Tag Archives: family

Dealing With My Physical Decline and My Friends Who Refuse to Acknowledge Decline

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Saw my home health nurse today. My mobility isn’t coming back like I had hoped at all. I’m still angry about physical therapy giving up on me after only one month. I’m angry that no long term care facility had a place for me.

It’s pretty damn obvious at this point that I am wheelchair bound and need accommodations. My case worker sees it. My home health nurse sees it. My doctor sees it. My parents see it. Hell, I saw it long before anyone. About the only people who are still in denial are my friends about my age. People can be awful stupid about some things.

My friends are the type of people who believe anything is probable, not possible, through positive thought and hard work. Hell, the believe if I don’t achieve mobility and good health again, it’s all my doing. With friends like that, who needs enemies?

I think my friends are in denial because it would force them to reflect on their own mortality and that they aren’t young anymore. It would also force them to reflect on the fact that one can do everything right and still lose big. Sometimes things just happen for no reason. My life is a prime example of this.

Adapting to Change: Mental Health and the Future of Work

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Even though I don’t go out or socialize in person much anymore, I still keep busy. I was recently demonetized on Medium. No explanation and no way to appeal. Really irritated me as I was making some decent money.

In some ways, they did me a favor forcing me back into Word Press on a regular basis. Even though I haven’t been posting much over the past year or so, I was still getting a decent amount of audience. Some days I would check, and I would have 40 or so views on a single day even though I hadn’t posted in weeks. Maybe the word is getting out there.

Sure, I made more money on Medium. But I got better audiences on Word Press. But I guess nothing lasts forever. There were also a lot of complainers and whiners on Medium. I don’t miss them. First World problems in most cases. I swear people like that never had to deal with bullies and setbacks as kids.

I was bullied a lot as a kid. Ended up in several fights, most of which I lost. But I’m glad I went through it. Made me confident in my ability to survive and adapt, especially as I got older. No I didn’t enjoy it at the time. But I thank God every day I dealt with some hardship as a kid during prosperous times.

I was born in 1980 and spent most of my formative years in the 1990s. We still had the latch key kind of things. I had my freedom, like most small-town kids. And the grownups usually let the kids solve their own problems unless we got too destructive or violent. Much of that behavior would be considered child abuse these days.

Personally, I think real abuse is sheltering kids from the consequences of their actions, not teaching them how to cook or do basic repairs to household items or never letting them solve their own problems. Hitting your kids isn’t the only form of child abuse out there. I think not preparing them for adulthood and its ups and downs is every bit as abusive as punching them in the face.

In some ways I’m glad I didn’t have kids or get married. But that is mostly because of the schizophrenia. While I don’t particularly enjoy living with my elderly parents, I know I would enjoy living in a nursing home (been there, done that) or being homeless would be even worse. It’s a blow to my pride that I live with my parents after being on my own for seventeen years. But I try not to complain, at least publicly, because I know it could a lot worse.

I’ve always taken mental health seriously. Even more so now with everything changing so rapidly. I’m under no delusion that I’ll ever make enough money to support myself off writing. Vast majority of even paid writers don’t make above poverty level wages off writing alone.

I’m kind of burned out on computer games. And almost every time I try to socialize with anyone outside of immediate family, these people are in awful moods all the time. Nothing can make most people happy.

These people are going to be really unhappy in a few years when AI and automation take more and more jobs, especially since we have almost nothing for social safety nets. Rest assured; it will happen. A lot of people will eventually lose their jobs to AI and automation. I’ve been trying to tell people this for over a dozen years. About the only people who listened are my retired elderly parents and my best friend. She’s always grumpy and grouchy now, it’ll only get worse when she loses her good paying job she’s complains about almost daily.

I know it sounds like I don’t sympathize with these people whose jobs are on the robot chopping block. But you would be wrong. I lost my career and everything I worked for many years ago due to my mental illness. I did everything right; worked hard in school, stayed away from drugs, stayed away from credit cards, stayed out of trouble, etc. And I still lost everything.

Millions of people will find themselves in the same boat within several years. Not their fault a machine can probably do their jobs better than they ever could. Soon they will be cheaper too. In my case I lost my career in my twenties rather than my forties when I would have had a mortgage, a couple kids to send to college, and a retirement to save for.

In spite being surrounded by grouches, I’m looking forward to Christmas. I didn’t ask for any special gifts. I think a large dinner of spiral ham, stuffing, green bean casserole, etc. is enough of a gift. Don’t know how many Christmases I have left, but I intend to really enjoy this one. It’s just too bad that it doesn’t snow much down here in Oklahoma City.

Reflections on My Recent Hospital Nightmare

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For the official record, I didn’t give up on my writing. I just took a much overdue vacation.

With that out of the way, I feel the need to update my appreciated readers on what I’ve been up to in the last several weeks since I last posted.

In early September, my parents had to call an ambulance on my behalf to take me to the hospital as I was having problems breathing. At first the doctors thought I had pneumonia, but even ten days of anti-biotics didn’t do anything other than screw up my stomach and bowel movements.

With the anti-biotics not working, one of the doctors had the gall to suggest that I might have early stages leukemia. This was in spite not having extremely elevated white blood cell counts or even so much as a fever.

In short, I spent ten days in the hospital on bedrest and the hospital didn’t even figure out what was wrong with me. I am now a believer in medical misdiagnoses being a very serious problem in modern medicine.

It turns out it was merely a virus infection in my lungs. I was also having problems with retaining water due to my congestive heart failure. My swelling took place mostly in my crotch and hips. The swelling was bad enough I couldn’t wear pants the whole time I was in the hospital.

I was put on diuretics, and I must have lost over one hundred pounds of fluids when I was in the hospital. Since I was on bedrest and having serious pain in my knees from my being forcefully taken off my three times a day Tylenol routine, I had to call a nurse every time I needed to urinate.

This annoyed some of the nurses. Sometimes they didn’t get to me in time, and I ended up peeing my hospital bed. Yeah, I’m a 44-year-old man talking about wetting the bed. Major blow to my pride and ego I tell you.

After my ten days in the hospital for my not pneumonia, I was sent to physical rehab for two weeks. My God in Heaven, that was an experience.

For starters, I wasn’t able to do much of rehab because my knees were hurting so bad I couldn’t even stand for more than ten seconds at a time. I was taken off my three times a day Tylenol regiment that had worked extremely well for almost two years while in the hospital.

Due to the forced bedrest, lack of a walker or a walking cane, I couldn’t walk the whole two weeks I was at physical rehab. After being back home for a couple of weeks, I can walk in my office with a walker. I still can’t walk well enough to get to the bathroom on my own. I feel so ashamed.

I feel like I spent three weeks in the hospital, most of it probably needlessly. I did get a new c-pap machine and got off a couple blood pressure meds.

I now take only two blood pressure meds and a couple meds for congestive heart failure. Half of the time my blood pressure is still too low, I’m talking like 110 over 55. But at least I’m not in the hospital anymore. September was a damn nightmare.

How I Spent the Pandemic and Great Reset. A Conversation We Will Be Having with Our Grandkids in the 2050s.

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Zach Foster

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If I get to tell the young kids thirty years from now about how I spent the Pandemic and Great Reset, I’m so going all George Patton inspiration speech the day before D Day on this shit. I hope you find the humor in it.

I will be able to tell my hypothetical grandkids that, “Well, your grandpappy survived the pandemic and the Great Reset of the 2010s and 2020s without getting so much as a sniffle. I was also a part of a resistance to the rising tides of authoritarianism that was rampant among his family, neighbors, and friends in Red State America. I actually convinced a few of the insanity of their ways and got them freed of the MAGA cult.”

“Grandpa also ran errands for disabled shut in neighbors while making a small profit on Robin Hood with my stimulus money. I was a fan of Wall Street bets and a Diamond Hands crazy son of a bitch named Roaring Kitty. I was a small part of the Apes and Wall Street bets and Dumb Money who helped bring down a few shady hedge fund managers and made themselves a few bucks in the process. Nothing like using the free market itself to punish the worst abusers of said free market.”

“Grandpa also survived heart failure, lost over170 pounds, moved out of rural Nebraska (yes, Grandpa was part of the ‘rural flight’ migration to urban areas) to the greener pastures and red dirt of Oklahoma City. I had some really cool friends, and actually started turning a profit with his crazy son of a bitch mad man rants.”

I won’t have to say, “Well, your granddaddy pissed away a golden opportunity to reinvent himself during the covid pandemic and Great Reset.”

Obviously, it’s not as cool as surviving the Dust Bowl and bringing down fascists and tyrants in Nazi Germany and Imperialist Japan. But I guess it’ll have to do for us “middle children of history.”

Mental Stability and Power Dynamics

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Another day of being mentally stable. Haven’t had any kind of breakdown in over three months. It helps that I avoid stressful people and conflict as much as possible. Do most of my socializing online these days. It’s just easier to type what I’m thinking than just verbalize it. My illness makes me pick up on subtle cues very easily. I often pick up conflicting cues. Makes it really tough to read people, especially in person. 

Since many of my in-person experiences have been quite negative over the years, the default is that when someone goes out of their way to see me, I assume I’m in trouble. My family thinks it’s tragic that I always assume the worst when people come to see me in person. It’s even worse when I am summoned into an authority figure’s office on their terms. I’m keenly aware of power dynamics to the point it’s crippling.

August 15 2023

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I have an appointment with my new psych doctor this morning. Means I have to venture into the downtown area. Pretty much just a get to know each other kind of deal. My mental health has been pretty stable. I’m actually excited about going into the city at large today. I normally keep to my suburb as my town is big enough it has everything I need within a few minutes of my house. First time I’ll be in the city in a few months.

The summer has been real hot for the most part. One the days it’s cooler than normal, it rains. We haven’t had the problems with fires this summer like we did this spring. I’m looking forward to autumn.

Was turned down for an apartment complex I applied for. Turns out the place is for mostly senior citizens age 62 and up. Since I’m only 43 I don’t qualify. It seems like most places that are easily handicap accessible are mainly for elderly. Looks like the wait is going to continue for the foreseeable future. I just don’t understand why, in a nation that have obvious affordable housing shortages, we don’t just build more places. Sounds almost like a lack of a supply to meet the increased demand. But, it’s not like young people don’t want to have their own houses and apartments. It’s that we can’t afford most of what is available.

Making most of my own meals now. I can now navigate my wheelchair through everywhere in the house. The doors are too narrow for a wheelchair to get through. But I can hobble thru until I can find a place to sit. I’m up quite late most nights. But I usually get more done at nights than during the day.

August 2 2023

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Updates are in order. I’m still on the waiting list for low-income housing in Oklahoma City. The housing authority is actively seeking a place that is wheelchair accessible. I should be moving up the list as the waiting lists were updated and many people who are no longer looking for places are being removed from the list. I have no idea how long this wait will be. My friend in Denver who works for a large landlord said that out there, she’s heard of horror stories about low income people waiting over five years to get into a place. In my case I am doing alright here in the suburbs. I can run a wheelchair well enough now that I can navigate my parents’ entire house except for doorways. I have to fold up the wheelchair and walk though for the doors. Haven’t been outside since the current heat wave started. We’ve had many days of 100-degree Fahrenheit heat since mid-July. Not exactly sure what that translates to in Celsius, I’m thinking 40 something degree Celsius.

Made some new friends since I moved to Oklahoma. Staying in contact with old friends from back in Nebraska. One friend was someone who lived in the same complex I did. We are both homebodies but share several similar interests. I regret not visiting her in person more when I still lived there. But the last two years I lived in Kearney were during the height of the pandemic. I didn’t visit many people in person those two years. Did a lot of reading and writing though. Moved out of Kearney in June 2022 and went to physical rehab for eight months. Moved in with my parent in February 2023. Lost over 180 pounds between February 2020 and February 2023. Sadly, gained about 20 pounds back in the last six months. Too much sugar and carbs. I was easily losing weight when I was eating mostly grilled, roasted, and baked meats (mostly chicken, turkey, and pork) and vegetables. I gave up most carbs, most sugars, most fast food, etc.

Saw my physicians’ assistant yesterday via teleconference. It was for my sleep apnea. I needed to renew my prescription so I can get replacement parts for my CPAP machine. As my machine is only three years old, it should last at least another three to four years. But it works so much better when I replace worn out parts regularly. Since I don’t use distilled water or oxygen, it’s easier to keep clean. And I just use the nasal units rather than the full-face mask. My doctor thinks if I get back to losing weight again, I could possibly be off the CPAP entirely. I think I should be able to get back to losing weight now that I’ve adopted my pandemic diet again.

My blood pressure is stable. Has been for weeks. I have to see my general practice doctor again by the end of August for general checkup. He wants to see his heart patients every three months. I see my new psych doctor this month too. Since my psychiatric health has been stable for the last few years, I should be doing just routine maintenance. I do have occasional psych flare ups, but they usually don’t last long. I have found if I limit stress the flare ups are fewer and further between.

Making most of my own meals now. While my parents are thrilled with my ever-increasing independence, I think my mom is kind of sad that she doesn’t cook for me very often anymore. I think my dad is kind of sad that I don’t watch Westerns with him much, certainly not like what I did in the first few weeks I moved here. I buy most of my own groceries, pay some in utilities, and order my own home supplies via Amazon. As there is a huge Amazon facility in our metroplex, almost everything is next day delivery. I’m still not washing my own laundry just yet. Our washing machine is in a tight closet that is impossible to navigate with a wheelchair. My knees are chronically hurting due to bad arthritis. If I take Tylenol every day, it seems to negate it some but not enough to restore my ability to walk without serious knee pain.

Even though I don’t eat most of my meals with my parents anymore, I still talk to them in person some every day. During the pandemic I made a point to call them at least once a day. In some ways I am not in a real rush to get my own place. The big reason I need my own place it that I can’t afford their house on my social security disability pension. Sure, the house is paid off entirely, but I still couldn’t afford property taxes and maintenance.

Shortly after I moved to Oklahoma, my new social security case worker told me that since I was diagnosed with schizophrenia at age 20, I should have been able to qualify for social security payouts based on my parents’ income and not mine. Since both of my parents were medical professionals, that alone would significantly increase my benefits. So we applied for benefits increases. Naturally we were denied. But denials are standard in disability cases, at least here in the USA. I plan on hiring a lawyer to appeal this case. I had to lawyer up when I first applied for social security in the mid 2000s. Even with a lawyer my case took over two years to resolve. Since I no longer was covered by my parents’ insurance, I needed a high-risk emergency health insurance. It was a rugged two years waiting for that verdict.

I’m hanging in there overall. I’m just ready for some fall again.

Surviving The Covid Pandemic With Schizophrenia and Congestive Heart Failure

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Still doing physical therapy three times a week. Been doing this for over six weeks now. My speed is improving. So is my leg and arm strength. Overall I am down 65 pounds since I moved here around Memorial Day. Since the meals are well balanced and home made, I don’t feel deprived. I get three hot meals every day. I am on calorie restrictions, so I can’t go back for seconds. The meals are good enough that the smaller portions don’t bother me. I’m still on fluid restrictions. I usually drink less than 2 liters of fluids per day.

Got on the scale today. If I lose another 10 pounds, I will be at my lightest since my car accident in October 2015. One of the reasons I gave up my car was that it was really tough to get in and out of my car with my bad knees and back. I haven’t ridden in an automobile since late May, but I am quite confident I can get in and out of most cars easily. It seems like I’ve been losing 5 pounds per week since the therapy restarted in late September.

I can walk with a walker easily now. Distance is still a problem as I still get winded after a few minutes of walking. But even that is slowly coming back. I can stand in place for several minutes at a time even without a walker. I started experimenting with a cane too.

I go outside more often, at least when the weather is nice. Haven’t been outside for a few days as the weather has been chilly and rainy. We’ve been having terrible dry spells for many months now. Any rain is welcomed. Some parts of my state got their first snow of the season. Most of Nebraska usually gets it’s first snow before Thanksgiving.

The corn harvest is mostly done. Most of the leaves are gone from the trees. The grass is turning yellow. While we haven’t had our first snow yet, it does feel like winter isn’t far away. Most nights I sleep under a fleece quilt. It is purple and made for a king size bed even though I have only a queen size bed. I bought an extra large blanket so I could wrap up whether in bed or in my recliner.

I am now in a single room. It feels good to not have a roommate again. I had a roommate for a few months. First time since May 2004 I had not lived alone. Having a roommate was the largest adjustment to long term care. I’m also getting used to having communal meals. For years I made my own meals and ate alone most of the time.

My blood pressure was kind of low a few days ago. I don’t feel dizzy or weak. But I had problems with low blood pressure during the summer. Spent three days in the hospital in July because of those problems. I guess as I am losing weight fast, I’ll have to readjust the doses on my blood pressure meds every few months. I have lost 65 pounds since late May and have lost 145 pounds overall since the pandemic started. I’ve lost most of the weight I gained after my car accident. For a few years, I was really depressed, ate a lot, and was lazy about exercising besides weight lifting. If I lose another 45 pounds, I will be the lightest I’ve been since 2012. I eventually want to get back to my old college weight, but that’s at least a couple years in the future.

I still don’t have my own wheelchair. I’ve been borrowing one from the hospital for the last five months. First, Medicaid denied to pay for my wheelchair. Then we decided to order one through the hospital with my family paying for it. Well, the chair has been on back order for over three months. I can get along just fine with the wheelchair I borrow from the hospital. There is still no timeline on when the backlog will clear up. Could be another several months. I imagine by then I will have lost enough weight that I have to get remeasured to see how big of a chair I need. My current chair is already kind of big for me. I can get around just fine as long as the doors aren’t too narrow. For the doors that are narrow, I just fold up the chair and walk through.

I can already walk anywhere in my room without a walker most of the time. Sometimes my knees hurt enough that I use the walker. I can use a cane now too.

I had a bad cold for a couple days. I isolated from the other residents a couple days ago so I wouldn’t get others sick. I tested negative for covid. In almost three years of covid I still haven’t caught it.

Decided to get real serious about weight loss right before covid hit the US. I was afraid if I caught it, it would be real bad with me being overweight and having sleep apnea. I’ve lost 145 pounds since early 2020. Currently the lightest I’ve been since mid 2016. I avoided doctors and hospitals during covid for fear I’d catch it. I more or less stayed near my complex for 2 years. I rarely left the apartment without a mask. I wore masks when I met the delivery guys for my groceries and Amazon. Grocery delivery and Amazon kept me from getting sick for over two years. Most people I know have had covid multiple times. My brother has had it at least twice.

Maybe I went overboard treating covid like a war time crisis, but it kept me safe and well. I’ve also lost an incredible amount of weight in that time. It was kind of lonely, but I had my smart phone and called friends and family every day. I dropped in on neighbors a few times per week. My cleaning lady came every Thursday and did my laundry. Even though I was home bound because of my knee and foot pain, I still managed to survive the covid pandemic.

Even though I wound up in the hospital because of my blood pressure problems (which manifest in the knee and foot pain) in May 2022, I think I made the right decision to avoid most people and hospitals during the pandemic. It was lonely and it felt like I was hiding out in a bomb shelter. But it very well may have kept me from getting sick and thus kept me alive. With as overweight as I was in February 2020, my mental health problems, and my sleep apnea, covid could have been a death sentence back then. The vaccines didn’t become available in large scales until late spring 2021. I got vaccinated as soon as I could. Only then did I relax on some of the self imposed restrictions. Once the threat of covid faded, I started concentrating on the blood pressure issues.

Now that I am doing physical therapy three times a week, my weight loss has really gone fast. I am now convinced it is not a matter of if I get to go back out on my own, it’s a matter of when now. Everyone I know is amazed by the amount of progress I’ve made in less than six months. Hopefully I can make even more progress in the coming six months. Once my knee and foot pain cleared up, everything changed for the better.

The grocery delivery service, meds by mail, and Amazon service were all godsends for me. They very well may have kept me alive during the covid pandemic. I’m thankful I was able to have regular psych doctor appointments via Zoom calls for the duration of the pandemic. It was a difficult couple of years I will never forget. I think the covid pandemic changed me for the better.

October 9 2022

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A lot has changed in the last few weeks since I wrote. I started physical therapy two weeks ago. I have three sessions per week. I can now walk in my apartment without a walker. I can get anywhere in the facility with a wheel chair. I get outside more often now that fall has hit and the weather is cooler. My blood pressure has returned to normal. I’ll probably have to take blood pressure meds for the rest of my life. But blood pressure issues run in my family. My knees and feet don’t hurt anymore. I have to take tylenol every day for my knees but it works. I’m down over 45 pounds since Memorial Day and over 120 pounds overall since covid started. I’m currently at the lowest weight I’ve been since late 2016. I can now walk several minutes with a walker non stop. And I’m the waiting list for a private room. My own personal wheel chair is on back order but if I keep losing weight and improving through therapy, I might not need it for long.

Overall things are going well. I’m doing much better than I was six months ago. I never thought this improvement was possible this fast. Therapy and I both now have the long term goal of getting back out on my own again. Even though I haven’t owned a car for three years, I still have my drivers’ license. I’m glad I kept it current through the pandemic. I had an odd feeling that I might have need for it in the future. And I just might.

After my car accident in 2015 I got really depressed and eating a great deal. Gained a lot of weight. And I’ve already lost most of what I gained after the car accident. That accident spooked me real bad but I’m glad I didn’t give up my drivers’ license. As much as I love using Door Dash to get groceries delivered to my house and I get damn near anything delivered to via Amazon within four days even though I live in a small town, I’m glad I still have my drivers’ license. I was inspired to keep my license by one of my old neighbors who had a drivers’ license for “emergency purposes” even though I never knew him when he owned a car.

Ideally I’d like to end up back in the town I previously lived in. I know that town well, still have several friends there, I love the culture of the town, and I’ve always done well in college towns. I imagine eventually I will end up living in Oklahoma near my brother and his family as my aunts and uncles become elderly. But I’m glad to have a new lease on life. And these are good issues to have. Things have really been improving in the last five to six months. I didn’t expect to improve this fast. I thought I wasn’t going to improve at first.

August 27 2022 Updates

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My knee pain is starting to clear up. I’m on a couple medications for it. Seems like it’s taking effect. I get out of my apartment at least a couple times a day anymore. It was just getting too discouraging to spend all my time at home.

My blood pressure has been stable for weeks now. I think I’m still losing weight. Some of my smaller clothes are starting to fit again. Tried on a couple of my hoodies a few days ago and they fit perfect now. Weather will start cooling off in a couple weeks so I have those ready.

Haven’t heard much from friends lately. Everyone is busy with work, family, chores, etc. Found out my friend in Denver is promoting her arts and crafts again. Won’t be too long before Christmas. I’ve bought a couple of her knitted hats in the past.

I just feel chilly most of the time lately. I imagine the blood pressure medications have changed my circulation. Rarely do I ever sit down without a blanket over my legs and feet. My joints feel worse when they are cold. My knees also ache whenever the weather changes drastically. We had a hail storm a week and a half ago. My knees were really acting up that day.

Still listening to audiobooks. Decided I’m going through Asimov’s Foundation series. I’m halfway through the first book so far. I like to listen to it while I play Civilization: Beyond Earth. That game is about setting up colonies on another planet. It’s certainly a science fiction game.

I’m thinking about hooking up my Play Station soon. I imagine as the days are getting shorter and start getting cooler, I’ll want to spend more time at home and less socializing. I still get around really well in a wheel chair. I usually make a few laps in the hallways every morning just to keep my arm strength up. Just because my knees went bad doesn’t mean my arms have to.

Haven’t seen my family since early July. I did get a good visit from an old college friend about a month ago. He bought me some updates to my Civilization game. Been playing that a great deal since. Having activities, even if it’s computer games, help the time pass on long days.

I’m looking forward to the fall. Fall is my second favorite season behind spring. I love the longer nights, the cooler nights, the changing leaves, the harvest, and the variety of sports during the fall.