June 22 2022

Been in my current place for two weeks now. Had a roommate move in after a few days. We now have our own wheel chairs, so I’m getting out more often. Spent some time outside today in the flower garden at the entrance. I still can’t walk very well. I can do well enough to get into the wheel chair and get to the bathroom. My food intake is a lot less than it was previously. That alone means I’m probably losing weight. I think covid is making a bit of a comeback as I’ve been tested twice just in the last week.

The food is alright. Most of it seems homemade and we have quite a variety. I’m not doing physical therapy. With as shot as my legs are, I probably won’t make much progress in terms of walking until and unless I lose a lot more weight.

Most nights I sleep alright. Didn’t sleep well last night. My roommate accidently left his tv on overnight. Listened to more infomercials than I cared to.

Currently in my wheel chair. I’m going to try to stay in my wheel chair until bed time. Most nights I’m asleep by 10pm and up for good around 6am. I have meds twice a day, usually with breakfast and supper.

I played some cards earlier in my stay here. I shower twice a week and shave twice a week too. I think my beard days are behind me. Mentally have been pretty stable, more so than when I was living alone. I play lots of computer games and listen to lots of audio books in my free time. Since I don’t have to go to physical therapy, I have more free time than I’m used to. I haven’t eaten restaurant food or had soda pop in over a month. I certainly could go for a double cheeseburger and a Coke sometime soon.

I won’t be having visitors until around the Fourth of July holiday. I hope they bring some treats. Since I moved into long term care, I’ve been eating more balanced meals, more vegetables, and some more sweets. My roommate’s wife brings him candy bars and diet soda occasionally. I don’t have anyone within an hour’s drive to come visit me. I think the nearest Pizza Hut to my facility is a twenty minute drive. I definately live in a small town again. So small it’s eerie quiet and dark at night.

June 16 2022

I think I’m getting adjusted to the new place and routines. Had my best sleep last night. Had to wake up only once in the night to use the bathroom. Breakfast was good and filling with pancakes and sausage. I still spend much of the day in my recliner and wrapped in blankets in spite of the heat of summer. I’ve become real sensitive to cold ever since my blood pressure has come under control. My feet still hurt. I play lots of computer games to pass the time. My roommate has a good sense of humor. Used to be an auto mechanic and is probably in his 60s.

June 15 2022

Been in my new place for a week now. It is nice that I no longer have to cook my own meals or do my own laundry. My feet are still killing me to where I can’t even walk. This has been going on for weeks. I don’t usually sleep deep. I just keep on just one day at a time.

Moving to Long Term Care. Changes in A Life Of Mental Illness

It’s been a long while since I last wrote. Updates are in order. Two weeks ago I called the ambulance as I was having issues with foot pain and blood pressure. In those two weeks, I got my blood pressure back under control, had over 20 pounds of excess fluids pulled out, and decided to move to a Long Term Care facility in my home state of Nebraska. After almost 18 years of living on my own, I can no longer manage my mental illness issues and physical health problems at the same time.

I am currently in swing bed in a hospital in a small town in Nebraska. I should be able to move to my permanent long term care unit (in the same town) by Wednesday June 8th. My foot pain has mostly cleared up. My blood pressure is back to normal. I am not diabetic. All my blood numbers are in safe ranges. But I can no longer manage physical health and mental health at the same time. I can no longer live on my own. I came to the conclusion I need more help than I was getting at my previous home.

My parents and my cleaning lady will start clearing out my old apartment probably on Tuesday. I decided I’m donating most of my books to the complex library. Give them more variety than romance, western, and crime dramas. I lived there almost exactly sixteen years. It feels surreal to be moving. But it needs to be done. I just can’t take care of all my issues on my own anymore.

I will be living on a ground floor, have access to a wheel chair, and the staff will cook my meals, handle my medications, and do my laundry and cleaning. It’s been a crazy last two weeks, that’s for sure. But these changes were needed. I should have moved into long term care last fall when I had my blood pressure issues. But, with covid still raging hard, I guess all of that got lost in the shuffle.

I Don’t Socialize Much In Person, But I Don’t Feel Lonely Or Isolated

Spring has finally sprung. I’m glad to see the end of winter. My aches and pains have been essentially non existent the last several days. Most days I’m asleep by 10pm and up for good by 5am. I’m back to listening to audiobooks again after a few weeks of vacation I still have no desire to socialize in person. I do talk to friends and family a few times a day. But I spend most of my time alone.

I’m still losing weight, at least as far as I can tell. I can stand for longer periods of time now. I have fewer aches and pains. Things are going alright on that end.

I’m still afraid to socialize in person. I’m also scared to leave my apartment. My paranoia keeps me at home most of the time. I’m just scared of people anymore. I just don’t know how to read them anymore. It’s far easier for me to socialize over the phone and online than it is to socialize in person. The pandemic hasn’t been as tough on me as most people. I love that I can socialize online and on the phone. I love that I can get my groceries and medications delivered to my home. I love that I have a cleaning lady comes to my place once a week. I love being able to make payments online. I enjoy streaming services like Netflix and Amazon Prime. Absolutely love my Audible audiobooks. Sometimes I can spend hours at a time listening to audiobooks while playing computer games. I even love doing my doctors’ appointments via Zoom calls. I have too much sensory overload to be a safe driver anymore. Haven’t driven a car in almost three years. Saved me lots of money and headaches. I now know that my car accident several years ago spooked me real bad. It killed my love for driving.

Even though I’m afraid to socialize in person anymore, I really don’t feel like I’m missing out on much. It’s always been really tough for me to find people with similar interests. It’s gotten tougher the older I got. Most of my old friends have families and careers, so their ability to socialize with me is at a minimum. I haven’t seen my friend Matt since 2015. I haven’t been to a family reunion in probably ten years. I’ve been outside of my town only once since the start of the pandemic. While my physical world has gotten much smaller the last few years, my mental world has gotten much bigger. I probably spend six to eight hours per day reading, watching documentaries, and just learning new things. I’ve learned more history, economics, philosophy, science, etc. since 2015 than all the years before that.

One of the things I enjoy about being in my forties is that I no longer feel pressured to conform to others’ expectations. If I don’t want to leave my apartment for days at a time, I don’t leave my apartment. And I no longer feel any shame for wanting to stay home. I didn’t use to be a homebody. When I was in my teens and twenties, I preferred to spend time at my friends’ houses. I went roadtripping with my college friends every summer in my twenties and early thrities. I started becoming a homebody about five years ago. And the pandemic has accelerated this trend. I no longer feel like eating in restaurants or going out in public. I know many people feel like I’m missing out on life by not going to movies or sporting events or restaurants. But I don’t feel that way. I just hate being forced out of my home.

Even though I don’t have a paying job or a family, I don’t feel incomplete or a failure. I have, on average, written one blog entry per week over the last nine years. While it doesn’t have much of an audience, I still love doing it. I see no reason to quit doing this. It has given me more meaning in my life than any job or dating relationship ever did.

March 20 2022

Another winter has passed. I spent most of it in my apartment. At this point I’m too paranoid and scared to interact with people in person anymore. I’m content to spend my days reading, watching youtube videos, and napping. I still sleep a great deal. Seems to be good therapy.

Mentally I feel stable. I want to go out and about but the fear and paranoia hold me back. I guess I’ve accepted that normal is never coming back.

Feb 20 2022

Been warmer than usual for the last several days. Supposed to get real cold starting tomorrow morning. I’m actually looking forward to it. Gives me an excuse for not feeling guilty about not wanting to leave my home. Probably just stay home, make cheese soup, and read for the next several days.

I’m feeling less aches and pains all the time. The only real bad time is in the mornings. My knee pains are all but gone but I still get lower back pain after sleeping for several hours. I got a new mattress a week ago. It’s firmer than my old one and a lot easier to get out of. I usually stay up late now and sleep until 9am.

My best friend found a new job. She has to have security clearance and can’t take her phone into her office. So I haven’t gotten to talk to her much in the last couple weeks. I miss our chats but I know this job is better for her than most of the jobs she’s previously held. She too has problems with anxiety and depression.

I think I’m continuing to lose weight. I don’t have the same appetite I had even six months ago. I’m able to make my groceries go farther. I still get winded if I have to stand for several minutes at a time. I’m also not as heat sensitive as I used to be.

Mentally I’m stable. I’m not having flare ups as often. I still do better taking people one at a time and in short time periods. I hear from my neighbors at least once a day. I still call my parents several times a week.

Been kind of lazy about reading the last several days. I always seem to read more in cold weather. Been watching lots of documentaries about America before the arrival of Europeans lately. Same with the old Silk Road.

Mid Winter Routines With Schizophrenia

Gone back to more normal sleep routines. I’m having very few aches and pains lately. I still have issues standing for more than five minutes at a time. So glad for home grocery delivery.

I’ve been more stable this week than the last couple. Most days I have only one or two flare ups. These aren’t as intense and short lived. Haven’t had much of an appetite for the last few weeks. Some days I eat only once. I rarely eat more than twice daily.

My parents are coming up this weekend. I’m getting a new mattress and microwave for late Christmas. I swear they don’t make furniture and appliances as sturdy as they used to. I haven’t had much for visitors all winter.

I’m pretty content to stay close to home these days. I don’t have to go shopping as I get everything delivered. I don’t even have a car anymore. I get sensory overload too easily anymore. It’s gotten worse the older I’ve gotten. I can’t even sit through a whole movie on Amazon Prime anymore because of too much to take in. I usually have to break it into three or four separate sessions.

Going to have maintanence come in sometime tomorrow. My intercom no longer works. It seems the older I get, the more people take my requests and issues seriously. I don’t know why my issues become more important just because I have some gray in my beard now. Any wonder why I refuse to be nostalgic? I remember how bad being a young adult could suck. I always will.

Things I Don’t Miss From My Youth

Going with a little more light hearted post today. I guess I’m getting old enough I could become nostalgic if I wanted. Yet, there are things from the past that I don’t miss. So here goes

Things I Don’t Miss From The Past

Tape recording songs off the radio only to have the DJ cut off the last twenty seconds of the song

Metal slides and shorts at the park

Leaded paint on everything

How every restaurant, theatre, and high school sports event had the thick haze and smell of cigarette smoke

Having to use pay phones

Losing my PC game CDs and having to buy entirely new ones

Bullying not being taken seriously

Having only three tv channels

Dial up internet

My car CD player skipping every time I hit a pot hole

Losing contact with friends after they moved away

Going to the mall for Back To School shopping

The fashions of the 70s and 80s

The Cold War

Getting my news only from CNN

Typewriters

8 bit graphics on video games

Having to blow on my game cartridges to get them to work

Lax enforcement of drunk driving laws

Recovering After A Rough Spell

I’m starting to recover after a couple rough weeks. Been feeling more paranoid and irritable than usual. Things started getting better a few days ago. I’m back to more regular sleep even if I am staying up a couple hours later than usual. I still sleep half of the night in my recliner. It seems to be easier on my back and knees.

So far has been a milder and dryer winter than usual. We haven’t had anywhere near normal snow. It actually feels more like prolonged autumn than winter some days. Still gets real cold at nights.

I really haven’t changed my routine much. I drop in on my neighbors once a day. I go to the complex library at least once a week. I contact my family usually once a day. Still listen to lots of audiobooks. I usually kept to myself most of the time for fear of having a breakdown in public. Finally had a minor one a few days ago. Didn’t last long but it was healing like having a good cry or any other emotional release.

Broke down and bought some smaller shirts several days ago. I’m down a full shirt size in the last two years. My aches and pains aren’t nearly as bad. I still get winded occasionally but I can recover from those faster than even a few months ago. I do have problems falling asleep but I get quality sleep once I do sleep. 4am to 9am seems to be my best sleep time. I still take my meds every night. They sometimes make me sleepy.