she was a positive influence on my life for years.  And I was talking to her right until she had a major stroke about ten days before she died.  She was mentally sharp at her birthday party in June but she wasn’t very mobile because of physical health problems.  It has to be tough being mentally sharp but feeling your body fall apart.  It was bad enough for myself knowing my ability to process stress and social situations because of my schizophrenia while my cognitive ability remained relatively changed.  Being in a car accident didn’t help with the irritability and short temperedness.

I’ve also come to the acceptance that, barring some miracle of future science and medicine, I’m not going to ever be able to handle any kind of job where I can use my natural intellect.  Coming to this acceptance has only happened recently and it was by far the toughest aspect of my life I had to accept.  I grew up believing that if one found their niche and developed that niche, then good things would happen.  Found out at a very early age I had some unusual intelligence.  I also learned I had almost no bodily coordination and hated athletics.  So I never had any dreams of playing pro football.  I wasn’t very good with my hands but was excellent with ideas and scientific concepts.  I decided I wanted to be a scientist even before I started kindergarten.  Unfortunately that dream didn’t come true.  After gutting through almost two years of biology and chemistry classes while fighting a mental illness, it became painfully obvious that I wouldn’t get to pursue the dream any more.

The worst part of coming to this acceptance was knowing that I did everything right in life and I still would never use my ability.  I didn’t drink, I didn’t do drugs, I didn’t have sex, let alone date much, etc.  I spent most of my weekends and evenings studying for my classes while many of my classmates were out partying and screwing around.  And I was well on my way of making something positive out of myself.  But it never happened because of schizophrenia.  It took pretty much everything from me.  And it even messes with your mind, unlike most physical diseases.  Well schizophrenia is the result of brain issues.  It was rough seeing everything I worked for gradually destroyed piece meal.  For a long time I tried to figure out what I did wrong.  Once I came to the conclusion I did nothing wrong, I blamed others for the illness happening.  Once I got past that and accepted it was what it was, I have settled in for the long haul.  Now I’m trying to keep even keel and make the best of a lousy situation.

 

Return to ‘Normal’ with Schizophrenia

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It’s been a week since I was in the emergency room for getting my esophagus scoped.  Had to take it easy for a couple days but I’m back to normal.  At least as normal as things are going to get with schizophrenia.  It’s been two weeks since I had a third anti psychotic medication added.  It appears to be doing the trick as I haven’t had any kind of upsets or flare ups in anxiety or agitation for several days.  I’m even sleeping better now.  I still keep odd hours as I typically do better at night when there are less stimuli and fewer people out and about. I can say things are starting to return to normal again.

It has been some time since I was able to have any routine for any length of time.  I had my best friend’s wedding in July.  In addition to the wedding I had the last of my grandparents die.  While I wasn’t completely torn apart by my grandmother’s death, I know it effected me in other ways.  I got out of a regular sleep pattern, which makes mental illness problems worse.  I became especially lazy about watching what I ate and didn’t exercise as much as usual.  I was more irritable and short tempered too.

I had what has essentially become my late summer or early fall mini psychiatric break in early October.  Traditionally I have my break downs in August or early September.  I was hoping to make it through the rough patches and lack of routine without a breakdown.  No such luck.  Fortunately I was able to talk down and burn myself out.  For most people as bad off as I was, going a mental health hospital is the best option.  Since I have such a great support system in my immediate and extended family, I was able to talk my way out of my flare up.  I don’t know how my family is able to deal with my flare ups and break downs without taking them personal.  It has to be hard.  It’s hard enough for me when I’m going through them.  I am concerned for when my family members begin dying off and I have to find different support people.  This is a fear of mine.  Perhaps by then treatments will be developed that are even better then what are available now.  Maybe there will even be a cure.  In the meantime I keep moving on and attempt to keep a since of normal with schizophrenia.