Reflections On Being a Recovering Doom Junkie

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As I’ve been laid up for the last few days with a sore foot that is only now starting to clear up, I have been allowed the opportunity to reflect back on all the changes that have happened over the last several years in my lines of thinking.

I turned 35 years old this summer.  Even after being a college graduate, working for several years, and being on my own for a dozen years, I’m still not as smart as I thought I was at age 18.  But, I enjoy being an adult.  I also have enough years of experience that I’ve survived several supposed “end of the world and collapse” type scenarios that I chuckle every time I see such drivel. After seeing the ’88 Reasons for the Return of Jesus in 1988′, the Branch Davidians, the Hale Bop Comet cult, Y2k, 9/11, the tech bubble, the stock market bust of 2008 and subsequent Great Recession, the Mayan apocalypse of 2012, listening to my grandparents’ stories of the Great Depression, Dust Bowl, and World War II, and seeing ‘evidence’ that every U.S. president since at least JFK was supposed to be the Anti-Christ, I’ve developed the attitude of “Meh, let it come.”

I suppose this is an advanced line of thinking, especially since I am prone to unhealthy paranoia.  But the older and wiser I get, the less time I have for doom and gloom nonsense.  I spent a couple years researching some of that doom nonsense myself and even thought some of it possible.  But then, I used to think that Santa Claus, the Easter Bunny, magical elves, pixie dust, and Disney fairy tales were possible too.  When I was a child I thought and acted as a child.  Now that I am a man I put foolish and childish things aside.  Wise words, St. Paul.

As I’ve experienced changes over the course of my 35 years I’ve come to the conclusion that change is the only constant.  I’ve come to embrace it and actually hope for even more. I’ve also accepted that there are always going to be hustlers and well meaning fools that are convinced that the ends of civilization and humanity are just around the next corner.  If I live long enough I’m probably going to see blogs and youtube videos, or the successors to blogs and youtube, about how the manned missions to Mars are hoaxes, how greedy elites are hoarding the proceeds from asteroid mining for their evil purposes, how we’re all going to die from nanotech and anti-matter experiments gone bad, etc.  I’ve seen enough of this before.  Nothing new.  Since our ancestors survived several ice ages and bubonic plagues I know at least some people will be able to whatever comes our way in the future.  One could make a fortune not betting against humanity.

Good Times and Bad Times With Schizophrenia

238943_v1I have found when I talk to chronically normal people about what life with a mental illness is like, they are often surprised that it mental illness isn’t always the same all the time.  They seem to be shocked I have good days, let alone times when I laugh out of happiness.  I imagine that even informed normals just think that someone with mental illness problems has nothing but problems.  Some just think that because I deal with schizophrenia that I have delusions, paranoia, agitation, and depression all the time.  Not so.  The Hollywood images of the mentally ill being in a hospital being zombie like or loudly ranting isn’t entirely true.  Just because there are those with mental illness who sometimes zone out or act ‘stark raving mad’, that doesn’t mean that even those are like that all the time.  No it isn’t all doom and gloom anymore than it is all wine and roses.  We have our good days and bad days just like even the most chronically normal individuals.

It may be a jaw dropping shock to some, I do have good days even with a mental illness.  I do experience moments of what I understand to be happiness.  I have times where I am not depressed.  I have times when I am not delusional or paranoid.  In fact, most of the time I am not delusional or excessively paranoid.  When I do have my problems, sometimes it’s only with depression.  Sometimes it’s only with excessive agitation or annoyance.  There are some times I deal with depression and paranoia at the same time.  I am occasionally depressed and delusional when I do feel that living a life with a mental illness is hopeless and better treatments or, gasp, an actual cure for mental illness will not be coming.  Fortunately it is only rare that I deal with agitation, paranoia, and delusions all at the same time.  That usually only happens only a handful of times per year, with the worst instances coming in late summers.  It is those very rare times that cause me, and my friends and family, the most grief.

Delusions that can’t be shaken for a while, crippling depression, being easily agitated, and excessive paranoia are the worst problems I have as a man with schizophrenia.  The hallucinations are taken care of as is the impulsive behavior.  Even when I am at my worst, my bark is far worse than my bite.  But even then, I can usually be talked down out of it within a couple hours.  It can be a lively conversation for those couple hours, and that’s putting it politely.  Fortunately I haven’t hurt myself, anyone else, or gotten myself hurt by anyone else during those times.  Even with the four major symptoms of my schizophrenia, I usually experience only one or two at a time.  That is most of the flare ups I have.  The instances where I have three symptoms at once are rare.

Being Hospitalized For Mental Illness

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This entry is going to be about the two times I was hospitalized for my schizophrenia.  Even though I was officially diagnosed with schizophrenia in 2000, I was never hospitalized for it until the fall of 2006.  I was not an Emergency Protective Custody (EPC) case as I self committed voluntarily.  I came to the conclusion I needed help because of severe anxiety and flare ups of my paranoia.  These were caused by job place problems and several stressful occurrences that happened throughout the year 2006.  To start the year 2006, I lost my job at the university and had to leave the MBA program.  I had also applied for Social Security Disability Insurance shortly afterward.  At the time it was a major blow to my ego and self confidence as I thought it was admitting defeat in my pursuit to be self-supportive.  I also had a few failed attempts to hold down employment through the spring and summer of 2006, adding to my already considerable anxiety.  Finally after several months of the anxiety, paranoia, and anger building for several months, I came to where I hadn’t slept in probably two and a half days.  By then I knew I had to do something to stop the deterioration I was going through.  That’s when I checked myself into the local mental health hospital.

With the fact I didn’t wait for the police to take me to the hospital, my stay as an inpatient lasted only one week.  Even though I wasn’t uncooperative and belligerent with the hospital staff and doctors, for the first three days I was confused and couldn’t focus at all.  I was also sleeping probably fourteen hours per day for those first three days as I was trying to regain my bearings.  One thing that I am absolutely convinced helped my recovery and allowed for my relatively short stay at the hospital was that I cooperated with the doctors and nurses even when I secretly didn’t want to.  Despite going through a breakdown, I knew I needed their help if I was going to recover and go home.  I think that I found favor with the doctors, nurses, and counselors because I was willing to cooperate, even if it was begrudgingly.  

Finally after a week in the hospital I was well enough to go home.  Even though I could have left probably any time I wanted as I was a voluntary commitment, I was sick and I knew I was not doing well at all.  After I left in early September 2006, it would be another seven years before I would go back to the hospital.

In September 2013, I went back to the hospital.  Once again I was a volunteer commitment.  I could tell that things were getting bad again like they were in 2006.  Because I took preventative measures to make sure things didn’t escalate completely out of control, I was in the hospital for only three and a half days this time.  This time I was still cooperative with the doctors, nurses, and counselors.  By this time I had been dealing with schizophrenia long enough that prolonged stress and anxiety over the course of weeks and months would ultimately lead to problems.  I also have a seasonal element to my schizophrenia as I tend to do better in winters and springs than I do in summers.  For some reason summers have always been a rough time for me.  Both of my hospitalizations took place in the month of September.

If I were to offer any advice to someone going to the hospital for the first time, it would simply be do what the doctors recommend, be as nice as you can with the nurses, be active in counseling, and at least attempt to get along with the other patients.  Believe me, your stay in the hospital will be much less troublesome.

 

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Struggles at Work with a Mental Illness

 

            When I first came out of college and entered into the world of work, I was all gung-ho and thought I could do it all.  I didn’t think that even schizophrenia was going to slow me down, let alone be a major hurdle to holding full-time employment.  I was wrong.

            I quickly found out that I couldn’t do all that I thought I could do.  I couldn’t work the forty-hour weeks that full time demands.  I couldn’t concentrate for long periods of time, at least not for the first few years out of college.  I would freeze up and have panic attacks around large crowds of people, especially people I didn’t really know.  So reality came crashing back down on me.

            I drifted from one job to another for the first two or three years I was out of college before I decided that I needed to take some time off and do some serious soul searching.  I needed to reevaluate my job strategy and why I wasn’t able to hold my jobs for longer than a few months at a time.  I needed to figure out why I was alienating myself from my coworkers and my supervisors.  Then one day in the fall of 2007 it finally dawned in me; I was not being honest about my illness to my employers.

            Let me state that again, I was not being honest about my illness to my employers.  Thanks to such laws as the Americans With Disabilities Act (ADA) and such third party go betweens as Goodwill and Vocational Rehab, workers with disabilities have a much easier time in the work place than they did in the past.  But I was not taking advantage of these programs.  These programs will not do you any good either if you refuse to acknowledge your need for help.  These programs are there for you to use; use them.

            I found out the very hard way the best thing an employee could ever be is not intelligent, skilled at their job, or even have good people skills.  No, by far more important is honesty and integrity.  And I was not doing myself any service by telling my supervisors I could do jobs without accommodations that, according to the ADA I was within my rights to request if it was made known I had a disability, in all reality I could not.  I was not helping myself. 

            In short, because of my pride and being in denial as to how bad my mental illness really was, I was lying to my supervisors as to my work ability.  I was also lying to my coworkers.  I was lying to myself.  All because I refused to acknowledge that I needed help.  I was too proud to ask for it. 

            It took me three years of failed jobs and a lot of heartache to figure out that the best thing a person with mental illness that wants to work can do is be completely honest about their illness.  Tell the truth.  If you cannot perform a duty, let it be known right up front.  According to the ADA, an employer has to make “reasonable” accommodations for a job to allow someone with a disability to perform that job.  Employers cannot refuse to hire someone simply because of a mental illness; that is hiring discrimination and that’s illegal. 

            In my paranoid state, before I stabled out and had some good work experience, I was afraid my mental illness would be held against me in a work place.  Paranoia that comes with schizophrenia can be tricky like that sometimes.  Fortunately I had a third party in Goodwill as a go between for me to help me find my last job.  This job I held over four years.  As a result I have seen that my previous paranoia about my illness being held against me was just paranoia; it never materialized into anything real.

            If anything I have found my employers willing to work with me and help me out during the rough times that I have had.  I still have flare ups occasionally where I have to miss work for a day every now and then.  But my supervisors are more than willing to work with me because I have been honest and up front with them about my illness.  It also helps that I’m a good worker who shows up on time and doesn’t leave until it’s quitting time and makes an effort to be friendly with my coworkers even on my bad days.

            In closing, my struggles at work were largely due to my not being honest with my supervisors as to the extent of my illness.  Once I broke that trust, it was only a matter of time before I was looking for another job.  If you are mentally ill and looking for work, be totally honest with your supervisors.  It will pay off in the long run.  And they will often be accommodating.

What Mental Illness Means For Me

I have occasionally been asked to describe what exactly what having a mental illness is like.  Now I don’t get as annoyed with such questions as I used to.  I mean, it is an honest question by people who, for the most part care.  Yet, I am still at a loss to describe my mental illness in a ten to fifteen second sound bite.  I haven’t always been mentally ill, so I can still remember from my childhood and teenage years what it was like not to have to deal with the crippling depression,chronic anxiety, delusions that seem so real (even when I try to convince myself they aren’t), hallucinations that, left unchecked, can be overwhelming by themselves, among other maladies that are associated with paranoid schizoprenia.

The crippling depression can, at times, leave me such that I literally don’t have the motivation to do much of anything.  During the times of depression, I will often alternate between times of intense sadness and intense anger.  I will usually try to isolate myself from physical contact with others during these times.  It’s nothing personal, I just don’t want to have the risk of a confrontation with anyone at these times.  I still can communicate with friends, family, counselors, support people, etc. by means of phone, e-mail, etc. but I don’t risk much personal contact with anyone during these times.  I certainly won’t be driving on the road during such episodes.  Far too risky.

Anxiety is another issue.  In my case, anxiety makes it impossible to hold most kinds of work.  I have tried and failed at several types of jobs, ranging from salesman to factory worker to maintenance man to graduate assistant.  I’ve really lost count of how many jobs I’ve held over the years.  I really have a hard time handling fast paced work where the public is involved.  So that alone eliminates many jobs.  The only job I held for longer than one year was a janitorial job where I primarily worked alone, could set my own priorities within limits, and I wasn’t bothered as long as the job was done well and on time.  Another issue about anxiety and mental illness is old fashioned office politics.  I never could figure those out.  Because of my anxiety, along with my paranoia, I often thought my coworkers and bosses were out to nail me.  Throw in depression about the whole deal and it meant for unpleasent work experiences all around.

The depression and anxiety doesn’t just effect my working life.  It also effects whatever social life I have.  My social life anymore consists of a few really close friends, some casual acquaintances, and my family.  I don’t have any friends from my previous jobs as I’ve lost contact with all of them (or wasn’t at the job long enough to make friends).  I haven’t dated in seven years.  The idea of going out on even a casual date scares me bad.  I just don’t know how to bring up the whole ‘I have a mental illness’ without scaring off a potential date.  There are times that complete solitude is overrated.

I have covered only part of what mental illness means to me.  I’ll have to cover the rest in a future post. 

Blasting Mental Illness Myths

    My name is Zach Foster and I have a mental illness.  My illness is Paranoid Schizophrenia.  I do not have multiple personalities.  I do not think I am Jesus Christ nor do I believe space aliens are following me.  These are common myths that Hollywood and popular culture trowel out about us who are mentally ill.  If left untreated, yes mental illness can become very difficult and very scary for the ill person and his/her loved ones.  Most of us who live in the very same communities and neighborhoods as the ‘chronically normal’ are receiving and participating in treatment and thus are no danger or threat to anyone. 

            Sadly the general public never hears about those of us mentally ill who are successful in treatment, successful in holding employment, successful with friendships, successful with family relations, and so on.  What are usually heard of are only the John Hinckley cases that turned violent.  Or on the other extreme, the case of Dr. John Nash who is a mathematics genius and a Nobel Prize winner, a case of someone with a severe illness but still went on to do great good.  Yet there are no praises for those who live with a mental illness but still manage to function reasonably well. 

            Just because I have a mental illness does not mean I was raised in a dysfunctional home.  The opposite was true.  My parents were very intelligent, well rounded, and good Christian people.  We had dinner as a family almost every night when my brother and I were kids, both my parents worked but had their schedules set so at least one or the other was always home when we came home from school, and I had a set of grandparents and several cousins that lived nearby.  My parents believed in discipline and much attention to detail, but that’s far better than having parents that are indifferent to their kids or just let their kids do whatever they want.  Kids need some freedom but also firm boundaries.  My parents understood this and did the best they possibly could. 

            My illness is not my own doing.  I am not an alcohol or drug abuser.  I have never used street drugs or illegal drugs.  I do not have a weak mind or a weak personality.  I may be mentally ill but I am also a college graduate.  I am a very capable and intelligent man, otherwise I wouldn’t be writing this.  I have a great deal of compassion and empathy for the suffering of those with mental illness.  And this is what this book is to be about.  It is a collection of short essays, often broken down by topic, to provide encouragement and moral support for those with mental illnesses and their loved ones.

            Being mentally ill does not mean that you are emotionally or mentally weak.  It would be heartless to think that someone with cancer or heart problems was physically weak and we refused to have compassion for those individuals.  Yet the public at large does just this exact same thing to the mentally ill.

            The general public at large has very little understanding of what mental illness truly is.  Fortunately that is starting to get better.  I didn’t use to tell my employers I was mentally ill for fear it would be used against me in my job.  I found that withholding that information actually hurt me worse than not telling the truth.  Since I wasn’t telling the whole truth about my situation and it would turn out I was a bit eccentric or would need a couple of days off suddenly, that would send up warning signs that would make my employers wonder what was really going on with me.  In my paranoia I wouldn’t tell the truth about my illness because I feared it would be held against me.  What was really being held against me was that I wasn’t truthful with my supervisors.  It caused a really nasty cycle of find a job, lose the confidence of my employers and coworkers, get laid off, and get my fears of my illness getting held against me confirmed.  When in truth things would have been just fine had I been completely honest right from the beginning.

            I now believe that the reason that there is so much stigma and fear of the mentally ill among the general public is because of just plain ignorance.  I say that not to imply that the general public is stupid.  Most people simply do not know about the issues and the truths about mental illness.  Yes, mental illness is a total lifestyle adjustment, not only for the patients but also for their loved ones, bosses, coworkers, and such.  No, mental illness does not mean that a person is going to become dangerous or violent if it is treated properly.  I do not believe most people to be malicious by nature.  What I do believe is that a lack of knowledge about mental illness and what we the mentally ill work with on a daily basis does lead to unintentional hurts, slights, callousness, tactlessness, and thoughtlessness.