Physical Therapy

Completed my first week of chiropractic therapy today.  One week down, eleven more to go.  The x-rays on my back show that my hip and shoulder are slightly out of alignment.  Same x-rays show I have little to no curve to my spine.  The doctor said that the car accident only made things on my lower back worse. In addition to going to the office three days a week, I do neck and back strengthening exercises at home every day.  Getting my back into proper working order is going to be another of my winter projects.

Next Tuesday I am getting my throat and stomach scoped again to see how bad my ulcer problem is.  So it looks like I’m going to be getting real familiar with hospitals and doctor’s offices in the coming weeks.  Talked to nurse this afternoon over the phone.  She took down essentailly my entire medical history.  After I get scoped, who knows where we go from there.  I’m not even sure how ulcers are treated.

Right now it is possible I might not get to settle into the routine I so desperately crave.  Nothing in my life has been routine since at least late spring.

Return to ‘Normal’ with Schizophrenia

It’s been a week since I was in the emergency room for getting my esophagus scoped.  Had to take it easy for a couple days but I’m back to normal.  At least as normal as things are going to get with schizophrenia.  It’s been two weeks since I had a third anti psychotic medication added.  It appears to be doing the trick as I haven’t had any kind of upsets or flare ups in anxiety or agitation for several days.  I’m even sleeping better now.  I still keep odd hours as I typically do better at night when there are less stimuli and fewer people out and about. I can say things are starting to return to normal again.

It has been some time since I was able to have any routine for any length of time.  I had my best friend’s wedding in July.  In addition to the wedding I had the last of my grandparents die.  While I wasn’t completely torn apart by my grandmother’s death, I know it effected me in other ways.  I got out of a regular sleep pattern, which makes mental illness problems worse.  I became especially lazy about watching what I ate and didn’t exercise as much as usual.  I was more irritable and short tempered too.

I had what has essentially become my late summer or early fall mini psychiatric break in early October.  Traditionally I have my break downs in August or early September.  I was hoping to make it through the rough patches and lack of routine without a breakdown.  No such luck.  Fortunately I was able to talk down and burn myself out.  For most people as bad off as I was, going a mental health hospital is the best option.  Since I have such a great support system in my immediate and extended family, I was able to talk my way out of my flare up.  I don’t know how my family is able to deal with my flare ups and break downs without taking them personal.  It has to be hard.  It’s hard enough for me when I’m going through them.  I am concerned for when my family members begin dying off and I have to find different support people.  This is a fear of mine.  Perhaps by then treatments will be developed that are even better then what are available now.  Maybe there will even be a cure.  In the meantime I keep moving on and attempt to keep a since of normal with schizophrenia.

Recovering From Several Rough Days With Mental Illness

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Had several rougher days than normal lately.  One of those days involved a bad episode where I was close to checking myself into the local psych hospital.  Fortunately one way for me to break out of bad episodes is to just talk my way out of them with friends and family, literally allowing myself to speak out of my distress.  It is a tough process for all involved but it does work, at least in my case.  I do not recommend this for most people because there can be many hurt feelings on the part of support people, friends and family.  I think the reason it works for my case is that I grew up in a stable family who would drop everything for one of their own at a moment’s notice.  My family handles these problems like champions and saints.  I don’t know how they do it without taking these episodes personal.  After I’ve burned myself out I make it a point to tell them that it’s nothing personal and I’m sorry for what happened.

Saw my psych doctor on Monday afternoon.  We added a new psych medication and a temporary medication to aid in sleeping.  Haven’t been sleeping terribly well lately either.  The psych issues and the sleep problems just feed on each other no doubt.  But I’m a couple days into a recovery.  Things look promising again.  I hope things keep going better.  I’ll keep you posted as I document these last rough several days and my attempts at recovery.

Reflections On Being a Recovering Doom Junkie

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As I’ve been laid up for the last few days with a sore foot that is only now starting to clear up, I have been allowed the opportunity to reflect back on all the changes that have happened over the last several years in my lines of thinking.

I turned 35 years old this summer.  Even after being a college graduate, working for several years, and being on my own for a dozen years, I’m still not as smart as I thought I was at age 18.  But, I enjoy being an adult.  I also have enough years of experience that I’ve survived several supposed “end of the world and collapse” type scenarios that I chuckle every time I see such drivel. After seeing the ’88 Reasons for the Return of Jesus in 1988′, the Branch Davidians, the Hale Bop Comet cult, Y2k, 9/11, the tech bubble, the stock market bust of 2008 and subsequent Great Recession, the Mayan apocalypse of 2012, listening to my grandparents’ stories of the Great Depression, Dust Bowl, and World War II, and seeing ‘evidence’ that every U.S. president since at least JFK was supposed to be the Anti-Christ, I’ve developed the attitude of “Meh, let it come.”

I suppose this is an advanced line of thinking, especially since I am prone to unhealthy paranoia.  But the older and wiser I get, the less time I have for doom and gloom nonsense.  I spent a couple years researching some of that doom nonsense myself and even thought some of it possible.  But then, I used to think that Santa Claus, the Easter Bunny, magical elves, pixie dust, and Disney fairy tales were possible too.  When I was a child I thought and acted as a child.  Now that I am a man I put foolish and childish things aside.  Wise words, St. Paul.

As I’ve experienced changes over the course of my 35 years I’ve come to the conclusion that change is the only constant.  I’ve come to embrace it and actually hope for even more. I’ve also accepted that there are always going to be hustlers and well meaning fools that are convinced that the ends of civilization and humanity are just around the next corner.  If I live long enough I’m probably going to see blogs and youtube videos, or the successors to blogs and youtube, about how the manned missions to Mars are hoaxes, how greedy elites are hoarding the proceeds from asteroid mining for their evil purposes, how we’re all going to die from nanotech and anti-matter experiments gone bad, etc.  I’ve seen enough of this before.  Nothing new.  Since our ancestors survived several ice ages and bubonic plagues I know at least some people will be able to whatever comes our way in the future.  One could make a fortune not betting against humanity.

Return to Normal With Mental Illness, Part 2

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Fall is just a few days away after a long and eventful summer.  I saw my best friend get married and we buried the last of my grandparents.  Partly because of these developments I became lackadaisical about my exercise routine.  I was taking so much time dealing with externals that I neglected to take care of myself and gained some weight.  Fortunately I made it through the summer with only one relapse into schizophrenia and even that lasted only an afternoon.  This time two years ago I had just gotten out of a mental health hospital after a voluntary commitment.  Two years in a row now I’ve made it through the roughest parts of the year without a major problem.  I’m feeling pretty good about that.

The leaves are starting to turn, the weather isn’t as hot now, and the corn harvest will be going really hard and fast within a few weeks.  I have always enjoyed this time of year, almost as much as spring.  My mental health always improves in the fall and I seem to get a lot done in these times.  Recently I sign up for khanacademy.org and am working though a few of their free online courses, namely chemistry and world history.  This will be one of my fall projects.  My winter project will be to get an General License in ham radio.  I already have a Technician License that I studied for last winter.  With the increased exercise I have my projects for fall and winter already lined up.

A Wedding For A College Buddy and Ramblings on Getting Older

Starting on Thursday, I’m going on an out of state road trip for my best friend from college Matt’s wedding.  I’m happy for him as he’s in his late 30s and one of these guys I figured would be fine about not marrying.  He didn’t date at all in college for the three years we were in school together.  I was the one who was trying to get dates.  We pretty much spent our time in college playing strategy games, having all night marathons of discussing history, politics, philosophy, sports statistics, economics, spending our Saturday afternoons watching college football games from practically noon to midnight, and going to the all night diner near Interstate 80 for the 99 cent bottomless cup of coffee and greasy chicken fried steaks.  These were the kind of steaks you could hear your arteries clogging after a few bites.  Matt also got me started on my coffee addiction.  We weren’t drinking Starbucks or anything trendy.  He started me on his ‘cowboy coffee’ that if it were any stronger we’d be spitting out the grinds between swallows.  His was the kind of coffee that after a couple cups, you wouldn’t need to sleep for a couple days.   Since neither of us were much for drinking, we didn’t have times good enough that we can’t remember anything.

He’s now in his late 30s and I just turned 35.  It actually isn’t bad being older.  As I’ve gotten older I realize I don’t have to put up with other people’s garbage if they are disrespectful and their disrespect isn’t a reflection on me.  Surprisingly I do not find myself complaining about the “lazy kids” at all.  I often complained about the ignorance and foolish actions of my peers while in high school and college, wondering when my peers would actually grow up and “act like adults.”  But as I’ve gotten older I’ve seen that maturity and age do not always accompany each other.  I’ve seen teenagers who are wise enough they could be in their thirties and I’ve seen people in their seventies gossip and argue like they were still in grade school.

After awhile I came to see we humans really do concern ourselves over trivial nonsense that doesn’t matter at all.  Case in point is the old men who complain about how disrespectful and lazy kids are in 2015 while forgetting that when they were kids in 1955 the old men in 1955 had the same complaints about them.  And I also heard about good the ‘old days’ were and how the world is now heading to hell in a hand basket.  But the old days were never trouble free any more than modern times.  Mayberry may have been peaceful looking on ‘The Andy Griffith Show’, but they never aired the scene with Opie doing ‘Duck and Cover’ drills in school.  And in real life Floyd the Barber may have had a ‘whites only’ sign in his barber shop, especially in the South.  Or go back to the late 1800s with the ‘Irish Catholics Need Not Apply’ signs in businesses.  I could go on but you get the picture.

As I’ve gotten older I’ve seen patterns from history play out more than once just in my lifetime. People complained about kids playing the old Nintendo systems while ignoring how we spent time outdoors too in the 1980s.  Today, people complain about kids playing Xbox while ignoring how they spend time outdoors too.  The Cold War was keeping people busy with fear as movies like Red Dawn (the Patrick Swayze version) and The Day After were big in the 1980s.  Now ISIS and other terrorist groups are keeping people busy with fear as movies like American Sniper are big in the 2010s.  Gotta keep the pot stirred up I suppose.   LGBT freedoms is a social issue now but who knows what it could be 30 to 40 years from now, freedoms and civil rights for AI machines or genetically modified humans?  Could it be in the far future when we colonize the Moon and Mars, could those two places argue for independence from Earth?  I can picture a futuristic version of a ‘Don’t Tread On Me’ flag being flown in a Martian dust storm.  Humanity has been heading to hell in a hand basket long before we had idea of hell or hand baskets.  Yet we still haven’t gotten there.  And some will  continue to nostalgically believe things were better in bygone eras.  Nope, things are in flux enough that the only real constant in our lives is change.  To quote the great philosopher Gomer Pyle, “Surprise, surprise.”

Coming To The Acceptance Phase

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My mental health has been quite stable for several months.  I’ve probably come to a point that after 15 years with a diagnosis I know my triggers and problem areas well enough I can avoid these without even thinking about it.  I’ve put in enough practice now I have carved out enough of a niche that I don’t really miss things I would have missed five to ten years ago.  I have now come to accept that I don’t have to be defined by a career or lack of in my case.  In my case a career never really launched but it wasn’t from a lack of trying.  In my twenties I had read about those who had schizophrenia, bi-polar, autism spectrum, etc. that went on to have great careers and families.  I thought ‘if they can do it, why not me?’  So I tried various job fields but never could overcome the anxieties and panic attacks I often had with working and socializing.  I’ve come to the level of acceptance that a traditional career, family, and American Dream type of life isn’t going to happen, but I’m alright with that.  I don’t have a problem with not achieving this even if others I know do.  These others do not live my life for me.

Psychiatrists often talk about levels of grief when something bad happens, like a death of a loved one or the loss of a career.  I think they go something like Shock, Disbelief, Anger, Bargaining or Denial, and Acceptance.  I went through all of these, slipped back between stages at times, and only within the last couple years have I come to accept that I won’t have the great career, great family, picket fence neighborhood type of life I spent my younger years working so hard in school to get.  Yes, it would have been cool and I know I would have done well in that type of environment without a mental illness.  But, mental illness is one of those wild cards that no one can foresee or even plan for.  Back up plans for getting mental illness do not exist.  When things do happen, it will take time to come to a level of acceptance where it’s like ‘Yeah this happened and it sucks.  I didn’t do anything to bring this on. It can’t be changed but I’m alright with it.’  It takes a lot of time and a great deal of hardship, but acceptance of life with mental illness can be possible.  But it’s a very tough road to travel to come to that level of acceptance.

Happiness, Love, and Mental Illness

Happiness, Love, and Mental Illness.

Reflecting on the Past before My Birthday

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On June 14th, I’ll be celebrating another birthday.  I’m getting to the point where I’m almost halfway done with my life, considering normal lifetime expectancy.  I’ve also lived over half of my life with schizophrenia at this point.  The biggest thing I have figured out over these 35 years of living as a human is that the only true certainties in life are change and unfairness.  We can make all the plans we want for our lives, but nothing goes exactly to plan. There will always be snags, problems, opportunities missed (and taken), and changes in direction.

When I was 16, I had the next 30 to 40 years of my life planned already.  I was going to graduate from high school, then college, then medical school, then go on into medical research, get married, have a couple kids, own a house in the suburbs of a large city outside of Nebraska, make well over six figures, and help develop something that would benefit humanity through my research.  Besides graduating from high school and college, none of that happened.  For years I was brutal on myself thinking “It’ll all fall into place when you get your big break” or “People less intelligent and less ethical than you are having good careers, why can’t you get things together”.  I spent my twenties after college going from one remedial job after another, finding out the hard way that my ability to handle stress and interpret social cues and understand social norms were all severely damaged by schizophrenia.

For those years of struggle, I thought I was a failure and not trying hard enough.  I would get panic attacks and bouts of nausea before I had to go to work every morning.  It got so bad I had my stomach scoped to see if I didn’t have some underlying gastro intestinal problems.  I didn’t.  I also had to spend years listening to the whole “all your problems are in your head” nonsense.  Everything we experience is merely electrical signals interpreted by our brains, so no kidding it’s in my head.  It’s in all of our heads.  Telling someone with a mental illness it’s in their heads is cruel and does nothing for them.

I was also told the whole “have faith and it’ll help you” nonsense.  I won’t even address that subject except to state I had more faith than everyone I knew until my early twenties and I still developed a mental illness that destroyed my productive ability.  I still get these feel good memes that oversimplify while not addressing root issues.  I even had someone I thought was a friend tell me, to the effect, I wasn’t a real man because I didn’t have a job or a family.  I still deal with ignorance and cruelty after eighteen years of mental health problems.  Granted it doesn’t ware on me or anger me as much as it did ten years ago, but it still hurts.

Seen and experienced lousy things, horrible hallucinations, and harbored horribly violent thoughts in eighteen years with schizophrenia.  But I did learn to not discount kindness and empathy when it does come.  I also learned the value of real, genuine friends, something that not many people have at all in their circles of friends.  Hopefully the struggles, disappointments, and good friends of the first 35 years will prepare me well for the next 35.

Sleep Problems And Mental Illness

One of the early warning cues to future mental health problems is changes in sleep patterns.  I’ve been sleeping only five to six hours a night for the last two weeks.  I usually average eight hours a night.  Usually when I sleep too little, eventually I’ll have problems with irritability and anxiety.  When I sleep too much I’ll have problems with depression and lethargy.

While not needing much sleep usually allows me to be more productive, it comes at a price.  In time I’ll become more anxious and easily angered.  After dealing with mental illness problems for almost twenty years, I’ve come to recognize long term trends and problems before they arise.  One way I’m trying to get back into a more even sleep pattern is reducing caffeine.  This is a tough one for me as I love both coffee and black tea.  I also won’t eat at least four hours before bed because, for me, eating anything gives me a boost and makes me stay awake later.

But this time it isn’t the late nights that are the issue.  It’s the early starting mornings.  I have literally been awake before sunrise probably all but two days in the last two weeks.  Not sure what to make of this.  I’m thinking it’s possible that all these years I was convinced I was a night owl was really my caffeine addiction talking.  If I was smarter, I’d go a couple days without any caffeine and see if that resets my sleep patterns.

In short, my sleep patterns have been heavily slanted to not getting much sleep lately.  I can tell it’s starting to take it’s toll.  I’ve been slightly more irritable, anxious, and more short tempered than usual.  It’s time to change this trend before it leads to more serious issues.