Tag Archives: schizophrenia

Stability With Schizophrenia

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I’ve been on my current medications for about five months.  In that time I was able to avoid my traditional late summer breakdowns.  I’ve also gotten more physically active and more careful about what I eat.  In short I’ve entered a prolonged state of stability that I haven’t experienced in a few years.  It’s a good feeling.

I have been feeling much less easily irritated for the last couple months.  I’m back to a regular sleep pattern.  I am convinced that regular sleep only helps with mental illness.  I tend to be more irritable and have more hallucinations when I haven’t been sleeping well. I have been doing quite well the last several weeks.

I have taken three medications for my mental illness for the last five months.  One of the meds is an anti anxiety medication I take as needed.  It really works to alleviate anxiety but it does make me sleep a lot.  But it was one of those medications I had to take only as necessary.  I haven’t needed to take it for over three weeks.  I have been doing well in terms of dealing with anxiety.  I get out of my apartment more often and am able to run my errands.  I still don’t socialize as much as I had in the past.  Much of my socializing comes online anymore.  But many people’s social lives are based online these days.

In short things have gone quite well the last couple months.  I made it through the summer, I’m back exercising again, I’m eating healthier again, I’m getting better sleep, I’m managing my anxiety and depression better.  It’s going really good right now.  I hope to keep it going.

Thoughts on Passing A Milestone and Advocating for the Mentally Ill

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I had my 10,000th visitor to this blog earlier this week.  I’m also getting my first visitors from China.  In three years of doing this blog on a regular basis I’ve had over 10,000 visitors from over 90 different countries.  Thank you to everyone who has taken time to read my musings, ramblings, and rantings.  I hope to keep this blog a regular thing and see what can be made of it.

I think as more stigmas and myths about mental illness are being dispelled and broken more bloggers and podcasters will come forward and tell their stories about their wins and losses with mental illness.  Most stigmas about other traditionally marginalized groups are being broken down all the time.  In 1950 who would ever thought that USA would have a black president?  In 1970 who would have ever thought two of top four candidates for US president would be women?  In 1990 who would have ever thought that rights and protections for the LGBT communities would be pressed for?  And many people now still think mentally ill people should keep quiet and stay on the fringes of society.  Why should we stay stigmatized and dismissed?  Why is it in 2016 and after 20 years of easy internet access that there are people who are still convinced that mental illness is not real?  I don’t suppose I’ll ever convince those people that mental illness is real and that it sucks.  But I will still be writing blogs and essays about it for years to come. I might even start a youtube channel and a podcast about life with a mental illness in the coming years. These critics will move out of influence and die before I stop writing and being open about my mental illness.  Fight to keep mentally ill people marginalized all you want, but you will lose this fight and you will be on the wrong side of history.  People who fought to keep racial and religious minorities marginalized failed.  People who opposed opportunities and freedoms for women lost.  People who aim to keep people of different sexual orientations down are losing their battles.  In the coming years we will see the same thing for mental illness.  Fight us all you want but you will lose.  We will not keep silent anymore.  We are not going away.

 

Change of Season, Change of Mood, Change With Age

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The weather is cooling off, especially over the last few days.  The nights are almost as long as the days now, some farmers are beginning the harvest, farmers’ markets are open all over the place, and I’m getting outside more.  I’ve had my windows open the last few days and I’ve pretty much stopped using my air conditioner.  Yes the change of seasons is upon us.

I for one am glad that summer is over.  Mentally I’m just not very stable during the summers.  And I never could figure out why.  I didn’t experience any true tragedies or trauma as a child.  I was bullied in school but I know kids who got it worse than I did.  I’m thinking many of my problems during the summers stem from dealing with the heat and humidity.  I never did like hot weather.  I like spring in the fact that there are still cool days but not weeks on end of hot weather.  And I like fall because of the cooling weather, the fall leaves, and I’ve always enjoyed fall activities more than summer.  I’m sure that being overweight doesn’t help in dealing with hot summers, let alone dealing with a mental illness.

Mentally I was more stable this summer than most previous summers.  Even though I couldn’t do much with a bad back I was still pretty stable for the most part.  Now that I’m healed from my back I am getting outside more.  I am also eating less too.  I can tell my stamina is coming back, more slowly than I would like but it’s still coming back.  I think that I have made it through the roughest part of the year already.  I hope that things keep getting better.

I have noticed a few changes with my mental illness over the last few years.  I can tell that things that used to bother me real bad don’t bother me as much.  If I had dealt with a problem a few years ago, I’d be angry for an hour or two.  Now I’m over such things in only a couple minutes.  I’ve become more accepting of the illness now.  I’ve accepted that I’ll never have a great career or a family of my own.  This used to bother me real bad as recently as five years ago.  Now I’ve just accepted it and planned accordingly.  Since I see that many of my friends are having problems at their jobs and marriages, I’m actually thankful in some regards that I never got to go that route.  I have the problems of a mental illness but I don’t have the problems of a stressful job and hectic married life.  I have a mental illness but I don’t have as much stress and pointless drama as my friends.  And I love it.  I don’t have much money or prestige but I do have peace of mind.  I wouldn’t trade that for anything.

End of Summer

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It’s Labor Day weekend in my country.  Many people are going to the beach or having their last party of the summer.  I decided to stay home this weekend.  I don’t like fighting crowds.  It has been a tough summer for me.  Summers are usually tough because of mental illness problems.  But this is the first summer I’ve had in several years that really wasn’t that hard in terms of mental illness.  This one was tough because I hurt my back and spent two months healing.

I’m finding it hard to believe that fall is practically here.  I do pretty well in fall.  I have most of my problems with mental illness in the summers.  There is definitely a seasonal aspect to my illness.  I’m looking forward to the cooler weather and the beauty of the fall leaves.  While I didn’t have the mental health problems this summer I’ve had in previous years, I didn’t get out to enjoy the summer much.  It was a letdown of a summer that stretched for longer than normal.  I’m not sad to see summer end.  I’m ready for cooler weather.  I’m even ready for snow again.  I’m glad that I was able to make it through this summer with fewer than usual problems.  Perhaps my problems with schizophrenia are starting to decrease with age.

Feeling Good With Mental Illness

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Been feeling pretty good for the last few weeks.  I haven’t had my traditional summer break down.  Hopefully I can get through the next couple weeks without any issues.  I usually start feeling better in early September with the passing of the warmest weather of summer.  I never have dealt well with the heat of summer.  I had problems with summer heat even before I had a mental illness diagnosis.  I have always enjoyed winter and spring more than summer.

It might help that I really haven’t been outside much this summer.  When I do exercise it’s usually walking the hallways of my apartment complex.  I didn’t go outside much this summer so I was never truly exposed to the heat and humidity.  I have driven less this summer and driving does sometimes cause me aggravation.  I definitely try to avoid driving anywhere when I’m going through excessive paranoia and depression.

I think the change in psych medications has helped me greatly this summer.  I was having flare ups every several weeks before I switched over.  Haven’t had any prolonged breakdowns since.  I switched over to a medication my DNA testing said would really benefit me.  I know I have been less physically active but I have also been more mentally stable this summer than previous years.  It’s a pity that I have to choose between physical health and mental stability.  But years ago my only options would be long term hospitalization with no way to alleviate my symptoms or homelessness.

In spite my previous problems I am still hopeful for the future.  Of the three medications I am currently on, two of them didn’t exist even five years ago.  The DNA tests that told me what medications would be most effective didn’t exist until recently.  When I was first diagnosed in 2000 we had to try medications at random and hope that something took.  We were wandering in the dark in that regard.  I am glad that I wasn’t born in 1930 instead of 1980 with this diagnosis.  Back then my only treatments may have been long term hospitalizations and electroshock therapy.  As it is I can essentially live alone, granted with a government sponsored disability pension and taxpayer sponsored medical treatment.  But it could be that this route is cheaper than long term hospitals like the 1950s.  Being on anti psych medication, having a small routine, having enough money to cover food, rent, and minor entertainment, living on my own, etc. is certainly more humane than being long term hospitalized, prison, homeless, or dead.  For most of human history I would have been dead with this illness before my 36th birthday.  As it is my worst problems now are occasional flare ups and my sleep apnea.  I am thankful for medical science and it’s advances.  I probably have a shorter life expectancy with this mental illness than I would normally, but I plan on staying around for awhile and seeing what I can accomplish in spite of this illness.

When I first applied for disability insurance ten years ago, I pretty much thought my life was over.  I thought I would be regulated to a short and brutal life of being anonymous, poor, tormented, and unknown outside of family and a few friends.  I didn’t plan on writing a blog about the experiences I’ve had over the years.  But even with this diagnosis I didn’t want to waste my talents.  I didn’t want my losing my shot at a career and a family to have been in vain.  I didn’t want this mental illness to destroy everything.  That’s why I blog as much as I do.  I suppose if I knew anything about making videos I would start a small youtube channel about life with a mental illness.  But that is probably a future project.

 

Staying Calm With A Mental Illness

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For a few weeks now I have been feeling quite decent and not having any flare ups of my schizophrenia.  I had some minor flare up this afternoon.  I’m not sure what caused it but fortunately I remained calm and quiet and just let the feeling pass.  Traditionally during flare ups I call my family and just yell incoherent nonsense to them until I calm down, usually taking an hour or two.  Fortunately this time I kept calm and kept quiet.  I stayed in the apartment, turned off the tv and social media, put on a computer game, and kept myself distracted.  After about a half hour of this I calmed down I went to a fast food restaurant near my place and ordered a large dinner.  I brought it back to my apartment, ate quite well and drank lots of water. Oddly eating a protein rich meal can often make me more calm.  I haven’t been eating as much as I normally do as I’m trying to get that back under control.  For a week I had been eating protein only one meal per day.  I broke out of that today.  High protein foods like steaks and hamburgers have a calming effect on me, though I’m sure they’re not good when you’re trying to drop weight.  I am convinced I’d never make it as a vegetarian.

I’m glad that I was able to find another route to ward off my flare ups.  I’m glad that I was able to break out of past routines.  I’m sure me yelling incoherencies to my family isn’t easy for them.  My parents will be gone someday, probably sooner than I would like.  While it might be true that problems associated with schizophrenia lessen with age, I do know I can’t yell at random friends and therapists and hope to stay out of a mental hospital or even jail.  Perhaps my mental illness problems are starting to lessen.  I know that my interest in dating is far, far less than it was even five years ago.  I have heard that many men in their mid thirties start losing interest in sex and find more interest in their work or life’s calling. I’m also not as quick tempered as I was five to ten years ago.  I have also noticed that I can better deal with the minor annoyances and irritations of every day living than I could even a few years ago.  The flare ups I have had even going back to last Christmas weren’t as bad or frequent as the flare ups I was having in college.  Perhaps it is that as I age I am learning what will make things worse and just make points of avoiding those things.  Maybe this instance of just isolating and keeping myself distracted with as little noise as possible until I calm down is another tool in my toolbox.  And maybe I should think about eating fewer carbs than I have been the last few weeks.  But I am definitely glad I was able to prevent a flare up from becoming a full breakdown.

A Sense of Calm with Mental Illness

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It’s been a quiet and calm week for me.  I can tell the weather is starting to cool and that autumn is only a few weeks away.  School has already started in my hometown.  I was at the Wal Mart on 10pm on a Friday night and the place was packed with high school and college students doing last minute back to school shopping.  Years ago when I was in school, it seemed like the place to be on the weekend before school started was parties that amounted to the last fling of summer.  Maybe the younger people today have better priorities than what previous generations had.  It was also the first time I used a self check out machine.  Just scanned my items, swiped my debit card, and bagged my purchases and left.  Sure this may put some cashiers out of work but who dreams about being a cashier working for minimum wage when they are kids?

From about early July to the first week of September has traditionally been rugged times for me.  Both times I checked myself into a mental health hospital were in early September.  Many of my major flare ups and breakdowns have come in July and August.  The first time my parents saw me break down was around Independence Day back in 2000.  I didn’t have the serious breakdown last summer besides yelling out a store clerk in early July (which I immediately apologized for).  Originally I thought I didn’t have the breakdown last summer because I had extra resiliency because of my grandmother’s death.  Besides yelling at one friend over the phone for a couple minutes and writing a nasty email to a second friend last month, I really haven’t had many problems this summer.

I still don’t go out as much as I had previously.  Anymore I’m somewhat content to just stay home, read books, write blogs, play computer games, and Facebook with friends. I call friends and family on the phone almost daily.  I am having more frequent and longer conversations with my best friend from college.  We usually call each other every Sunday night and chat.  For the first several months after he got married I kind of backed off and just gave him and his wife their space.  He’s a huge history and sports geek (just like I am) so it’s not uncommon for us to be discussing baseball statistics, the ancient Greeks, 19th century German philosophy, and American foreign policy within the same phone conversation.  I love people like that.  Tragically I don’t find many people with those kinds of interest.  My old friend Pastor Verne was one of those types.  He was fluent in both ancient Hebrew and ancient Greek from his days in seminary.  He was a brilliant man.  I’m glad I got to know him.  I hope to be that interesting and sharp if I ever make it to that age.

I got my insurance settlement this weekend.  I wasn’t planning on anything extra from the accident besides getting my car fixed and coverage of my medical bills.  But I am now sitting on top of a wind fall I wasn’t really expecting.  I imagine most of it is going into the emergency fund.  One of the positives of being debt free is I don’t have the pressure of having to make payments every month.  It feels good to not have debts, to have an emergency fund, and a few options.  Those are the best stress busters I have ever found.

As this is a lazy Saturday afternoon in late August I currently have a college football game on in the background as I’m writing this  Football is one of my guilty pleasures.  I’m not obsessed over it but I do like to have a game going on in the background on idle fall weekend afternoons.  I do kind of feel bad about watching young men maim themselves for my enjoyment.  But at least it’s not as violent as Roman gladiators fighting.  I can tell that summer is all but over now that I’m watching a football game.  From the Summer Olympics to fall football within a few days of each other.

 

Looking Forward To Fall

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Now that my back has completely healed I’ve been getting out of my apartment more the last couple weeks.  At my most recent doctor’s appointment I found out I gained 15 pounds this summer.  Most of this is no doubt due to lack of physical activity and my eating too much comfort foods.  I did spend  this summer with alternating periods of depression and irritability.  I spent too much time indoors and exercising my mind and not enough exercising my body.  In short, this summer has been a loss in terms of physical health and activity.  The only positive of this summer is that I’m posting more on this blog and have gotten some more audience.

But fall is just a few weeks away.  I can already tell the days are getting shorter.  We also are no longer having several days in a row with nothing but scorching heat.  Looking ahead I see that we’re supposed to have some more cooler weather over the next several days.  I have spent most of my afternoons indoors avoiding the heat.  Since I spent the first month of summer on the mend I never adjusted to the warmer weather.  I normally have bad times during the summer.  Besides the blow ups on a couple friends I haven’t had any real serious problems this summer.  I know that I still have another three to four weeks of traditionally bad times ahead.  Hopefully I can make it through without anything else major.  I made it through last summer before having problems in October but I think working through my grandmother’s death made me more resilient because I had no options.  So my problems last year weren’t avoided as much as they were delayed.  So far things look good mentally.

I have been bored by the forced inactivity this summer.  Besides seeing my family a few times I really haven’t had much for social activity since Memorial Day.  But with the weather starting to get cooler and the nights starting to get longer, maybe my social activities will increase in the coming weeks.  I admit I am not sorry to see this summer go. I’m ready for cooler weather again.

 

Experiences With Mental Illness Blogging

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I’ve been doing this blog for over three years.  And I absolutely enjoy every minute I spend blogging.  I enjoy it more than any traditional job I ever had.  I enjoy it even more than the classes I took in college.  I don’t have to be forced to write about mental illness.  I would do this for free.  I am doing it for free unless I get any kind of advertising revenue or sponsors.  I wouldn’t refuse any money that comes my way even though I am not delusional enough to think I can get off disability pension from blogging.  I have been doing this blog for three years and not made a cent off it.  In my twelve years of overall writing I have probably broke even between selling print on demand books and what I spent advertising my blog through Facebook.  I don’t suppose many people can claim they have a passionate hobby that almost pays for itself.

After spending several years with selling only a few dozen books of mental illness essays and poetry I really had no expectations with this blog.  I didn’t know what kind of a following I would have or even if I would have a following outside my mother and a few friends.  So I set up shop with a free blog site and started writing blogs about what it is like to have schizophrenia to people who can’t imagine it.  This isn’t the first blog I ever did.  A friend and I did a blog several years ago.  It never gained more than a couple hundred views because we were unfocused and not posting regularly.  I did a blog about my poetry for awhile before I found out I wasn’t much of a poet and there really isn’t a great demand for average poetry.

After examining what I liked to read, what I was good at writing, and what I gained good audiences from, I decided three years ago to focus on writing about my experiences with mental illness.  That’s when I gained more than a few readers.  After years of experimenting with styles and genres, I came to the conclusion I do best writing nonfiction essays from the first person point of view.  I had written rough drafts for two coming of age type novels both from first person view.  They didn’t really hold together and I later found out for fiction novels that first person is tougher than third person point of view.

Once I found my niche and style I had a few visitors coming in with every blog post.  After it became a weekly posting I had a few more visitors.  The thing that helped me gain more visitors was posting often.  A blogger simply can’t build any kind of audience by posting only once or twice a month or only when the creative muse moves them.  Most of my favorite individual youtube content creators post several times a week and have for several years.  I’m not at that kind of proficiency, but perhaps I could be if I keep posting material.  I think it helps to get a body of work of several dozen postings at minimum so that search engines can find your work easier.  As of now I have had close to two hundred postings over the last three years and a little over 9,500 visitors from 90 different nations.  There are bloggers (and youtube stars) who get that even on bad days, but I’ve been working at this for only a few years and haven’t done as much advertising as some people.  Being on a limited budget with a disability pension I have to be choosy about what kind of advertising I do as it still costs money to get truly noticed.

Early on in the first several months I got some audience from following other bloggers and leaving positive comments on their articles.  I left nothing but positive comments.  If I didn’t agree with a particular post I just didn’t comment.  I didn’t want to gain the reputation of a troll or troublemaker.  Having a good reputation on the internet is more valuable than gold.  I got some following from following other bloggers and I tried to direct some of my readers to bloggers who helped me out.  But leaving positive comments on other blogs, following other blogs, and trying to refer traffic to other blogs helped me out in the early months.

Even though I have a few years of blogging experience and some following I don’t consider myself established by any means.  I don’t think there can be anything really established as far as the internet and the current information revolution goes.  I was learning as I went when I wrote my first words twelve years ago and I’m still learning new things even today. I was a bit frustrated in the early years when I would get rejection notices in the mail several times a week.  I was also frustrated in the early postings when I wasn’t getting more than a few visitors per post.  But looking back on it, I see how rough and raw most of those writings were.  I’m glad they didn’t get published.  And I’m sure in several more years I’ll look at some of the things I’m writing now as rough and unpolished.  It’s a continuous process that never ends.  I hope to always keep improving as a writer so I can better explain to people what living with a mental illness is really like.

 

 

Being Alone With A Mental Illness

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It’s been months since I’ve had any kind of normal for any real length of time.  But I think I’m entering a phase of normal in what has been traditionally a tough time of year for me.  I am still diligent about what I eat and I still make an attempt to exercise daily.  I have started lifting arm weights a week ago.  I can feel my stamina from lifting weights begin to rebuild even after only a few sessions.  I feel pretty stable mentally for the most part.  And when I do feel flare ups coming on I make it a point to isolate and avoid people.  I would definitely hate to have a mental breakdown around someone who doesn’t understand mental illness.  In my apartment complex we had an individual who got belligerent with a fellow tenant and it got so seriously out of hand that the police became involved.  I have had my problems in the past and I still isolate and avoid people when I feel the mental illness coming on.  But fortunately the police have never needed to be involved with my problems.  Which is a good deal as I have an unhealthy paranoia about the police to begin with.  I just don’t trust them or any other authority figures.  I’ve had too many bad experiences and too much paranoia to trust anyone with any kind of power.  Makes life tough but I don’t any other kind of life being available to me.

I still don’t get out of the apartment complex much as I fear dealing with irritable and short tempered people.  We now have an overabundance of irritable and short tempered people living in my complex.  I have decided that I no longer want to deal with that kind of nonsense.  It’s no different than the kind of nonsense I dealt with in high school when I was dealing with my angsty peers who had a complete lack of empathy.  I don’t feel sorry for the people who live in my low income apartment.  Anyone who ever said there is virtue in poverty has never lived in HUD housing.  I face the same cross section of jerks and losers as every other social class.  The only difference is I can’t run away from these people.  No one knows how tough it is to be really smart but have a mental illness that prevents you from working.  It sucks.  I can’t even do the day rehab and group activities offered because most of it is at such a remedial level I feel like I’m back in grade school with those programs.  I can’t interact with normal people because of my mental illness and lack of a family.  And I can’t interact with mentally ill people because I am usually much smarter than most of the people the outreach programs for mentally ill people were designed for.  I am mentally ill but I am not stupid.  Stop treating me like I am stupid.  I would give anything to have someone I could interact with locally who had some kind of intelligence.  I am just tired of always having to discuss the weather  or politics because that is all most people can deal with.  I am tired of having no one to talk with.  I am tired of being always alone.  I am tired of being the only smart person I know.