Goals, Past Regrets, Looking Back on 2013 and Looking Ahead to 2014

2013 has come and gone.  We have recently celebrated the beginning of a new year.  With new years come, for many people, resolutions.  I personally have never been big on setting new year resolutions as most people I know never follow through.  Yet I feel different about this year, the year 2014.

The reason I feel different about setting goals, rather than calling them resolutions, is that I have been essentially drifting with whatever way the winds of my mental illness toss me ever since I left a good job over a year and a half ago.  The job I had, while hardly high paying or even full time, gave me a sense of purpose and a reason for leaving the apartment every day.  Leaving that job was one of the dumbest decisions I ever made.  I may have not made much money from it, the job may have been simple and low prestige, but it gave me a reason for getting out and mingling with people.  In fact I was doing more creative writing while I was working than when I left.  Having all the time in the world free often leads to not doing anything with that time, or having a lack of direction or purpose.  

I trace many of my problems with depression in 2013 directly to not having much direction in my life.  While there are many people out there, mentally ill or not, who don’t need a job or volunteer work to have direction in their lives I’m not one of them.  I know now I need something outside of myself to allow for some sort of structure in my day to day life.  Otherwise I’ll just rot from the inside out, physically and mentally.

My first goal for 2014 is to find a part time job.  I would prefer something where I could work in a small group or even alone without much interaction with the public.  I never did very well at customer service jobs, fast food jobs, etc.  After a dozen plus years of working with a mental illness I have figured out what kind of work I’m not good at.  I would like to find a job by the end of February, but with my checkered work history this may be pressing it.

My second goal for 2014 is get to the gym more often.  Sure I go once or twice a week as it is now, but I want to go more often.  I always feel good after going.  I don’t know why I don’t go more often.

Finally, I want to write more in 2014 than I did in 2013.  I didn’t get much finished last year.  I want to change that this year.  I am going to change that.  The only way to make any goals stick is to go after it whole heartedly and without regret.

Inactivity, Depression, and Seasonal Components to Mental Illness

 

In this life with schizophrenia, I have had my ups and I have my downs.  Lately, actually for the last three months at least, I have been more inactive than I should be.  I haven’t been exercising every day like I should be.  Usually I go for short walks everyday and lift hand weights two to three times a week.  Haven’t been doing that as often lately.  And I can tell it’s starting to take it’s toll.  I don’t have as much energy to accomplish everyday tasks as I once did.  I also have been lacking the motivation to work on my writings,  unlike a few months ago.  In addition to these blog posts, I also write poetry, journals, and am working on a novel.  I currently have two books of poetry self published through lulu.com.  I figured if I don’t have a regular job, I need to find some way to keep myself occupied and somewhat productive.

As a result of my inactivity I can tell my physical health has suffered.  I have more aches and pains than someone in their early 30s should.  I attribute this to way too much inactivity.  I am convinced my inactivity was initially brought on by a bought of depression that was bad enough that I checked myself into a mental health hospital for four days back in September.  After I got out of the hospital I would sometimes sleep twelve to fourteen hours a day.  Some days I would sleep just out of depression, while others I would sleep out of boredom.  It became a nasty cycle.  I would sleep out of depression and I would be depressed that I was missing out on what was going on around me.  I would be too tired and or depressed to do my exercise and my socializing.  And I would be tired and depressed because I wasn’t exercising or keeping up with friends and family.

Even though I have been depressed and inactive for a long while, I feel like I’m starting to pull out of it.  Maybe it’s the change of the seasons or the hope of the upcoming new year that’s helping me out of my current depression.  Or it could be one of the phases of my individual illness.  This isn’t the first time I have gone through a period of inactivity and depression.  I went through one similar to this about six years ago, back in the fall of 2007.  

One of the positives about having had a mental illness for over half of my life is that I can recognize many of the patterns of the illness.  Not only can I recognize the triggers and know what places, types of situations, and people to avoid, I know a lot of the short term and even some of the long term patterns.  Many people with mental illness have a seasonal component that goes along, where they do worse during some periods than others.  For me, I have always done bad in late summer, usually August and early September.  For others it’s during the winter.

I always have had to remind myself during these days of depression during the last three months that I’ve been through these times before.  I’ve come through these times before.  And I will come through them again.  Better times will be ahead.

Medical Advances, Nutrition, and Mental Illness

It’s been a long while since I last posted to this blog, so an update is in order.  This post will be about medical advances and mental illness.  This is another reason for those of us with mental illness to hope that the future will be better than the present.  Many of the medications that are being used to help treat mental illnesses now didn’t even exist fifteen, twenty years ago.  

New discoveries are also being made in nutrition and how full body health effects mental health.  If you don’t get proper nutrition, the body won’t function well.  If the body doesn’t function well, the brain won’t either.  We all need to make it a point to eat healthier and more balanced, mental illness or no.  Let’s not kid ourselves, the typical American diet of highly processed foods and fast food isn’t healthy.

If you are under treatment for mental illness, always tell your doctor about all of the over the counter supplements you are taking.  Some of these, especially herbs and anything with alcohol in it, can cause serious side effects when mixed with anti-psych drugs.  Know what you are getting into.  Stay informed.  Read all of the handouts that come with your anti-psych drugs.

There are rapid advances being made in research.  These advances can and will find better treatments, perhaps sooner than we think.

Schizophrenia and What it Means

In previous posts I have written about my life experiences as a mentally ill individual.  In this post I’m attempting to describe the symptoms of my particular illness, rather than just the results of the symptoms.  I have done this in a poetic form.  So here goes.

 

Schizophrenia and What it Means

 

Schizophrenia means a broken mind,

A mind broke off from the real world.

Unable to separate the delusional

from the factual truth.

It also means crippling depression,

Constant sadness,

And mourning for dead potential;

The loss of a life that never was.

Schizophrenia shattered mind unable to process

most kinds of stress or anxiety

without ghostly hallucinations chanting their condemnations,

Causing wave upon wave of unrelenting anxiety

to slam upon an already tormented, battle weary soul.

How do I explain to old friends,

family, and strangers I meet

I am not well, have trouble holding a job,

When on the surface I look normal and well?

Lurking in the depths of my mind

The monster schizophrenia causes havoc,

launching an all out assault on my mental senses.

My abilities to socialize, to handle stress, to live normal,

are crippled.

I’m not lazy, I’m not a freeloader.

I’d do anything to be rid of this silent monster.

Filling Voids in Day to Day Living

            After I found out the hard way that I was going to not be holding forty hour a week employment, I needed to find a way to fill my days.  I could have been content to just sit in front of the TV for hours on end day after day.  But that type of life isn’t good for anyone.  Let’s face it, it just isn’t.  I decided early on that I needed to find activities that would bring variety to my life.  This would make my time worthwhile and interesting, not just endlessly dragging onto nothingness.

            There are many programs for the mentally ill and physically handicapped who are unable to work.  There are social clubs that engage in different activities everyday.  These activities can give an individual reason to leave the home and give a routine.  These programs vary greatly from town to town and city to city, so be asking around to see what’s available.

            Good source of information on social clubs include mentally ill individuals themselves.  Other sources my include your psych doctor, psych nurse, therapist, family friends, or just anyone in the know.  You won’t find out unless you are willing to ask around.

            We the mentally ill have as much need for socializing, appreciation, and belonging as anyone who is considered normal.  Such outlets as church groups, NAMI, and Goodwill are important for those with mental illness issues that make working difficult or impossible.  People are not meant to be isolated for long periods of time as we are social creatures.  Every person has a need to belong to something and identifying with something bigger than just an individual.  Entire sciences such as sociology, psychology, political science, etc. are devoted to learning why people act and socialize the way we do.  Socializing with others is so important to our own humanity that it should never be neglected.

            In America, we are closely identified with our jobs and careers simply because we spend so much time engaged in our employment.  We are now more identified by our employment than by anything else we do in this country. 

            Yet this line of indentifying is a drawback for those of us who are not able to hold long-term employment or hold employment at all due to physical or mental disabilities.  It is even more of a drawback for the mentally whose problems are not are not as obvious as other illnesses.  The line of thinking for many in the mainstream is that if you are not physically disabled or not in a mental hospital, you ought to be able to work full time.  It doesn’t always work out that way.  Mentally ill individuals do not always have physical signs of problems.  Most would never guess who among us is mentally ill if we were seen just once in public.  Yet the mentally ill can have as many problems as the physically ill.

            I cannot stress enough the importance of finding activities to fill the voids in time in your day-to-day life. Life is meant to be exciting and we are meant to interact with other people.  Life is not meant to be spent hiding in your home and living in fear.  For some of us who don’t even like going out in public, a walk to the corner and back can be a start.  Or perhaps you can do your shopping at night or when the crowds are not as large like I do. 

            The important thing is to not take in too much all at once.  You need those small victories before you can go after the big goals and challenges.  Positive and lasting change is a slow process.  But the results are well worth the time and effort.

            I cannot stress enough the importance of having at least one hobby.  Hobbies have been shown to reduce stress and give joy to people.  We have different interests and talents.  There has never been anyone who couldn’t develop a talent for at least one thing that they have a passion for.  Only you can tell what your interests truly are.  If you are not entirely sure about your talents, take some quiet time every day to listen to that “little inner voice” of your heart.  That could be yourself telling you what you are truly interested in. 

            It also doesn’t hurt try out different activities to see what you are interested in.  If you are truly interested in something no one has to push you into such an activity.  Follow your heart and it will lead you to your true interests.

            Another bit of advice is don’t just sit in your home and stare at the TV waiting for life to happen.  Go out and do something with your life.  Interact with other people.  Get in touch with old friends and family members that you have lost touch with.  Even if these activities last for only a few minutes a day, do something with the life that you have.  Gradually build up if you have to.  You don’t have to be successful to start but you do have to start to be successful.

Overcoming Loneliness

Loneliness is often a problem for those of us with mental illnesses.  Our loneliness is often brought about because we are scared to socialize with “normal” people because of stigmas that still surround mental illness.  Loneliness can also be caused by the paranoia that accompanies many mental illnesses.  Loneliness can also be caused by depression when people are to sad or depressed to go out and socialize with even close friends.  Any one of these alone can make the idea of socializing daunting.

Loneliness can be overcome.  It can take a long time to overcome, though.  It certainly takes a great deal of effort to overcome a fear of socializing and opening up to people.  The topic of your mental illness can scare anyone into thinking that no one would want to socialize with him/her.  However, it is not necessary nor advisable to discuss any aspect of your mental illness the first time a new person is met.  Only when any person has earned your trust should you feel like you could discuss it with him/her.  Even then, discuss it only if you feel comfortable doing so.  

There probably will be times when you have new friends who wish to discuss aspects of your illness before you are ready.  In such cases, it is necessary to be polite, tactful, yet firm that you are not ready and do not wish to discuss such issues about your illness at that time.

Fears of socializing can be overcome by with practice and by gradually pushing your limits.  There is no need to feel that you have to conquer your fears all at once.  A fear of socializing, like any fear, can only be overcome by repeated acts of gradually increased bravery and courage.  It just may be just enough to say hello to your neighbors or someone in a store as a first step.  A second step may be to make some mundane comment about something as harmless as the weather to the clerk at the grocery store or anything like that.  From there, you can build up and branch out.  Socializing is by no means an exact science.  It is not something that can be learned from reading a few books or watching others do it.  It has to be learned by trial and error.

From my own personal experiences, I was by no means an extrovert growing up.  I didn’t learn a great deal about ‘normal’ socializing until I was well into college.  I don’t know how much of this was due to my illness or my being a natural introvert and I’ll probably never know.  The fact remains I would have never learned what social skills I have now had I never attempted to work on my skills.  I took a risk, faced my fears (and there were a lot of fears and paranoia), and came out better because of it.  You can too.  You just have to keep working at it.  There are no easy ways around it.

Struggles With Mental Illness in College, Part 2

            In a previous blog entry, I wrote about my struggles during the first year and a half of college before I began treatment.  This entry will be about my struggles after my treatment began.  Just because I was under treatment didn’t mean my problems were over.

            During the last three years of my collegiate career, I never achieved the quality of grades I had during my first year of college.  I also changed over to a different major.  I originally started college as a pre-pharmacy student.  After a year and a half of struggling with my mental illness as well as my classes, my grades were bad enough that I wasn’t going to be getting into pharmacy school.  I needed a change.

            I switched to a business management major, which was a surprise to my family.  I had never taken any business classes in high school.  I didn’t have much of an aptitude for sales, and I was quite an introvert.  So to my family and friends the move didn’t make much sense.  But to me it made a great deal of sense.

            In my line of thinking at the time, I wanted to be able to be employable with a good job as soon as I graduated from college.  Even though I was really passionate about literature and history, I always figured I could read all the history books and classics of literature on my own time when I wasn’t studying for my business classes.  With my best friend being a history education student helping me out with history and classical literature books, which is exactly what I did.

            I admit with this “Dual Study Program” with my studying business classes officially by day and reading my classical literature and history books late at night and on the weekends, I didn’t have much time for outside socialization.  I had my small core group of friends, and I also made it a point to be friendly as possible to as many fellow students as possible.

            As the last three years of college went on I slowly picked up a few more friends and gradually went to more social activities.  There were a few music bands on campus that occasionally played weekend concerts that I went to.  They were pretty much cover bands that also played some of their own material.   I made a few friends with some of the band members through that.

            I also made a few friends through some of my business clubs like Students In Free Enterprise.  I also went to many of my college’s home baseball and basketball games.  I preferred the baseball games because of the more laid-back atmosphere of baseball and I had a few friends on the team.  I also made a few friends through games of softball, ultimate Frisbee, and flag football.  I wasn’t a fast runner but could be a vicious blocker.

            I bring all of this up to show that I was able to have the average college experience in spite of having a mental illness.  There were a few things I obviously couldn’t do, namely the drinking scene because of my medications.  But I wasn’t in college to drink and drug.  I was there to get a degree.

            I didn’t work during the school year because of the stress of going to school full time, having a mental illness, and having a job would have just been too much.  So I worked in the summers instead.  It also helped that I had a good academic scholarship based on my grades.  Even though I wasn’t getting straight A’s, I was still managing to do well.  And I was enjoying the college experience at the same time. 

            A strange thing happened during my last year of college, I became interested in writing.  I had been reading voraciously the previously two years, so I suppose that writing would only be the next logical step.

            All of the struggles, problems, victories, and defeats of five years of college came to a culmination on May 8, 2004.  That was the day I graduated from college.  Graduating from college meant that I had overcome the problems of mental illness and accomplished my life long goal of finishing college.

            While it’s been several years and I still haven’t found permanent employment in my major, I still won because I was able to finish college.  I thank God that I was able to finish in spite of my illness.  Finishing college by itself is hard enough.  Throwing a mental illness in the mix makes the degree of difficulty pretty steep.  I hope that by finishing college that perhaps someday I can encourage someone with a mental illness to reach for and achieve their dreams.

Coping During Difficult Times With Mental Illness

          We all have difficult times when it seems the breaks are beating us and absolutely nothing is going our way.  Sometimes things seem bad enough that no matter what we do, things just get worse.  This is true for even the most sane of people.  Yet this is even tougher for those of us who are mentally ill.  We can become agitated and disoriented even on average days.  On days when things are going especially bad, the situations that arise can become almost too heavy of a burden to bear.

            This is where finding the strength to continue on comes in.  Strength to fight the good fight can come from several different sources.  A source of strength for a mentally ill person can come from a support person.  A support person, whether it is a family member, a friend, a doctor, a counselor, or anyone to hold us accountable can help anyone cope with difficulties.

            Everyone needs friends and family to lean on during tough times.  Human beings are not meant to be alone and isolated.  This is true especially of the mentally ill.  We who are mentally ill need to have support systems in place for when things go wrong.  Believe me, they will go wrong.

            The support system can comfort you, calm your fears, and let you know that these difficult times will not last.  Those of us who have weathered the storms of mental illness and come out stronger because of them are in turn better able to help those who are just starting out.  It is easy to bemoan that we are different or can’t do what we used to.  But that won’t make it any easier for us.  And it certainly won’t make us more able to weather the next round of storms or help someone else in need.  It sometimes takes an honest and loving support person to remind us of this during our times of distress.

            Do not give up.  Giving up is not an option.  Strength can come from many sources, even from within.  Strength to continue on will sometimes be the only thing that carries you through one moment to the next.

What Mental Illness Means For Me

I have occasionally been asked to describe what exactly what having a mental illness is like.  Now I don’t get as annoyed with such questions as I used to.  I mean, it is an honest question by people who, for the most part care.  Yet, I am still at a loss to describe my mental illness in a ten to fifteen second sound bite.  I haven’t always been mentally ill, so I can still remember from my childhood and teenage years what it was like not to have to deal with the crippling depression,chronic anxiety, delusions that seem so real (even when I try to convince myself they aren’t), hallucinations that, left unchecked, can be overwhelming by themselves, among other maladies that are associated with paranoid schizoprenia.

The crippling depression can, at times, leave me such that I literally don’t have the motivation to do much of anything.  During the times of depression, I will often alternate between times of intense sadness and intense anger.  I will usually try to isolate myself from physical contact with others during these times.  It’s nothing personal, I just don’t want to have the risk of a confrontation with anyone at these times.  I still can communicate with friends, family, counselors, support people, etc. by means of phone, e-mail, etc. but I don’t risk much personal contact with anyone during these times.  I certainly won’t be driving on the road during such episodes.  Far too risky.

Anxiety is another issue.  In my case, anxiety makes it impossible to hold most kinds of work.  I have tried and failed at several types of jobs, ranging from salesman to factory worker to maintenance man to graduate assistant.  I’ve really lost count of how many jobs I’ve held over the years.  I really have a hard time handling fast paced work where the public is involved.  So that alone eliminates many jobs.  The only job I held for longer than one year was a janitorial job where I primarily worked alone, could set my own priorities within limits, and I wasn’t bothered as long as the job was done well and on time.  Another issue about anxiety and mental illness is old fashioned office politics.  I never could figure those out.  Because of my anxiety, along with my paranoia, I often thought my coworkers and bosses were out to nail me.  Throw in depression about the whole deal and it meant for unpleasent work experiences all around.

The depression and anxiety doesn’t just effect my working life.  It also effects whatever social life I have.  My social life anymore consists of a few really close friends, some casual acquaintances, and my family.  I don’t have any friends from my previous jobs as I’ve lost contact with all of them (or wasn’t at the job long enough to make friends).  I haven’t dated in seven years.  The idea of going out on even a casual date scares me bad.  I just don’t know how to bring up the whole ‘I have a mental illness’ without scaring off a potential date.  There are times that complete solitude is overrated.

I have covered only part of what mental illness means to me.  I’ll have to cover the rest in a future post. 

Coping With Losing Friends During Mental Illness

 

            When I was in high school I began having problems with what was the beginnings of my mental illness.  I began to act very strange and unusual.  I had developed a very volatile temper because of my mental illness.  Before I became ill I was very easy going and I didn’t get upset very easily.  In grade school I was even one of the class clowns.  All of that changed when my mental illness came into being.

            I would get very angry over anything and everything.  The most meaningless snide comments from a classmate would often be enough to make me very angry.  It also came to be that I hated many of my classmates because I believed that they were out to harm me.  This was, as I learned in retrospect, due to the paranoid aspect of my schizophrenia.  I would often be very defensive and standoffish.  I would rarely open up to anyone with the exception of my best friend.  I never got into any fights in high school but I came close several times.

            Since I was building up walls around myself and not opening up to anyone, my friends gradually disappeared.  I didn’t notice this at first.  It wasn’t until I was almost half way through my senior year of high school I realized that all of my friends were gone.  Looking back I know that was because I had become standoffish, distant, bizarre, paranoid, and very angry.  All of this was occurring for no outside apparent reason, but within my brain I was undergoing massive upheavals.

            I know now that my parents knew that something was severely bothering me.  Yet since I was so paranoid I kept my issues to myself.  This didn’t help at all.  It made things much worse to have to put up a false front and have a developing mental illness at the same time.  I was terrified of what would happen if I let my parents know what was really going on inside of my mind.  It was terrifying enough for me to experience it and not know what was going to happen from one moment to the next.  I had no idea how to tell them I wasn’t all right at all. 

    How do you tell someone what is wrong with you when even you don’t know what’s developing?  We know all about the symptoms of heart problems and cancer.  We have those hammered into our heads by the press and popular culture all of the time.  Yet the public at large is still quite ignorant of the symptoms of mental illness and mental health problems.  I didn’t even know what I was going through had a name or that I wasn’t alone when I first became ill in the late 1990s.  The Internet was still in its infancy and information on mental health and mental illness issues was not very easy to find.  I had no idea what was going on inside my head.  My paranoid aspects of my illness made me reaching out for help from other people almost impossible.

I certainly didn’t seek the help of my school counselor.  I was fearful that talking to the school counselor would be ineffective.  I had my head full of visions of counselors asking questions about my childhood and making me tell them what I saw in large inkblots.  I was also scared of getting labeled because I went to a very small high school with less than one hundred students in the entire high school.  I was paranoid enough that I didn’t want my problems becoming public knowledge.  High school kids are notorious enough for being gossips and cruel.  I just knew, in my paranoid state, that my classmates were already talking behind my back.  I just knew that going to the school counselor would have made things much worse.

Since my classmates knew I didn’t drink alcohol or do drugs they had to know that something was really messed up with me.   It’s easy to dismiss someone’s erratic behavior because of drinking or drugs.  But because of the lack of public knowledge and discourse about mental illness, the possibility that someone’s odd actions may be due to an undiagnosed mental illness will almost never occur to someone.  So looking back on my high school days, I can see why my classmates were alienated from me.  It wasn’t because of anything malicious; it was because they had no idea of how to work with a classmate with an undiagnosed mental illness.  I have to attribute that to a lack of knowledge and public discussion about mental illness.

Fortunately I made several friends in college who accepted me in spite of my mental illness.  By then I was being treated and the treatments were quite effective.  Thanks to the Internet and social media like Facebook.com, I have kept in contact with many of my college friends.  I am also now reestablishing contact with my friends from high school that had become alienated because of the onset of my paranoid schizophrenia.

I have had a few friends tell me that because of me they have been able to better understand those with mental illnesses.  I have also been told that simply because of being friends with me they have gotten past many of the stigmas and prejudices that are associated with mental illness.  I’m glad that there have been some positives to come from my mental illness.