Tag Archives: mental illness and friends

Mental Illness and Friendships

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Earlier this week I had one of my best friends from college spend a few days at my apartment.  We went out to eat at a couple of places I had been meaning to try.  We went to Omaha to catch a minor league baseball game, which is a fun way to spend an evening and can be done for less than $25 a person pretty easily.  We had front row seats on the first base line and the seats cost only $13.  I took him to one of the parks I go for walks in and crowd watch.  We also chatted extensively about topics near and dear to us, topics like economics, future tech possibilities, history, our fantasy league baseball teams, dating experiences, etc.  I’m going to see him again in July when I go to the Black Hills of South Dakota as I’m one of the groomsmen in his wedding.  I got remeasured for a suit and, even though the weight loss has slowed for the last couple months, I am actually down a few inches in most of my measurements.  Go figure.

For the few days he was here, I had no problems with the mental illness flaring up.  While I am quite steady most of the time anymore, I still have moments of weakness when the problems come creeping back.  I haven’t completely mastered warding off these flare ups, but have learned not to act on these negative emotions and thoughts.  Even when I have the flare ups, I’ll usually just rant and rave but not actually act out physically.  And my family, to their credit, put up with it and don’t try to argue with me when this occurs.  By now we’ve figured out the best way to get out of a down ward spiral is to often allow me to just burn myself out by ranting for awhile as long as I don’t physically threaten anyone or myself.  The odd thing about having schizophrenia is when I am having these psychotic breakdowns is I am completely aware of what is going on and what I am saying but the impulse controls are not working nearly as well.  Fortunately for all of us involved my bark is far worse than my bite.  And to their credit, my family and friends endure my problems and quirks like champs.  That is why it is important to keep in contact with friends and at least attempt to keep things civil with family members.  They can help smooth things out when things go bad.  They also make living far more interesting.  The most important thing in life is our friendships and relationships with other humans.

Reflecting on the Past before My Birthday

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On June 14th, I’ll be celebrating another birthday.  I’m getting to the point where I’m almost halfway done with my life, considering normal lifetime expectancy.  I’ve also lived over half of my life with schizophrenia at this point.  The biggest thing I have figured out over these 35 years of living as a human is that the only true certainties in life are change and unfairness.  We can make all the plans we want for our lives, but nothing goes exactly to plan. There will always be snags, problems, opportunities missed (and taken), and changes in direction.

When I was 16, I had the next 30 to 40 years of my life planned already.  I was going to graduate from high school, then college, then medical school, then go on into medical research, get married, have a couple kids, own a house in the suburbs of a large city outside of Nebraska, make well over six figures, and help develop something that would benefit humanity through my research.  Besides graduating from high school and college, none of that happened.  For years I was brutal on myself thinking “It’ll all fall into place when you get your big break” or “People less intelligent and less ethical than you are having good careers, why can’t you get things together”.  I spent my twenties after college going from one remedial job after another, finding out the hard way that my ability to handle stress and interpret social cues and understand social norms were all severely damaged by schizophrenia.

For those years of struggle, I thought I was a failure and not trying hard enough.  I would get panic attacks and bouts of nausea before I had to go to work every morning.  It got so bad I had my stomach scoped to see if I didn’t have some underlying gastro intestinal problems.  I didn’t.  I also had to spend years listening to the whole “all your problems are in your head” nonsense.  Everything we experience is merely electrical signals interpreted by our brains, so no kidding it’s in my head.  It’s in all of our heads.  Telling someone with a mental illness it’s in their heads is cruel and does nothing for them.

I was also told the whole “have faith and it’ll help you” nonsense.  I won’t even address that subject except to state I had more faith than everyone I knew until my early twenties and I still developed a mental illness that destroyed my productive ability.  I still get these feel good memes that oversimplify while not addressing root issues.  I even had someone I thought was a friend tell me, to the effect, I wasn’t a real man because I didn’t have a job or a family.  I still deal with ignorance and cruelty after eighteen years of mental health problems.  Granted it doesn’t ware on me or anger me as much as it did ten years ago, but it still hurts.

Seen and experienced lousy things, horrible hallucinations, and harbored horribly violent thoughts in eighteen years with schizophrenia.  But I did learn to not discount kindness and empathy when it does come.  I also learned the value of real, genuine friends, something that not many people have at all in their circles of friends.  Hopefully the struggles, disappointments, and good friends of the first 35 years will prepare me well for the next 35.

A Letter To My 18 Year Old Self

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High school graduation season is in full swing in my home state.  Some times it’s tough to believe I’ve been out of high school for sixteen years.  So much has happened since I became an adult.  What follows is what I would tell myself if I had a time traveling DeLorean or funky booth like Dr. Who.

Dear Zach

You have just finished high school and your adult life now lays ahead of you shooting off into the unseen distance like the open highway in Jack Kerouac’s “On The Road.”  You didn’t take any time to appreciate the fact you graduated from high school, looking ahead to the challenges and opportunities of college instead.  You should have appreciated your time being somewhat of an outsider in your high school.  First because the people that struggle socially in high school often are the ones who adapt to the adult world better.  Be happy the highlight of your life wasn’t your last football game or Senior Prom.  You will face far tougher issues than losing the big game. You will have greater thrills than wearing an ill fitting rented suit and dancing among tinsel and paper miche decorations in a basketball gym.  Things like that will be remembered by NO ONE.

The challenges you will face in the coming years will be great and many.  When these challenges and disappointments come, you will be thankful for having developed a strong mind and ability to handle adversity, loss, loneliness and pain.  Because you didn’t have legions of fair weather friends, you will appreciate true friends and confidants.  Because you know what it’s like to be treated poorly, you will have compassion for others.  Because you didn’t allow yourself to concentrate on only academics or football or speech or your weekend retail job, you have made yourself a well rounded and well versed man.  Being well rounded won’t help you in a corporate job, but it will make you more self reliant and more aware of what’s going on around you.  It will make you interesting too.

I see you have your high school annuals.  You’ll be happy you kept them even if you go entire years without looking at them.  In coming years you will be amazed at how much you were involved, how much you accomplished, and how well prepared for college and the ‘fast times and hard knocks’ of the first several years of life in the real world.  Be happy you acted in the school play for two years, you won’t have that back.  Be happy you did three years of competitive speech, you developed courage and an ability to improvise, make split second decisions, and hide your fear from the outside world.  Be happy you played football for three years, even though you were at odds with your teammates. Not many people can say they did athletics in high school.  Millions may watch football from the stands in towns all over America on fall Friday nights, but you were part of the action.  It’s the closest you’ll ever get to feeling like a rock star or Roman gladiator.

Take joy in the fact you went to a small high school.  You may not have had dozens of Advanced Placement classes or a program for gifted students, but it will drive you to read and study on your own.  Be grateful you were unable to disappear in the crowd when you were harassed and annoyed by other students, it forced you to face your fear because you couldn’t run away.  Things like that develop courage and fortitude, running away from your problems or hiding in a clique won’t.  Be happy you couldn’t spend your days reading comic books or playing D&D.  Later on you’ll have friends whose only out of school activities were just that.  While they are good guys, be happy you had to rely on your own imagination to develop your own stories and got to draw upon real people and real experiences to find inspiration.  That, and most girls don’t find D&D and comic books fantasies very sexy.

Speaking of girls, don’t believe the nonsense you’ll date, party, and sleep around several nights a week in college.  “Animal House” has nothing to do with real college.  John Belusi won’t be your roommate.  You can go hang out, get a little crazy, etc. at times.  But you’ll be far ahead of 80 percent of your classmates when you keep things like that in moderation.  The few who do nothing but study won’t have the friends or the experiences.  You will be shot down and have girls stand you up even more in college than in high school.  You will have bad breakups, you will have terrible dates with girls, you will be frustrated, and you will have heartaches.  You will also realize that there are worse things than not having a girl in your life.  When you see high school and college classmates go through divorces and unhappy marriages, you might even be grateful for loneliness.

As far as your classes go, don’t get tough on yourself for not making Dean’s List or not graduating with honors.  Most people that get those honors studied easier subjects than Pre-Med or Business Management.  Spoiler alert, Zach, you won’t get the dream job you gunned for all the way through high school.  You will experience pains and horrors that make Dante’s “Inferno” look like an Adam Sandler comedy.  I won’t go into details because you won’t believe such things could happen to someone who worked as hard and was as ethical as you.  Just believe me when I say bad things happen to even good people.  That and no employer will ask to see your college diploma.

Zach, be grateful for the challenges ahead. They will teach you that you don’t need a prestigious job or lots of money to live a happy and content life.  You will learn the best things in life are other people and your experiences.  Be happy you went to the small college you did.  You got to make friends from all over America and the world.  Most people that go to large, prestigious universities don’t get to have the variety of friends you will.  Be happy when you get to learn early on that life isn’t about working most of your waking moments at a mind numbing job, chasing money to buy junk you don’t need to impress people who don’t care.  All I will tell you is every day you wake up, be thankful if aren’t a cubicle jockey or a serf in a designer suit racking up debts on meaningless trinkets and thrills.

In closing, Zach, always remember the words of the late Bill Hicks: “It’s just a ride.  And you can change it anytime you want.”  Be happy that you can and will.

Yours truly,

Your older self.

Stability With Schizophrenia and Updates

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It’s been awhile since I posted.  Some updates and randomness are in order.  With spring being in full effect now, I’ve been outdoors and exercising every day.  We have a park that has some hiking trails that I’ve been doing for close to an hour a day about three to four days per week for the last few weeks.  Still get a little muscle soreness from this but I’m doing far better than where I was one year ago.

The mental health is even more stable at least 95 percent of the time.  I still have my occasional flare ups, especially under stress.  Fortunately I’ve gotten to where I either isolate to avoid physical contact with people or I’ll call a friend or family member and just talk my way back down.  Some of these conversations are scary even for me.  I know it’s even more so for those talking me back to sense, especially when I get personal about my rants.  I just hope friends and family don’t take anything personal because I am not vindictive or combative by nature.

I also got a different car.  A family friend was looking to sell a ten year sedan with only 34,000 miles.  So we, my family and I, took it.  My previous car was starting to have issues.  But it was over fifteen years old.  Many people don’t have houses that old.  With my newer car I’ve been getting out a little more.  I rarely travel outside my hometown during the winter months.

I’m going to be a groomsman in a college friend’s wedding this July.  They are both high school teachers in South Dakota.  It’s an outdoor wedding in the Black Hills of South Dakota.  Beautiful country, especially in the summer.  If you haven’t been there, I recommend it.  I had to get measured for a suit.  I was measured a few years ago for when I was a pallbearer at my grandmother’s funeral, but since I lost weight I was due for a remeasure.  I get to spend three days in the Black Hills, always one of my favorite vacation spots.

Overall, things have been going well.  Been exercising almost everyday.  The weather is excellent.  The mental illness problems are at a minimum.  My new car is serving me well.  My old friend from college is getting married and I get to see it up close.  I’m getting out more.  No more spending entire days indoors because of winter weather.  I have been silent on this blog for a few weeks.  Not because things have gone bad, it’s because things have been going well.  Sometimes no news is good news.

Seeing Old Friends

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I haven’t written for two weeks because I spent almost a week in my childhood hometown. I spent that time visiting old friends from my high school years.  One of these friends in particular, the best friend I have ever had, I hadn’t seen since we were eighteen.  We kept in contact through Facebook and emails, but none of that is the same as seeing a friend in person.  I was pleasantly surprised that she and I were able to pick up as if it was only a few days since we last talked, let alone sixteen years.  I was actually quite speechless when we first met last week simply from being overjoyed at seeing this friend who stuck by me through the highs and lows of mental illness.  Years ago in high school, when I was having my first problems with crippling depression and bouts of anger, she was the first one to suggest that what I was going through was not normal teenage angst.  She observed this before even I did.  Good friends like this need to be held onto.  It’s not like good friendships can be found every day.

This visit with old friends reminded me of how valuable having some people who will support me, and I support them, truly is.  In my current life, I don’t always have a healthy social life.  Much of this is due to the paranoia aspect of my mental illness that makes it tough for me to tell whom is trustworthy.  Since my default mode is to assume I cannot trust someone I just met until I can tell otherwise, this makes starting new friendships and social contacts pretty tough.  Social safety nets are not only essential for any kind of stability for those with mental illness, but they make life much more enjoyable.  They are the pleasant memories of when things are going well that can make the difference in getting through tough times that come and go for all people, mental illness or no.  To paraphrase the late Robin Williams from ‘Dead Poets Society’ (one of my favorite all time movies), ‘Now medicine, business, engineering, science are all good endeavors that are necessary to sustain life.  But it is things like art, poetry, beauty, love, friendship that are reasons we stay alive.’

Happiness, Love, and Mental Illness

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Happiness, Love, and Mental Illness are rather difficult topics for me to write about.  Not just because they bring up emotionally difficult concepts, but because it is often tough to explain to other people, neurotypical or not, what these things mean to someone like myself.  While I cannot obviously attempt to speak for everyone with a serious mental illness diagnosis, I simply was never mentally hard wired to have a universally accepted definition of happiness.  My personal definitions of happiness is “a sense of calmness and peace about myself and my surroundings” and “a state where depression, sadness, anxiety, anger, and stress are not my dominant emotions for any set period of time.”  I cannot obviously comment on what happiness means or is interpreted by others, simply because it is impossible for me to get into someone else’s mind and see the world exactly as they see it. I was not made in such a manner as to know what constituted most pleasant emotions such as love, happiness, joy, etc.

Some will no doubt think that my stated definitions of happiness are very odd. Others may even think I am a liar when I state that I literally don’t know what others feel when they are happy. In fact, I usually cannot tell when others are happy. I especially cannot tell when others are happy or pleased with me unless they specifically say so. Even though I have the ability to know how others are likely to act in certain situations, I simply cannot tell what others are feeling. It is impossible for me to read any non verbal queue. The only way I can tell for sure is through their actions. I have a very hard time telling when someone is being deceptive, manipulative, or when a person is being sincere and honest just by their non verbal queues. As I tend to feel paranoid and threatened even on a good day, my usual default mode when dealing with people is the assumption that others are malicious and untrustworthy unless they prove otherwise through their actions and reassurances. The only people I know I am in good standing with no matter what are the handful of people that I’ve been confidants with for more than several years. Growing up with the early stages of schizophrenia that had not made themselves manifest, I never knew with any kind of certainty where I stood with friends, classmates, teachers, adults, and especially my own family unless I was specifically told where I stood. To this day, I just assume I’m out of favor with someone unless I am assured otherwise. To me, that is just as natural as the sky being blue and the sun rising in the east.

As tough as happiness was in writing about, talking about an emotion that is a very tough one for even neurotypicals like love is like climbing Mt. Everest without supplies or a guide. I simply do not understand the neurotypical ideas that are entailed when they state the word ‘love.’ I have no real basis or understanding of the word love. I don’t know how to interpret it from others, I have no built in way to tell if someone loves me (especially if it’s a member of the opposite sex that peeks my interest) and I don’t think I even know how to send out the idea that I love someone. In fact, there really is no hard definition in the English language of the word love. I like how the ancient Greeks had several different words for different types of love. The Greeks had separate words for love between a husband and wife (eros), love for a nation or group of similar people (philios), and unmerrited or Divine love (agape). Having something like that would make things easier for people like me who have difficulties understanding cliches, vague ideas, and things that lack a hard definition.

We live in a civilization that is obsessed with the idea of finding true love and how to preserve such love. Yet there is really no hard and accepted definition of what love truly is. To someone like myself, it is aggravating that there is no hard set definition. It is especially aggravating to me that when I do feel something special for a woman, I have absolutely no sure fire way or instructions as to how to let someone like that know exactly how I feel about her. In the vast majority of cases, what I felt for a girl and what she felt for me where nowhere near close to the same feelings. As a result, I have been on very few dates over the course of my life. With my mental make up being what it is, even though I assume the worst about other people I really don’t know well, the rejection I get from others is still painful deal with. I simply am unable to read non verbal queues. The verbalized ones I do receive, I often interpret in my mind as very likely being far worse then what the person talking with me ever intended. Thus the idea of even casual dating, let alone marriage, scares me so much I won’t even attempt it anymore. It is not within my definition of love or friendship to be in any kind of relationship or partnership where there is any real strife.

People think I’m lying when I say I’ve had friendships that have lasted for around 20 years where I have not even had a real argument with the friend. Others may argue that this a sterile friendship that lacks any substance and character. That is far from the truth. The best friend I currently have, who is by the way a woman I have known since my junior high years, we probably have a better, more fulfilling friendship than most friendships or even marriages could imagine as possible. The only serviceable definition of love I know of in the English language comes from St. Paul’s second letter to the early church in Corinth (2 Corinthians, Chapter 13 I think). Even that wasn’t originally written in English (it was originally ancient Greek) and it was written almost two thousand years ago.

In closing I have much chaos in my mind due to my mental illness. That is why I crave stability and absolutes in my outer life and when dealing with others. Yet, I have rarely found any lasting stability in my relations with other humans. I have certainly never found any stability and absolutes when trying, and failing miserably, when trying to secure the affections of a woman I have feelings for. I have failed so miserably in looking for stability and reason in my dealings with other humans that I have essentially accepted this as a futile and pointless task. And that continues to cause me a great deal of stress, sadness, anger, and strife to this day. As I stated earlier, having such feelings dominate my mental outlook is my standard mode of operation because of my mental illness. By my own definition, I am typically not sensing what I understand to be happiness and certainly I don’t know what it is to feel loved.

Coping With Losing Friends During Mental Illness

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            When I was in high school I began having problems with what was the beginnings of my mental illness.  I began to act very strange and unusual.  I had developed a very volatile temper because of my mental illness.  Before I became ill I was very easy going and I didn’t get upset very easily.  In grade school I was even one of the class clowns.  All of that changed when my mental illness came into being.

            I would get very angry over anything and everything.  The most meaningless snide comments from a classmate would often be enough to make me very angry.  It also came to be that I hated many of my classmates because I believed that they were out to harm me.  This was, as I learned in retrospect, due to the paranoid aspect of my schizophrenia.  I would often be very defensive and standoffish.  I would rarely open up to anyone with the exception of my best friend.  I never got into any fights in high school but I came close several times.

            Since I was building up walls around myself and not opening up to anyone, my friends gradually disappeared.  I didn’t notice this at first.  It wasn’t until I was almost half way through my senior year of high school I realized that all of my friends were gone.  Looking back I know that was because I had become standoffish, distant, bizarre, paranoid, and very angry.  All of this was occurring for no outside apparent reason, but within my brain I was undergoing massive upheavals.

            I know now that my parents knew that something was severely bothering me.  Yet since I was so paranoid I kept my issues to myself.  This didn’t help at all.  It made things much worse to have to put up a false front and have a developing mental illness at the same time.  I was terrified of what would happen if I let my parents know what was really going on inside of my mind.  It was terrifying enough for me to experience it and not know what was going to happen from one moment to the next.  I had no idea how to tell them I wasn’t all right at all. 

    How do you tell someone what is wrong with you when even you don’t know what’s developing?  We know all about the symptoms of heart problems and cancer.  We have those hammered into our heads by the press and popular culture all of the time.  Yet the public at large is still quite ignorant of the symptoms of mental illness and mental health problems.  I didn’t even know what I was going through had a name or that I wasn’t alone when I first became ill in the late 1990s.  The Internet was still in its infancy and information on mental health and mental illness issues was not very easy to find.  I had no idea what was going on inside my head.  My paranoid aspects of my illness made me reaching out for help from other people almost impossible.

I certainly didn’t seek the help of my school counselor.  I was fearful that talking to the school counselor would be ineffective.  I had my head full of visions of counselors asking questions about my childhood and making me tell them what I saw in large inkblots.  I was also scared of getting labeled because I went to a very small high school with less than one hundred students in the entire high school.  I was paranoid enough that I didn’t want my problems becoming public knowledge.  High school kids are notorious enough for being gossips and cruel.  I just knew, in my paranoid state, that my classmates were already talking behind my back.  I just knew that going to the school counselor would have made things much worse.

Since my classmates knew I didn’t drink alcohol or do drugs they had to know that something was really messed up with me.   It’s easy to dismiss someone’s erratic behavior because of drinking or drugs.  But because of the lack of public knowledge and discourse about mental illness, the possibility that someone’s odd actions may be due to an undiagnosed mental illness will almost never occur to someone.  So looking back on my high school days, I can see why my classmates were alienated from me.  It wasn’t because of anything malicious; it was because they had no idea of how to work with a classmate with an undiagnosed mental illness.  I have to attribute that to a lack of knowledge and public discussion about mental illness.

Fortunately I made several friends in college who accepted me in spite of my mental illness.  By then I was being treated and the treatments were quite effective.  Thanks to the Internet and social media like Facebook.com, I have kept in contact with many of my college friends.  I am also now reestablishing contact with my friends from high school that had become alienated because of the onset of my paranoid schizophrenia.

I have had a few friends tell me that because of me they have been able to better understand those with mental illnesses.  I have also been told that simply because of being friends with me they have gotten past many of the stigmas and prejudices that are associated with mental illness.  I’m glad that there have been some positives to come from my mental illness.