A Letter To My 18 Year Old Self

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High school graduation season is in full swing in my home state.  Some times it’s tough to believe I’ve been out of high school for sixteen years.  So much has happened since I became an adult.  What follows is what I would tell myself if I had a time traveling DeLorean or funky booth like Dr. Who.

Dear Zach

You have just finished high school and your adult life now lays ahead of you shooting off into the unseen distance like the open highway in Jack Kerouac’s “On The Road.”  You didn’t take any time to appreciate the fact you graduated from high school, looking ahead to the challenges and opportunities of college instead.  You should have appreciated your time being somewhat of an outsider in your high school.  First because the people that struggle socially in high school often are the ones who adapt to the adult world better.  Be happy the highlight of your life wasn’t your last football game or Senior Prom.  You will face far tougher issues than losing the big game. You will have greater thrills than wearing an ill fitting rented suit and dancing among tinsel and paper miche decorations in a basketball gym.  Things like that will be remembered by NO ONE.

The challenges you will face in the coming years will be great and many.  When these challenges and disappointments come, you will be thankful for having developed a strong mind and ability to handle adversity, loss, loneliness and pain.  Because you didn’t have legions of fair weather friends, you will appreciate true friends and confidants.  Because you know what it’s like to be treated poorly, you will have compassion for others.  Because you didn’t allow yourself to concentrate on only academics or football or speech or your weekend retail job, you have made yourself a well rounded and well versed man.  Being well rounded won’t help you in a corporate job, but it will make you more self reliant and more aware of what’s going on around you.  It will make you interesting too.

I see you have your high school annuals.  You’ll be happy you kept them even if you go entire years without looking at them.  In coming years you will be amazed at how much you were involved, how much you accomplished, and how well prepared for college and the ‘fast times and hard knocks’ of the first several years of life in the real world.  Be happy you acted in the school play for two years, you won’t have that back.  Be happy you did three years of competitive speech, you developed courage and an ability to improvise, make split second decisions, and hide your fear from the outside world.  Be happy you played football for three years, even though you were at odds with your teammates. Not many people can say they did athletics in high school.  Millions may watch football from the stands in towns all over America on fall Friday nights, but you were part of the action.  It’s the closest you’ll ever get to feeling like a rock star or Roman gladiator.

Take joy in the fact you went to a small high school.  You may not have had dozens of Advanced Placement classes or a program for gifted students, but it will drive you to read and study on your own.  Be grateful you were unable to disappear in the crowd when you were harassed and annoyed by other students, it forced you to face your fear because you couldn’t run away.  Things like that develop courage and fortitude, running away from your problems or hiding in a clique won’t.  Be happy you couldn’t spend your days reading comic books or playing D&D.  Later on you’ll have friends whose only out of school activities were just that.  While they are good guys, be happy you had to rely on your own imagination to develop your own stories and got to draw upon real people and real experiences to find inspiration.  That, and most girls don’t find D&D and comic books fantasies very sexy.

Speaking of girls, don’t believe the nonsense you’ll date, party, and sleep around several nights a week in college.  “Animal House” has nothing to do with real college.  John Belusi won’t be your roommate.  You can go hang out, get a little crazy, etc. at times.  But you’ll be far ahead of 80 percent of your classmates when you keep things like that in moderation.  The few who do nothing but study won’t have the friends or the experiences.  You will be shot down and have girls stand you up even more in college than in high school.  You will have bad breakups, you will have terrible dates with girls, you will be frustrated, and you will have heartaches.  You will also realize that there are worse things than not having a girl in your life.  When you see high school and college classmates go through divorces and unhappy marriages, you might even be grateful for loneliness.

As far as your classes go, don’t get tough on yourself for not making Dean’s List or not graduating with honors.  Most people that get those honors studied easier subjects than Pre-Med or Business Management.  Spoiler alert, Zach, you won’t get the dream job you gunned for all the way through high school.  You will experience pains and horrors that make Dante’s “Inferno” look like an Adam Sandler comedy.  I won’t go into details because you won’t believe such things could happen to someone who worked as hard and was as ethical as you.  Just believe me when I say bad things happen to even good people.  That and no employer will ask to see your college diploma.

Zach, be grateful for the challenges ahead. They will teach you that you don’t need a prestigious job or lots of money to live a happy and content life.  You will learn the best things in life are other people and your experiences.  Be happy you went to the small college you did.  You got to make friends from all over America and the world.  Most people that go to large, prestigious universities don’t get to have the variety of friends you will.  Be happy when you get to learn early on that life isn’t about working most of your waking moments at a mind numbing job, chasing money to buy junk you don’t need to impress people who don’t care.  All I will tell you is every day you wake up, be thankful if aren’t a cubicle jockey or a serf in a designer suit racking up debts on meaningless trinkets and thrills.

In closing, Zach, always remember the words of the late Bill Hicks: “It’s just a ride.  And you can change it anytime you want.”  Be happy that you can and will.

Yours truly,

Your older self.

Trying to Understand ‘Normal’ With Mental Illness

This is going to be an open letter from one schizophrenic man to chronically normal people at large.  Or, at least, to the handful of you who happen to read these passages.  It is not meant to be angry or ranting.  Instead, think of it as a few honest questions about why you do what you do.  As a mentally ill man, I want to try to understand you neurotypical people a little better.  Yes, much of this will be tongue and cheek.  But these are questions I have nonetheless.

Dear Mr. and Ms. Normal, If I may be honest with you, as a mentally ill man I do not understand you.  I do not understand how you think or why you act the ways you do.  I do not understand why you socialize the way you do.  I do not come even close to understanding your office politics.  I would love to have at least some insight into mysterious ways of the normal.

The way you think is somehting I don’t understand.  I consider myself relatively intelligent, at least above average.  But there are things about your thought process I don’t get.  I have a hard time understanding why you normals may know what is good for you yet don’t act on it.  It makes sense why I, as a schizophrenic, don’t always know what’s best as I have a few voices in my mind competing for my attention. These voices are often giving contradictory advice.  I have voices in my mind that don’t agree on anything that not only argue with me, but often with each other.  As far as I can tell, you neurotypicals don’t have this disadvantage.  So I can’t figure out why you don’t always act in ways that benefit you and those around you.  You don’t hold several different opinions at the same time, do you?  So what is your excuse for knowing what is good but not acting on it?  You have only one voice within your mind, right?  Or is cognitive dissonance a bigger problem with the chronic normal than with the mentally ill?  I’m hopelessly confused.  Somebody please help me 🙂

The word schizophrenia is derived from a word meaning ‘split mind.’  Not only does my mind have a hard time perceiving the difference between what others say and what they actually mean, but I also have an inability to accurately read and understand a person’s body language and voice inflection.  Body language I simply cannot read.  If someone tries to tell me something with their body language, they just as well be speaking ancient Egyptian.  I also have problems interpreting voice inflections in that my default mode of operation is to assume most people are not happy with me and are actually quite disgusted with me.  It is my experience that when my boss or any authority figure wants to talk with me one on one, they are doing it to tell me what I’m doing wrong and that I am in serious trouble.  I’ve had too many of these less than constructive criticism sessions to believe you have anything but malicious intent when you do call me onto your turf to chat.  It is never for small chit chat or for them to tell me how thrilled they are with my work.  As a result, I don’t trust authority figures of any kind.  I can only guess where they are coming from and what their motives are.

I am unable to get inside someone’s head and try to figure out what they are thinking.  Yet, I feel like my mind’s a completely open children’s picture book for all comers to pick apart and dissect.  So, please understand how paranoid this makes me feel.  I know this is just my mental illness distorted view of looking at things, but I really feel like I am at a severe disadvantage in any social situation because you chronic normals ‘know’ what I am thinking whereas I can only guess what you are thinking.  Imagine what it would be like for you to be interrogated by the police and the cops haven’t yet told you what they are accusing you of.  I feel exactly like this every time an authority figure or coworker wants to talk with me in private and they refuse to tell me what it’s about.  In short, I hate office politics.  My inability to understand the game of office politics  that you chronic normals know by heart is one of the reasons I don’t have a regular job anymore.  It may be just a game to you neurotypicals, but for most of us mentally ill it isn’t fun and games.  And it never will be because you normals are apparently born knowing these rules and we the mentally ill aren’t.

As little as I understand the games of office politics and social interaction, I don’t understand the games of dating at all.  I wasn’t born knowing these rules.  No one bothered to sit me down and explain the rules of dating.  Or maybe it was explained during one of the ten days or so I missed from school between the ages of six and eighteen.  I missed very few days during my school career, but I apparently missed some extremely important material during those days.  Why couldn’t I have missed the days of school when all we discussed was the difference between ameobas and diatoms or when we were discussing anti-trust laws in the gilded age?  I would much rather know how to tell if a woman wanted me to ask her out then who was president when the Standard Oil trust was busted up.  I really have had practically no success with dating.  And it wasn’t just getting a girl to go on a date and then she wouldn’t go on a second date.  If only it was that problem. My problem was getting a girl to say yes to even a first date.  I actually had a girl laugh at me my freshman year of college when I asked her out.  I was thinking ‘I was just asking you to hang out off campus some Friday night.  I didn’t realize it was amateur comedy night at the Apollo.’ That is just one of my stories.  I’ve been shot down by women more than the Luffwaffe got shot down by the Royal Air Force.  I knew my game stunk just from my results.  But I never got told by anyone what I was doing wrong.  Was it some knowledge that I simply wasn’t born with?  Is it my Shrek like physical appearance?  Are people intimidated by physically strong men who are quite intelligent?  I don’t know.  My disappointing failures in the dating game eventually led me to giving up entirely.  The last time I was on even a casual date, a Texan was taking up residence in the White House.  So I’m probably at a severe disadvantage in the dating game anymore I don’t even know where to start. I’m not even sure if I am meant to date, to tell you the truth.

In short, I am living the life of a mentally ill man who’s clueless in the ways of love, socializing, and office politics.  I often feel like I would be better off living as a medieval Catholic monk and I’m not even Catholic.  I already have the vows of poverty, service, and celibacy down pat.  I live those every day.  I don’t think I could do the vow of silence so well.  But I hope you now know a little better why I have problems socializing and dating with neurotypicals.  I hope this explains to you, Mr. and Ms. Normal, why we the mentally ill often seem a bit off socially.  Yours truly, your humble mentally ill correspondent.

Not Holding ‘Traditional’ Employment, Losing Weight, and Changes

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It’s been at least two and half years since I last held a traditional job of any kind.  No doubt some would argue that since I have a good amount of intelligence, I have no reason not to be doing some kind of job.  I’m sure that some look upon me with disdain because I’m on Disability Insurance for a condition that they don’t understand, let alone acknowledge it’s existence.  At this point in my life and development I don’t hold this against anyone.  I’ve come to accept, without any degree of resentment, that some aren’t going to grasp why I decided to opt out of traditional employment.

I absolutely intend to go back into the workforce at some point in the future.  But, at this point and time in my life, I believe it far more important for myself to lose weight and get back into good health before I rejoin the workforce. As of this writing, I have lost at least 60 pounds since the middle of March 2014.  I still have a long way to go before I hit my final health and weight goal.  With my body build being what it is (short legs, short arms, large body, very thick bones, and more muscled than average) I doubt I’ll be able to finish a marathon even when I make final goal.  But I can certainly be healthy even with the natural framework I have.  I think that anyone can if they make the efforts to be more conscious about what they eat, what they do for exercise, and know themselves well enough to plan around their strengths and weaknesses.

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Sadly, when I worked I wasn’t able to lose weight.  This was even with doing jobs like janitorial and factory work where I had to keep moving at all times.  Whatever I burned off from these jobs I consumed back from the course of not tracking what I ate.  I wasn’t conscious about what I ate.  Since I usually came hold tired and worn out, as a result of carrying so much weight and working physical jobs, I made no efforts to exercise when I wasn’t at my place of employment.  And thus a vicious cycle of unhealthiness, fatigue from work, and depression plus anxiety from being out of shape enough I couldn’t do what I wanted in my hours away from the job was going on during the years I held even part time employment.  Serious changes were needed to break this cycle.

After I left my last paying job, I set out to attempt to get healthier.  I read many books on dieting, exercise, nutrition, motivation, and mental health.  I also decided to take a very long and completely honest assessment of my strengths, weaknesses, and tendencies.  I liked much of what I was able to uncover (my intelligence, my ability for keeping accurate records, attention to details, ability to adapt quickly, ability to learn quickly, etc.).  I also didn’t like much of what I found about my drawbacks (tend to be discouraged in the day to day work, often not keeping attention on the larger picture, tendencies to distraction, tendencies to attempt too many projects at once, tendency to get discouraged when not able to see progress, etc.).  I decided rather than trying to improve my deficits, I would instead develop my natural strengths enough to negate my weaknesses.

I decided I wanted to lose weight in the summer of 2013.  I didn’t seriously start losing weight and getting healthier until April 2014.  That is when I started tracking everything I ate.  Just as vital, I tracked all exercises I did.  I wanted to not only know what was going in my body,  I was also interested in what I was doing too.  Over a period of a few weeks, I noticed my activity was increasing while my consumption was decreasing.  Stretch that over several months, my consumption is still decreasing and my activity is not only increasing, but is getting easier to do.  I’m embarrassed to admit this, but on the day I decided without a doubt I was going to get to a set goal weight, in my case 225 pounds, on or before a set date in time, this date was March 17, 2019.  I picked March 17, 2019 only because it was exactly five years from the date when I decided I was ready to set out on the long journey to good health.

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By March 2014, I had done an inventory of my strengths, weaknesses, and motivations.  I also had a working knowledge of several different types of diet programs (such as Weight Watchers, South Beach, Paleo-Diets, Glycemic Index Diets, etc.).  I had stated, and written down, my intentions of losing weight and getting healthy by stating an exact weight I wanted to be at and gave myself a set time period to do this work.  I knew I enjoyed walking, whether it’s in a park or in the old downtown of my hometown.  So walking became a major element in my exercise program.  I also decided I would track what I ate and what exercises I did every day.  If this sounds like a lot of work, it is a lot of work.  It took almost fifteen years to get as unhealthy as I was.  I wasn’t going to get back to good health rushing into a program without doing some planning.  No one builds anything that lasts, it doesn’t matter if it’s a dog house or the new World Trade Center building in New York, without sitting down and making some plans.  Taking the time to evaluate what you have to work with and making plans accordingly is the key to any undertaking, not just getting into good health.

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Mental illness and the Decisions Made as a Result

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When I was first diagnosed with schizophrenia back in 2000, I was determined that in no way it would affect my plans for my life.  At the time I was in my second year of college studying pre-med courses.  I had done reasonably well in my first year of college even with an undiagnosed mental illness.  I figured that I would fight through this with very little problem.  Man, I was wrong.  After failing Organic Chemistry and having to drop a Calculus class, I was faced with some serious decisions to make.  I was also facing a mental illness that was getting worse with each passing day.  After half of a spring semester in 2001 of struggling to even make it to classes, let alone do well, I found myself in danger of flunking out entirely.  This was a serious blow to my ego and self confidence as I always prided myself on my grades and academic accomplishments.  At mid term, I made the painful decision to drop all of my classes and take a few months off.  

After approximately six weeks on the mend, I started working again.  In spite of my problems I never lost sight of the goal of graduating from college.  I knew that because of my failures in my science classes I would be forced to change directions.  It was gut wrenching for my dream of going into medical research to die.  I decided that I would study primarily business management for two reasons 1) I believed that it would make me employable once I left college even though I had no true business or sales experience or even ability. 2) Even though I loved both history and english, I thought that I could study those on my own and I really had little desire to teach once I left college.  As a result I ended up earning a degree in a job field I really had no aptitude  for.  Sure I learned some interesting things that helped me later in life once I had to live on a very limited budget.  But I never did use my degree in any kind of career.

One of the odd, and sad, things about my mental illness is that I retained almost all of my intelligence and problem solving skills while I completely lost my ability to manage stress, understand ‘office politics’, and relate to people as would be needed in a workplace environment.  Most people meeting me for the first time would never suspect I was mentally ill and can’t understand why I have had such problems in the workplace.  Because I don’t look like the stereotypical mentally il person, at least as the public understands mental illness, I used to get a great deal of ‘you’re not working hard enough’ or ‘you’re too lazy’ or ‘you just don’t play the game right’ and on and on.  Sadly, in America, we are often defined by what we do to make money.  I don’t know what it’s like in other nations.  But defining someone by their paid work, or lack thereof, is a really lousy way to measure some one up for their intrinsic worth.  

While I enjoyed my time working for the county courthouse as a custodian for the four years I did it, I was ready for something else.  After a few false starts, I think I found what I really enjoy doing in blogging and my other writings.  Sure they don’t pay the bills, and likely never will.  But it does give me a sense that I’m doing something positive for the small corner of the universe I’m in.

Struggles at Work with a Mental Illness

 

            When I first came out of college and entered into the world of work, I was all gung-ho and thought I could do it all.  I didn’t think that even schizophrenia was going to slow me down, let alone be a major hurdle to holding full-time employment.  I was wrong.

            I quickly found out that I couldn’t do all that I thought I could do.  I couldn’t work the forty-hour weeks that full time demands.  I couldn’t concentrate for long periods of time, at least not for the first few years out of college.  I would freeze up and have panic attacks around large crowds of people, especially people I didn’t really know.  So reality came crashing back down on me.

            I drifted from one job to another for the first two or three years I was out of college before I decided that I needed to take some time off and do some serious soul searching.  I needed to reevaluate my job strategy and why I wasn’t able to hold my jobs for longer than a few months at a time.  I needed to figure out why I was alienating myself from my coworkers and my supervisors.  Then one day in the fall of 2007 it finally dawned in me; I was not being honest about my illness to my employers.

            Let me state that again, I was not being honest about my illness to my employers.  Thanks to such laws as the Americans With Disabilities Act (ADA) and such third party go betweens as Goodwill and Vocational Rehab, workers with disabilities have a much easier time in the work place than they did in the past.  But I was not taking advantage of these programs.  These programs will not do you any good either if you refuse to acknowledge your need for help.  These programs are there for you to use; use them.

            I found out the very hard way the best thing an employee could ever be is not intelligent, skilled at their job, or even have good people skills.  No, by far more important is honesty and integrity.  And I was not doing myself any service by telling my supervisors I could do jobs without accommodations that, according to the ADA I was within my rights to request if it was made known I had a disability, in all reality I could not.  I was not helping myself. 

            In short, because of my pride and being in denial as to how bad my mental illness really was, I was lying to my supervisors as to my work ability.  I was also lying to my coworkers.  I was lying to myself.  All because I refused to acknowledge that I needed help.  I was too proud to ask for it. 

            It took me three years of failed jobs and a lot of heartache to figure out that the best thing a person with mental illness that wants to work can do is be completely honest about their illness.  Tell the truth.  If you cannot perform a duty, let it be known right up front.  According to the ADA, an employer has to make “reasonable” accommodations for a job to allow someone with a disability to perform that job.  Employers cannot refuse to hire someone simply because of a mental illness; that is hiring discrimination and that’s illegal. 

            In my paranoid state, before I stabled out and had some good work experience, I was afraid my mental illness would be held against me in a work place.  Paranoia that comes with schizophrenia can be tricky like that sometimes.  Fortunately I had a third party in Goodwill as a go between for me to help me find my last job.  This job I held over four years.  As a result I have seen that my previous paranoia about my illness being held against me was just paranoia; it never materialized into anything real.

            If anything I have found my employers willing to work with me and help me out during the rough times that I have had.  I still have flare ups occasionally where I have to miss work for a day every now and then.  But my supervisors are more than willing to work with me because I have been honest and up front with them about my illness.  It also helps that I’m a good worker who shows up on time and doesn’t leave until it’s quitting time and makes an effort to be friendly with my coworkers even on my bad days.

            In closing, my struggles at work were largely due to my not being honest with my supervisors as to the extent of my illness.  Once I broke that trust, it was only a matter of time before I was looking for another job.  If you are mentally ill and looking for work, be totally honest with your supervisors.  It will pay off in the long run.  And they will often be accommodating.