Category Archives: Physical Health and Mental Health

Updates August 3 2022

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I’ve now lived in my current place for two months. Updates are in order. My blood pressure is now normal and stabilized. I’m doing physical therapy twice a week trying to get some mobility back. I’m continuing to lose weight, usually a couple pounds per week. I’m eating smaller, but better balanced meals. The nursing and help staff are amazing here. My mobility is still limited to wheel chairs and walkers. I occasionally still get pains in my feet and knees. Usually some tylenol will clear those pains.

The variety of meals here is good. Seems that everything is home made quality. I think we have about 40 residents in my complex, most are senior citizens. I’m still adjusting to having a roommate for the first time in eighteen years. I had just got so used to living alone that having a roommate is probably the biggest adjustment I had to make. I sleep in an adjustable hospital bed. It’s so much easier on my knees and back than traditional beds. I’ve lost enough weight that I can sleep on my sides for part of the night. I’m currently at my lowest weight since late 2017.

Even though I’m at my lowest weight in almost five years, my mobility hasn’t come back as much as I hoped. I can still get around really well with a wheel chair. But I don’t own my own personal wheel chair as I borrow one from the complex. I met with a wheel chair salesman last week and talked to him for a good forty five minutes trying to get me outfitted with a custom made chair. Right now I’m waiting on social security to approve the purchase. I imagine supply chain problems are still an issue on some things.

Had a couple amazon deliveries to my new residence. Had to buy some new shorts as I was running out of pants that properly fit. It’s nice living where I don’t have to worry about doing laundry or cooking my meals anymore. I also enjoy having 24 hour access to health care and not having to worry about filling my prescriptions anymore.

July 24 2022

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My blood pressure has returned to normal. My feet no longer hurt. My knees are getting better with each passing day. I got a new adjustable bed. I think that has helped my knees as much as anything. I had a Zoom appointment with my psych doctor. I’m continuing to lose weight at a fast pace. I’m now at my lowest weight in five years. I’m still mostly wheel chair bound. I’m starting to walk short distances with a walker.

My mental health has improved too. I was in a dark spot for quite a while earlier this summer. I’m still sad about having to give up my apartment and my independence. But it was for the best. I know have around the clock access to medical treatment. I don’t have to cook for myself anymore. I think the smaller, and more balanced, meals are helping me lose weight. I’ve lost enough weight I was taken off two blood pressure medications. I’m still afraid to walk without a cane or walker. I’m still a fall risk.

I still play lots of computer games. My roommate and I usually leave each other alone as we have different interests. I’m still getting used to having a roommate after living alone for almost eighteen years. While I mourn the loss of my freedom, independence, and privacy, I know I made the right decision to give up my apartment and move to long term care.

Making My Peace With My Decline

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I’ve been living in long term care for over a month now. Updates are in order. My feet no longer hurt. Now it’s both of my knees. I can barely stand up because of the pain, let alone walk. My knees hurt so bad I can’t even lay on my back in bed because of the pain. I’m back to sleeping in my recliner most of the time.

My high blood pressure issues have been solved. Now low blood pressure is a problem. I can barely stand up or go to the bathroom without feeling like I’m going to pass out. I also have the problem that I’m forced to do physical therapy even though I can barely stand up without passing out. I try to explain my problems to the nurses. No one is listening. I can’t get anyone to listen to my problems. Supposedly a doctor ordered me to do physical therapy even though that was NEVER brought up the only time I’ve met with a doctor since I’ve moved to long term care.

I couldn’t manage my blood pressure issues and mental health at the same time anymore. Home health coming to check in on me a couple times a week was only temporary. I live alone and I can no longer drive. So I couldn’t get to any of my doctors’ appointments. My blood pressure meds couldn’t be renewed via Zoom calls. That’s why I opted for long term care. I can’t drive so I can’t get to my medical appointments. My mobility is severely limited to where I’m wheel chair bound now. Even though I’m in long term care, my problems are still not being listened to. I am by far the youngest person in my facility.

After years of loss, fighting mental illness, no one taking my complaints serious, decline of physical health, loss of friends, loss of career, and the general overall decline of the state of the world, I have made my peace with my mental and physical decline. I’ve even made my peace with death. I’m tired of fighting losing battles. I’m tired of trying to put a positive spin on everything. No, my mental health will never get better. No, I can’t fight mental illness and physical decline at the same time anymore. I am tired of being ignored. I’m tired of being blown off. I am tired of being told I’m lucky. I am tired of being told to man up and stop complaining all the damn time. I’ve made my peace with death. I’ve made my peace that most of my dreams will never be fulfilled. I’ve made my peace with declining health. I’ve made my peace with the world never being a good place. I don’t know why no one else can.

June 22 2022

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Been in my current place for two weeks now. Had a roommate move in after a few days. We now have our own wheel chairs, so I’m getting out more often. Spent some time outside today in the flower garden at the entrance. I still can’t walk very well. I can do well enough to get into the wheel chair and get to the bathroom. My food intake is a lot less than it was previously. That alone means I’m probably losing weight. I think covid is making a bit of a comeback as I’ve been tested twice just in the last week.

The food is alright. Most of it seems homemade and we have quite a variety. I’m not doing physical therapy. With as shot as my legs are, I probably won’t make much progress in terms of walking until and unless I lose a lot more weight.

Most nights I sleep alright. Didn’t sleep well last night. My roommate accidently left his tv on overnight. Listened to more infomercials than I cared to.

Currently in my wheel chair. I’m going to try to stay in my wheel chair until bed time. Most nights I’m asleep by 10pm and up for good around 6am. I have meds twice a day, usually with breakfast and supper.

I played some cards earlier in my stay here. I shower twice a week and shave twice a week too. I think my beard days are behind me. Mentally have been pretty stable, more so than when I was living alone. I play lots of computer games and listen to lots of audio books in my free time. Since I don’t have to go to physical therapy, I have more free time than I’m used to. I haven’t eaten restaurant food or had soda pop in over a month. I certainly could go for a double cheeseburger and a Coke sometime soon.

I won’t be having visitors until around the Fourth of July holiday. I hope they bring some treats. Since I moved into long term care, I’ve been eating more balanced meals, more vegetables, and some more sweets. My roommate’s wife brings him candy bars and diet soda occasionally. I don’t have anyone within an hour’s drive to come visit me. I think the nearest Pizza Hut to my facility is a twenty minute drive. I definately live in a small town again. So small it’s eerie quiet and dark at night.

Going To Long Term Care and Reflections on Life Since 2006

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Tonight is my last night in swing bed. I move to my permanent place in long term care tomorrow. My parents and my cleaning lady are emptying out my apartment today. It is a bittersweet end of one chapter in my life and the start of another. At this point in my life, I can no longer manage both my physical and mental health problems all alone anymore. I gave it an honest shot for over eighteen years. I had lived in my previous apartment for sixteen years. Worked a variety of jobs, started my blog, made lots of new friends, had three grandparents, three uncles, and a favorite cousin die, had several really good friends die, lost most of my mobility, survived a car crash, went through two years of the covid pandemic without getting sick, saw my best friend from college get married and become a dad, and saw my three nephews and niece grow up. While I am sad that my physical health has fallen apart so fast, I am confident I am now where I need to be.

In my sixteen years in my previous apartment, I went to the mental health hospital twice. I applied for and got on social security disability insurance. I worked for four years as a janitor at the county courthouse. I started this blog and have continued it on a regular basis for nine years. I became a published writer by having several poems published in a couple literary magazines. I learned about the joys of home grocery delivery. I found out that youtube is a wealth of knowledge if one knows how to properly look. I learned more history, philosophy, economics, science, etc. in several years of binge watching youtube than I did in my formal education. I saw several cousins get married and become parents. I had DNA tests to determine what psych meds would be best for me with great success. I saw the rise of the smart phone. I saw the world completely transform during a pandemic. I went from a young to a middle aged man. I saw three college classmates die young. I saw my parents retire and move out of their house of over thirty five years to be closer to their grandkids. I saw private space flight become a normal thing. I saw the first Black man become president of the United States. I saw the first woman become vice president. I saw a new pope elected. I saw same sex marriages legalized. I saw the beginnings of legalized marijuana. I saw the Arab Spring. I saw Brexit. I saw the beginnings of driverless cars. I saw electric cars become mainstream. I saw people my age and younger become leaders in politics, science, and industry. I saw some people my age become grandparents. I saw the internet go from a luxury to a necessity. I saw China become a world power again. I saw a renewed appreciation for democracy, especially after the war in Ukraine started and several years of choaotic politics in USA and Europe. I’ve seen a lot of changes in the sixteen years I lived in my last apartment. Heck, I don’t even recognize the world of 2006 anymore. Hope I can get to live another sixteen years to see what changes happen then. Now that I’m in long term care and have around the clock medical care, my chances of seeing the next sixteen years are improving.

Moving to Long Term Care. Changes in A Life Of Mental Illness

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It’s been a long while since I last wrote. Updates are in order. Two weeks ago I called the ambulance as I was having issues with foot pain and blood pressure. In those two weeks, I got my blood pressure back under control, had over 20 pounds of excess fluids pulled out, and decided to move to a Long Term Care facility in my home state of Nebraska. After almost 18 years of living on my own, I can no longer manage my mental illness issues and physical health problems at the same time.

I am currently in swing bed in a hospital in a small town in Nebraska. I should be able to move to my permanent long term care unit (in the same town) by Wednesday June 8th. My foot pain has mostly cleared up. My blood pressure is back to normal. I am not diabetic. All my blood numbers are in safe ranges. But I can no longer manage physical health and mental health at the same time. I can no longer live on my own. I came to the conclusion I need more help than I was getting at my previous home.

My parents and my cleaning lady will start clearing out my old apartment probably on Tuesday. I decided I’m donating most of my books to the complex library. Give them more variety than romance, western, and crime dramas. I lived there almost exactly sixteen years. It feels surreal to be moving. But it needs to be done. I just can’t take care of all my issues on my own anymore.

I will be living on a ground floor, have access to a wheel chair, and the staff will cook my meals, handle my medications, and do my laundry and cleaning. It’s been a crazy last two weeks, that’s for sure. But these changes were needed. I should have moved into long term care last fall when I had my blood pressure issues. But, with covid still raging hard, I guess all of that got lost in the shuffle.

Inflation Sucks

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Had maintenance in my apartment yesterday fixing some things. I think I’m finally caught up on maintenance issues. I haven’t left my apartment for a few days. Just not in much of a mood to socialize these days. Seems like most of my friends are the same way.

Had to cancel my netflix service. Rates are going up again. My internet connection rates went up the first of the year. Looks like they’ll be going up even more in a few months. I get sticker shock every time I go grocery shopping. I’ve started eating more inexpensive things like rice and canned meat. I rarely order from amazon anymore. Price increases have certainly affected my life.

Been feeling more irritable and anxious the last few days. I’m also getting chronic aches and pains again. Some days my knees are bad enough I can barely walk even in my own apartment. I sit with blankets over my legs all the time no matter how hot it gets outside.

Don’t hear much from my friends these days. I think they are stressed and anxious too. Most people seem to be these days. In cases like these, it’s good that I can spend days at a time alone and not really be bothered by it.

April 2 2022

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Just got over a cold that had been hanging on for several days. Been having lots of aches and pains again, especially in the mornings. I’m sleeping probably 10 to 12 hours a day for the last several days.

I still rarely leave my apartment. But I do have my windows open most days. There are some renovations being done in my complex as I hear power tools being used even as I write this.

Did some rearranging in my living room. I can now move around easier. Less clutter too. With the days starting to warm up, it’s starting to feel like spring.

Back to reading audiobooks a couple hours per day. I’m currently reading Yuval Noah Harari, Ray Dalio, and George Friedman.

The aches and pains are back, especially in my knees and lower back. Haven’t had much of an appetite the last several days. Some days I eat only once per day. I put myself back on fluid restrictions as I’ve had some swelling lately, particulary in my feet.

Mentally, I feel stable even if I am afraid to leave my place. I’m also in too much pain to walk very far. That keeps me at home most of the time.

March 16 2022

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Feeling pretty decent the last few days. My joints are hurting less. Haven’t had to take any advil for a few days. I still spend most of my time at home. I read and watch educational videos most days. Renewed my Netflix several weeks ago. I often watch Spanish language shows with English subtitles. I think some of my Spanish is starting to come back.

I sleep half of the night in my recliner and the other half in my bed. Half of the time in bed, I lay on my sides. First time I’ve done that in a few years. I almost rolled out of bed a few days ago. I’ve lost enough fat that sleeping on my sides is easier now. I’m not sure how much weight I’ve lost since the pandemic started. I know it’s at least 80 pounds as that is where I was during my last doctor’s appointment back in October. I don’t have any immediate goals for health and weight loss other than I eventually want to get back to my old college weight. That will take at least a couple more years.

Yet the weight loss doesn’t feel like drudge work. The biggest changes I made were giving up bread, sugar, fried food, and most fast food. I haven’t bought bread in over two years. Haven’t had even a Big Mac in almost five years. Most fast food is too greasy and salty for me anymore. Upsets my stomach too. Most of my diet is now grilled and baked chicken, pork, vegetables, and soups. It’s easier, at least for me, to cook healthier meals now than even five years ago. It also helps that I’m cooking only for myself as I live alone.

Even though my aches and pains are reducing, my mobility hasn’t come back as quick as I would like. So, my family and I hired someone to help me with my laundry on the weekends. I just provide the coins and laundry soap, she supplies the labor. Even though my mobility is all but gone, I’m glad to be getting help around my house. Makes me glad I was helpful to others in my younger days when I was still quite healthy. See, kids, it pays to not be a jerk to people.

Don’t have any real plans for St. Patrick’s Day even though I’m 20 percent Irish. I’m just glad that winter is about over.

December 12 2021

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Started lifting weights again a few weeks ago. I’m starting to notice a difference. I’m taking vitamin C and fish oil suppliments. Still fighting off a cold but it’s nowhere near as bad as it was last week. I can stand for longer periods of time without pains. It’s easier to do chores around my apartment than even three months ago.

Changed up my diet some. I’m eating more burritos these days. I hadn’t been getting much for fiber in my high protein diet lately. I was needing a change as I was getting tired of the same routine every day. I’m going to go easy on restaurant delivery. That stuff is getting expensive, like everything else.

Sleeping in my recliner for the time being. My cpap machine finally broke down and I’ve been having chronic stiffness in my legs most mornings. I’m currently trying to get my machine replaced. But I’ll probably have to sleep in the recliner for at least the next few days until I can get a replacement.

Haven’t had bad flare ups of my mental illness in months. I’ve had a few minor ones and sometimes get kind of irritable. I’ve been stable for the most part this year. I see my psych doctor every two months via teleconference. I still spend most of my time alone. I still contact friends and family on a daily basis. But a lot of people are on edge lately, more so than usual. I just try to avoid the drama. Kind of sad it feels like I’m hiding out. But what’s the point of socializing with people who are going to make you feel bad? I no longer have time or patience for drama and nonsense.

Listen to audiobooks at least one hour a day. I’m getting close to finishing a couple of my recent purchases. For some odd reason, it’s just easier for me to focus on audiobooks than traditional books anymore. This wasn’t the case until a couple years ago.

I still do computer games some every day. I love the Civilization and Total War series of games. I’m also spending some time on Cyberpunk 2077 and Skyrim on my PS5. I still can’t believe my brother found that console. There are still shortages from what I’ve heard.

My clothes are fitting really loose these days. I’ve even had cases where I get snagged on dresser handles and door latches because of how much more loose my clothing now is. I have simple tastes as I prefer t shirts and sweat pants. I like hoodies but don’t wear them unless I’m outside as I’m more sensitive to heat than most people. Colder weather doesn’t really bother me, at least not as long as I have central heating, fleece blankets, and hot coffee. I’m going to start saving my money so I can buy new shirts and sweat pants. The ones I have right now are getting real loose. I know I have lost at least 80 pounds between December 2019 and October 2021. If the way my clothing fits is any indication, I’ve lost some more since October.

Christmas is coming in a couple weeks. The big thing I want this year is a new microwave. The PS5 was my blockbuster gift last year. As much as I appreciate my brother being able to find it, I appreciate spending time with family and friends even more. Christmas is more about spending time with family and celebrating the birth of Jesus anymore. Even though I haven’t regularly attended church services in several years, I think there is a great value to things like spirituality, community, and just treating other people with kindness and empathy. There will probably always be aspects of the cosmos and human experience that can’t be explained by even the best science.

In spite staying close to home and keeping physical contact with people to a minimum, I’m doing alright both mentally and physically. 2021 has been better for me than 2020, even with spending three weeks in the hospital. That time in the hospital allowed me to address health issues I neglected previously.