Inactivity, Depression, and Seasonal Components to Mental Illness

 

In this life with schizophrenia, I have had my ups and I have my downs.  Lately, actually for the last three months at least, I have been more inactive than I should be.  I haven’t been exercising every day like I should be.  Usually I go for short walks everyday and lift hand weights two to three times a week.  Haven’t been doing that as often lately.  And I can tell it’s starting to take it’s toll.  I don’t have as much energy to accomplish everyday tasks as I once did.  I also have been lacking the motivation to work on my writings,  unlike a few months ago.  In addition to these blog posts, I also write poetry, journals, and am working on a novel.  I currently have two books of poetry self published through lulu.com.  I figured if I don’t have a regular job, I need to find some way to keep myself occupied and somewhat productive.

As a result of my inactivity I can tell my physical health has suffered.  I have more aches and pains than someone in their early 30s should.  I attribute this to way too much inactivity.  I am convinced my inactivity was initially brought on by a bought of depression that was bad enough that I checked myself into a mental health hospital for four days back in September.  After I got out of the hospital I would sometimes sleep twelve to fourteen hours a day.  Some days I would sleep just out of depression, while others I would sleep out of boredom.  It became a nasty cycle.  I would sleep out of depression and I would be depressed that I was missing out on what was going on around me.  I would be too tired and or depressed to do my exercise and my socializing.  And I would be tired and depressed because I wasn’t exercising or keeping up with friends and family.

Even though I have been depressed and inactive for a long while, I feel like I’m starting to pull out of it.  Maybe it’s the change of the seasons or the hope of the upcoming new year that’s helping me out of my current depression.  Or it could be one of the phases of my individual illness.  This isn’t the first time I have gone through a period of inactivity and depression.  I went through one similar to this about six years ago, back in the fall of 2007.  

One of the positives about having had a mental illness for over half of my life is that I can recognize many of the patterns of the illness.  Not only can I recognize the triggers and know what places, types of situations, and people to avoid, I know a lot of the short term and even some of the long term patterns.  Many people with mental illness have a seasonal component that goes along, where they do worse during some periods than others.  For me, I have always done bad in late summer, usually August and early September.  For others it’s during the winter.

I always have had to remind myself during these days of depression during the last three months that I’ve been through these times before.  I’ve come through these times before.  And I will come through them again.  Better times will be ahead.

Medical Advances, Nutrition, and Mental Illness

It’s been a long while since I last posted to this blog, so an update is in order.  This post will be about medical advances and mental illness.  This is another reason for those of us with mental illness to hope that the future will be better than the present.  Many of the medications that are being used to help treat mental illnesses now didn’t even exist fifteen, twenty years ago.  

New discoveries are also being made in nutrition and how full body health effects mental health.  If you don’t get proper nutrition, the body won’t function well.  If the body doesn’t function well, the brain won’t either.  We all need to make it a point to eat healthier and more balanced, mental illness or no.  Let’s not kid ourselves, the typical American diet of highly processed foods and fast food isn’t healthy.

If you are under treatment for mental illness, always tell your doctor about all of the over the counter supplements you are taking.  Some of these, especially herbs and anything with alcohol in it, can cause serious side effects when mixed with anti-psych drugs.  Know what you are getting into.  Stay informed.  Read all of the handouts that come with your anti-psych drugs.

There are rapid advances being made in research.  These advances can and will find better treatments, perhaps sooner than we think.

Taking an Active Role in Treatment For Mental Illness

This entry is about speaking up for yourself and taking an active role in the course of treatment for mental illness. I will be discussing how to ask your doctor questions about individual treatment plans.

In working with a psych doctor, you need to be completely honest. This is not optional if you want your treatment to work. Your doctor may know the human brain very well, but he/she cannot read minds. You need to tell your doctor you your bad days and the details of the worst of what is going on with you. Especially if you are feeling good on the days you go in for your
checkups.

Early in the course of my treatment, I made the mistake of telling the doctor I was doing well simply because I was feeling good on the days that I was seeing him. At the time I didn’t realize that felt good on those days because I was seeing him. I believed rightly so that he would give me new insights into how to go about my treatment routines.

But I was making the mistake of not telling him about my really bad times. For the first two years we were stumbling in the dark as to what worked and what didn’t simply because I glossed over the bad aspects of my illness.

To make up for this I started making notes and keeping journals on how I was feeling from day to day. I was amazed, and I still am, at the amount of changes I can go through during the course of a month or so. I discuss what I learn from these notes with my psych doctor at all of my checkups. I recommend keeping notes and day-to-day journals for all mental illness patients to keep track of your mood swings and emotions. You’ll be amazed.

In addition to the notes of your day-to-day feeling and activities, I strongly recommend making a list of questions to ask your doctor about your illness. Questions can include “What can I do to make things better in addition to medications and counseling,” “What are the chances of my getting better,” or any other question you may think of for your particular situation.

This list of questions is important because it will give you better information and insight into how your illness is changing and your treatment needs to go. The doctor may know your illness, but you alone, know the true extent of your own problems. Mental illness is not a cookie cutter one size fits all deal. Mental illness varies greatly from one person to another. This is even true of individuals that have the exact same diagnosis. Body and brain chemistry play a role in how certain medications will and will not work.

Since no two people have the exact same body chemistry, finding the right combinations of meds can be somewhat of a trial and error deal. Sometimes you and your doctor will hit the bull’s eye with your meds; other times you may miss the board entirely, while others may work some but not as effectively as other types of treatments.

The important thing to remember in all of this trial and error is to never give up. I cannot stress having hope enough. New anti-psych medications are being developed all of the time. There is a great chance that there is at least one combination of medications and treatments that will work for you. Yet I can guarantee that is absolutely no one combination that will work for everyone. There just isn’t and probably never will be. But medical science is making new breakthroughs every year. Many of the best medications were not even in existence even ten years ago.

I recommend that you keep informed on your treatment and diagnosis. Read books about your illness. Read the handouts given out at the doctor’s office concerning your illness and treatments. Do read some of the Internet sites, but do be careful the sites. Some sites are very reliable. But there are many that are not reliable, some that are biased, and some that are complete frauds. Seek the advice of experts know mental illness treatments. Seek the counseling of people who work with the mentally ill every day. Keep informed about your problems. And inform your doctor about your problems.

Stressing on Stress

 

One of the problems that comes up for those of us with mental illness, myself included, is the issue of dealing with everyday stress and anxiety.  Stress about issues like work, money, taking care of family, community activities, running errands, routine housework and maintenance, etc. can be enough to tax even the most ‘normal’ of people at times.  Yet for those of us with mental illness, every day stress can be overwhelming at times, even crippling occasionally.

I have had to made adaptations to my life in order to reduce the amounts of stress in my life.  Over the years I have found the stress situations such as fast paced working environments, social environments where I’m expected to interact with many people I may not know well, and driving in fast paced heavy traffic areas have all been triggers for not only high levels of stress and anxiety, but also have triggered symptoms of my particular mental illness.  In my case, such instances have triggered paranoid thoughts, high levels of agitation and aggression, and even auditory hallucinations.  As a result, I have to be really careful about the jobs I apply for, the social activities I attend, and make it a point to find someone else to drive when I have to go to a major city and just offer to navigate.  I would not be any fun at all at a cocktail party with a hundred strangers I didn’t know.  Even though I scored really high on intelligence tests as both a kid and an adult, I probably couldn’t handle most office jobs simply due to the stress involved.

Stress is tough for even the most grounded people.  But it can be life altering and crippling for the mentally ill.  It can drag down even the most stabilized mental health consumers if left unchecked.  Sometimes even the stepping back and taking deep breaths isn’t going to be enough.  Sometimes a person just has to avoid certain circumstances altogether or even just know when to walk away.

Schizophrenia and What it Means

In previous posts I have written about my life experiences as a mentally ill individual.  In this post I’m attempting to describe the symptoms of my particular illness, rather than just the results of the symptoms.  I have done this in a poetic form.  So here goes.

 

Schizophrenia and What it Means

 

Schizophrenia means a broken mind,

A mind broke off from the real world.

Unable to separate the delusional

from the factual truth.

It also means crippling depression,

Constant sadness,

And mourning for dead potential;

The loss of a life that never was.

Schizophrenia shattered mind unable to process

most kinds of stress or anxiety

without ghostly hallucinations chanting their condemnations,

Causing wave upon wave of unrelenting anxiety

to slam upon an already tormented, battle weary soul.

How do I explain to old friends,

family, and strangers I meet

I am not well, have trouble holding a job,

When on the surface I look normal and well?

Lurking in the depths of my mind

The monster schizophrenia causes havoc,

launching an all out assault on my mental senses.

My abilities to socialize, to handle stress, to live normal,

are crippled.

I’m not lazy, I’m not a freeloader.

I’d do anything to be rid of this silent monster.

Filling Voids in Day to Day Living

            After I found out the hard way that I was going to not be holding forty hour a week employment, I needed to find a way to fill my days.  I could have been content to just sit in front of the TV for hours on end day after day.  But that type of life isn’t good for anyone.  Let’s face it, it just isn’t.  I decided early on that I needed to find activities that would bring variety to my life.  This would make my time worthwhile and interesting, not just endlessly dragging onto nothingness.

            There are many programs for the mentally ill and physically handicapped who are unable to work.  There are social clubs that engage in different activities everyday.  These activities can give an individual reason to leave the home and give a routine.  These programs vary greatly from town to town and city to city, so be asking around to see what’s available.

            Good source of information on social clubs include mentally ill individuals themselves.  Other sources my include your psych doctor, psych nurse, therapist, family friends, or just anyone in the know.  You won’t find out unless you are willing to ask around.

            We the mentally ill have as much need for socializing, appreciation, and belonging as anyone who is considered normal.  Such outlets as church groups, NAMI, and Goodwill are important for those with mental illness issues that make working difficult or impossible.  People are not meant to be isolated for long periods of time as we are social creatures.  Every person has a need to belong to something and identifying with something bigger than just an individual.  Entire sciences such as sociology, psychology, political science, etc. are devoted to learning why people act and socialize the way we do.  Socializing with others is so important to our own humanity that it should never be neglected.

            In America, we are closely identified with our jobs and careers simply because we spend so much time engaged in our employment.  We are now more identified by our employment than by anything else we do in this country. 

            Yet this line of indentifying is a drawback for those of us who are not able to hold long-term employment or hold employment at all due to physical or mental disabilities.  It is even more of a drawback for the mentally whose problems are not are not as obvious as other illnesses.  The line of thinking for many in the mainstream is that if you are not physically disabled or not in a mental hospital, you ought to be able to work full time.  It doesn’t always work out that way.  Mentally ill individuals do not always have physical signs of problems.  Most would never guess who among us is mentally ill if we were seen just once in public.  Yet the mentally ill can have as many problems as the physically ill.

            I cannot stress enough the importance of finding activities to fill the voids in time in your day-to-day life. Life is meant to be exciting and we are meant to interact with other people.  Life is not meant to be spent hiding in your home and living in fear.  For some of us who don’t even like going out in public, a walk to the corner and back can be a start.  Or perhaps you can do your shopping at night or when the crowds are not as large like I do. 

            The important thing is to not take in too much all at once.  You need those small victories before you can go after the big goals and challenges.  Positive and lasting change is a slow process.  But the results are well worth the time and effort.

            I cannot stress enough the importance of having at least one hobby.  Hobbies have been shown to reduce stress and give joy to people.  We have different interests and talents.  There has never been anyone who couldn’t develop a talent for at least one thing that they have a passion for.  Only you can tell what your interests truly are.  If you are not entirely sure about your talents, take some quiet time every day to listen to that “little inner voice” of your heart.  That could be yourself telling you what you are truly interested in. 

            It also doesn’t hurt try out different activities to see what you are interested in.  If you are truly interested in something no one has to push you into such an activity.  Follow your heart and it will lead you to your true interests.

            Another bit of advice is don’t just sit in your home and stare at the TV waiting for life to happen.  Go out and do something with your life.  Interact with other people.  Get in touch with old friends and family members that you have lost touch with.  Even if these activities last for only a few minutes a day, do something with the life that you have.  Gradually build up if you have to.  You don’t have to be successful to start but you do have to start to be successful.

Overcoming Loneliness

Loneliness is often a problem for those of us with mental illnesses.  Our loneliness is often brought about because we are scared to socialize with “normal” people because of stigmas that still surround mental illness.  Loneliness can also be caused by the paranoia that accompanies many mental illnesses.  Loneliness can also be caused by depression when people are to sad or depressed to go out and socialize with even close friends.  Any one of these alone can make the idea of socializing daunting.

Loneliness can be overcome.  It can take a long time to overcome, though.  It certainly takes a great deal of effort to overcome a fear of socializing and opening up to people.  The topic of your mental illness can scare anyone into thinking that no one would want to socialize with him/her.  However, it is not necessary nor advisable to discuss any aspect of your mental illness the first time a new person is met.  Only when any person has earned your trust should you feel like you could discuss it with him/her.  Even then, discuss it only if you feel comfortable doing so.  

There probably will be times when you have new friends who wish to discuss aspects of your illness before you are ready.  In such cases, it is necessary to be polite, tactful, yet firm that you are not ready and do not wish to discuss such issues about your illness at that time.

Fears of socializing can be overcome by with practice and by gradually pushing your limits.  There is no need to feel that you have to conquer your fears all at once.  A fear of socializing, like any fear, can only be overcome by repeated acts of gradually increased bravery and courage.  It just may be just enough to say hello to your neighbors or someone in a store as a first step.  A second step may be to make some mundane comment about something as harmless as the weather to the clerk at the grocery store or anything like that.  From there, you can build up and branch out.  Socializing is by no means an exact science.  It is not something that can be learned from reading a few books or watching others do it.  It has to be learned by trial and error.

From my own personal experiences, I was by no means an extrovert growing up.  I didn’t learn a great deal about ‘normal’ socializing until I was well into college.  I don’t know how much of this was due to my illness or my being a natural introvert and I’ll probably never know.  The fact remains I would have never learned what social skills I have now had I never attempted to work on my skills.  I took a risk, faced my fears (and there were a lot of fears and paranoia), and came out better because of it.  You can too.  You just have to keep working at it.  There are no easy ways around it.

Being Held Accountable While Having A Mental Illness

         This is kind of a tough topic to write about.  I’m going to discuss being held accountable while having a mental illness.  I know that I am walking a very fine line when I say that there were times that I, as a mentally ill person, needed a healthy dose of tough love from my friends and family.  Fortunately, I have friends and family that know me well enough that they know when I’m using my illness as an excuse for when I could be doing better.

         Being mentally ill myself, I completely realize that not all mentally ill individuals would fare well at all under the tough love approach, especially when applied hap hazard.  I am not advocating hap hazard approach to tough love with anyone.  I am saying that there are some of us who can handle such a thing, in the right manner applied at the right time.  It is a fine line to walk and should be applied only when a support person (whether it be family or friends or counselors, etc.) knows the mentally ill individual extremely well and knows when it will work.  It is far from an exact science.  I would go as far as saying it’s like raising children, knowing that some things work with one of your kids but doesn’t work at all with another.

          Fortunately, it is possible to hold someone accountable without resorting to tough love.  Tough love should be used only as a last resort.  But use with caution and always use with healthy doses of love.

         My bouts with schizophrenia and depression made the going in college and the first few years of work extremely rough.  There were times that I just wanted to quit on the idea of being able to work.  But with people like my parents, my friends, my psych doctor, my counselors at college and later when I was working, and my extended family, I had plenty of people holding me accountable.

       Support people are not there just to be a shoulder to cry on.  They are also there to administer a healthy dose of discipline and tough love when necessary.  And there are times when tough love is necessary for even the mentally ill if we are to improve our current situations.  We have to be held accountable like everyone else, sometimes even more so.  I am sure there are many times I didn’t make things easy for my support people at all by my actions and bizarre behavior. 

        Had I not had a counselor to meet with once a week while in college to help keep me grounded and focused, I probably would not have graduated college.  I certainly wouldn’t have done as well in my classes as I did.  And that is simply because I knew I had someone who was going to ride my case if I didn’t do the job in classes. 

       Had my friends and family not encouraged me through occasional tough love, I would not have tried several different jobs before I finally I found a job I could do that I was good at and that didn’t cause me much stress.  I may not have been working my dream job, but I had the discipline to stick to a job for over four years had my friends and family not challenged me to keep looking for work when I was ready to throw in the towel.

       I didn’t like the tough love approach at the time it was being applied.  The thing is, it’s not supposed to be liked; it’s supposed to motivate you to do good things with your life.  Sure I as a mentally ill individual could just mope for the rest of my days about what I have lost?  But what does that gain me? 

        Sure you are mentally ill or may know someone who is mentally ill?  But what are you going to do about it now?  Are you going to learn about the illnesses and try to better yourself?  Or are you just going to drift through life?  The choice is yours.

Struggles With Mental Illness in College, Part 2

            In a previous blog entry, I wrote about my struggles during the first year and a half of college before I began treatment.  This entry will be about my struggles after my treatment began.  Just because I was under treatment didn’t mean my problems were over.

            During the last three years of my collegiate career, I never achieved the quality of grades I had during my first year of college.  I also changed over to a different major.  I originally started college as a pre-pharmacy student.  After a year and a half of struggling with my mental illness as well as my classes, my grades were bad enough that I wasn’t going to be getting into pharmacy school.  I needed a change.

            I switched to a business management major, which was a surprise to my family.  I had never taken any business classes in high school.  I didn’t have much of an aptitude for sales, and I was quite an introvert.  So to my family and friends the move didn’t make much sense.  But to me it made a great deal of sense.

            In my line of thinking at the time, I wanted to be able to be employable with a good job as soon as I graduated from college.  Even though I was really passionate about literature and history, I always figured I could read all the history books and classics of literature on my own time when I wasn’t studying for my business classes.  With my best friend being a history education student helping me out with history and classical literature books, which is exactly what I did.

            I admit with this “Dual Study Program” with my studying business classes officially by day and reading my classical literature and history books late at night and on the weekends, I didn’t have much time for outside socialization.  I had my small core group of friends, and I also made it a point to be friendly as possible to as many fellow students as possible.

            As the last three years of college went on I slowly picked up a few more friends and gradually went to more social activities.  There were a few music bands on campus that occasionally played weekend concerts that I went to.  They were pretty much cover bands that also played some of their own material.   I made a few friends with some of the band members through that.

            I also made a few friends through some of my business clubs like Students In Free Enterprise.  I also went to many of my college’s home baseball and basketball games.  I preferred the baseball games because of the more laid-back atmosphere of baseball and I had a few friends on the team.  I also made a few friends through games of softball, ultimate Frisbee, and flag football.  I wasn’t a fast runner but could be a vicious blocker.

            I bring all of this up to show that I was able to have the average college experience in spite of having a mental illness.  There were a few things I obviously couldn’t do, namely the drinking scene because of my medications.  But I wasn’t in college to drink and drug.  I was there to get a degree.

            I didn’t work during the school year because of the stress of going to school full time, having a mental illness, and having a job would have just been too much.  So I worked in the summers instead.  It also helped that I had a good academic scholarship based on my grades.  Even though I wasn’t getting straight A’s, I was still managing to do well.  And I was enjoying the college experience at the same time. 

            A strange thing happened during my last year of college, I became interested in writing.  I had been reading voraciously the previously two years, so I suppose that writing would only be the next logical step.

            All of the struggles, problems, victories, and defeats of five years of college came to a culmination on May 8, 2004.  That was the day I graduated from college.  Graduating from college meant that I had overcome the problems of mental illness and accomplished my life long goal of finishing college.

            While it’s been several years and I still haven’t found permanent employment in my major, I still won because I was able to finish college.  I thank God that I was able to finish in spite of my illness.  Finishing college by itself is hard enough.  Throwing a mental illness in the mix makes the degree of difficulty pretty steep.  I hope that by finishing college that perhaps someday I can encourage someone with a mental illness to reach for and achieve their dreams.

Coping During Difficult Times With Mental Illness

          We all have difficult times when it seems the breaks are beating us and absolutely nothing is going our way.  Sometimes things seem bad enough that no matter what we do, things just get worse.  This is true for even the most sane of people.  Yet this is even tougher for those of us who are mentally ill.  We can become agitated and disoriented even on average days.  On days when things are going especially bad, the situations that arise can become almost too heavy of a burden to bear.

            This is where finding the strength to continue on comes in.  Strength to fight the good fight can come from several different sources.  A source of strength for a mentally ill person can come from a support person.  A support person, whether it is a family member, a friend, a doctor, a counselor, or anyone to hold us accountable can help anyone cope with difficulties.

            Everyone needs friends and family to lean on during tough times.  Human beings are not meant to be alone and isolated.  This is true especially of the mentally ill.  We who are mentally ill need to have support systems in place for when things go wrong.  Believe me, they will go wrong.

            The support system can comfort you, calm your fears, and let you know that these difficult times will not last.  Those of us who have weathered the storms of mental illness and come out stronger because of them are in turn better able to help those who are just starting out.  It is easy to bemoan that we are different or can’t do what we used to.  But that won’t make it any easier for us.  And it certainly won’t make us more able to weather the next round of storms or help someone else in need.  It sometimes takes an honest and loving support person to remind us of this during our times of distress.

            Do not give up.  Giving up is not an option.  Strength can come from many sources, even from within.  Strength to continue on will sometimes be the only thing that carries you through one moment to the next.