Tag Archives: life’s work

November 11 2019

Posted on by
Reply

I’m now beginning day two of adjusting to no social media.  I notice I’m not as easily stressed even after two days.  It helps that I’m not wasting time waiting for friends to respond to my posts.  It’s also good that I no longer see every little post in my former groups that don’t pertain to me or the subjects I care about.  I just got tired of stressing over people I will never meet in person.  Even the college friends I have, I haven’t talked to many of them in person since graduation.  Sure what they are up to is interesting, but I don’t need a moment to moment play by play of their daily lives.  I can easily catch up with them via email maybe a few times a year.  Just because I may not talk to you on a daily basis doesn’t mean I am upset with you.

And in the make believe reality that is fostered by the abuse of social media, that realization can be easily lost.  Most people aren’t going to respond to me within a few minutes simply because they are at work or taking care of their children, etc.  I lost sight of that for awhile when I was spending a few hours a day checking social media.

Since I cut my social media accounts I found I am doing far more writing and watching movies.  I also don’t play as many computer games.  I must have spent four hours just writing down my random thoughts yesterday.  It is far easier to express myself in emails, blogs, journal entries, etc. than I can on facebook and twitter posts.  Besides, it isn’t like my facebook accounts were generating that much more traffic.

At this point in my life I don’t care if I make money off the blog, at least as long as I have my disability pension and can make rent every month.  In almost fifteen years as a renter I haven’t missed a rent payment yet.  I’m not going hungry, even if some days I’m living off hot dogs, ramen noodles, and canned vegetables.  I don’t write for fame and fortune.  I write for a record to be out there somewhere in cyber space.  I suppose it’s like putting a message in a bottle, tossing it into the ocean, and hoping someone finds it someday.  Or maybe like the Voyager probes that will drift through space for ages, silently waiting to be discovered.  It is kind of like my way of saying to the cosmos “I existed for a short while in an average small town with a mental illness.”  That probably is going to be my legacy, if I am going to have one.  I don’t have children and probably never will.  I will probably be forgotten by my own family in a few generations, by my friends and classmates families far sooner.  Yet this blog, this proverbial message in a bottle that is digital driftwood floating through cyber space, who knows how long it will go on.  Maybe in a few generations there will be a cure for mental illness.  Sheesh, in a few generations life today may be completely unrecognizable to the citizens of that time and age.  They may look upon mental illness with as much shock and horror as people today look upon Bubonic Plague, smallpox, and cholera.  Some people live on through their offspring.  Others live on through their work.  A select few are such movers and shakers their deeds and names live on throughout history.  Me, well, if I am to live on after I die, it will be in the words I write in a small blog.

Advertisement

My Education as a Writer with Mental Illness

Posted on by
Reply

 

I readily admit to being eccentric.  I was such even as a child.  In my more active years, I used to pace in the back yard for hours on end regardless of the weather just making up stories in my head.  I’m sure this concerned my family some (and made me a butt of jokes among the school yard bullies), but I had an overactive imagination as a child.  I was too scared to actually put any of this into writing.  I guess I was paranoid even as a child.  I used to make up all sorts of stories and characters.  I kind of kick myself now for not making notes on some of those stories as I think some of them might have made decent science fiction or fantasy stories.  But I never considered a career as a writer because I had heard so many horror stories about English and humanities students condemned to working minimum wage jobs after college.  As it is now, the middle class is all but gone.  I may have been happier as a double major in English and History rather than trying to be a medical scientist.

I guess now that I know myself much better at age 38 than I did at age 18, I know now that I am really a writer/story teller who is interested in science, rather than a scientist interested in writing.  And I certainly am not the economist or sales man I studied to be when I studied business after it became clear my mental illness wouldn’t allow to go to medical school.

Since I’m starting to read much more again, I’m beginning to get the urge to try my hand at traditional writing again.  I absolutely love blogging and I used poetry in my twenties to learn how to write and tell stories.  But perhaps it is time to venture into new possibilities with my writings.  I’ve had some of my poems published in small literary journals in the past. I did write the rough drafts of two novels when I was in my twenties.  I made outlines for science fiction novels but never wrote anything serious.  Once I even tried my hand at writing crime drama, and my only experience with crime was when I helped my boss catch a couple shoplifters during my first day on the job when I was in college.  I wish I had kept my rough drafts of my old novels.

I became interested in writing as a means of story telling during my freshman year in college when I qualified for a place in an advanced English course.  I find out I loved writing stories and essays in that class.  I made some pretty good friends in that class too.  One of those friends became a blogger too.  I regret that I lost contact with her and everyone else in that class over the years.  Even though I didn’t dive head first into writing after that class ended, I did become interested in literature.  I must have spent as much time reading in the college library as I did studying for my business and economics classes during the last three years of college.  I became so dedicated to pursuing this course of self study that I let much of my old college life go.  I left my fraternity even though I had lots of friends in that group.  I stopped dating to pursue knowledge.  I guess I knew even early on that learning and story telling were the true loves of my life.  Besides, fighting a mental illness I would have probably made a lousy husband and father.

I more or less lived in the library the last three years of college.  But one of the purposes of formal education should be to at least give kids the tools to learn new things should they wish to once they leave school.  I felt my formal education, first at a rural public school and then at a private college in York, Nebraska, did just that for me.  And I am grateful every day that I wake up for being able to make it through college without any student debt.  With as expensive as college is getting now, and how wages simply aren’t keeping up, I whole heartedly recommend against going to a four year college unless you are going for a STEM degree or can be guaranteed to get out debt free.  I’ve seen too many friends crushed by student loan debts, robbed of their peace of mind, and working jobs they can’t stand just because of said debts.  And much of what I learned in college can just as easily be learned with a few years of hard self study via the public library system, ebooks, and youtube videos.  I dare say that I learned more in five years of hard self studying via the public library and youtube videos than I did in my formal education.  But it was the formal education that planted that desire and need for knowledge and wisdom to begin with.  These are some of my thoughts on my education and path to enlightenment as the school year starts again.

My Journey To Being An Advocate For The Mentally Ill

Posted on by
1

My birthday is coming up in a few days.  I’ll be 37 years old this year.  That would have made me a senior citizen in the Stone Age.  Of course if I would have developed schizophrenia at most points in human history, it probably would have been a death sentence.  As it is I have found what works and what doesn’t in my life with mental illness.

I was first diagnosed with schizophrenia and major depression in the autumn of 2000.  I was in the second year of my pre med studies in college.  Even though I had been having problems with depression and anxiety for a few years before, I was still able to do well in school and keep up a strong front.  I still don’t know how I did it.  But in my second year of college, it all collapsed.  I couldn’t handle stress anymore.  I was having constant panic attacks.  I would have breakdowns where I called home and yelled at my parents at least once a week.  Looking back on it, I should have gone to the mental hospital right then and there and not tried to gut out college at the same time.  As it was I withdrew from college at midterm of the spring semester and took a few months to adjust the treatments and pull myself together.  After the disaster that my second year of college was, I knew I’d never get into any med school with my grades.  So I switched over to business because, let’s face it, everything involves money and commerce.  I still thought I could be employable in the right situation after college.

During the last few years of college I became interested in economics and finance.  I applied for several jobs like financial planner, insurance sales, insurance underwriter, loan officer at a few banks, etc.  I took the obsession I previously had with science and was able to transfer it to business and economics.  It paid off to be curious for me.  I graduated in spring 2004 but, like many college seniors, I had several job interviews but no offers when I left school.  I didn’t realize just how common that was until I started talking to people over the internet a few years later.

After a few failed attempts at careers in various fields, (retail sales, academia, manufacturing), I applied for disability insurance.  This was in 2006.  I had just lost my job at the university and been forced to leave the masters’ program.  Here I was on a waiting list for disability, on a waiting list for low income housing, with no job, no confidence, and no money.  If it wasn’t for my parents help for the first half of 2006, I would have never made rent on my apartment.  But that wasn’t all for 2006.  My longtime college girlfriend and I broke up and I failed at a couple minimum wage jobs, one of which was at Goodwill.  If you can’t succeed at Goodwill, then you are really screwed up (or so I thought).  In the late summer I checked myself into the mental health hospital.  Stayed there for a week.  By this time I was at my lowest ebb.  I had no job.  My illness wasn’t allowing me to hold a job.  I had no real income.  I was living off food stamps though no mess ups of my own.  I had no idea when social security was coming through. I was on high risk insurance that was costing my parents a lot of money so I could stay on my meds.  I never could have afforded them on my own.  I came to the conclusion I would never hold a career because of my mental illness.  I came to the second conclusion that I would never marry and have a family because of my mental illness.  I was really sad and depressed during this entire time.  I really thought I’d never be happy or amount to anything ever again.  I’m glad I didn’t cross the line into becoming suicidal at this time.

Those rough years of my mid to late twenties when I came to the conclusions I would never hold meaningful employment or have a family really sucked.  But they were also when I was writing a lot, granted not as focused as I am now.  Before I got serious about my blog I wrote hundreds of poems, largely in the style of Robert Frost, Walt Whitman, and Emily Dickinson, and I also did complete rough drafts for two novels.  The novels were nothing really special, just kind of like Jack Kerouac for Millennials.  I was working on notes for a science fiction novel at this time too.  I also read every day to try to help me find a literary voice.  I read dozens of authors, ranging from Kurt Vonnegut to Ayn Rand, Chuck Philhanuak to John Grisham, Alexandre Dumas to Mark Twain, Adam Smith to Nietcheze, etc.  I tried to teach myself Spanish at the time as well, but the only Spanish I know is how to ask for directions and order simple meals.  But as my ‘traditional’ side was falling apart, I was finding other ways to find meaning in my life besides work and dating.

I started writing down my thoughts and experiences with mental illness in my late twenties.  I was submitting some of my poems to be published in literary magazines.  I got a few of them published but never made any money.  I eventually wrote a few dozen short essays about life with a mental illness.  I was reading The Federalist Papers at the time and kind of modeled the book of mental health essays on that.  I put the files on a print on demand service.  I sold a few dozen of those books, mostly to friends, family, and interested mental health facilities.  After tasting a little success with those essays, I thought they might make good blog entries.  And my first few blog entries were from that original book.  Since it’s been several years since I updated that book, I probably ought to rewrite it and repost it.  And since I now have a dozens of blog entries on the subject of living with mental illness, I definitely have new material for another edition.

I started blogging through wordpress in 2012 shortly after I left my last ‘traditional’ job.  I didn’t get much for visitors early on because I had no focus for the blog and I wasn’t posting regularly.  In early 2013 I decided to focus the blog specifically on mental illness.  My audiences have grown slowly but steadily over the last few years.  I started a Facebook page to promote the blog.  I also have a patreon account a few months ago and I already have a sponsor through there.  And I’ve also made a little money since I monetized this blog.  I’m not breaking even yet with what I spent on advertising this blog, but it’s getting closer all the time.  I recently broke 14,000 all time visitors from 100 different countries.  And this is with only four years of work, a microscopic advertising budget, a niche topic, and 50 percent of the world’s population still not online.

I’ll be 37 in a few days.  And I already had a larger reach with my writing works than I ever thought possible when I first seriously started writing in 2004.  That’s been only thirteen years.  I think I’m going to keep at this and see what I can develop with this blog and my writings over the next thirteen years.  I say all of this to point out that young people in their late teens and early twenties shouldn’t sell themselves short at all.  At age 23 I would have been content to be a loan officer at a bank or an insurance salesman.  But I know I wouldn’t have been content doing such work.  I wouldn’t be doing what I’m really good at.  And let’s face it, in this day and age a person can make money doing almost anything thanks to the exposure of the internet if they put in the time and lots of effort to get noticed.  I’ve already accomplished more than I thought I could as a writer thanks to the internet, especially when I started out I was just writing poetry out in notebooks.  And now after running this blog for four years and getting some audience and dozens of positive emails, I know I’m only scratching the surface of what can be done.  I never would have thought this possible when I first applied for disability insurance.  Mental illness is one of the few things that is still discriminated against with little to no protest.  I intend to be part of changing that.  I’m not going away.  The mentally ill bloggers and you tubers aren’t going away either.  We will not be silent and suffer needlessly anymore.  Consider this a declaration of war against mental illness stigma.

 

Experiences With Mental Illness Blogging

Posted on by
8

I’ve been doing this blog for over three years.  And I absolutely enjoy every minute I spend blogging.  I enjoy it more than any traditional job I ever had.  I enjoy it even more than the classes I took in college.  I don’t have to be forced to write about mental illness.  I would do this for free.  I am doing it for free unless I get any kind of advertising revenue or sponsors.  I wouldn’t refuse any money that comes my way even though I am not delusional enough to think I can get off disability pension from blogging.  I have been doing this blog for three years and not made a cent off it.  In my twelve years of overall writing I have probably broke even between selling print on demand books and what I spent advertising my blog through Facebook.  I don’t suppose many people can claim they have a passionate hobby that almost pays for itself.

After spending several years with selling only a few dozen books of mental illness essays and poetry I really had no expectations with this blog.  I didn’t know what kind of a following I would have or even if I would have a following outside my mother and a few friends.  So I set up shop with a free blog site and started writing blogs about what it is like to have schizophrenia to people who can’t imagine it.  This isn’t the first blog I ever did.  A friend and I did a blog several years ago.  It never gained more than a couple hundred views because we were unfocused and not posting regularly.  I did a blog about my poetry for awhile before I found out I wasn’t much of a poet and there really isn’t a great demand for average poetry.

After examining what I liked to read, what I was good at writing, and what I gained good audiences from, I decided three years ago to focus on writing about my experiences with mental illness.  That’s when I gained more than a few readers.  After years of experimenting with styles and genres, I came to the conclusion I do best writing nonfiction essays from the first person point of view.  I had written rough drafts for two coming of age type novels both from first person view.  They didn’t really hold together and I later found out for fiction novels that first person is tougher than third person point of view.

Once I found my niche and style I had a few visitors coming in with every blog post.  After it became a weekly posting I had a few more visitors.  The thing that helped me gain more visitors was posting often.  A blogger simply can’t build any kind of audience by posting only once or twice a month or only when the creative muse moves them.  Most of my favorite individual youtube content creators post several times a week and have for several years.  I’m not at that kind of proficiency, but perhaps I could be if I keep posting material.  I think it helps to get a body of work of several dozen postings at minimum so that search engines can find your work easier.  As of now I have had close to two hundred postings over the last three years and a little over 9,500 visitors from 90 different nations.  There are bloggers (and youtube stars) who get that even on bad days, but I’ve been working at this for only a few years and haven’t done as much advertising as some people.  Being on a limited budget with a disability pension I have to be choosy about what kind of advertising I do as it still costs money to get truly noticed.

Early on in the first several months I got some audience from following other bloggers and leaving positive comments on their articles.  I left nothing but positive comments.  If I didn’t agree with a particular post I just didn’t comment.  I didn’t want to gain the reputation of a troll or troublemaker.  Having a good reputation on the internet is more valuable than gold.  I got some following from following other bloggers and I tried to direct some of my readers to bloggers who helped me out.  But leaving positive comments on other blogs, following other blogs, and trying to refer traffic to other blogs helped me out in the early months.

Even though I have a few years of blogging experience and some following I don’t consider myself established by any means.  I don’t think there can be anything really established as far as the internet and the current information revolution goes.  I was learning as I went when I wrote my first words twelve years ago and I’m still learning new things even today. I was a bit frustrated in the early years when I would get rejection notices in the mail several times a week.  I was also frustrated in the early postings when I wasn’t getting more than a few visitors per post.  But looking back on it, I see how rough and raw most of those writings were.  I’m glad they didn’t get published.  And I’m sure in several more years I’ll look at some of the things I’m writing now as rough and unpolished.  It’s a continuous process that never ends.  I hope to always keep improving as a writer so I can better explain to people what living with a mental illness is really like.

 

 

Thoughts on Late Summer and My Life’s Work

Posted on by
3

The time between July 1st and middle September has traditionally been the toughest time of year for me.  I can expect at least one major psychotic break during this time of year every year.  That is the way it has been ever since I was diagnosed with a mental illness in 2000.  The first time my parents witnessed me having a psychotic breakdown was in the summer of 2000.  I committed myself to a mental hospital in September 2006 and again in September 2013.  I had a bad breakdown in August 2014 when I almost committed myself.  If it would have went on for another two hours I would have gone to the hospital.  Late summers have been tough for me my entire adult life.

It’s not uncommon for people with mental health issues to have times of year that are tougher for them than usual.  Many people often feel depressed and sad during the darker winter months.  But my toughest times have always been during the late summers, usually around the time the school year starts.  Where I went to school, we usually started the third week of August rather than wait until early September.  My therapist has suggested maybe the idea of school starting again brings me added anxiety and aggravation.

I really didn’t enjoy school that much even back in grade school.  I hated the social aspects of school from about second grade on.  And sometimes I was bored in class because much of what was covered I had read on my own already.  I was not popular at all in school.  I was essentially the non athlete who was not socially savy enough to hide the fact that he was smart.  I got a real hard time for years because I didn’t like sports and I loved reading.  The close friends I had experienced the same thing.  Since I went to a really small school, I just couldn’t hide out with other nerdy kids.  As a result I never developed traditionally nerdy interests.  I have never bought a comic book. The only real science fiction I like is Star Trek.  I don’t like fantasy novels and movies.  I never played Dungeons and Dragons.  I can’t program or build computers.  I wasn’t socially savy enough to fake interest in popular culture and sports.  I played football only because I was big.  If I wasn’t 6’2″ and 270 pounds  I would have never made the team.  I was usually the slowest man on the team and I couldn’t even bench press my own body weight.

Besides my best friend (who was female) I didn’t date much in high school.  There were rumors that I was homosexual because I did so poorly at dating.  It wasn’t a matter of not getting a second date, it was a matter of not even getting a first one.  Needless to say all of this effected my outlook and probably my personality.  One of the reasons I went to a college where no one from my high school attended was so I could rebuild and start over.  Even though I was going through the worst of my mental illness in college, it was far more bearable socially because I wasn’t the only odd man on campus.  I was in an environment for once in my life I wasn’t penalized for being smart.  I met some people so smart even I couldn’t keep up with them.  I also met people who were C average students in high school suddenly pulling all A’s because they had a purpose for once in their lives.  I met people even quirkier and eccentric than I.  I still didn’t date much but years later I found out there were a few women who wanted me to ask them out.  Had I not been so badly burned in junior high and high school, I might have picked up that these women were interested in me.

As it is now, at age 36, I have lost all interest in dating.  I am more focused on blogging, reading, learning, and my other pet projects.  Having talked to older men in my life, I have found that many of them started having less interest in sex and chasing women and became more focused on their work and outside interests about the time they hit their early to mid 30s.  That’s about right for me.  I started getting really interested in writing for public consumption and became cool with the fact I didn’t have to date or get married about five years ago. In my twenties I was distraught that I wasn’t getting a lot of dates or was attractive to women.  I readily admit I am not attractive.  I look like a cross between Shrek and Tony Soprano 🙂  Never have been  handsome and never will be.  But I’m all right with it.  I’ve accepted while I’ll never get married and have kids, it’s okay.  I’m cool with it.  I’ll throw my efforts into blogging, writing, reading, researching, learning, being a good friend, being a good uncle to my niece and three nephews, being a trustworthy son to my now elderly parents, and becoming the best Skyrim and Civilization player I can possibly be.

I kind of want to be a Most Interesting Man even though I’m not classically handsome or a world traveller.  I may have not travelled the world outside of USA and Mexico, but my writings certainly have.  Earlier this month I added up how many nations I’ve had readers from and it’s around 90 different countries where I’ve had at least one reader.  My parents as health care providers can’t claim to have treated people in that many countries.  My brother the engineer can’t claim to have designed projects in that many. And that’s in only three years, two hundred blog posts, and about $100 in advertising.  Long live the internet.  If I thought I was photogenic at all I’d start a youtube site.  Maybe I could just do voice overs and feature my friends’ artwork 🙂 It’s a few ideas worth kicking around.

Routines, Reflections, Dollars, and Desires

Posted on by
3

abraham-maslows-hierarchy-of-needs1.preview

This summer has been anything but routine for me.  I hurt my back in late May and I was out of commission for six weeks.  I rarely spent any time outside and didn’t travel.  I went to the park maybe three or four times in the six weeks my back was mending.  Normally I go to the park three or four times per week during the summer.  I haven’t done any traveling as I haven’t been outside my hometown since late May.  I haven’t driven much and have actually developed a slight phobia of driving.  I guess I never gained my confidence back from my accident last October.  While I got my car fixed I still haven’t heard anything back from if I can get any kind of settlement.  Progress is insanely slow in some cases.

I haven’t been outside around the complex much this summer.  It seems that most of my neighbors have been more short tempered and irritable the last several months.  I don’t know what to make of that.  I still have the one neighbor who always in a foul mood and never has anything nice to say about anyone.  Apparently he won’t be moving out any time soon.  It’s kind of tough living in here anymore.  Three of my most interesting friends in here died in 2014 and 2015.  Since I live in low income housing, who we get as neighbors is luck of the draw.  There are days when I’m depressed I would love to move out and start over.  But I don’t think any where else in my hometown would be any better.  With my mental illness and disability pension I can’t afford to move to a larger city.  I don’t want to move back in with my parents as their hometown has far less to offer than my current town.  I really don’t know if I can move to my brother’s hometown because of my disability pension and transferring to a different state.  If I were to move to another city, I’d love for it to be to a place with reasonable public transit.  I hate driving anymore.  I’d never drive again if I had the choice.

I don’t suppose schizophrenics do well in large cities.  I hear horror stories about people with mental illness ending up homeless or in jail in large cities. My schizophrenia being what it is, it’s not like I can start over with a job that pays enough to give me a decent living if I were to leave disability.  I was anxious working as retail store clerk and factory worker. I used to have panic attacks so bad I’d vomit from the anxiety before I went to work.  I fear the idea of working with the public.  I have been verbally abused enough by customers and coworkers in my previous life as a customer service worker that I never want to experience that again.  And blogging about mental illness will never pay the bills even if I am providing a good service for others.

It’s not the money I care about, it’s what the money can buy that I’m concerned about.  I don’t need the status of a high paying job to satisfy my ego.  I don’t need the large house in the suburbs or the high end penthouse in a skyscraper.  I don’t need the large pickup truck or high end foreign car.  I can get around just fine in a twelve year old four door sedan that is as good on gas mileage as anything besides the really small Japanese cars.  If I need to move something with a pickup truck, that’s why I have friends and family members with pickup trucks.  It’s amazing what one can accomplish with a phone call, a little elbow grease, and offering to buy lunch or a tank of gas.

I really have my basic material needs but I can get by with almost no splurging.  I have learned to live inexpensively on my disability pension without a job.  I am happy wearing t-shirts, sneakers, and pants from K-mart and Wal-Mart. I can get all the music I want for free via youtube or pandora radio. I don’t even have music CDs anymore.  I haven’t even downloaded music from iTunes in over a year. I would rather watch Netflix at home, sit on my own couch, and eat a delivery pizza than go to the movie theatre. I would rather go for a walk in the park or shovel snow in the winter than spend heaven knows how much on a gym membership.

Splurging for me is grilling bratwursts and spending cool and overcast autumn Saturday afternoons watching Nebraska Husker college football games on my flat screen tv.  Splurging for me is buying a bucket of KFC and a couple side dishes instead of eating off the dollar menu.  When I need new furniture I talk to friends and family who are moving or having estate sales.  I got my couch, lamps, and recliner after my grandfather died.  I got my bed and dresser after my grandmother died.  I got my house plants from helping my mother.  All I had to do was help my family clean out their places for a weekend.  The most I gave for a piece of furniture was $50 for my all purpose heavy duty table I eat from and use my computer on.  So a person can live quite inexpensively if you use your family and friends’ connections and help people out once in awhile.  The only time I go to restaurants that aren’t fast food is when I’m entertaining out of town family and friends. I have stayed out of debt for two years even without a job.  I managed to save up some emergency money that could fund my life for a couple months even without a disability pension.

So I’m not concerned about getting rich.  For the first few years I was serious about writing, I was hoping to make some money as a writer, travel on the speaking circuit, and donate a bunch of money to my college as some of my happiest memories are from my four and a half years at York College in York, Nebraska.  Now that I know how to live on less than I thought I could and I see how much stress my brother is under with his job, I know it’s not the high paying job or successful business that I need or even want.  The big thing that I want now is for my experiences and writings to make a positive difference for whomever happens to read these entires.  I have no delusions I’ll make much money writing a mental illness blog.  Schizophrenia my involve delusions but that’s not one of my delusions.  I don’t care if I make money off  my writings and blogging.  I really don’t even care if I make above poverty level wages.  I just want to make a positive difference in the lives of whomever reads my blogs, whether you be a mental health patient, support person, or just someone who cares about the problems of the mentally ill.  I don’t desire riches.  I desire to make a positive difference in at least a few lives.